Brain Support Network
@brainsupportnet.bsky.social
We have helped over 1,500 families donate a loved ones brain we can help your family too. #atypicalparkinsons #braindonation #lbd #psp #msa #cbd
Get REAL Compassion: Building Sustainable Skills of Compassion and Presence
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
November 11, 2025 at 5:33 PM
Get REAL Compassion: Building Sustainable Skills of Compassion and Presence
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Register Today: events.zoom.us/ev/AkzTgvgEi...
#lewybodydementia #lbd #caregiving
Thank you, Veterans! We honor you and your service.
- Brain Support Network
- Brain Support Network
November 11, 2025 at 5:27 PM
Thank you, Veterans! We honor you and your service.
- Brain Support Network
- Brain Support Network
ALZForum: Taking Steps to Ward Off Tangles
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
November 11, 2025 at 5:23 PM
ALZForum: Taking Steps to Ward Off Tangles
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.
www.alzforum.org/news/researc...
“More help = more self care.”
– Local Support Group Member
– Local Support Group Member
November 10, 2025 at 6:24 PM
“More help = more self care.”
– Local Support Group Member
– Local Support Group Member
This Friday, Nov. 14: AFA Fireside Chat
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
November 10, 2025 at 6:13 PM
This Friday, Nov. 14: AFA Fireside Chat
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
Sundown Syndrome:
Signs, Symptoms, and Steps to Help
Friday, November 14 | 1 PM ET
alzfdn.org/event/sundow...
#dementia
BSN's Third Mission: Caregiver Support Group
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
November 6, 2025 at 5:35 PM
BSN's Third Mission: Caregiver Support Group
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).
Learn more: www.brainsupportnetwork.org/about-bsn/mi...
Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
November 6, 2025 at 5:33 PM
Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
Wednesday, November 12, 10am
Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
#parkinsons
I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing.
Sharon L.
10/26/25
Sharon L.
10/26/25
November 5, 2025 at 6:20 PM
I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing.
Sharon L.
10/26/25
Sharon L.
10/26/25
Music and Parkinson’s
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
November 5, 2025 at 6:15 PM
Music and Parkinson’s
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
Tuesday, November 11, 4pm
Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
www.marylandparkinsonsupport.org/events/conve...
#parkinsons
National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors.
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
November 4, 2025 at 6:10 PM
National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors.
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
PSPA Podcast Series Three: The Benefit of Movement
In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for.
www.pspassociation.org.uk/wp-content/u...
#PSP #Parkinsons
In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for.
www.pspassociation.org.uk/wp-content/u...
#PSP #Parkinsons
November 4, 2025 at 5:59 PM
PSPA Podcast Series Three: The Benefit of Movement
In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for.
www.pspassociation.org.uk/wp-content/u...
#PSP #Parkinsons
In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for.
www.pspassociation.org.uk/wp-content/u...
#PSP #Parkinsons
November is the month to highlight the importance of early detection and diagnosis of Alzheimer's disease, as well as supporting our caregivers, families, and researchers all working to promote brain health.
Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...
Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...
November 3, 2025 at 6:35 PM
November is the month to highlight the importance of early detection and diagnosis of Alzheimer's disease, as well as supporting our caregivers, families, and researchers all working to promote brain health.
Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...
Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...
“I have joined several support groups – one for caregivers-only, one for the particular disorder I’m coping with, and one for dementia caregivers. Each is helping me.”
– Local Support Group Member
– Local Support Group Member
November 3, 2025 at 6:24 PM
“I have joined several support groups – one for caregivers-only, one for the particular disorder I’m coping with, and one for dementia caregivers. Each is helping me.”
– Local Support Group Member
– Local Support Group Member
Parkinson’s Basics: What You Need to Know
Wednesday, November 5, 10am
Speaker: Kristen Matulis, DNP
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
Wednesday, November 5, 10am
Speaker: Kristen Matulis, DNP
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
November 3, 2025 at 6:23 PM
Parkinson’s Basics: What You Need to Know
Wednesday, November 5, 10am
Speaker: Kristen Matulis, DNP
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
Wednesday, November 5, 10am
Speaker: Kristen Matulis, DNP
Host: @parkinsondotorg.bsky.social
secure.parkinson.org/site/Calenda...
It's very cool that so many of the brain conditions listed in my mother's autopsy report were discovered through brain donation. We have learned a lot but have so much more to learn!
Emily S.
10/17/25
#braindonation
Emily S.
10/17/25
#braindonation
October 31, 2025 at 5:45 PM
It's very cool that so many of the brain conditions listed in my mother's autopsy report were discovered through brain donation. We have learned a lot but have so much more to learn!
Emily S.
10/17/25
#braindonation
Emily S.
10/17/25
#braindonation
America's Caregiving Crisis Is Getting Worse
U.S. family #caregivers are doing more than ever before — with less
www.nextavenue.org/americas-car...
U.S. family #caregivers are doing more than ever before — with less
www.nextavenue.org/americas-car...
October 29, 2025 at 5:37 PM
America's Caregiving Crisis Is Getting Worse
U.S. family #caregivers are doing more than ever before — with less
www.nextavenue.org/americas-car...
U.S. family #caregivers are doing more than ever before — with less
www.nextavenue.org/americas-car...
ALZ Talks: Home Safety to Support Independence
Oct 30, 2025 08:00 AM in
Pacific Time (US and Canada)
Home safety needs can change over time for people living with #Alzheimer's disease or another dementia.
alz-org.zoom.us/webinar/regi...
Oct 30, 2025 08:00 AM in
Pacific Time (US and Canada)
Home safety needs can change over time for people living with #Alzheimer's disease or another dementia.
alz-org.zoom.us/webinar/regi...
October 28, 2025 at 4:34 PM
ALZ Talks: Home Safety to Support Independence
Oct 30, 2025 08:00 AM in
Pacific Time (US and Canada)
Home safety needs can change over time for people living with #Alzheimer's disease or another dementia.
alz-org.zoom.us/webinar/regi...
Oct 30, 2025 08:00 AM in
Pacific Time (US and Canada)
Home safety needs can change over time for people living with #Alzheimer's disease or another dementia.
alz-org.zoom.us/webinar/regi...
“If you feel like you can’t do this another day on your own, you probably needed help six months ago.” – Local Support Group Member
October 27, 2025 at 5:30 PM
“If you feel like you can’t do this another day on your own, you probably needed help six months ago.” – Local Support Group Member
PSPA Carers Wellbeing Hub
A hub of wellbeing information and resources for carers.
This UK hub houses information and resources to help support you in your role as a carer or family member of someone living with #PSP or #CBD.
www.pspassociation.org.uk/information-...
A hub of wellbeing information and resources for carers.
This UK hub houses information and resources to help support you in your role as a carer or family member of someone living with #PSP or #CBD.
www.pspassociation.org.uk/information-...
October 27, 2025 at 5:23 PM
PSPA Carers Wellbeing Hub
A hub of wellbeing information and resources for carers.
This UK hub houses information and resources to help support you in your role as a carer or family member of someone living with #PSP or #CBD.
www.pspassociation.org.uk/information-...
A hub of wellbeing information and resources for carers.
This UK hub houses information and resources to help support you in your role as a carer or family member of someone living with #PSP or #CBD.
www.pspassociation.org.uk/information-...
Terminology
To be diagnosed with Parkinson’s Disease, someone must have two of four symptoms: rigidity, bradykinesia (slow movement), tremor, or postural instability.
Learn more:
www.brainsupportnetwork.org/education/at...
To be diagnosed with Parkinson’s Disease, someone must have two of four symptoms: rigidity, bradykinesia (slow movement), tremor, or postural instability.
Learn more:
www.brainsupportnetwork.org/education/at...
October 23, 2025 at 5:18 PM
Terminology
To be diagnosed with Parkinson’s Disease, someone must have two of four symptoms: rigidity, bradykinesia (slow movement), tremor, or postural instability.
Learn more:
www.brainsupportnetwork.org/education/at...
To be diagnosed with Parkinson’s Disease, someone must have two of four symptoms: rigidity, bradykinesia (slow movement), tremor, or postural instability.
Learn more:
www.brainsupportnetwork.org/education/at...
Many friends and family have commented on my husband Jeff’s generosity in donating his brain! You, and everyone who worked with you at Brain Support Network, made Jeff’s departure from our home such a positive experience.
Elizabeth S.
8/10/25
Elizabeth S.
8/10/25
October 23, 2025 at 5:12 PM
Many friends and family have commented on my husband Jeff’s generosity in donating his brain! You, and everyone who worked with you at Brain Support Network, made Jeff’s departure from our home such a positive experience.
Elizabeth S.
8/10/25
Elizabeth S.
8/10/25
My family and I are so thankful for Brain Support Network and all the support you all have provided throughout this journey.
Kylie L.
7/31/25
Kylie L.
7/31/25
October 21, 2025 at 4:31 PM
My family and I are so thankful for Brain Support Network and all the support you all have provided throughout this journey.
Kylie L.
7/31/25
Kylie L.
7/31/25
“Learn to say ‘no.’ Caregiving or household tasks can be delegated to others. If you get overwhelmed, you may feel resentful.”
– Janet Edmunson, author
– Janet Edmunson, author
October 20, 2025 at 5:19 PM
“Learn to say ‘no.’ Caregiving or household tasks can be delegated to others. If you get overwhelmed, you may feel resentful.”
– Janet Edmunson, author
– Janet Edmunson, author
2025 CurePSP Care Conference
November 19, 2025, 01:00 PM - 05:00 PM
The CurePSP Care Conference is a virtual opportunity for our community to hear from various healthcare providers on topics relevant to care partners, families and people living with #PSP, #CBD and #MSA.
www.psp.org/events/detai...
November 19, 2025, 01:00 PM - 05:00 PM
The CurePSP Care Conference is a virtual opportunity for our community to hear from various healthcare providers on topics relevant to care partners, families and people living with #PSP, #CBD and #MSA.
www.psp.org/events/detai...
October 20, 2025 at 5:00 PM
2025 CurePSP Care Conference
November 19, 2025, 01:00 PM - 05:00 PM
The CurePSP Care Conference is a virtual opportunity for our community to hear from various healthcare providers on topics relevant to care partners, families and people living with #PSP, #CBD and #MSA.
www.psp.org/events/detai...
November 19, 2025, 01:00 PM - 05:00 PM
The CurePSP Care Conference is a virtual opportunity for our community to hear from various healthcare providers on topics relevant to care partners, families and people living with #PSP, #CBD and #MSA.
www.psp.org/events/detai...
Thanks to all of you at Brain Support Network for the help you have given me in navigating the brain donation process. I am comforted to know that my husband Tom had Parkinson's and Alzheimer's Disease...
Mary A.
7/30/25
Mary A.
7/30/25
October 17, 2025 at 4:57 PM
Thanks to all of you at Brain Support Network for the help you have given me in navigating the brain donation process. I am comforted to know that my husband Tom had Parkinson's and Alzheimer's Disease...
Mary A.
7/30/25
Mary A.
7/30/25