VoiceForIBD
@voiceforibd.bsky.social
IBD Patient Advocate💜🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Hispanic/Latina🇵🇪🇺🇸
Crohn’s & Colitis Foundation National Board of Trustees
#CrohnsDisease & #UlcerativeColitis🦠
Committed To Finding A Cure🔬🧬
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
November 7, 2025 at 10:03 PM
Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community!
REGISTER: bit.ly/RunForAClaus...
REGISTER: bit.ly/RunForAClaus...
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
October 14, 2025 at 2:47 PM
The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼
#HispanicHeritageMonth #MentalHealth
#SaludMental
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
October 13, 2025 at 2:53 PM
During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.
Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...
October 6, 2025 at 2:59 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
October 4, 2025 at 9:30 PM
Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
#WorldOstomyDay #OstomyLife
@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
October 1, 2025 at 1:56 PM
Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Read 🗒️ 👉🏼 bit.ly/3Y9oc7C
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
September 28, 2025 at 2:49 PM
Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!
Our message ⬇️
✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement
Patient voices matter more than ever 👊🏼
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
September 22, 2025 at 7:49 PM
During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
September 21, 2025 at 4:01 PM
My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
60 advocates, 22 states, 75 meetings 🤯
All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️
#IBDinDC #IBDDayOnTheHill
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
September 20, 2025 at 4:02 PM
Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
September 15, 2025 at 2:57 PM
#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
September 10, 2025 at 3:06 PM
Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein
bit.ly/IBDandProtein
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
September 5, 2025 at 3:08 PM
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
September 3, 2025 at 3:41 PM
🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
& @crohnscolitisfdn.bsky.social
Learn more👇🏼
🔗 bit.ly/IBDGIPsych
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
August 5, 2025 at 2:51 PM
What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social
🔗 bit.ly/IBDGIPsych
🔗 bit.ly/IBDGIPsych
July 30, 2025 at 2:50 PM
GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social
🔗 bit.ly/IBDGIPsych
🔗 bit.ly/IBDGIPsych
The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
July 23, 2025 at 2:54 PM
The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition
Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼
Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram
July 15, 2025 at 7:41 PM
Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram
Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔
Read the full summary 👀
bit.ly/44OvPSY
Read the full summary 👀
bit.ly/44OvPSY
July 12, 2025 at 8:29 PM
Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔
Read the full summary 👀
bit.ly/44OvPSY
Read the full summary 👀
bit.ly/44OvPSY
📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
July 1, 2025 at 3:42 PM
📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
para hablar sobre las últimas #investigaciones en la #EII
📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻♀️ Ven con tus preguntas
🧠 Sal con conocimiento
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
June 26, 2025 at 5:17 PM
In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
Watch the full video on YouTube 🎥
bit.ly/IBDandGrains
¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼
June 4, 2025 at 3:11 PM
¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼
Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
May 29, 2025 at 3:45 PM
Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼
🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking
Watch & learn more 👇🏼