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advocate4me.bsky.social
@advocate4me.bsky.social
140 followers 160 following 5 posts
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meactnet.bsky.social
Upcoming conference dates!

Sept. 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
ow.ly/lMRC50WQQ4Z

Sept. 9-10: RECOVER-TLC ow.ly/pRxx50WQQ50

October 22-25: IACFS/ME Research & Clinical Conference ow.ly/6RIL50WQQ4Y

#pwME #MECFS #LongCovid
Simple graphic listing three conference dates. Text is shortened form of what is found in post. September 5: Stanford Community Symposium on the Molecular Basis of ME/CFS September 9 - 10: NIH 2nd annual RECOVER- TLC October 22-25: IACFS/ME 17th Research and Clinical Conference
September 3, 2025 at 10:37 PM
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batemanhornecenter.bsky.social
One Guide. One Goal. Final push!
Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide.
Give now: givebutter.com/OneGuide_One...

#OneGuideOneGoal
Promotional graphic for Bateman Horne Center’s “One Guide One Goal” campaign with the tagline “$5 Turns Knowledge into Care” and “We Can Change Care Together.” Below, a computer screen shows a group of healthcare providers in training and text promoting “Accredited CME Modules” to recognize ME/CFS and Long COVID, diagnose accurately, and provide evidence-based treatment.
August 22, 2025 at 6:03 PM
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batemanhornecenter.bsky.social
August is Severe ME Month.
Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp

💙 We stand with them.
#SevereME #MECFS #UnitedForME
August 24, 2025 at 5:45 PM
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batemanhornecenter.bsky.social
We’re nearly 1/4 of the way to our $10K match honoring Dr. “Bud” Keye’s legacy of compassionate care! 💙
Give by July 15 to double your impact for ME/CFS & Long COVID.
Text BHCGUIDE to 53555 to donate

#MECFS #LongCOVID #DoubleYourImpact
Illustration of a smartphone text message conversation with Lucinda Bateman, MD. The message reads: “Double your impact! Text BHCGUIDE to 53555 and your donation will be matched up to $10,000.” The message input field shows “BHCGUIDE.” Bateman Horne Center logo appears in the corner.
July 12, 2025 at 4:31 PM
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batemanhornecenter.bsky.social
Chapter 2 of the Clinical Care Guide breaks down ME/CFS, Long COVID, and related conditions for clinicians—covering diagnostic criteria, PEM, comorbidities, & practical tools for care.
📘 Download: bit.ly/4jScKFu
@openmedf.bsky.social #MECFS #LongCOVID
Cover image for Chapter 2 of the Clinical Care Guide titled 'Basics of Long COVID, ME/CFS, and Comorbidities'. A cartoon clinician holds a clipboard, with bullet points listing topics such as ME/CFS, PEM, diagnostic criteria, affected systems, comorbid conditions, and shared strategies. Includes Bateman Horne Center logo.
June 26, 2025 at 7:16 PM
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batemanhornecenter.bsky.social
We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide.
$5 = 1 guide. 1 provider. 1 life changed.
💙 Donate now: loom.ly/q08sVxQ
📘 Learn more: loom.ly/-Gjg9w8
#MECFS #LongCOVID @openmedf.bsky.social
Promotional image for a fundraising campaign by Bateman Horne Center. Text at the top reads: 'A Lifeline for ME/CFS & Long COVID. ONE GUIDE ONE GOAL. $5 Turns Knowledge into Care.' The center image is a black-and-white photo of a man sitting on the edge of a bed with his face in his hands, conveying fatigue or distress. Below, bold text says 'WE CAN CHANGE CARE TOGETHER,' with the word 'TOGETHER' highlighted in light blue and circled. The Bateman Horne Center logo is also displayed.
June 23, 2025 at 4:09 PM
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batemanhornecenter.bsky.social
ER visits can be tough with ME/CFS & Long COVID. This popular MERC’s guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
Black and white photo of a hospital emergency room entrance with the text 'ME/CFS in the ER: WHAT YOU NEED TO KNOW' on the bottom, along with the MERC logo at the bottom right.
May 13, 2025 at 5:42 PM
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batemanhornecenter.bsky.social
Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22
Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.
May 15, 2025 at 2:49 PM
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batemanhornecenter.bsky.social
On #ClinicalTrialsDay, we celebrate BHC's research team. They’re advancing treatments and improving diagnostics for ME/CFS & Long COVID.

🔗 Learn more about what our research team is up to: loom.ly/MJo615A
#CTD2025 #ResearchMatters
Group of five women posing for a photo in front of a colorful backdrop with orange, black, and blue curtains. They are celebrating Clinical Trials Day with 'Powered By Purpose' and 'I Love Clinical Research' signs. The women are pointing at signs with research-related messages. The logos for ACRP (Association of Clinical Research Professionals) and Bateman Horne Center are visible at the bottom of the image. The text 'Clinical Trials Day May 20' is prominently displayed.
May 20, 2025 at 3:26 PM
advocate4me.bsky.social
www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
www.theguardian.com
March 18, 2025 at 4:11 AM
advocate4me.bsky.social
open.substack.com/pub/longcovi...
How To Help Children with Long COVID
With Physician and Mother Dr Melanie Hoppers
open.substack.com
February 23, 2025 at 4:02 PM
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batemanhornecenter.bsky.social
ME/CFS is a complex condition that can occur after an infection (like the flu, mono, COVID-19, etc.). For some, there’s no clear trigger, but regardless, the illness is completely life altering.
Learn more👉 loom.ly/9Dwp5IE
#MECFS #LongCOVID #InvisibleIllness
February 6, 2025 at 4:19 PM
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bhanlon15.bsky.social
ME Association: 'America: ‘Virus Hunter’ Ian Lipkin calls for Long Covid and ME/CFS to be studied together'

meassociation.org.uk/2025/02/amer...
America: 'Virus Hunter' Ian Lipkin calls for Long Covid and ME/CFS to be studied together - The ME Association
“ME/CFS and long Covid share profound similarities, including post-exertional malaise, […]
meassociation.org.uk
February 6, 2025 at 5:08 PM
advocate4me.bsky.social
www.ahajournals.org/doi/10.1161/...
Cerebral Blood Flow in Orthostatic Intolerance | Journal of the American Heart Association
www.ahajournals.org
February 5, 2025 at 12:38 AM
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batemanhornecenter.bsky.social
🌟 Struggling with unexplained symptoms after a recent infection or never fully recovered from COVID-19?

✅ Watch the 3rd video in our BASICS series with Clayton Powers, DPT, titled "The BASICS: Diagnosing ME/CFS", and gain insight into this often-misunderstood disease.

🔗 Watch here: bit.ly/4jb1ww8
The Basics: Diagnosing ME/CFS
Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS). - ME/CFS description - Symptoms that meet the diagnostic criteria This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance. Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen. Bateman Horne Center’s involvement in this program is made possible with the additional support of Open Medicine Foundation and the Whittemore Peterson Institute and donors like you.
bit.ly
January 21, 2025 at 4:38 PM
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batemanhornecenter.bsky.social
Post-COVID #MECFS rates are 15x higher than pre-pandemic levels. New research highlights the urgent need for awareness and care. Explore the findings: loom.ly/wLycS1s
January 13, 2025 at 7:29 PM
advocate4me.bsky.social
Quiet evening in Az to start off the new year
January 6, 2025 at 1:06 AM
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tomkindlon.bsky.social
Bateman Horne Center has a list of Healthcare Professional Continuing Medical Education (CME) courses on their website you can share with your doctor if they want to learn more about ME/CFS. Two of the courses are expiring soon (end of January).

batemanhornecenter.org/providers/me...

#MEcfs #pwME
CME
BHC provides resources from continuing medical education (CME) offerings and other professional literature specific to ME/CFS, FM, and long COVID.
batemanhornecenter.org
January 5, 2025 at 4:54 PM
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altyellonatpark.org
The censorship algorithm on Twitter reduced our audience by roughly 95%, and seriously, who does that to a wildlife biology & advocacy group ?
So we moved 😇 over here to BlueSky

If you could, please help us regain our following
Follow
Retweet and
Repeat ;-)

Together we can change the world.
January 4, 2025 at 5:56 PM
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tomkindlon.bsky.social
Bateman Horne Center: Healthcare Professional Continuing Medical Education (CME)

batemanhornecenter.org/wp-content/u...

I haven't vetted these but am hoping they are good or at least good enough

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #LongCovid
Screenshot of page of text at link
December 18, 2024 at 11:36 PM
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neurologistmom.bsky.social
📌 Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual.
batemanhornecenter.org/education/me...
December 6, 2024 at 6:29 PM