@bettycohn.bsky.social
PhD candidate at the Institute for Public Health Genetics at UW | Master of Bioethics at the Johns Hopkins Berman Institute of Bioethics | interested in ELSI research, DTC genetic testing, and social media
Reposted
Private sperm bank admits to giving sperm samples to FBI without donors’ knowledge - buff.ly/SPLjsz3
May 21, 2025 at 4:15 PM
Private sperm bank admits to giving sperm samples to FBI without donors’ knowledge - buff.ly/SPLjsz3
Reposted
For those anxiously watching the 23&Me bankruptcy saga, drugmaker Regeneron is going to buy the company and its user data, which it will use for drug development.
More from @statnews.com here, including the company's statement on its data privacy plans:
www.statnews.com/2025/05/19/2...
More from @statnews.com here, including the company's statement on its data privacy plans:
www.statnews.com/2025/05/19/2...
Regeneron to buy 23andMe out of bankruptcy for $256 million
Regeneron plans to buy 23andMe out of bankruptcy for $256 million, potentially bringing to a close the saga of the consumer genetics firm
www.statnews.com
May 19, 2025 at 3:04 PM
For those anxiously watching the 23&Me bankruptcy saga, drugmaker Regeneron is going to buy the company and its user data, which it will use for drug development.
More from @statnews.com here, including the company's statement on its data privacy plans:
www.statnews.com/2025/05/19/2...
More from @statnews.com here, including the company's statement on its data privacy plans:
www.statnews.com/2025/05/19/2...
Reposted
23andMe files for bankruptcy as CEO Anne Wojcicki resigns: The company defined an era of genetics, promising to give consumers ancestry and health insights www.statnews.com/2025/03/24/2... via @statnews.com
23andMe filing for bankruptcy as CEO Anne Wojcicki resigns
23andMe said late Sunday it will file for bankruptcy and CEO and co-founder Anne Wojcicki will depart
www.statnews.com
March 24, 2025 at 2:45 PM
23andMe files for bankruptcy as CEO Anne Wojcicki resigns: The company defined an era of genetics, promising to give consumers ancestry and health insights www.statnews.com/2025/03/24/2... via @statnews.com
Reposted
The problem with the 23andMe data, or one problem, is that even if you didn’t contribute your DNA, if a family member did, you’re interpolated into their network.
March 24, 2025 at 4:12 PM
The problem with the 23andMe data, or one problem, is that even if you didn’t contribute your DNA, if a family member did, you’re interpolated into their network.
Reposted
Almost 700 IVF users are bringing lawsuits against clinics and companies that convinced them to use preimplantation genetic testing for aneuploidy to select embryos in the IVF process despite lack of evidence that it is clinically useful and accurate.
time.com/7264271/ivf...
time.com/7264271/ivf...
IVF Patients Say a Test Caused Them to Discard Embryos. Now They're Suing
Patients and researchers have raised concerns about the test's accuracy.
time.com
March 24, 2025 at 5:26 PM
Almost 700 IVF users are bringing lawsuits against clinics and companies that convinced them to use preimplantation genetic testing for aneuploidy to select embryos in the IVF process despite lack of evidence that it is clinically useful and accurate.
time.com/7264271/ivf...
time.com/7264271/ivf...
Reposted
As 23andMe files for bankruptcy and Wojcicki steps down as CEO (so she can bid) Anya Prince & my recent JAMA piece discusses what can - and should - happen to the over 1 million private genomes it has collected
Many who undergo direct-to-consumer genetic testing don’t realize that their data are being licensed to pharmaceutical and biotech companies.
JAMA Viewpoint authors @kaytesb.bsky.social and Anya E. R. Prince discuss this gap between consumer expectations and what is being done.
ja.ma/40uGL7q
JAMA Viewpoint authors @kaytesb.bsky.social and Anya E. R. Prince discuss this gap between consumer expectations and what is being done.
ja.ma/40uGL7q
March 24, 2025 at 5:39 PM
As 23andMe files for bankruptcy and Wojcicki steps down as CEO (so she can bid) Anya Prince & my recent JAMA piece discusses what can - and should - happen to the over 1 million private genomes it has collected
Reposted
23andMe bankruptcy filing leaves future of genetic data trove uncertain: Direct-to-consumer DNA testing company struggled to profit from drug discovery efforts | Science | AAAS www.science.org/content/arti...
23andMe bankruptcy filing leaves future of genetic data trove uncertain
Direct-to-consumer DNA testing company struggled to profit from drug discovery efforts
www.science.org
March 24, 2025 at 7:43 PM
23andMe bankruptcy filing leaves future of genetic data trove uncertain: Direct-to-consumer DNA testing company struggled to profit from drug discovery efforts | Science | AAAS www.science.org/content/arti...
Reposted
In 2022, I participated in the important NHGRI Workshop "Future Directions in Genomics & Health Equity Research".
The program & accompanying materials were available online. They are now gone.
This makes me so sad, especially for our wonderful colleagues at NIH who care about this work deeply.
The program & accompanying materials were available online. They are now gone.
This makes me so sad, especially for our wonderful colleagues at NIH who care about this work deeply.
February 24, 2025 at 3:00 AM
In 2022, I participated in the important NHGRI Workshop "Future Directions in Genomics & Health Equity Research".
The program & accompanying materials were available online. They are now gone.
This makes me so sad, especially for our wonderful colleagues at NIH who care about this work deeply.
The program & accompanying materials were available online. They are now gone.
This makes me so sad, especially for our wonderful colleagues at NIH who care about this work deeply.
Reposted
Silicon Valley parents are embracing genetic screening of embryos in an attempt to control their children’s future. While the technology can’t deliver on its promises, its use adds to the damaging message that health, success, and happiness begin with genetic optimization.
sfstandard.com/opini...
sfstandard.com/opini...
Opinion | Silicon Valley’s tech elite want to make superbabies. They shouldn't
The latest fertility tech invites parents to select baby traits like shopping at Whole Foods.
sfstandard.com
December 18, 2024 at 9:30 PM
Silicon Valley parents are embracing genetic screening of embryos in an attempt to control their children’s future. While the technology can’t deliver on its promises, its use adds to the damaging message that health, success, and happiness begin with genetic optimization.
sfstandard.com/opini...
sfstandard.com/opini...
Reposted
FTDNA Joins the “So Sue Me” Party
I recently posted that Verogen (the corporate owner of GEDmatch) has been sued—not once but twice—for violations of genetic privacy. Last week, Gene by Gene (the corporate owner of FamilyTreeDNA) was also sued in the state of Illinois. The case, Joshua Saathoff…
I recently posted that Verogen (the corporate owner of GEDmatch) has been sued—not once but twice—for violations of genetic privacy. Last week, Gene by Gene (the corporate owner of FamilyTreeDNA) was also sued in the state of Illinois. The case, Joshua Saathoff…
FTDNA Joins the “So Sue Me” Party
I recently posted that Verogen (the corporate owner of GEDmatch) has been sued—not once but twice—for violations of genetic privacy. Last week, Gene by Gene (the corporate owner of FamilyTreeDNA) was also sued in the state of Illinois. The case, Joshua Saathoff v Gene by Gene, was filed on 25 November 2024. All three class-action lawsuits allege that Gene by Gene violated the Illinois Genetic Information Privacy Act (GIPA) by using tracking software that synced with Facebook.
thednageek.com
December 3, 2024 at 11:24 PM
FTDNA Joins the “So Sue Me” Party
I recently posted that Verogen (the corporate owner of GEDmatch) has been sued—not once but twice—for violations of genetic privacy. Last week, Gene by Gene (the corporate owner of FamilyTreeDNA) was also sued in the state of Illinois. The case, Joshua Saathoff…
I recently posted that Verogen (the corporate owner of GEDmatch) has been sued—not once but twice—for violations of genetic privacy. Last week, Gene by Gene (the corporate owner of FamilyTreeDNA) was also sued in the state of Illinois. The case, Joshua Saathoff…