Digital body knowledge: A research project
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c02.sfb1472.uni-siegen.de
Digital body knowledge: A research project
@c02.sfb1472.uni-siegen.de
Exploring how patient-generated data re/shape doctor-patient relationships. Investigating the impact of wearable, app & platform data on medical authority, patient agency & professional knowledge. https://tinyurl.com/c02sfb1472
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Wearables, apps & platforms generate more & more body data, shaping how medical knowledge is produced & applied. In our project, 'Digital Body Knowledge. Fault Lines of Problematic Popularity in Health Care', we explore how these developments impact interactions between patients & doctors. [1/3]
We had a fantastic workshop today with Kate Weiner, Lisa Gerzen & @enricomariapiras.bsky.social! In our Data Sprint, we explored forums where people with obesity, sleep apnoea & ME/CFS discuss tracking devices and (digital) health data. Supported by @sfb1472.uni-siegen.de & funded by @dfg.de.
October 24, 2025 at 6:55 PM
After introducing this research project via our past publications, we now start an ongoing thread on a key concept in our work: lay expertise. In the weeks ahead, we’ll present classics and brand-new texts we consider central and relevant – and welcome your comments and suggestions! #layexpertise
August 25, 2025 at 3:22 PM
Spending this very hot day while listening to very cool talks at the symposium "Therapeutic Encounters with Chatbots: The Social and Ethical Implications of Artificial Therapeutic Agents" (www.college-uaruhr.de/news-events/...), organised by @benjaminmarent.bsky.social and Sebastian Merkel. #sts
July 1, 2025 at 12:28 PM
Last stop on our journey through the archive: In 2021, we explored how "the popular" has changed - from cultural distinction to measurable attention. The German version of the article we posted some weeks ago is available here (Open Access): doi.org/10.2478/kwg-2021-0027

#SFB1472
FELIX MEINER VERLAG: Was bei vielen Beachtung findet: Zu den Transformationen des Populären
doi.org
June 10, 2025 at 2:06 PM
How have digital tools shaped medicine - from early expert systems to mobile tech? In Digitalisierung und Gesundheit, the anthology we introduced last week, we explore decades of change from a sociotechnical perspective (in German): www.nomos-elibrary.de/10.5771/9783...

#sfb1472 #digitalhealth
www.nomos-elibrary.de
June 3, 2025 at 9:46 AM
Back to 2022 in our project introduction: What does digitalisation mean for healthcare? The volume "Digitalisierung und Gesundheit" (Digitalisation and Health, in German) explores AI, diagnostics, and care across disciplines: www.nomos-shop.de/de/p/digital...

#sfb1472 #digitalhealth
Digitalisierung und Gesundheit
www.nomos-shop.de
May 27, 2025 at 11:47 AM
Moving further back in our project intro, this week we're sharing a report on the 2022 annual conference of Collaborative Research Centre 1472 "Transformations of the Popular", titled "Participation as Challenge".

Full text (in German): doi.org/10.28937/978...

#sfb1472
FELIX MEINER VERLAG: Partizipation als Herausforderung
doi.org
May 20, 2025 at 3:30 PM
Looking back at our research, this week’s spotlight is on misophonia, a diagnosis shaped online, where laypeople and experts co-create medical meaning. We illustrate how communities fight for recognition and define illness. Full text (in German): doi.org/10.1007/s412...

#sfb1472 #digitalhealth
»Making Up Misophonic People« - Zeitschrift für Literaturwissenschaft und Linguistik
Those affected by misophonia describe it as one of the first full-fledged diagnoses of the internet age. People who feel an insurmountable hatred of specific sounds gather in forums and on platforms. ...
doi.org
May 13, 2025 at 10:16 AM
New week, new post in our intro series: What does it mean to be popular today? This article traces how popularity shifted from cultural distinction to measurable attention – via charts, clicks & likes. Read more: www.mdpi.com/2076-0752/12...
#SFB1472 #OpenAccess
www.mdpi.com
April 29, 2025 at 11:38 AM
Next up in our intro series: How do laypeople and experts interact in shifting institutions like medicine, politics, and religion? This 2023 special issue maps the terrain of knowledge, power & participation. Full text (in German): doi.org/10.1007/s41244-023-00314-1

#SFB1472 #OpenAccess
Expert*innen-Lai*innen-Kommunikation im institutionellen Wandel – Beispiele aus Medizin, Kommunalpolitik und Kirche - Zeitschrift für Literaturwissenschaft und Linguistik
Zeitschrift für Literaturwissenschaft und Linguistik -
doi.org
April 22, 2025 at 9:15 AM
Auch wir haben einen Beitrag zur neuen Ausgabe der POP beigesteuert: unsere Überlegungen zu Konvergenzen zwischen Lifestyle-Wearables und zertifizierten Medizinprodukten am Beispiel der Apple Watch, welche im Rahmen des @sfb1472.uni-siegen.de entstanden sind.
Die neue Ausgabe der »Pop«-Zeitschrift ist erschienen!

– etwa zu Geld, Prompts, Modezyklus, KI-Krieg, Donald Trump, Dark Romance, geschrieben von u.a. Annekathrin Kohout, Kaspar Maase, Lars Koch, Jörg Scheller und Maren Lickhardt.

pop-zeitschrift.de/2025/04/08/h...
April 16, 2025 at 10:25 AM
On we go with our project intro and another throwback: In 2023, we explored how wearables like Fitbits generate “grey data” – private, yet popular health info. What makes it popular, what makes it tricky? Full text (in German): doi.org/10.14361/pop...
BEACHTUNG UND BEWERTUNG POPULÄRER KÖRPERDATEN
Article BEACHTUNG UND BEWERTUNG POPULÄRER KÖRPERDATEN was published on April 1, 2023 in the journal POP. Kultur und Kritik (volume 12, issue 1).
doi.org
April 8, 2025 at 9:14 AM
Continuing our journey backwards with our penultimate publication: This article explores how doctors respond to patient-generated health data from consumer devices. When do they reject, tolerate or integrate such data? Read more: doi.org/10.1111/1467...
Patient‐Generated Data as Interventions in Doctor‐Patient Relationships? Negotiating (Un)Invited Participation in Medical Consultations
Health data generated by apps and devices are increasingly popular and expected to affect various aspects of doctor-patient relationships. No longer confined to medically authorised and certified hea....
doi.org
April 1, 2025 at 6:46 AM
Hello Bluesky! Our research project has already been running for 4 years, but since we're new on this platform, we’d like to introduce ourselves. Over the coming weeks, we’ll share our findings—starting with our latest publication and working backward. Check it out: doi.org/10.1080/1369...
Old data in new media? Problematic popularity of digital health data and consumer devices
Digital health data and devices have become increasingly popular in contemporary consumer cultures. This resonates with research on the expansion of health data ecosystems and the rise of consumeri...
doi.org
March 28, 2025 at 11:28 AM
Wearables, apps & platforms generate more & more body data, shaping how medical knowledge is produced & applied. In our project, 'Digital Body Knowledge. Fault Lines of Problematic Popularity in Health Care', we explore how these developments impact interactions between patients & doctors. [1/3]
March 25, 2025 at 11:06 AM