UKFHD
@ukfhd.bsky.social
The UK Forum on Haemoglobin Disorders is a national multi-disciplinary group of health care professionals interested in all aspects of sickle cell disease, thalassaemia and related conditions.
Reposted by UKFHD
@SkyNews: Consultant Haematologist & NHS England National Adviser, Dr Subarna Chakravorty joins Breakfast live in studio to talk about a gene-editing therapy that could cure the blood disorder thalassaemia
🕐 7:30am
👉 #Breakfast
📺 Sky 501, YouTube
📱 Watch live: https://t.co/jCgTS4BQOp https:
🕐 7:30am
👉 #Breakfast
📺 Sky 501, YouTube
📱 Watch live: https://t.co/jCgTS4BQOp https:
August 8, 2024 at 6:16 AM
@SkyNews: Consultant Haematologist & NHS England National Adviser, Dr Subarna Chakravorty joins Breakfast live in studio to talk about a gene-editing therapy that could cure the blood disorder thalassaemia
🕐 7:30am
👉 #Breakfast
📺 Sky 501, YouTube
📱 Watch live: https://t.co/jCgTS4BQOp https:
🕐 7:30am
👉 #Breakfast
📺 Sky 501, YouTube
📱 Watch live: https://t.co/jCgTS4BQOp https:
Reposted by UKFHD
Patients with sickle cell disease often wait hours for pain relief in the ER when triage doesn’t follow guidelines. Proper Emergency Severity Index (ESI) scoring can dramatically speed access to medication. https://ow.ly/s3aQ50X8xKM
#ConquerSCD #SickleCell #HemeSky
#ConquerSCD #SickleCell #HemeSky
October 8, 2025 at 3:15 PM
Patients with sickle cell disease often wait hours for pain relief in the ER when triage doesn’t follow guidelines. Proper Emergency Severity Index (ESI) scoring can dramatically speed access to medication. https://ow.ly/s3aQ50X8xKM
#ConquerSCD #SickleCell #HemeSky
#ConquerSCD #SickleCell #HemeSky
Reposted by UKFHD
The social care system is not fit for purpose. Many people can't access the care and support they need and others are left facing catastrophic costs. Our new long read outlines the six key issues and the options cited to tackle them. https://bit.ly/3VPOdH3
Fixing Social Care: The Six Key Problems And How To Tackle Them
Different people have different opinions about what’s ‘wrong’ with social care and how to fix it. This long read outlines the six key issues and the options cited to tackle them.
www.kingsfund.org.uk
October 8, 2025 at 7:00 AM
The social care system is not fit for purpose. Many people can't access the care and support they need and others are left facing catastrophic costs. Our new long read outlines the six key issues and the options cited to tackle them. https://bit.ly/3VPOdH3
#ASCAT things.. a fab conference that was future looking and created great amounts of Hope for red cell disorders #ASCAT @sicklecelluk.bsky.social @
October 9, 2025 at 10:01 AM
#ASCAT things.. a fab conference that was future looking and created great amounts of Hope for red cell disorders #ASCAT @sicklecelluk.bsky.social @
Thank you to all our speakers on the UKFORUM Gene therapy for haemoglobinopathies Webinar today. That was amazing and so many take home messages! Also to the audience for engaging so actively.
July 2, 2025 at 1:17 PM
Thank you to all our speakers on the UKFORUM Gene therapy for haemoglobinopathies Webinar today. That was amazing and so many take home messages! Also to the audience for engaging so actively.
Team Barts and team Croydon! #sicklecell
June 19, 2025 at 4:18 PM
Team Barts and team Croydon! #sicklecell
More celebrations .. from across the land
June 19, 2025 at 12:35 PM
More celebrations .. from across the land
Celebrating World sickle day:
June 19, 2025 at 12:32 PM
Celebrating World sickle day:
Reposted by UKFHD
🩸June 19th is #WorldSickleCellDay, and
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.
📺 YouTube playlist: bit.ly/40dkz0P
#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.
📺 YouTube playlist: bit.ly/40dkz0P
#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story - YouTube
Transitioning from Pediatric to Adult Care with Sickle Cell Disease – Patients Story (Multilingual Versions). This video is available in this playlist with t...
bit.ly
June 19, 2025 at 8:01 AM
🩸June 19th is #WorldSickleCellDay, and
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.
📺 YouTube playlist: bit.ly/40dkz0P
#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.
📺 YouTube playlist: bit.ly/40dkz0P
#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
Reposted by UKFHD
This is a really good example of investing in public services to save money in the long run, while also helping people!
£9m is to be invested in the NHS to make sickle cell treatment quicker & more accessible through using more Spectra Optia machines, which perform automated cell exchanges.
1/2
£9m is to be invested in the NHS to make sickle cell treatment quicker & more accessible through using more Spectra Optia machines, which perform automated cell exchanges.
1/2
Sickle cell patients to get better treatment after £9m boost
Patients living with rare blood disorders to benefit from increased access to treatment and availability of services, thanks to £9 million investment.
www.gov.uk
June 13, 2025 at 6:02 AM
This is a really good example of investing in public services to save money in the long run, while also helping people!
£9m is to be invested in the NHS to make sickle cell treatment quicker & more accessible through using more Spectra Optia machines, which perform automated cell exchanges.
1/2
£9m is to be invested in the NHS to make sickle cell treatment quicker & more accessible through using more Spectra Optia machines, which perform automated cell exchanges.
1/2
Reposted by UKFHD
Sickle cell patients to have quicker and more accessible treatment in England
Sickle cell patients to have quicker and more accessible treatment in England
Government announces £9m funding to make specialist blood machines more widely available across NHS
People living with sickle cell disease in England are to benefit from quicker and more accessible treatment due to a £9m investment, the government has announced.
Apheresis services, which are a type of treatment that removes harmful components from a patient’s blood, are to improve across England through the funding of more specialist treatment centres. The funding will ensure the wider availability of machines that remove a patient’s sickled red blood cells and replace them with healthy donor cells. Continue reading...
www.theguardian.com
June 12, 2025 at 11:11 PM
Sickle cell patients to have quicker and more accessible treatment in England
Reposted by UKFHD
UK sickle cell patients ‘get worse care than sufferers of similar disorders’
UK sickle cell patients ‘get worse care than sufferers of similar disorders’
Study commissioned by NHS finds that sickle cell disease care lags behind that for conditions such as cystic fibrosis
People living with sickle cell disease face substandard care as its treatment significantly lags behind advances relating to other genetic disorders such as cystic fibrosis, a report has found.
The study, commissioned by the NHS Race and Health Observatory and carried out by researchers at Imperial College London, analysed various measures of care for sickle cell disease between 2010 and 2024, including clinical trials, approved drugs and reviews of existing studies. Continue reading...
www.theguardian.com
June 19, 2025 at 4:15 AM
UK sickle cell patients ‘get worse care than sufferers of similar disorders’
Reposted by UKFHD
Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family — with 8 relatives affected. “Testing is so key — and blood donation even more so.” Thank you, Konnor, for helping raise awareness.
#WorldSickleCellDay #SickleCellAwareness
#WorldSickleCellDay #SickleCellAwareness
June 19, 2025 at 10:02 AM
Konnor Ewudzi joined us on the iconic Supacell estate to share how sickle cell has impacted his family — with 8 relatives affected. “Testing is so key — and blood donation even more so.” Thank you, Konnor, for helping raise awareness.
#WorldSickleCellDay #SickleCellAwareness
#WorldSickleCellDay #SickleCellAwareness
Happy world sickle cell day! We are focused as a clinician community on equity in care, funding brought up to par with other chronic conditions, research equity and improved education!
June 19, 2025 at 10:01 AM
Happy world sickle cell day! We are focused as a clinician community on equity in care, funding brought up to par with other chronic conditions, research equity and improved education!
Reposted by UKFHD
🧠 Leading up to #WorldSickleCellDay, let’s get the mind working!
🔍 What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
👉 buff.ly/WDpczGm
Tag us when you complete them! #WSCD2025 #TellItLoud
🔍 What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
👉 buff.ly/WDpczGm
Tag us when you complete them! #WSCD2025 #TellItLoud
June 18, 2025 at 3:08 PM
🧠 Leading up to #WorldSickleCellDay, let’s get the mind working!
🔍 What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
👉 buff.ly/WDpczGm
Tag us when you complete them! #WSCD2025 #TellItLoud
🔍 What’s the first word you see?
Download our word search + 2 fun activity pages for all ages:
👉 buff.ly/WDpczGm
Tag us when you complete them! #WSCD2025 #TellItLoud
Reposted by UKFHD
We’re proud to share that our CEO John James will be speaking at #PPW2025 hosted by @patientsassoc.bsky.social ! 🗣️✨Join him on Friday 4th July, 9–10am as he champions patient voices in healthcare campaigns.👉 Register now at: www.patients-association.org.uk #SickleCell #PatientVoice
June 16, 2025 at 8:02 AM
We’re proud to share that our CEO John James will be speaking at #PPW2025 hosted by @patientsassoc.bsky.social ! 🗣️✨Join him on Friday 4th July, 9–10am as he champions patient voices in healthcare campaigns.👉 Register now at: www.patients-association.org.uk #SickleCell #PatientVoice
Resharing these 2 excellent resources - both can be found here: www.e-lfh.org.uk/programmes/s... freely available to utilise in your Trusts to train staff, to care for individuals with SCD! They are under utilised at present. @sicklecelluk.bsky.social @kingshealth.bsky.social @gstt-nhs.bsky.social
June 8, 2025 at 4:41 PM
Resharing these 2 excellent resources - both can be found here: www.e-lfh.org.uk/programmes/s... freely available to utilise in your Trusts to train staff, to care for individuals with SCD! They are under utilised at present. @sicklecelluk.bsky.social @kingshealth.bsky.social @gstt-nhs.bsky.social
Reposted by UKFHD
Haemoglobinopathy Diagnosis , 4th edition (Original
medicineebook.com/product/haem...
medicineebook.com/product/haem...
Haemoglobinopathy Diagnosis , 4th edition (Original PDF from Publisher)
Product Details
Publisher : Wiley-Blackwell; 4th edition (April 21, 2025)
Language : English
Hardcover : 496 pages
ISBN-10 : 1394265352
ISBN-13 : 978-1394265350
medicineebook.com
April 20, 2025 at 2:49 PM
Haemoglobinopathy Diagnosis , 4th edition (Original
medicineebook.com/product/haem...
medicineebook.com/product/haem...
Hello, pleased to be here :)
May 28, 2025 at 10:31 AM
Hello, pleased to be here :)