For people with ME, energy must be carefully rationed and I am incredibly grateful to those who chose to spend some of this energy sharing their experiences with me by participating in my PhD research. I will continue to advocate for your stories to be heard.

#SevereME #SevereMEMonth #MEAwareness

Advocacy must continue to ensure that the debilitating and widespread impacts of ME are recognised in Australian healthcare policies. Importantly, vital services must be readily accessible for people with severe ME who are too unwell to present to healthcare centres.

#SevereME #SevereMEMonth #pwME

The profound, disabling impacts of living with ME are often invisible, both due to the illness’ symptoms and isolating nature. This is magnified for those living with severe forms of ME who are house- or bed-bound.

#SevereME #SevereMECFS #SevereMEMonth #MECFS #MECFSAwareness #MEMedia #MEAction

The lived experiences of #MECFS consumers have directly informed my PhD research. I am sincerely thankful to all the people with ME/CFS from whom I have had the opportunity to learn throughout my PhD candidature and who have made this research possible.

#MEAwarenessDay #WorldMEDay #pwMECFS #pwME

Improved recognition of the lived experiences of people with #MECFS is imperative to meet their care needs and maximise health outcomes. This is an ongoing public health challenge and International #MECFSAwarenessDay, in particular, is an opportunity to advocate for these necessary changes.

#pwME

People with #MECFS have significantly poorer quality of life across all aspects of health compared with healthy people. Yet, the symptoms experienced by people with ME/CFS are often dismissed and the condition is poorly recognised in healthcare policies.

#MEAwarenessDay #WorldMEDay #pwMECFS #pwME

These findings further validate the real and physically disabling nature of #LongCOVID and #MECFS. This reiterates the need for access to multidisciplinary care and support services for all people with Long COVID and people with ME/CFS to manage these debilitating conditions.

#pwLC #pwMECFS #pwME

In this review of 16 studies, people with Long COVID and people with ME/CFS similarly experienced a pronounced burden on physical health and the ability to participate in typical daily activities, including work.

#LongCOVID #pwLC #LongCOVIDAwareness #MECFS #pwMECFS #pwME #MECFSAwareness

Source:

link.springer.com/article/10.1...

Illness presentation and quality of life in myalgic encephalomyelitis/chronic fatigue syndrome and post COVID-19 condition: a pilot Australian cross-sectional study

I am incredibly grateful to have been able to learn directly from people with Long COVID throughout my PhD. Thank you to all those who have been a part of my PhD studies for sharing your stories with me and for making this research possible.

#LongCOVID #LongCOVIDAwarenessDay #pwLC