Brain Support Network
@brainsupportnet.bsky.social
We have helped over 1,500 families donate a loved ones brain we can help your family too. #atypicalparkinsons #braindonation #lbd #psp #msa #cbd
Living with MSA: The Emotional Impact
Along with your physical health, there may be times when you also need support for your emotional and mental wellbeing. However, this support need can be overlooked.
www.msatrust.org.uk/support-for-...
#MSA #parkinsons
Along with your physical health, there may be times when you also need support for your emotional and mental wellbeing. However, this support need can be overlooked.
www.msatrust.org.uk/support-for-...
#MSA #parkinsons
January 6, 2026 at 6:18 PM
Living with MSA: The Emotional Impact
Along with your physical health, there may be times when you also need support for your emotional and mental wellbeing. However, this support need can be overlooked.
www.msatrust.org.uk/support-for-...
#MSA #parkinsons
Along with your physical health, there may be times when you also need support for your emotional and mental wellbeing. However, this support need can be overlooked.
www.msatrust.org.uk/support-for-...
#MSA #parkinsons
“If life is a bowl of cherries, what am I doing in the pits?”
– Erma Bombeck
– Erma Bombeck
January 5, 2026 at 5:56 PM
“If life is a bowl of cherries, what am I doing in the pits?”
– Erma Bombeck
– Erma Bombeck
Reposted by Brain Support Network
Join us online next Wednesday for Creative Connections: Arts & Wellness for Parkinson's! 🖥️
This webinar will explore how creative expression can spark connection, build confidence, and offer meaningful tools for well-being. Register for free: Parkinson.org/events/2026/Jan7WW
This webinar will explore how creative expression can spark connection, build confidence, and offer meaningful tools for well-being. Register for free: Parkinson.org/events/2026/Jan7WW
Creative Connections: Arts & Wellness for Parkinson's
Together, we’ll explore how creative expression can spark connection, build confidence, and offer meaningful tools for well-being.
www.parkinson.org
January 2, 2026 at 8:01 PM
Join us online next Wednesday for Creative Connections: Arts & Wellness for Parkinson's! 🖥️
This webinar will explore how creative expression can spark connection, build confidence, and offer meaningful tools for well-being. Register for free: Parkinson.org/events/2026/Jan7WW
This webinar will explore how creative expression can spark connection, build confidence, and offer meaningful tools for well-being. Register for free: Parkinson.org/events/2026/Jan7WW
PD Research Update: The Trials That Matter NOW (Dr Simon Stott)
Dr Simon Stott (Director of Research at Cure Parkinson's) shares the 2025 breakthroughs and the 2026 trials we must be watching.
www.eventbrite.co.uk/e/pd-researc...
#parkinsons
Dr Simon Stott (Director of Research at Cure Parkinson's) shares the 2025 breakthroughs and the 2026 trials we must be watching.
www.eventbrite.co.uk/e/pd-researc...
#parkinsons
January 5, 2026 at 5:35 PM
PD Research Update: The Trials That Matter NOW (Dr Simon Stott)
Dr Simon Stott (Director of Research at Cure Parkinson's) shares the 2025 breakthroughs and the 2026 trials we must be watching.
www.eventbrite.co.uk/e/pd-researc...
#parkinsons
Dr Simon Stott (Director of Research at Cure Parkinson's) shares the 2025 breakthroughs and the 2026 trials we must be watching.
www.eventbrite.co.uk/e/pd-researc...
#parkinsons
What Parkinson’s Feels Like – Barbara Salsberg Mathews
A new illustrated book inspired by people with #Parkinson’s around the world.
parkinsonseurope.org/what-parkins...
A new illustrated book inspired by people with #Parkinson’s around the world.
parkinsonseurope.org/what-parkins...
January 5, 2026 at 5:34 PM
What Parkinson’s Feels Like – Barbara Salsberg Mathews
A new illustrated book inspired by people with #Parkinson’s around the world.
parkinsonseurope.org/what-parkins...
A new illustrated book inspired by people with #Parkinson’s around the world.
parkinsonseurope.org/what-parkins...
Bruce Willis' Wife Emma Heming Reveals How Christmas Has Changed Since His Dementia Diagnosis
Bruce Willis' wife, Emma Heming, says she's 'tangled in a web of grief' during the holidays as her husband, Bruce, battles dementia.
www.youtube.com/watch?v=9rvu...
Bruce Willis' wife, Emma Heming, says she's 'tangled in a web of grief' during the holidays as her husband, Bruce, battles dementia.
www.youtube.com/watch?v=9rvu...
January 2, 2026 at 6:56 PM
Bruce Willis' Wife Emma Heming Reveals How Christmas Has Changed Since His Dementia Diagnosis
Bruce Willis' wife, Emma Heming, says she's 'tangled in a web of grief' during the holidays as her husband, Bruce, battles dementia.
www.youtube.com/watch?v=9rvu...
Bruce Willis' wife, Emma Heming, says she's 'tangled in a web of grief' during the holidays as her husband, Bruce, battles dementia.
www.youtube.com/watch?v=9rvu...
Thank you to the BSN Community for an impactful 2025 connecting families with resources and experts through care partnerships, webinars, seminars, and meetings.
Help continue this important work in 2026 with a donation to BSN, matched up to $30k until 1/5.
www.brainsupportnetwork.org/donate/
Help continue this important work in 2026 with a donation to BSN, matched up to $30k until 1/5.
www.brainsupportnetwork.org/donate/
December 31, 2025 at 8:31 PM
Thank you to the BSN Community for an impactful 2025 connecting families with resources and experts through care partnerships, webinars, seminars, and meetings.
Help continue this important work in 2026 with a donation to BSN, matched up to $30k until 1/5.
www.brainsupportnetwork.org/donate/
Help continue this important work in 2026 with a donation to BSN, matched up to $30k until 1/5.
www.brainsupportnetwork.org/donate/
New Mayo-led study establishes practical definition for rapidly progressive #dementia
newsnetwork.mayoclinic.org/discussion/n...
newsnetwork.mayoclinic.org/discussion/n...
December 31, 2025 at 5:58 PM
New Mayo-led study establishes practical definition for rapidly progressive #dementia
newsnetwork.mayoclinic.org/discussion/n...
newsnetwork.mayoclinic.org/discussion/n...
Teepa Snow Episode 335: Alzheimer Disease vs. Dementia: Understanding the Differences That Matter
www.youtube.com/watch?v=AhVM...
www.youtube.com/watch?v=AhVM...
December 30, 2025 at 6:00 PM
Teepa Snow Episode 335: Alzheimer Disease vs. Dementia: Understanding the Differences That Matter
www.youtube.com/watch?v=AhVM...
www.youtube.com/watch?v=AhVM...
Barbara Karnes, RN: Can a Dying Person Choose When to Die? What Caregivers Should Know
"I have said many times, “There are two ways to die — fast or gradual.”
bkbooks.com/blogs/someth...
#caregiving
"I have said many times, “There are two ways to die — fast or gradual.”
bkbooks.com/blogs/someth...
#caregiving
December 29, 2025 at 6:37 PM
Barbara Karnes, RN: Can a Dying Person Choose When to Die? What Caregivers Should Know
"I have said many times, “There are two ways to die — fast or gradual.”
bkbooks.com/blogs/someth...
#caregiving
"I have said many times, “There are two ways to die — fast or gradual.”
bkbooks.com/blogs/someth...
#caregiving
Supporting A Loved One With Dementia During The Holidays | NCCDP
In this video, Chelsea Sacher shares how to support a loved one living with #dementia during the holidays with many practical quick tips!
www.youtube.com/watch?v=Ef0s...
In this video, Chelsea Sacher shares how to support a loved one living with #dementia during the holidays with many practical quick tips!
www.youtube.com/watch?v=Ef0s...
December 26, 2025 at 6:16 PM
Supporting A Loved One With Dementia During The Holidays | NCCDP
In this video, Chelsea Sacher shares how to support a loved one living with #dementia during the holidays with many practical quick tips!
www.youtube.com/watch?v=Ef0s...
In this video, Chelsea Sacher shares how to support a loved one living with #dementia during the holidays with many practical quick tips!
www.youtube.com/watch?v=Ef0s...
Reposted by Brain Support Network
Parkinson’s disease can affect how you cook, serve and enjoy meals, but small adjustments can make gatherings more joyful and less overwhelming. 🍽️
Learn practical tips for making mealtime safer (and easier) here: Parkinson.org/living-with-parkinsons/management/activities-daily-living/eating
Learn practical tips for making mealtime safer (and easier) here: Parkinson.org/living-with-parkinsons/management/activities-daily-living/eating
Mealtime & Dining Out
Simple modifications to make mealtime and dining out experiences more enjoyable.
www.parkinson.org
December 24, 2025 at 2:02 PM
Parkinson’s disease can affect how you cook, serve and enjoy meals, but small adjustments can make gatherings more joyful and less overwhelming. 🍽️
Learn practical tips for making mealtime safer (and easier) here: Parkinson.org/living-with-parkinsons/management/activities-daily-living/eating
Learn practical tips for making mealtime safer (and easier) here: Parkinson.org/living-with-parkinsons/management/activities-daily-living/eating
Five Holiday “Dos and Don’ts” for Families Caring for Loved Ones with Dementia
alzfdn.org/five-holiday...
#dementia #holidays
alzfdn.org/five-holiday...
#dementia #holidays
Five Holiday “Dos and Don’ts” for Families Caring for Loved Ones with Dementia | Alzheimer's Foundation of America
Alzheimer’s Foundation of America Offers Tips to Create a Dementia-Friendly Holiday Season December 15, 2025— With the holiday season in full swing, the Alzheimer’s Foundation of America (AFA) is offe...
alzfdn.org
December 26, 2025 at 6:12 PM
Five Holiday “Dos and Don’ts” for Families Caring for Loved Ones with Dementia
alzfdn.org/five-holiday...
#dementia #holidays
alzfdn.org/five-holiday...
#dementia #holidays
Have a Healthy and Happy Holiday!
From Brain Support Network
Here are some articles we've shared over the years relating to the holidays and caregiving: brainsupportnetwork.org/?s=holiday
#caregiving
From Brain Support Network
Here are some articles we've shared over the years relating to the holidays and caregiving: brainsupportnetwork.org/?s=holiday
#caregiving
December 26, 2025 at 6:10 PM
Have a Healthy and Happy Holiday!
From Brain Support Network
Here are some articles we've shared over the years relating to the holidays and caregiving: brainsupportnetwork.org/?s=holiday
#caregiving
From Brain Support Network
Here are some articles we've shared over the years relating to the holidays and caregiving: brainsupportnetwork.org/?s=holiday
#caregiving
AFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast
CEO Susan Dickinson recently joined the Dementia Untangled to discuss FTD, insights about diagnosis challenges, the impact on families, and the vital role of community.
theaftd.org/posts/front-page/dickinson-featured-on-podcast/
CEO Susan Dickinson recently joined the Dementia Untangled to discuss FTD, insights about diagnosis challenges, the impact on families, and the vital role of community.
theaftd.org/posts/front-page/dickinson-featured-on-podcast/
December 23, 2025 at 5:45 PM
AFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast
CEO Susan Dickinson recently joined the Dementia Untangled to discuss FTD, insights about diagnosis challenges, the impact on families, and the vital role of community.
theaftd.org/posts/front-page/dickinson-featured-on-podcast/
CEO Susan Dickinson recently joined the Dementia Untangled to discuss FTD, insights about diagnosis challenges, the impact on families, and the vital role of community.
theaftd.org/posts/front-page/dickinson-featured-on-podcast/
“Hospice helped the in-home care agency provide better care for my mom. She was discharged from hospice a couple of times before she died. That was over two years after first enrolling with hospice.” – Local Support Group Member
December 22, 2025 at 6:39 PM
“Hospice helped the in-home care agency provide better care for my mom. She was discharged from hospice a couple of times before she died. That was over two years after first enrolling with hospice.” – Local Support Group Member
Why Men and Women with REM Sleep Behavior Disorder (RBD) May Face Different Dementia Risks
Men and women who act out their dreams at night may not face the same risks for #dementia later in life.
www.lbda.org/why-men-and-...
Men and women who act out their dreams at night may not face the same risks for #dementia later in life.
www.lbda.org/why-men-and-...
December 22, 2025 at 6:34 PM
Why Men and Women with REM Sleep Behavior Disorder (RBD) May Face Different Dementia Risks
Men and women who act out their dreams at night may not face the same risks for #dementia later in life.
www.lbda.org/why-men-and-...
Men and women who act out their dreams at night may not face the same risks for #dementia later in life.
www.lbda.org/why-men-and-...
Inner Critic or Outside Voices: Judgment Can Weigh Heavily on Caregivers
Caregivers can be their own worst enemies. Here are some ways to practice self-compassion and draw boundaries.
www.nextavenue.org/between-inne...
Caregivers can be their own worst enemies. Here are some ways to practice self-compassion and draw boundaries.
www.nextavenue.org/between-inne...
December 19, 2025 at 6:17 PM
Inner Critic or Outside Voices: Judgment Can Weigh Heavily on Caregivers
Caregivers can be their own worst enemies. Here are some ways to practice self-compassion and draw boundaries.
www.nextavenue.org/between-inne...
Caregivers can be their own worst enemies. Here are some ways to practice self-compassion and draw boundaries.
www.nextavenue.org/between-inne...
FTD 101 - AFTD 2025 Education Conference
AFTD Support & Education Director Esther Kane, MSN, RN-CDP, presents a brief overview of FTD signs, symptoms, and subtypes, and AFTD Director of Research Engagement Shana Dodge, PhD, shares an overview of #FTD research.
www.youtube.com/watch?v=gUhO...
AFTD Support & Education Director Esther Kane, MSN, RN-CDP, presents a brief overview of FTD signs, symptoms, and subtypes, and AFTD Director of Research Engagement Shana Dodge, PhD, shares an overview of #FTD research.
www.youtube.com/watch?v=gUhO...
December 19, 2025 at 6:11 PM
FTD 101 - AFTD 2025 Education Conference
AFTD Support & Education Director Esther Kane, MSN, RN-CDP, presents a brief overview of FTD signs, symptoms, and subtypes, and AFTD Director of Research Engagement Shana Dodge, PhD, shares an overview of #FTD research.
www.youtube.com/watch?v=gUhO...
AFTD Support & Education Director Esther Kane, MSN, RN-CDP, presents a brief overview of FTD signs, symptoms, and subtypes, and AFTD Director of Research Engagement Shana Dodge, PhD, shares an overview of #FTD research.
www.youtube.com/watch?v=gUhO...
Brain Donation Process: Funeral Home or Cremation Organization
The funeral home or cremation organization generally provides the location at which the #brain is recovered by the pathology specialist. Ideally, they are available 24×7.
Learn more: www.brainsupportnetwork.org/brain-donati...
The funeral home or cremation organization generally provides the location at which the #brain is recovered by the pathology specialist. Ideally, they are available 24×7.
Learn more: www.brainsupportnetwork.org/brain-donati...
December 18, 2025 at 6:11 PM
Brain Donation Process: Funeral Home or Cremation Organization
The funeral home or cremation organization generally provides the location at which the #brain is recovered by the pathology specialist. Ideally, they are available 24×7.
Learn more: www.brainsupportnetwork.org/brain-donati...
The funeral home or cremation organization generally provides the location at which the #brain is recovered by the pathology specialist. Ideally, they are available 24×7.
Learn more: www.brainsupportnetwork.org/brain-donati...
Reposted by Brain Support Network
The only way we will find a cure for Parkinson’s is through research. 🔬 Your participation in research is critical to finding new treatments and improving life for the 10 million people living with PD around the world!
Explore ways to get involved: Parkinson.org/advancing-research/join-study
Explore ways to get involved: Parkinson.org/advancing-research/join-study
Join A Study
Learn about our research initiatives & how to join a study that can lead to critical findings for the 10 million people with Parkinson’s around the world.
www.parkinson.org
December 18, 2025 at 2:03 PM
The only way we will find a cure for Parkinson’s is through research. 🔬 Your participation in research is critical to finding new treatments and improving life for the 10 million people living with PD around the world!
Explore ways to get involved: Parkinson.org/advancing-research/join-study
Explore ways to get involved: Parkinson.org/advancing-research/join-study
Scientists Thought Parkinson’s Was in Our Genes. It Might Be in the Water
New ideas about chronic illness could revolutionize treatment, if we take the research seriously.
www.wired.com/story/scient...
#parkinsons
New ideas about chronic illness could revolutionize treatment, if we take the research seriously.
www.wired.com/story/scient...
#parkinsons
Scientists Thought Parkinson’s Was in Our Genes. It Might Be in the Water
New ideas about chronic illness could revolutionize treatment, if we take the research seriously.
www.wired.com
December 18, 2025 at 6:01 PM
Scientists Thought Parkinson’s Was in Our Genes. It Might Be in the Water
New ideas about chronic illness could revolutionize treatment, if we take the research seriously.
www.wired.com/story/scient...
#parkinsons
New ideas about chronic illness could revolutionize treatment, if we take the research seriously.
www.wired.com/story/scient...
#parkinsons
Doctors Have a Front-Row Seat to the Caregiver Crisis
— I've seen what happens when the weight of caring for a loved one becomes too great
www.medpagetoday.com/opinion/seco...
#caregiving
— I've seen what happens when the weight of caring for a loved one becomes too great
www.medpagetoday.com/opinion/seco...
#caregiving
December 17, 2025 at 5:47 PM
Doctors Have a Front-Row Seat to the Caregiver Crisis
— I've seen what happens when the weight of caring for a loved one becomes too great
www.medpagetoday.com/opinion/seco...
#caregiving
— I've seen what happens when the weight of caring for a loved one becomes too great
www.medpagetoday.com/opinion/seco...
#caregiving
Reposted by Brain Support Network
The holidays often mean travel, and preparation can make all the difference for people living with Parkinson’s disease! From managing medications to planning rest breaks, small steps can make trips more enjoyable. ✈️
Explore our tips to help: Parkinson.org/living-with-parkinsons/management/traveling
Explore our tips to help: Parkinson.org/living-with-parkinsons/management/traveling
Traveling with Parkinson's
Learn steps you can take to plan ahead for your trip if you are traveling with Parkinson's disease.
www.parkinson.org
December 17, 2025 at 2:02 PM
The holidays often mean travel, and preparation can make all the difference for people living with Parkinson’s disease! From managing medications to planning rest breaks, small steps can make trips more enjoyable. ✈️
Explore our tips to help: Parkinson.org/living-with-parkinsons/management/traveling
Explore our tips to help: Parkinson.org/living-with-parkinsons/management/traveling
Wooden Neurons: An Artistic Vision of the Brain
A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.
www.the-scientist.com/wooden-neuro...
A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.
www.the-scientist.com/wooden-neuro...
December 16, 2025 at 6:48 PM
Wooden Neurons: An Artistic Vision of the Brain
A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.
www.the-scientist.com/wooden-neuro...
A neurobiologist, who loves the morphology of cells, turns these shapes into works of art made from wood.
www.the-scientist.com/wooden-neuro...