Alaska A.
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actuallyalaska.bsky.social
Alaska A.
@actuallyalaska.bsky.social
tube-fed model. writer. advocate.

welcome to my best life with vascular eds & co.
Reposted by Alaska A.
Exclusive: Immigrants falsely labeled dead by the Social Security Administration are showing up at field offices with documents proving they are alive, leading staff to reinstate nearly three dozen people over the past week, according to records obtained by The Post.
Immigrants prove they are alive, forcing Social Security to undo death label
The immigrants who have requested a reversal and been reinstated in Social Security databases include a Haitian asylum seeker and a minor child.
www.washingtonpost.com
April 18, 2025 at 5:05 PM
waking up having a mast cell reaction should be illegal. the feeling of starting to choke on your own airway is.. not okay with me. 😭

#chronicillness #mastocytosis #spoonie #EDS #ehlersdanlossyndrome
January 10, 2025 at 4:31 PM
Reposted by Alaska A.
Just saw a no-longer relevant evacuation notice on instagram from five hours ago and remembered — that’s right, due to hyper-monetization every major social network no longer shows you life-saving breaking news as it happens.

They turned it over to an algorithm that finally noticed “he likes fire.”
January 10, 2025 at 5:13 AM
i finally received approval from my insurance company on my seizure medication!

.. for the wrong dosage.

yayay, more delays! definitely not panicking about the increased risk of status epilepticus.

#chronicillness
January 8, 2025 at 11:56 PM
if you’re one of those weird nerds willing to jump in front of any valid criticism of elon musk, this user is about to really hurt your feelings.
December 18, 2024 at 5:32 AM
P.S. — there is a HUGE financial incentive to ban TikTok in the U.S., because it’s largest competitor is the Reels feature on Instagram — an app coincidentally owned by Mark Zuckerberg, an American billionaire. 😷 #TikTokBan #politics
December 18, 2024 at 5:30 AM
broke my ‘no seizures’ streak today because my insurance company decided it was going to take weeks longer to approve + fill my epilepsy medication than any time before, so i’ve been rationing what i have and.. well.

healthcare system = boo hissss, tomato tomato.
December 15, 2024 at 7:32 AM
Reposted by Alaska A.
hello, 911? yes, there are a bunch of people here and they are absolutely DEMANDING some figgy pudding
December 7, 2024 at 12:16 AM
Reposted by Alaska A.
Please.
December 6, 2024 at 4:35 PM
saw someone wearing a t-shirt that said, “WINNER WINNER CHICKEN DINNER!” over a photo of donald trump eating fried wings. the secondhand embarrassment almost gave me an asthma attack. 🥲🤌🏽
December 5, 2024 at 1:24 AM
hiii, y’all! my name is alaska (yes, actually) and i’m a huge nerd who is just glad to be here. 🫶🏽 always looking for new #chronicallyill, politically inclined, or mutually interested friends to connect with!
December 4, 2024 at 9:46 PM