Digital body knowledge: A research project
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project
@c02.sfb1472.uni-siegen.de
18 followers 13 following 25 posts
Exploring how patient-generated data re/shape doctor-patient relationships. Investigating the impact of wearable, app & platform data on medical authority, patient agency & professional knowledge. https://tinyurl.com/c02sfb1472
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c02.sfb1472.uni-siegen.de
Madeleine Akrich shows in “From Communities of Practice to Epistemic Communities” (2010) how (online) health groups become epistemic communities that produce their own knowledge. This shifts the view of lay expertise from application to production.

doi.org/10.5153/sro.2152

#layexpertise
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
November 18, 2025 at 9:43 AM
c02.sfb1472.uni-siegen.de
In “The nature of the Net” (2004), Samantha Adams & Marc Berg reframe the problem of extension: as lay expertise spreads online, the issue becomes one of reliability – a quality made, not given.

doi.org/10.1108/09593840410542484

#layexpertise
The nature of the Net: constructing reliability of health information on the Web
This article juxtaposes the history of the book to the current discussions about lay health information on the Internet in order to thoroughly open up the notion of “reliability” that underlies these ...
doi.org
November 11, 2025 at 9:27 AM
c02.sfb1472.uni-siegen.de
Harry Collins & Robert Evans argue in "The Third Wave of Science Studies" (2002) that dissolving boundaries between experts & publics risks an unlimited "problem of extension." Their solution: distinguishing interactive from contributory expertise.

doi.org/10.1177/0306...

#layexpertise
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
September 8, 2025 at 12:38 PM
c02.sfb1472.uni-siegen.de
“May the Sheep Safely Graze?” (1998) by Brian Wynne probes the expert-lay divide, showing how local knowledges – like farmers’ insights on soil & sheep – are sidelined. He reframes science as cultural practice that stabilises authority, not universal truth.

doi.org/10.4135/9781...

#layexpertise
Sage Academic Books - Risk, Environment and Modernity: Towards a New Ecology
<p>This wide-ranging and accessible contribution to the study of risk, ecology and environment helps us to understand the politics of ecology and the place of s
doi.org
September 5, 2025 at 12:52 PM
c02.sfb1472.uni-siegen.de
In "The Meaning and Significance of Lay Expertise" (2023), Steven Epstein revisits the concept's development, addressing critiques & outlining key dimensions, highlighting lay expertise as a hybrid, collective fusion of experiential & formal knowledge.

doi.org/10.1093/oxfo...

#layexpertise
The Oxford Handbook of Expertise and Democratic Politics
Abstract. This volume brings together investigations from social scientists, philosophers, and legal scholars into the political dimensions of expertise. I
doi.org
September 3, 2025 at 10:22 AM
c02.sfb1472.uni-siegen.de
Steven Epstein shows in “The Construction of Lay Expertise” (1995) how AIDS activists in the 1980s strategically engaged with experts. A crucial factor was their appropriation of biomedical knowledge to gain credibility, reform trials & reshape biomedicine.

doi.org/10.1177/0162...

#layexpertise
The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials - Steven Epstein, 1995
In an unusual instance of lay participation in biomedical research, U.S. AIDS treatment activists have constituted themselves as credible participants in the pr...
doi.org
September 1, 2025 at 2:55 PM
c02.sfb1472.uni-siegen.de
In “On the Multiplicity of Lay Expertise” (2023), Madeleine Akrich & Vololona Rabeharisoa show how patient associations practise evidence-based activism, articulating experiential & credentialed knowledge into expertise that reshapes health politics.

doi.org/10.1093/oxfo...

#layexpertise
The Oxford Handbook of Expertise and Democratic Politics
Abstract. This volume brings together investigations from social scientists, philosophers, and legal scholars into the political dimensions of expertise. I
doi.org
August 29, 2025 at 12:05 PM
c02.sfb1472.uni-siegen.de
“Most People with Long COVID Are Their Own Doctors” by @sazanajayadeva.bsky.social & @dalupton.bsky.social (2025) shows vividly how self-help and self-tracking turn patients into experts for themselves while problematising medical authority.

journals.sagepub.com/doi/10.1177/...

#layexpertise
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025
This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...
journals.sagepub.com
August 27, 2025 at 6:17 PM
c02.sfb1472.uni-siegen.de
Our project is part of the Collaborative Research Centre (SFB) 1472 „Transformations of the Popular“, funded by the German Research Foundation (DFG). #DigitalHealth #eHealth #mHealth #MedicalAuthority #PatientGeneratedData [3/3]
March 25, 2025 at 11:06 AM
c02.sfb1472.uni-siegen.de
We explore opportunities & conflicts arising when patients generate & present their own biomedical data. How do digitalisation & the popularisation of wearables & patient-generated data challenge medical authority? Do they create new ways of legitimising professional expertise? [2/3]
March 25, 2025 at 11:06 AM