CAPRIN1 Foundation
@caprin1-foundation.bsky.social
Supporting families affected by CAPRIN1-related disorders through research, education and community connection.
Connect with us: https://linktr.ee/Caprin1
Connect with us: https://linktr.ee/Caprin1
As we get closer to the festive season, consider gifting a donation which will give hope to people with #CAPRIN1 variants.
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
December 23, 2025 at 10:01 AM
As we get closer to the festive season, consider gifting a donation which will give hope to people with #CAPRIN1 variants.
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
🧬 Genetic testing can unlock answers about CAPRIN1
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
December 22, 2025 at 1:02 PM
🧬 Genetic testing can unlock answers about CAPRIN1
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing.
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
December 18, 2025 at 12:04 PM
CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing.
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
Can you help us raise vital funds for #CAPRIN1 research?
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
December 16, 2025 at 10:01 AM
Can you help us raise vital funds for #CAPRIN1 research?
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Possible signs of a #CAPRIN1 variant may include:
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
December 14, 2025 at 3:02 PM
Possible signs of a #CAPRIN1 variant may include:
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
Parents. Adults. Caregivers. Clinicians. Researchers.
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
December 11, 2025 at 12:01 PM
Parents. Adults. Caregivers. Clinicians. Researchers.
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
Your involvement today fuels tomorrow’s breakthroughs.
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
December 10, 2025 at 10:01 AM
Your involvement today fuels tomorrow’s breakthroughs.
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
December 8, 2025 at 11:01 AM
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
December 5, 2025 at 12:03 PM
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
CAPRIN1 Foundation was founded by parents who wanted answers, support & connection. If you or someone you love is affected by a CAPRIN1 variant, we're here for you!
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
December 3, 2025 at 11:02 AM
CAPRIN1 Foundation was founded by parents who wanted answers, support & connection. If you or someone you love is affected by a CAPRIN1 variant, we're here for you!
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life.
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
December 1, 2025 at 10:01 AM
Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life.
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
November 28, 2025 at 12:01 PM
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Stay up to date on CAPRIN1 research, family stories and new opportunities to get involve by signing up to join our community.
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
November 26, 2025 at 6:02 PM
Stay up to date on CAPRIN1 research, family stories and new opportunities to get involve by signing up to join our community.
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
Your donation funds #CAPRIN1 research and awareness efforts worldwide!
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
November 24, 2025 at 10:00 AM
Your donation funds #CAPRIN1 research and awareness efforts worldwide!
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
Every research participant brings us closer to answers families have waited for. If you or your child has a CAPRIN1 variant, we’d love to hear from you.
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
November 21, 2025 at 10:00 AM
Every research participant brings us closer to answers families have waited for. If you or your child has a CAPRIN1 variant, we’d love to hear from you.
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
You are not alone. Join a global network of families, advocates and researchers working to understand CAPRIN1-related conditions.
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
November 19, 2025 at 10:00 AM
You are not alone. Join a global network of families, advocates and researchers working to understand CAPRIN1-related conditions.
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
If your child has been diagnosed with autism, speech delay, or developmental challenges, there could be an underlying genetic reason, like a rare CAPRIN1 mutation. Learn the signs, why it matters, and how genetic testing could give you answers.
July 26, 2025 at 2:02 PM
If your child has been diagnosed with autism, speech delay, or developmental challenges, there could be an underlying genetic reason, like a rare CAPRIN1 mutation. Learn the signs, why it matters, and how genetic testing could give you answers.
CAPRIN1 is the name of a gene that helps make a protein important for brain function and communication between brain cells. We’re still learning, hence your voice matters. Share, support, and connect—because awareness is powerful. #CAPRIN1 #RareDiseaseAwareness #GeneticSupport #Neurodevelopment
June 7, 2025 at 3:42 PM
CAPRIN1 is the name of a gene that helps make a protein important for brain function and communication between brain cells. We’re still learning, hence your voice matters. Share, support, and connect—because awareness is powerful. #CAPRIN1 #RareDiseaseAwareness #GeneticSupport #Neurodevelopment