JP Summers
@authorjpsummers.bsky.social
#1 Best Selling Author / Public Speaker / Freelance Writer / Patient Advocate for #migraine #rheumatoidarthritis #fibromyalgia #heartdisease
Reposted by JP Summers
This Disability Pride Month, we’re reflecting on what it really means to embrace identity, challenge ableism, and take up space — even in a world that doesn’t always make room.
Read more about why pride matters to our community in this powerful piece:
🔗 creakyjoints.org/about-arthri...
Read more about why pride matters to our community in this powerful piece:
🔗 creakyjoints.org/about-arthri...
What Does It Mean to Be Proud?
Patient advocate Angie Ebba talks about Pride Month and Disability Pride Month and how both have allowed her to gain a supportive community.
creakyjoints.org
July 19, 2025 at 7:59 PM
This Disability Pride Month, we’re reflecting on what it really means to embrace identity, challenge ableism, and take up space — even in a world that doesn’t always make room.
Read more about why pride matters to our community in this powerful piece:
🔗 creakyjoints.org/about-arthri...
Read more about why pride matters to our community in this powerful piece:
🔗 creakyjoints.org/about-arthri...
Reposted by JP Summers
Got questions about your Rheumatoid Factor (RF) test?
Dr. Jeff Curtis breaks down what your RF levels really mean. Whether you're seropositive RA, seronegative RA, or confused by the numbers, this episode will help make sense of it all.
Listen to the full episode: creakyjoints.org/lets-get-per...
Dr. Jeff Curtis breaks down what your RF levels really mean. Whether you're seropositive RA, seronegative RA, or confused by the numbers, this episode will help make sense of it all.
Listen to the full episode: creakyjoints.org/lets-get-per...
July 20, 2025 at 5:44 PM
Got questions about your Rheumatoid Factor (RF) test?
Dr. Jeff Curtis breaks down what your RF levels really mean. Whether you're seropositive RA, seronegative RA, or confused by the numbers, this episode will help make sense of it all.
Listen to the full episode: creakyjoints.org/lets-get-per...
Dr. Jeff Curtis breaks down what your RF levels really mean. Whether you're seropositive RA, seronegative RA, or confused by the numbers, this episode will help make sense of it all.
Listen to the full episode: creakyjoints.org/lets-get-per...
Reposted by JP Summers
RFK Jr. is facing a lawsuit over his COVID-19 vaccine directive — and the future of public health could hang in the balance.
Steven Newmark explains what this legal battle means for vaccine policy, public health, and the law.
🔗 ghlf.org/the-health-a...
#TheHealthAdvocates #VaccinePolicy
Steven Newmark explains what this legal battle means for vaccine policy, public health, and the law.
🔗 ghlf.org/the-health-a...
#TheHealthAdvocates #VaccinePolicy
July 21, 2025 at 6:34 AM
RFK Jr. is facing a lawsuit over his COVID-19 vaccine directive — and the future of public health could hang in the balance.
Steven Newmark explains what this legal battle means for vaccine policy, public health, and the law.
🔗 ghlf.org/the-health-a...
#TheHealthAdvocates #VaccinePolicy
Steven Newmark explains what this legal battle means for vaccine policy, public health, and the law.
🔗 ghlf.org/the-health-a...
#TheHealthAdvocates #VaccinePolicy
Reposted by JP Summers
July 24, 2025 at 9:15 PM
We're looking for patients living with #lupus #uveitis
#Psoriaticarthritis #Sjögren #chronicheadache #IgG4 to share their stories - some opportunities are paid.
research.net/r/V7GLJ9T
#Psoriaticarthritis #Sjögren #chronicheadache #IgG4 to share their stories - some opportunities are paid.
research.net/r/V7GLJ9T
July 28, 2025 at 2:05 PM
We're looking for patients living with #lupus #uveitis
#Psoriaticarthritis #Sjögren #chronicheadache #IgG4 to share their stories - some opportunities are paid.
research.net/r/V7GLJ9T
#Psoriaticarthritis #Sjögren #chronicheadache #IgG4 to share their stories - some opportunities are paid.
research.net/r/V7GLJ9T
Reposted by JP Summers
What’s reconciliation? What’s rescission? Why do they matter for your health?
🎧 In the latest #TheHealthAdvocates, Steven Newmark breaks down how Congress uses budget tools to shape healthcare access.
➡️ Listen here: ghlf.org/the-health-a...
#HealthPolicy #PatientVoices #HealthcareAccess
🎧 In the latest #TheHealthAdvocates, Steven Newmark breaks down how Congress uses budget tools to shape healthcare access.
➡️ Listen here: ghlf.org/the-health-a...
#HealthPolicy #PatientVoices #HealthcareAccess
July 26, 2025 at 8:45 PM
What’s reconciliation? What’s rescission? Why do they matter for your health?
🎧 In the latest #TheHealthAdvocates, Steven Newmark breaks down how Congress uses budget tools to shape healthcare access.
➡️ Listen here: ghlf.org/the-health-a...
#HealthPolicy #PatientVoices #HealthcareAccess
🎧 In the latest #TheHealthAdvocates, Steven Newmark breaks down how Congress uses budget tools to shape healthcare access.
➡️ Listen here: ghlf.org/the-health-a...
#HealthPolicy #PatientVoices #HealthcareAccess
Reposted by JP Summers
“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV
via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA
via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA
Social Media and Rheumatoid Arthritis: The Good and The Bad
Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.
buff.ly
July 27, 2025 at 4:30 AM
“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV
via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA
via @creakyjoints.bsky.social / @chroniceileen.bsky.social
#RA
Reposted by JP Summers
“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW
from @creakyjoints.bsky.social / @chroniceileen.bsky.social
from @creakyjoints.bsky.social / @chroniceileen.bsky.social
Navigating Single Motherhood and Rheumatoid Arthritis
A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.
buff.ly
July 24, 2025 at 5:30 PM
“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW
from @creakyjoints.bsky.social / @chroniceileen.bsky.social
from @creakyjoints.bsky.social / @chroniceileen.bsky.social
Reposted by JP Summers
Federal health agencies face major proposed cuts in the 2026 budget. What’s at stake — and how does this affect chronic illness care?
🎧 New #HealthAdvocates episode with Steven Newmark is out now.
Plus: our new national partnership with Walgreens.
🔗 ghlf.org/the-health-a...
🎧 New #HealthAdvocates episode with Steven Newmark is out now.
Plus: our new national partnership with Walgreens.
🔗 ghlf.org/the-health-a...
June 7, 2025 at 8:54 PM
Federal health agencies face major proposed cuts in the 2026 budget. What’s at stake — and how does this affect chronic illness care?
🎧 New #HealthAdvocates episode with Steven Newmark is out now.
Plus: our new national partnership with Walgreens.
🔗 ghlf.org/the-health-a...
🎧 New #HealthAdvocates episode with Steven Newmark is out now.
Plus: our new national partnership with Walgreens.
🔗 ghlf.org/the-health-a...
Reposted by JP Summers
16.5M adults in the U.S. live with atopic dermatitis. Pharmacists like Mallory can help manage symptoms, navigate insurance, and improve quality of life.
🔗 linktr.ee/YourSkinYour...
#AtopicDermatitis #Walgreens #GHLF #YourSkinYourHealth
🔗 linktr.ee/YourSkinYour...
#AtopicDermatitis #Walgreens #GHLF #YourSkinYourHealth
June 9, 2025 at 8:22 PM
16.5M adults in the U.S. live with atopic dermatitis. Pharmacists like Mallory can help manage symptoms, navigate insurance, and improve quality of life.
🔗 linktr.ee/YourSkinYour...
#AtopicDermatitis #Walgreens #GHLF #YourSkinYourHealth
🔗 linktr.ee/YourSkinYour...
#AtopicDermatitis #Walgreens #GHLF #YourSkinYourHealth
Reposted by JP Summers
Evening update: still flaring, still fabulous, still horizontal.
June 9, 2025 at 10:33 PM
Evening update: still flaring, still fabulous, still horizontal.
Reposted by JP Summers
LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine.
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
Why LGBTQ+ Representation Matters to Me: Celebrating Diversity and Inclusion in Health Care
In honor of LGBTQ+ Pride Month, members of our chronic illness community share why representation of the LGBTQ+ community is crucial for achieving health equity.
ghlf.org
June 10, 2025 at 7:52 PM
LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine.
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
🌈 Read this powerful reflection on identity, health, and why representation matters:
🔗 ghlf.org/chronic-illn...
#PrideMonth #LGBTQHealth #ChronicIllness
Reposted by JP Summers
It can take 7–10 years to get diagnosed with hidradenitis suppurativa (HS). Jasmine shares her story and how pharmacists can help with access and support. You’re not alone.
🔗 linktr.ee/YourSkinYour...
#HSawareness #Walgreens #GHLF #YourSkinYourHealth
🔗 linktr.ee/YourSkinYour...
#HSawareness #Walgreens #GHLF #YourSkinYourHealth
June 2, 2025 at 7:01 PM
It can take 7–10 years to get diagnosed with hidradenitis suppurativa (HS). Jasmine shares her story and how pharmacists can help with access and support. You’re not alone.
🔗 linktr.ee/YourSkinYour...
#HSawareness #Walgreens #GHLF #YourSkinYourHealth
🔗 linktr.ee/YourSkinYour...
#HSawareness #Walgreens #GHLF #YourSkinYourHealth
Reposted by JP Summers
We went live from the #WorldVaccineCongress to dig into the future of adult immunization in the U.S.—from funding threats and misinformation to coalition-building and access equity.
Tune in for expert insights filmed on-site in Washington, DC!
Watch now: youtu.be/79_TONl67GI
#HealthcareMatters
Tune in for expert insights filmed on-site in Washington, DC!
Watch now: youtu.be/79_TONl67GI
#HealthcareMatters
April 25, 2025 at 9:14 PM
We went live from the #WorldVaccineCongress to dig into the future of adult immunization in the U.S.—from funding threats and misinformation to coalition-building and access equity.
Tune in for expert insights filmed on-site in Washington, DC!
Watch now: youtu.be/79_TONl67GI
#HealthcareMatters
Tune in for expert insights filmed on-site in Washington, DC!
Watch now: youtu.be/79_TONl67GI
#HealthcareMatters
Reposted by JP Summers
Psoriasis is more than skin deep. If you're dealing with stubborn flare-ups or uncomfortable skin symptoms, it's time to talk to your doctor.
Learn about treatment options:
insideoutdisease.creakyjoints.org
This post was made possible with support from @amgen.bsky.social #AmgenSponsored
Learn about treatment options:
insideoutdisease.creakyjoints.org
This post was made possible with support from @amgen.bsky.social #AmgenSponsored
April 26, 2025 at 8:19 AM
Psoriasis is more than skin deep. If you're dealing with stubborn flare-ups or uncomfortable skin symptoms, it's time to talk to your doctor.
Learn about treatment options:
insideoutdisease.creakyjoints.org
This post was made possible with support from @amgen.bsky.social #AmgenSponsored
Learn about treatment options:
insideoutdisease.creakyjoints.org
This post was made possible with support from @amgen.bsky.social #AmgenSponsored
Reposted by JP Summers
“Sometimes looking dressed is #misinterpreted as feeling well & symptoms are ignored or are seen as less than they are..One male #doctor actually said ‘well, you could do your hair; can’t be that bad.””: buff.ly/3U7HSGp
via @creakyjoints.bsky.social
#NEisvoid #ChronicIllness #spoonie
via @creakyjoints.bsky.social
#NEisvoid #ChronicIllness #spoonie
Invisible Illness Patients: You May Need to Dress for Doctor Visits to Match How You Physically Feel
Learn more about how you dress for a doctor’s visit may affect the care you receive and the pros and cons of dressing up versus dressing down.
buff.ly
April 27, 2025 at 6:30 AM
“Sometimes looking dressed is #misinterpreted as feeling well & symptoms are ignored or are seen as less than they are..One male #doctor actually said ‘well, you could do your hair; can’t be that bad.””: buff.ly/3U7HSGp
via @creakyjoints.bsky.social
#NEisvoid #ChronicIllness #spoonie
via @creakyjoints.bsky.social
#NEisvoid #ChronicIllness #spoonie
Reposted by JP Summers
Living with Generalized Pustular Psoriasis: From stress to flares to mental health, our guests explore why managing GPP requires medical care and emotional support. Listen now: creakyjoints.org/getting-clea...
#psoriasis
#psoriasis
April 27, 2025 at 6:27 PM
Living with Generalized Pustular Psoriasis: From stress to flares to mental health, our guests explore why managing GPP requires medical care and emotional support. Listen now: creakyjoints.org/getting-clea...
#psoriasis
#psoriasis
Reposted by JP Summers
🧴 Living with psoriasis? We want to hear from you!
💸 Paid opportunity
🗣️ Your voice, your impact
👉 Take the short survey to see if you're eligible:
www.research.net/r/52H5KKQ?SV
#Psoriasis #PatientAdvocacy #ChronicIllness #PatientVoice
💸 Paid opportunity
🗣️ Your voice, your impact
👉 Take the short survey to see if you're eligible:
www.research.net/r/52H5KKQ?SV
#Psoriasis #PatientAdvocacy #ChronicIllness #PatientVoice
April 25, 2025 at 12:23 AM
🧴 Living with psoriasis? We want to hear from you!
💸 Paid opportunity
🗣️ Your voice, your impact
👉 Take the short survey to see if you're eligible:
www.research.net/r/52H5KKQ?SV
#Psoriasis #PatientAdvocacy #ChronicIllness #PatientVoice
💸 Paid opportunity
🗣️ Your voice, your impact
👉 Take the short survey to see if you're eligible:
www.research.net/r/52H5KKQ?SV
#Psoriasis #PatientAdvocacy #ChronicIllness #PatientVoice
Reposted by JP Summers
Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming.
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
Lupus Help Center
Ready to explore clinical trials, ask questions, or hear patient stories? The Lupus Help Center has the support and info you need.
www.lupushelpcenter.org
April 23, 2025 at 6:33 PM
Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming.
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support.
Explore more: www.lupushelpcenter.org
Reposted by JP Summers
GHLF is bringing you coverage from the 2025 World Vaccine Congress! In this first interview, we speak with Dr. Sabra L. Klein, Professor at Johns Hopkins Bloomberg School of Public Health.
For 💉 resources: ghlf.org/issues/vacci...
#WorldVaccineCongress #WomensHealth #Immunology #PublicHealth #GHLF
For 💉 resources: ghlf.org/issues/vacci...
#WorldVaccineCongress #WomensHealth #Immunology #PublicHealth #GHLF
April 24, 2025 at 6:53 AM
GHLF is bringing you coverage from the 2025 World Vaccine Congress! In this first interview, we speak with Dr. Sabra L. Klein, Professor at Johns Hopkins Bloomberg School of Public Health.
For 💉 resources: ghlf.org/issues/vacci...
#WorldVaccineCongress #WomensHealth #Immunology #PublicHealth #GHLF
For 💉 resources: ghlf.org/issues/vacci...
#WorldVaccineCongress #WomensHealth #Immunology #PublicHealth #GHLF
Reposted by JP Summers
If you’re living with RA, AS, axSpA, PsA, or GCA, your feedback could help improve doctor visits for everyone.
Take our short survey and you’ll be entered to win one of three $100 gift cards.
Don't wait! The survey closes Sunday, April 27th.
www.research.net/r/2CRFZX3?SV...
Take our short survey and you’ll be entered to win one of three $100 gift cards.
Don't wait! The survey closes Sunday, April 27th.
www.research.net/r/2CRFZX3?SV...
Doctor Visit Feedback - Just 6 Clicks to Make Your Voice Heard
Take this survey powered by surveymonkey.com. Create your own surveys for free.
www.research.net
April 24, 2025 at 6:38 PM
If you’re living with RA, AS, axSpA, PsA, or GCA, your feedback could help improve doctor visits for everyone.
Take our short survey and you’ll be entered to win one of three $100 gift cards.
Don't wait! The survey closes Sunday, April 27th.
www.research.net/r/2CRFZX3?SV...
Take our short survey and you’ll be entered to win one of three $100 gift cards.
Don't wait! The survey closes Sunday, April 27th.
www.research.net/r/2CRFZX3?SV...
Reposted by JP Summers
🧑⚕️ We're recruiting patients for a paid advisory board!
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
April 24, 2025 at 6:58 PM
🧑⚕️ We're recruiting patients for a paid advisory board!
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
Do you still experience gout flares? Your voice can help improve care for others.
Apply here 👉 www.research.net/r/GOUTADVISOR
#PatientVoice #Gout #ChronicIllness #GoutAwareness
📣@CreakyJoints has just launched The Lupus Help Center!
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
April 23, 2025 at 7:41 PM
📣@CreakyJoints has just launched The Lupus Help Center!
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
Have you thought about participating in a #ClinicalTrial?
If you or a loved one lives with #lupus, be sure to click on the link below to see if you pre-qualify.
creakyjoints.org/lupus-help-c...
Reposted by JP Summers
How to Prepare for Lupus Clinical Trials: Feeling unsure about clinical trials? With the right preparation, you can make informed decisions and have a meaningful experience.
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
April 10, 2025 at 7:29 PM
How to Prepare for Lupus Clinical Trials: Feeling unsure about clinical trials? With the right preparation, you can make informed decisions and have a meaningful experience.
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
🔗 Explore More: creakyjoints.org/about-arthri...
#LupusWarrior #SupportSystem #ClinicalTrials #LupusAwareness #CreakyJoints
Reposted by JP Summers
🌟 Finding Emotional and Practical Support During Lupus Clinical Trials 🌟
A strong support system makes all the difference! Whether it's friends, family, or your health care team, having the right support helps you navigate #lupus clinical trials with confidence.
🔗 creakyjoints.org/about-arthri...
A strong support system makes all the difference! Whether it's friends, family, or your health care team, having the right support helps you navigate #lupus clinical trials with confidence.
🔗 creakyjoints.org/about-arthri...
Finding Emotional and Practical Support During Lupus Clinical Trial
Emotional and practical support is key for lupus clinical trials. Learn how to prepare, build the right support system, and ask for help.
creakyjoints.org
March 18, 2025 at 7:23 AM
🌟 Finding Emotional and Practical Support During Lupus Clinical Trials 🌟
A strong support system makes all the difference! Whether it's friends, family, or your health care team, having the right support helps you navigate #lupus clinical trials with confidence.
🔗 creakyjoints.org/about-arthri...
A strong support system makes all the difference! Whether it's friends, family, or your health care team, having the right support helps you navigate #lupus clinical trials with confidence.
🔗 creakyjoints.org/about-arthri...