#lewybodydementia
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lewybodysociety.bsky.social
This illustrates the fluctuating nature of cognition in Lewy body dementia - some people with the disease continue to be "intellectually smart" while struggling carry out basic tasks on other occasions. Incredibly frustrating for them

www.bbc.co.uk/news/article...

#Lewybodydementia
Dementia has not stopped South Tyneside man speaking multiple languages
Nigel Thomas, 79, has dementia with Lewy bodies which is often misdiagnosed as Parkinson's.
www.bbc.co.uk
February 10, 2026 at 1:46 PM
lewybodysociety.bsky.social
On World Lewy Body Day earlier this week, we were incredibly honoured to host the premiere of our new short film about life with Lewy bodies at an iconic London landmark.

#lbaw2026 #lewybodyawaresnessweek #lewybodydementia

youtu.be/I2p9XQM5VLc?...
What is life with Lewy body dementia really like?
YouTube video by The Lewy Body Society
youtu.be
January 30, 2026 at 12:43 PM
lewybodysociety.bsky.social
Great to see the Dementia and Delirium team at St Bartholomew's Hospital in London yesterday for World Lewy Body Day with Rachel Thompson, Consultant Admiral Nurse Rachel Thompson.

#WorldLewyBodyDay #LBAW2026 #LewyBodyAwarenessWeek #Lewybodydementia
January 29, 2026 at 2:39 PM
lewybodysociety.bsky.social
If you recognise these symptoms in yourself or someone you know, contact your GP. Admiral nurses are specialist dementia nurses who are on hand: 0800 888 6678 or email helpline@dementiauk.org

#worldlewybodyday #lbaw2026 #lewybodyawarenessweek #lewybodydementia #lewybodydementia
January 28, 2026 at 10:00 AM
lewybodysociety.bsky.social
That is amazing! What a great design. Thank you for sharing with us.

#LewyBodyAwarenessWeek #LBAW2026 #lewybodydementia #dementia
January 26, 2026 at 7:26 PM
lewybodysociety.bsky.social
Thank you for sharing this - it is so important that people understand that not all dementias are all about memory loss.

#LBAW2026 #Lewybodydementia #connectthedots 🔵🔵🔵
January 26, 2026 at 2:23 PM
lewybodysociety.bsky.social
We have had a fantastic afternoon in Parliament for World Lewy Body Day.

#WorldLewyBodyDay #LBAW2026 #LewyBodyAwarenessWeek #lewybodydementia
January 28, 2026 at 5:23 PM
lewybodysociety.bsky.social
This Mental Health Awareness Week is all about celebrating community, and how it supports our mental health and wellbeing.

We are the Lewy body community, we couldn't think of better people to be with.

#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia
May 15, 2025 at 8:24 AM
mustntgrumble.bsky.social
#lewybodydementia

Continuing paperwork review from mum’s bungalow - notes & messages to herself. Including newspaper clippings about hallucinations & ‘visual dysfunction’ going back to 2014.

PLUS diagnosis of basal cell carcinoma (completely misreported) so now have to address this. *sigh*
September 11, 2024 at 2:43 PM
coupdegraz7.bsky.social
#airpollution #dementia #LewyBodyDementia
September 6, 2025 at 6:25 AM
lewybodysociety.bsky.social
A year today, Tom Skinner will be braving the World's Toughest Row to raise money for Lewy Body Society.

He will be spending next Christmas entirely alone in a tiny rowing boat in the middle of the Atlantic. Two years ago, he hadn't even picked up an oar!

#Lewybodydementia #Dementia
Dad sticks his oar in for Lewy body dementia in solo trans-Atlantic “Toughest Row” - Lewy Body
A DAD is hoping to make his family proud by taking on the World's Toughest Row to raise £100,000 for those living with Lewy body dementia.
www.lewybody.org
December 12, 2024 at 11:41 AM
mustntgrumble.bsky.social
A hard path to travel. Sending strength to you #LewyBodyDementia
January 11, 2025 at 10:22 PM
nowbreezing.ntw.app

Bluesky's Top 10 Trending Words from the Past 10 Minutes:
️⚠️💨2 - spices
️⚠️💨2 - taco
️⚠️💨2 - spice
️⚠️💨2 - tacos
️⚠️💨1 - pepper
️⚠️💨1 - spicy
️⚠️💨1 - walz's
️⚠️💨1 - ukraine
9th - privilege
10th - powder
(tap/click to see all posts on Bluesky featuring that word!)

#йобанарусня 🇺🇦
Word Cloud; its top words (sorted by weighted frequency, descending): spices, taco, spice, tacos, pepper, spicy, walz's, ukraine, privilege, powder, mexican, foods, slogan, romulus, upper, underworld, shares, serving, midwest, chili, 같은, 台風, ワールド, おもろ, wisconsin, vezes, tuna, transport, strands, reward, piercings, offended, mistakes, initially, frequently, após, advertising, 1,154, 頻度, 送り火, 貯め, 複雑, 看板, 抑え, 変換, 呟き, 合い, 先行, レシピ, ベリー, ダイエット, ジェ, ふわ, できれ, twee, tolerance, texture, tex, teaching, tasty, spain, shoulders, searching, sauce, returns, residents, remains, redacted, prices, plenty, peppers, patterns, paso, osten, onion, mutter, mondo, midwestern, liz, jokes, item, gp, garlic, féministes, fyi, friday, fleisch, finns, environmental, engaging, diz, dish, daumen, cornish, column, baum, award, allegations, alkohol, adaptation, abgefeuert, -.-, 飛行機, 集合, 遠征, 調査, 観察, 被っ, 聴き, 盛り上がっ, 熱く, 歌う, 模型, 概念, 折れ, 手持ち, 成人, 悩み, 忙しかっ, 強め, 引っ越し, 川井, 双子, 切り替え, 刀剣, 出せる, 任務, 仲良し, 今更, 二度と, 予告, 乾い, 中身, ワールドイズマイン, ロー, ユニ, ボディ, ベスト, プロット, フード, セックス, ジュン, シーン, まんま, はる, の周辺で雨が止んだようです, なさ, だけど, すり抜け, こんなにも, きん, かき氷, おやすみなさい, おばさん, おいし, うら, うさぎ, wrap, worded, wider, white, wet, wealthy, väl, vorstellen, vater, vain, trucks, troops, tram, tok, threatening, territory, tends, tend, tattoos, talks, tactics, syrup, sweat, suggests, suggest, strain, spacex, snowflakes, skeets, ships, selten, seasoning, scroll, scotch, scheidung, sanctions, russia, route, romantic, religious, refused, realistic, rapidly Hashtag Cloud; its hashtagged words/phrases (sorted by weighted frequency, descending): photography, fcf, ttrpg, greatwhite, tdff, note, edusky, dnd, bluesky, bluecast, 432, 166, 読書, 読了, 自炊, 千葉, 五山, リヴリー, ツイステ, ウマ, イベント, さて, youtube, writingcommunity, welcome, voteblue, themetaldogarticlelist, thearchers, stonetemplepilots, sky, scifi, saskatoon, running, rpgaday2024, racism, pythonic, pso, pixiv, peace, pantera, nje539b, nintendoswitch, metalinjection, marilynmanson, live, lgbtqia, lewybodydementia, letterboxdfriday, landscape, ladybhang, kursaalward, klm66b, kidlit, jackrussell, history, haiku, gwi9008, gender, fursuitfriday, furryfandom, frivolerfreitag, freepalestine, fotografie, featheredfriday, envtuber, embraer, edsky, edkowalczyk, duke44, deandeleo, daca, corona, corgi, cnd854p, chicago, cdfriday, cats, cat, bravewords, booksky, bombardier, boeing, blueed, blabbermouth, bel9jq, beech, bandcamp, artwork, artnouveau, anthropomorphic, anime, allthatremains, airbus, adhd, 23 Emoji Cloud; its emojis (sorted by weighted frequency, descending): 🍄, 🪻, 😓, 🦆, 🟫, 🟧, 🔵, 👨🏾‍🍳, 🌋, 🫥, ⬇️, ❤️‍🩹, ❕, 🫳, 🧄, 💎, 💋, 👅, 🏳️‍⚧️, 🏡, ⚡, ▪️, 2️⃣, 🧸, 🧵, 🧪, 🥂, 🤷🏻‍♂️, 🤞, 🤝🏻, 🤘, 😹, 😮, 😟, 😒, 📝, 📖, 💝, 💖, 👋🏼, 🐹, 🐍, 🐈‍⬛, 🐀, 🎥, 🎙, 🍩, 🍧, 🍅, 🌿, 🌃, ❣️, ⚠, 1️⃣, 0️⃣, 🫶🏽, 🫳🏻, 🫧, 🪴, 🧠, 🦪, 🦇, 🦅, 🥢, 🥚, 🥀, 🤤, 🤠, 🤛, 🤎, 🟪, 🟩, 🟨, 🟦, 🟡, 🚬, 🚨, 🚕, 🚀, 🙃, 🙀, 😪, 😧, 😥, 😢, 😠, 😚, 😖, 😈, 😀, 🗣️, 🕚, 🔥, 🔗, 🔍, 📻, 📸, 📷, 📢, 📌, 💩, 💧, 💚, 💔, 💅, 👹, 👟, 🐼, 🐮, 🐭, 🐉, 🏺, 🏳️‍🌈, 🎹, 🎋, 🎉, 🎈, 🍦, 🍡, 🍚, 🌷, 🌳, 🌞, 🌓, ⭐, ⬛, ➰, ❤️‍🔥, ❣, ❗, ❄, ✉, ▶, ⏰, ‼️, 3️⃣ @bsky.app and the bsky.team have finally taken the first step. We must take the time to see how @safety.bsky.app fares and if the team will do the rest. #ListenToBlackVoices
August 16, 2024 at 1:30 PM
lynnos.bsky.social
This is a difficult journey. My lovely mum hanging in there. It’s okay to let go too 💔
#lewybodydementia
January 18, 2025 at 11:49 PM
lewybodysociety.bsky.social
April is #StressAwarenessMonth.

Caring for a loved one with #Lewybodydementia can be one of the hardest things you will ever do.

You may feel you never get a moment or enough sleep. Ensure you take care of yourself too - even when it seems impossible.

www.lewybody.org/information-...
Support For Carers - Lewy Body
You are not alone Caring for someone with Lewy body dementia can be challenging and stressful. You may feel overwhelmed by the changes in your loved one’s personality and behaviour. You may also face ...
www.lewybody.org
April 2, 2025 at 12:03 PM
lewybodysociety.bsky.social
Almost half of people with Lewy body dementia are given a different diagnosis first. This leads to delays in getting the correct treatment and care - which can cause significant harm. We often hear families mention it as a possibility to doctors rather than the other way around.

#lewybodydementia
February 14, 2025 at 7:07 PM
joannelarocque.bsky.social
Happy Heavenly Birthday, Dad. Miss you. Hope you’re dancing with Mom. 🦋🎂❤️ : #parkinsons; #parkinsonsdisease; #lewybodydementia; #multiplemyeloma; #dad; #hydro; #family; #love; #life; #kids; #orphanage; #fosterkid; #father; #kind; #responsible; #loving; #grandpa: #good; #faith; #God; #religious; #pop
January 14, 2025 at 8:16 PM
lewybodysociety.bsky.social
I know we have people on here who have strong feelings about social care needs assessments.

Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk

#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
May 7, 2025 at 8:47 PM
mustntgrumble.bsky.social
I send strength to you. You will doubtless need it. I’ve been lodging LPAs with various organisations in respect of my mum’s situation (#LewyBodyDementia) and there is huge variation in how people treat me. Such situations should be considered hugely traumatic and support of highest quality given.
December 16, 2024 at 11:20 AM
lewybodysociety.bsky.social
We need to see urgent action by the DWP, which is why we are proud to have signed Carers UK’s letter calling for an immediate halt to new overpayments: go.carersuk.org/Carers-Allow...

#CarersAllowance #Carers #Lewybodydementia @carers-uk.bsky.social
March 20, 2025 at 11:01 AM
lewybodysociety.bsky.social
Good morning from the International Lewy Body Dementia Conference 2025 in Amsterdam.

Our founder Ashley Bayston and CEO Jacqui Cannon are raring to go.

Great to see so many of our friends here.

#ilbdc2025 #lewybodydementia
#dementia
January 29, 2025 at 7:49 AM
mustntgrumble.bsky.social
TEN sacks of paperwork… in case you were wondering. Another thing my absent bro has managed to swerve in the “want to remember her how she was” excuse deployment. She’s been like this three years now… #LewyBodyDementia #endoflife #carer
mustntgrumble.bsky.social Lou @mustntgrumble.bsky.social · 23d
Finally completed today’s #carer admin. Bureacratic burden of #elder care always surprises me… even after all these years!

BUT finally got rid of mosts mum’s paperwork (yes some was from 1974 😬) and despatched it to secure shredding. #TinyJoys
January 22, 2026 at 2:10 PM
nowbreezing.ntw.app

Bluesky's Top 10 Trending Words from the Past 10 Minutes:
️⚠️💨1 - 台風
2nd - 감사합니다
3rd - 出社
4th - お気
5th - skeets
6th - garlic
7th - alien
8th - 売る
9th - 勤務
10th - shoulder
(tap/click to see all posts on Bluesky featuring that word!)

#йобанарусня 🇺🇦
Word Cloud; its top words (sorted by weighted frequency, descending): 台風, 감사합니다, 出社, お気, skeets, garlic, alien, 売る, 勤務, shoulder, prometheus, pepper, cookies, consistent, 2009, 같은, 雨風, 関東, 金曜日, 近づい, 警察, 在宅, 何事, windmills, triste, tails, stronger, sinto, remote, preparing, medicine, lists, earned, disability, codes, cheerios, cereal, bunsen, bread, 8/16, 1,154, 어제, 雨戸, 降っ, 閉め, 金曜, 通勤, 透明, 越え, 裁判, 被害, 被っ, 濡れ, 気圧, 有給, 晴れ, 怖かっ, 影響, 帰れ, 天気, 出会い, 亡くなっ, ラッシュ, フラフラ, ヒト, の周辺で雨が止んだようです, うんこ, yard, wishes, vezes, verb, unfair, tester, taiwan, sucked, scotland, scare, rem, register, recognized, recite, queens, povo, posters, placement, pity, phillies, pads, non-religious, murphy, housing, headed, happily, groceries, greetings, gore, gameplay, gaffer, fato, explained, doses, dollhouse, define, decline, creatures, charging, cage, cafe, bulk, bothered, bathrooms, awhile, aunt, atlas, ano, animated, agosto, 15th, 08.55更新, 08.50更新, ８月, 휴가, 보내겠습니다, 갑자기, 飛行機, 響き, 電車, 電子, 雑魚, 降ら, 通り過ぎ, 送り, 込め, 身内, 豪雨, 豊か, 評判, 見つめ, 行い, 荒れ, 舞う, 腹痛, 罪悪, 空港, 祈っ, 看護, 直撃, 直後, 目立つ, 皆さん, 皆さま, 白目, 用事, 生成, 珈琲, 猪爪, 無知, 混ざっ, 比較的, 比べ, 止ん, 様々, 本能, 朝食, 暴風, 新聞, 新人, 放送, 接近, 意図, 御座い, 引退, 幸い, 家出, 大幅, 外出, 売り場, 垂れ, 咲く_空, 単語, 前日, 判明, 出勤, 入手, 信用, 依存, 休み, 交差点, 予告, ロー, リシュ, ヨーグルト, モーニング, メン, プロポーズ, プロジェクト, トラウマ, テキスト, タキュポンヌ, ショップ Hashtag Cloud; its hashtagged words/phrases (sorted by weighted frequency, descending): おはよう, nowplaying, weeknightwriters, ffxiv, 青春, イマソラ, vtuberen, podcast, moviemadness, moviechallenge, marvel, 家庭, ポケモンスリープ, オリックス・バファローズ, どう, writingcommunity, wrestling, wquers, wnba, vtuberuprising, vtubers, videogames, twitchtv, themetaldogarticlelist, tailsandfriendspodcast, streetphotography, streaming, smallpodcasters, rpgaday2024, redsox, puddlespityparty, primus, politics, opvr_ex, nzpol, nmetunes1, metalinjection, megadeth, martyfriedman, linkingsparks, lewybodydementia, jacksonkelly, jackrussell, holydiver, history, greatwhite, gposers, filmsky, envtuber, dio, commissions, cinema, anime, alienromulus Emoji Cloud; its emojis (sorted by weighted frequency, descending): 🌀, 🌡, 🆙, 1️⃣, 0️⃣, 🧠, 🏠, 🇰🇷, 🪨, 🟣, 📺, 📖, 💰, 🐐, 🍫, ⏬, 5️⃣, 🫨, 🫦, 🫡, 🪹, 🩶, 🧸, 🧪, 🥶, 🤐, 🛸, 🚲, 🚨, 🚆, 🙌🏻, 🙊, 🙁, 😹, 🕤, 🕒, 🔵, 🔴, 📝, 💸, 👏🏼, 👍🏾, 🐥, 🌴, 🇯🇵, ㊗, ⬛, ⬇, ➡️, ✅, ⛅, ☠️, ☁, ☀, ▶, ™, 6️⃣, 4️⃣, 3️⃣ @bsky.app and the bsky.team have finally taken the first step. We must take the time to see how @safety.bsky.app fares and if the team will do the rest. #ListenToBlackVoices
August 16, 2024 at 12:00 AM
lewybodysociety.bsky.social
Lovely to see our colleague Dr Maria Cecilia Fernandez at the International Lewy Body Dementia Conference in Amsterdam today.

Our CEO Jacqui Cannon and our founder @lewylady.bsky.social are exhibiting posters. Come over and see us!

#Lewybodydementia #ILBDC2025 #Amsterdam
January 29, 2025 at 1:55 PM
lewybodysociety.bsky.social
Capgras Syndrome is a symptom of Lewy body dementia where someone believes that their loved one has been replaced with a double or imposter.

#WorldLewyBodyDay #Lewybodydementia #WLBD2025 #CapgrasSyndrome #dementia
Capgras syndrome: my partner thought I was an imposter - Lewy Body
Imagine looking at your loving partner of many years and suddenly having the creeping suspicion it was not your husband, but someone pretending to be him.
lewybody.org
January 28, 2025 at 2:47 PM