VoiceForIBD
@voiceforibd.bsky.social
IBD Patient Advocate💜🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
November 7, 2025 at 10:03 PM
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
When @congressmin.bsky.social wants to meet w/you, you don't hesitate as it's a chance to use my voice at a time when #healthcare access is at risk.
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Rocio is an IBD patient who receives coverage through the Affordable Care Act, locally known as Covered California
Because of Republican cuts to these services, she could lose access to the lifesaving care she needs.
We must protect affordable health care. People like Rocio depend on it.
Because of Republican cuts to these services, she could lose access to the lifesaving care she needs.
We must protect affordable health care. People like Rocio depend on it.
October 27, 2025 at 6:30 PM
When @congressmin.bsky.social wants to meet w/you, you don't hesitate as it's a chance to use my voice at a time when #healthcare access is at risk.
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
October 14, 2025 at 2:47 PM
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
October 13, 2025 at 2:53 PM
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
October 6, 2025 at 2:59 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
October 4, 2025 at 9:30 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
October 1, 2025 at 1:56 PM
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
September 28, 2025 at 2:49 PM
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
September 22, 2025 at 7:49 PM
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
September 21, 2025 at 4:01 PM
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
September 20, 2025 at 4:02 PM
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
September 15, 2025 at 2:57 PM
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
September 10, 2025 at 3:06 PM
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
September 5, 2025 at 3:08 PM
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
September 3, 2025 at 3:41 PM
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
August 5, 2025 at 2:51 PM
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social
🔗 bit.ly/IBDGIPsych
🔗 bit.ly/IBDGIPsych
July 30, 2025 at 2:50 PM
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social
🔗 bit.ly/IBDGIPsych
🔗 bit.ly/IBDGIPsych
The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
July 23, 2025 at 2:54 PM
The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram
July 15, 2025 at 7:41 PM
Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram
Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔
Read the full summary 👀
bit.ly/44OvPSY
Read the full summary 👀
bit.ly/44OvPSY
July 12, 2025 at 8:29 PM
Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔
Read the full summary 👀
bit.ly/44OvPSY
Read the full summary 👀
bit.ly/44OvPSY
Absolutely gutted for #IBD patients AND the millions of people who will be affected by cuts to #Medicaid & #ACA 😢 Every single person deserves #healthcare Below is info from the @crohnscolitisfdn.bsky.social
re: support for #Crohns & #UlcerativeColitis patients 👇🏼
re: support for #Crohns & #UlcerativeColitis patients 👇🏼
July 3, 2025 at 8:35 PM
Absolutely gutted for #IBD patients AND the millions of people who will be affected by cuts to #Medicaid & #ACA 😢 Every single person deserves #healthcare Below is info from the @crohnscolitisfdn.bsky.social
re: support for #Crohns & #UlcerativeColitis patients 👇🏼
re: support for #Crohns & #UlcerativeColitis patients 👇🏼
📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
July 1, 2025 at 3:42 PM
📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
June 26, 2025 at 5:17 PM
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼
June 4, 2025 at 3:11 PM
¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼
Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
May 29, 2025 at 3:45 PM
Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼