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brainsupportnet.bsky.social
Brain Support Network
@brainsupportnet.bsky.social
52 followers 55 following 790 posts
We have helped over 1,500 families donate a loved ones brain we can help your family too. #atypicalparkinsons #braindonation #lbd #psp #msa #cbd
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brainsupportnet.bsky.social
Get REAL Compassion: Building Sustainable Skills of Compassion and Presence

Register Today: events.zoom.us/ev/AkzTgvgEi...

#lewybodydementia #lbd #caregiving
November 11, 2025 at 5:33 PM
brainsupportnet.bsky.social
Thank you, Veterans! We honor you and your service.
- Brain Support Network
November 11, 2025 at 5:27 PM
brainsupportnet.bsky.social
ALZForum: Taking Steps to Ward Off Tangles

Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease.

www.alzforum.org/news/researc...
November 11, 2025 at 5:23 PM
brainsupportnet.bsky.social
“More help = more self care.”
– Local Support Group Member
November 10, 2025 at 6:24 PM
Reposted by Brain Support Network
parkinsondotorg.bsky.social
Finding out you have Parkinson's can be a lengthy process. 🥼 Explore how a Parkinson's diagnosis is made and what type of diagnostic tools are used: Parkinson.org/understanding-parkinsons/getting-diagnosed
Getting Diagnosed
Getting diagnosed with Parkinson’s, particularly in its early stages, can be difficult. Learn the steps you or a loved one can take if you suspect PD.
www.parkinson.org
November 7, 2025 at 7:02 PM
brainsupportnet.bsky.social
What the Air You Breathe May Be Doing to Your Brain

Studies increasingly find links between higher concentrations of certain pollutants and the prevalence of #dementia.

www.nytimes.com/2025/11/01/h...
What the Air You Breathe May Be Doing to Your Brain
www.nytimes.com
November 10, 2025 at 6:23 PM
brainsupportnet.bsky.social
New Evidence Ties Dementia Risk to Brain's Waste Clearance System
— Glymphatic system markers predicted #dementia over 5 years
www.medpagetoday.com/neurology/de...
New Evidence Ties Dementia Risk to Brain's Waste Clearance System
Glymphatic system markers predicted dementia over 5 years
www.medpagetoday.com
November 10, 2025 at 6:22 PM
brainsupportnet.bsky.social
This Friday, Nov. 14: AFA Fireside Chat
Sundown Syndrome:
Signs, Symptoms, and Steps to Help

Friday, November 14 | 1 PM ET

alzfdn.org/event/sundow...

#dementia
November 10, 2025 at 6:13 PM
Reposted by Brain Support Network
alzassociation.bsky.social
Today marks the start of #NationalFamilyCaregiversMonth — a time to honor the incredible strength, compassion and commitment of those caring for loved ones with Alzheimer’s and other dementia. 💜

Share a tribute to a caregiver in your life at alz.org/honor. #ENDALZ
November 1, 2025 at 12:12 PM
brainsupportnet.bsky.social
ALZ Talks: Living Well with a New Diagnosis - @alzassociation.bsky.social

Receiving a diagnosis of Alzheimer’s or another form of dementia can be overwhelming and life-changing.

www.youtube.com/watch?v=1FFe...
ALZ Talks: Living Well with a New Diagnosis
YouTube video by Alzheimer's Association
www.youtube.com
November 7, 2025 at 6:23 PM
brainsupportnet.bsky.social
BSN's Third Mission: Caregiver Support Group

We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD).

Learn more: www.brainsupportnetwork.org/about-bsn/mi...
November 6, 2025 at 5:35 PM
brainsupportnet.bsky.social
Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care

Wednesday, November 12, 10am

Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN

Host: @parkinsondotorg.bsky.social

secure.parkinson.org/site/Calenda...

#parkinsons
November 6, 2025 at 5:33 PM
Reposted by Brain Support Network
michaelokun.bsky.social
A miracle pill for Parkinson's is 50 years old. Why can't most of the world get it? Ray and I wrote a new Op-Ed on www.pdplan.org
Subscribe to our new substack column here:
cutt.ly/2r6Rc1AT
Link to statnews.com Op-Ed out that dropped this morning:
www.statnews.com/2025/11/04/p...
November 4, 2025 at 2:15 PM
Reposted by Brain Support Network
parkinsondotorg.bsky.social
Unaddressed caregiver strain progresses into caregiver burnout, which can include extreme fatigue unrelated to sleep, unusual frustration and anger, feeling “cloudy” or “foggy,” and other physical symptoms that may manifest as a result of emotional stress. (1/2)
November 6, 2025 at 2:03 PM
brainsupportnet.bsky.social
I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing.
Sharon L.
10/26/25
November 5, 2025 at 6:20 PM
Reposted by Brain Support Network
theaftd.bsky.social
Join AFTD’s next Healthcare Professional Webinar on Nov. 18 to learn how individual therapy can help care partners navigate the unique emotional challenges of FTD caregiving. Led by Stephanie M., MSW, RSW, this session offers strategies, insights, & CEC credit. Register now: https://bit.ly/42Tbiwk
Webinar announcement from AFTD titled "Supporting FTD Care Partners with Individual Therapy: Approaches and Key Considerations." Features date and time details, CEC credit information, and a photo of Stephanie Muskat, MSW, RSW, noted as an award-winning registered social worker and psychotherapist, and the founder of Compassion in Caregiving
November 5, 2025 at 4:05 PM
Reposted by Brain Support Network
alzassociation.bsky.social
Did you know that engaging in regular exercise can help reduce stress while benefiting your brain health? Get moving and learn more healthy habits for your brain at alz.org/healthyhabits. #NationalStressAwarenessDay
November 5, 2025 at 5:32 PM
brainsupportnet.bsky.social
Music and Parkinson’s
Tuesday, November 11, 4pm

Part of the “Conversations with a Doc” quarterly speaker series.
Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD

Host: Maryland Association for Parkinson Support (MAPS)

www.marylandparkinsonsupport.org/events/conve...

#parkinsons
November 5, 2025 at 6:15 PM
brainsupportnet.bsky.social
National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors.

Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/
November 4, 2025 at 6:10 PM
Reposted by Brain Support Network
parkinsondotorg.bsky.social
"A pill that costs pennies should not be a luxury. And a life that can be restored should never be left to wither."

Read this op-ed co-written by Dr. Michael Okun, National Medical Advisor of the Parkinson's Foundation, and Dr. Ray Dorsey: www.statnews.com/2025/11/04/p...
A miracle pill for Parkinson's is 50 years old. Why can't most of the world get it?
Parkinson's has doubled globally in 25 years. We need a coordinated response.
www.statnews.com
November 4, 2025 at 5:00 PM
brainsupportnet.bsky.social
PSPA Podcast Series Three: The Benefit of Movement

In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for.

www.pspassociation.org.uk/wp-content/u...

#PSP #Parkinsons
November 4, 2025 at 5:59 PM
brainsupportnet.bsky.social
November is the month to highlight the importance of early detection and diagnosis of Alzheimer's disease, as well as supporting our caregivers, families, and researchers all working to promote brain health.

Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...
November 3, 2025 at 6:35 PM
Reposted by Brain Support Network
michaelokun.bsky.social
Iron is not a 'villain' just rusting the brain, it may be trying to heal it. Check out this 2025 update on brain iron in Parkinson’s, Alzheimer’s and beyond. Their work reframes iron not just as a villain, but also as an essential player in brain health whose imbalance can be damaging.
November 3, 2025 at 1:03 PM
brainsupportnet.bsky.social
“I have joined several support groups – one for caregivers-only, one for the particular disorder I’m coping with, and one for dementia caregivers. Each is helping me.”
– Local Support Group Member
November 3, 2025 at 6:24 PM
brainsupportnet.bsky.social
Parkinson’s Basics: What You Need to Know
Wednesday, November 5, 10am

Speaker: Kristen Matulis, DNP
Host: @parkinsondotorg.bsky.social

secure.parkinson.org/site/Calenda...
November 3, 2025 at 6:23 PM