Anna Kerr
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annajk.bsky.social
Anna Kerr
@annajk.bsky.social
1.2K followers 100 following 9 posts
ME patient, art appreciator, advocate, mother.
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Reposted by Anna Kerr
rorpreston.bsky.social
To help fund my work on @crunchme.bsky.social I'm selling 'Cure ME/CFS' caps!

If you'd like to buy one, here is the link to my store:

yewjk2-s6.myshopify.com

Shipping only in the UK for now while I get the ball rolling!

Only 5 left of this first batch 👀

#MECFS #LongCovid
Black cap saying 'Cure ME/CFS' on the front, church and people in the background
February 4, 2025 at 8:17 PM
Reposted by Anna Kerr
rippermd41.bsky.social
I really wish #PEM was just worsened fatigue.

It is so, so much more than that.

#MECFS
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jan 10
Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:

Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome

Also shows all the range of ME/#CFS
symptoms

#MECFS
1/
Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate
January 12, 2025 at 10:02 PM
Reposted by Anna Kerr
drjogreer.bsky.social
So excited to share these messages of hope & solidarity for 2025! Huge thanks to all who contributed.
#TheRedTreeandME #myalgicencephalomyelitis #LongCovid #pwME open.substack.com/pub/theredtr...
'We shall have spring again' - Messages of hope and solidarity for 2025
“Wrong will be right, when Aslan comes in sight, At the sound of his roar, sorrows will be no more, When he bares his teeth, winter meets its death, And when he shakes his mane, we shall have spring a...
open.substack.com
December 31, 2024 at 2:11 AM
Reposted by Anna Kerr
hayleygleeson.bsky.social
long covid isn't just stopping people from working, exercising, socialising, living independently. it's also snuffing out patients' dreams of having children, and complicating pregnancy for those who are able to conceive www.abc.net.au/news/2024-12...
'Up yours long COVID': The women refusing to let their baby dreams die
Long COVID is snuffing out some patients' dreams of having children, and complicating pregnancy and parenthood for those who choose to conceive despite their symptoms and doubts about when or if they ...
www.abc.net.au
December 28, 2024 at 10:21 PM
Reposted by Anna Kerr
valebodi.bsky.social
Living w/ ME: Sadly, the longer it takes to get a diagnosis, the worse the condition can get, and before you know it, you’ve lost your job and your quality of life has taken a nosedive. The stigma surrounding ME is a massive barrier to getting the help we need. wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
November 28, 2024 at 5:29 PM
Reposted by Anna Kerr
o-bel.bsky.social
Some holiday reminders for the COVID conscious community 🧡
An image with a yellow background and six smaller images with accompanying text. The top in orange text reads "it's okay to.... holiday edition." The first image is an orange and red square that reads "healthy boundaries healthy space" with the text "remind people of your boundaries," the next image is a yellow megaphone with the text "advocate for event precautions." The next image is of a woman with dark hair a brown skin and t-shirt wearing a yellow mask with the text "mask at the holiday party." The bottom left image is of a yellow cartoon family and a heart with the text "start your own traditions," the next image is of a man wearing orange sitting with his head in his hands and the text "experience grief and sadness." The last image is a text message bubble saying "thanks for the invite, I won't be able to make it" underneath it says "turn down invitations" oliviabelknaptherapy.com
November 28, 2024 at 6:04 PM
Reposted by Anna Kerr
chromatowski.bsky.social
This is pretty bad. Good day to share a Bsky starter pack with friends who might like some help getting started on here.

Here’s mine for #NEISvoid, but there are so many more good ones out there.

go.bsky.app/KnwWePQ
nytimes.com The New York Times @nytimes.com · Nov 5
Elon Musk plans to spend election night with Donald Trump, giving the former president direct access to the person controlling X, a key information platform, on what could be a chaotic evening.
Musk to Spend Election Night With Trump at Mar-a-Lago
Elon Musk has spent $119 million on a super PAC supporting Donald Trump and held events on his behalf. But his ownership of X is especially valuable.
www.nytimes.com
November 5, 2024 at 9:00 PM
annajk.bsky.social
@edyong209.bsky.social can't wait to see your talk at the #UnitetoFight conference yesterday. Everyone saying it was the best speech of the day. Any chance you can post it for patients like me who were too ill to watch?
May 15, 2024 at 10:46 PM
annajk.bsky.social
@putrinolab.bsky.social justice wanted to say thank you for your incredible posts/tweets. As an ME patient, it’s incredible to have a researcher share their knowledge and also their feelings so openly. I can’t tell you how supportive this feels and how much hope it brings to my heart.
January 28, 2024 at 1:54 AM