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bowdon.bsky.social
Gavin
@bowdon.bsky.social
I've been suffering from #LongCovid for the last 2 years. I also have #POTS, as well as 2 genetic conditions #SMA (Spinal Muscular Atrophy), and #Larsen's Syndrome.

I'm interested in #LC treatment updates, #audiobooks, #games, #tech and #politics.
@debbieabrahamsmp.bsky.social I love in your constituency, so you're my MP.

The age verification requirements your party as brought in come in today.

They not only cover porn sites. But most of social media.

Because X now requires age verification I, as a disabled person, can't verify my age 1/2
July 26, 2025 at 9:01 AM
@debbieabrahamsmp.bsky.social I hope you vote for the new welfare amendment today, as the concessions made by the government aren't really concessions.

The government is lowering the financial support for disabled people. I think you know this too.

I'm from your constituency.
July 1, 2025 at 9:56 AM
Reposted by Gavin
'Clinical trial underway to assess effectiveness and safety of potential Long Covid treatment'

"...post-viral conditions, Long Covid is incredibly complicated and thus little understood. Finding a treatment will be life-changing..." - Dr. Nancy Klimas

www.news-medical.net/news/2025050...
Clinical trial underway to assess effectiveness and safety of potential Long Covid treatment
A clinical trial is underway to assess the effectiveness and safety of sipavibart, AstraZeneca's long-acting monoclonal antibody designed to provide protection against Covid-19, as a potential treatme...
www.news-medical.net
May 2, 2025 at 2:39 PM
Merry Christmas to all my bluesky friends 🧡
December 25, 2024 at 4:07 PM
Harris would have been better for long covid research.

We just have to hope that Trumps group can be persuaded to carry on the push to get long covid resolved.
November 6, 2024 at 11:00 AM
I wish the Dems had chosen Gavin Newsom. He was a much stronger candidate. Hopefully next time.
November 6, 2024 at 9:28 AM
Reposted by Gavin
🚨Our Founding Trustee Natalie Rogers gave evidence at the UK Covid Inquiry this week for the #LongCovid groups. Have a listen on this podcast (#LongCovid covered from about 14:40 in).

“It's exhausting… You shouldn't have to fight that hard to get help.”

www.bbc.co.uk/sounds/play/...
November 2, 2024 at 8:21 PM
Reposted by Gavin
👩‍🔬Polybio announce $800K low-dose Rapamycin treatment trial for #LongCovid
Led by Putrino & Proal 👏
polybio.org/polybio-supp...
PolyBio supports & helps conceptualize long COVID rapamycin clinical trial - PolyBio Research Foundation
The trial will test a low dose of the drug rapamycin in participants across a 3-month period. Analysis of participant blood...
polybio.org
October 30, 2024 at 2:33 PM
Reposted by Gavin
📢 The next Fireside chat with Dr Binita Kane and Helen Oakleigh is on Wednesday 23 October at 6pm BST!

Lessons from the US: Treating ME and Long COVID with Dr. Jennifer Curtin, Chief Medical Officer and Co-founder of RTHM in San Francisco.
Link here: www.youtube.com/live/dYxZ96p...
October 21, 2024 at 7:37 PM
Reposted by Gavin
✌️Ventilate
✌️Ventilate
✌️Ventilate
Thank you Dr Amir Khan for saying this 💙
#CovidIsAirborne
October 22, 2024 at 8:53 AM
This short documentary video from 10 months ago is one of the most indepth I've seen about #LongCovid. It's worth a watch.
youtu.be/biuo_tW_7Dw?...
What causes long COVID?
YouTube video by RAZOR Science Show
youtu.be
October 22, 2024 at 10:53 AM
I've got my regular lung function appointment on the 20th of November. But I still can't get to the appointment because the moment I sit up my hr starts going out of whack and my oxygen drops.

Hopefully they will give me a telephone appointment.

#LongCovid problems.
October 21, 2024 at 10:35 AM
@lindslc.bsky.social Thank you for the follow back! 😃 I need to fill in my profile page soon lol
October 20, 2024 at 6:42 PM