Sickle Cell Society
@sicklecelluk.bsky.social
Official account of the Sickle Cell Society in the UK. We support and represent people affected by sickle cell disorder to improve their overall quality of life.
Aged 13–24 with sickle cell (or parent/carer)? Join a Healthcare Transition Advisory Group with Manchester & Nottingham researchers + Sickle Cell Society.
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
January 23, 2026 at 9:00 AM
Aged 13–24 with sickle cell (or parent/carer)? Join a Healthcare Transition Advisory Group with Manchester & Nottingham researchers + Sickle Cell Society.
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
Barts Health has shared an update on the SDEC pilot for sickle cell patients at The Royal London Hospital. We know concerns remain and will continue to listen.
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
January 21, 2026 at 1:18 PM
Barts Health has shared an update on the SDEC pilot for sickle cell patients at The Royal London Hospital. We know concerns remain and will continue to listen.
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
In Dec 2025, our mentors took our mentees to Spider-Man in Concert 🕷️🎶 An unforgettable night with a stunning live orchestra — and we even met some Spider-Verse Spider-Men! Huge thanks to Hammersmith Apollo for helping make it so magical ✨#SickleCellSociety #PeerToPeerMentoring
January 21, 2026 at 9:01 AM
In Dec 2025, our mentors took our mentees to Spider-Man in Concert 🕷️🎶 An unforgettable night with a stunning live orchestra — and we even met some Spider-Verse Spider-Men! Huge thanks to Hammersmith Apollo for helping make it so magical ✨#SickleCellSociety #PeerToPeerMentoring
Living with sickle cell in the North East of England?
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
January 20, 2026 at 9:01 AM
Living with sickle cell in the North East of England?
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
We welcome the SMC decision to recommend exa-cel (Casgevy) for severe sickle cell disorder in Scotland.
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
January 19, 2026 at 10:30 AM
We welcome the SMC decision to recommend exa-cel (Casgevy) for severe sickle cell disorder in Scotland.
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
Legacies of Sickle Cell takes place at the Wellcome Collection on 24 Jan 2026 (1–2pm). Guest speakers include Alinta Sara and Laurel Brumant-Palmer. The venue is fully accessible. Info/tickets + SCS archive: buff.ly/pFG3Nko
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
January 16, 2026 at 11:02 AM
Legacies of Sickle Cell takes place at the Wellcome Collection on 24 Jan 2026 (1–2pm). Guest speakers include Alinta Sara and Laurel Brumant-Palmer. The venue is fully accessible. Info/tickets + SCS archive: buff.ly/pFG3Nko
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
📢 We’re now hiring: Community Support Worker Lead (deadline extended) North East London. Lead delivery of our Home from Hospital project supporting people living with sickle cell and their families. 📅 Apply by 11th Feb 2026 buff.ly/EG3LNJj #SickleCellSociety #Hiring
January 15, 2026 at 9:02 AM
📢 We’re now hiring: Community Support Worker Lead (deadline extended) North East London. Lead delivery of our Home from Hospital project supporting people living with sickle cell and their families. 📅 Apply by 11th Feb 2026 buff.ly/EG3LNJj #SickleCellSociety #Hiring
BBC One’s Sort Your Life Out is back in 2026 and looking for households across the UK where clutter has taken over.
Stacey Solomon and the team help families declutter and transform their homes in just one week.
Apply now: buff.ly/xbq1YHm 🏠🧼✨
Stacey Solomon and the team help families declutter and transform their homes in just one week.
Apply now: buff.ly/xbq1YHm 🏠🧼✨
January 14, 2026 at 9:00 AM
BBC One’s Sort Your Life Out is back in 2026 and looking for households across the UK where clutter has taken over.
Stacey Solomon and the team help families declutter and transform their homes in just one week.
Apply now: buff.ly/xbq1YHm 🏠🧼✨
Stacey Solomon and the team help families declutter and transform their homes in just one week.
Apply now: buff.ly/xbq1YHm 🏠🧼✨
Children’s Sickle Cell Education & Play Session - Mon 16 Feb ⏰ 10am–1pm📍 Mary Sheridan Centre, SE11 For children aged 5–10 with sickle cell living in Lambeth, Lewisham or Southwark. Spaces are limited. 📧 Register: gstt.selcommunitysicklemdt@nhs.net #SickleCell #ChildrensHealth
January 5, 2026 at 10:50 AM
Children’s Sickle Cell Education & Play Session - Mon 16 Feb ⏰ 10am–1pm📍 Mary Sheridan Centre, SE11 For children aged 5–10 with sickle cell living in Lambeth, Lewisham or Southwark. Spaces are limited. 📧 Register: gstt.selcommunitysicklemdt@nhs.net #SickleCell #ChildrensHealth
Happy New Year! 🎉
In our new video, CEO John James breaks down what sickle cell is as we start 2026 with renewed awareness.
A reminder: blood donation remains vital for people living with sickle cell.
For updates, follow our GBSL page. ❤️🩸
#SickleCellSociety #GBSL
In our new video, CEO John James breaks down what sickle cell is as we start 2026 with renewed awareness.
A reminder: blood donation remains vital for people living with sickle cell.
For updates, follow our GBSL page. ❤️🩸
#SickleCellSociety #GBSL
January 2, 2026 at 9:02 AM
Happy New Year! 🎉
In our new video, CEO John James breaks down what sickle cell is as we start 2026 with renewed awareness.
A reminder: blood donation remains vital for people living with sickle cell.
For updates, follow our GBSL page. ❤️🩸
#SickleCellSociety #GBSL
In our new video, CEO John James breaks down what sickle cell is as we start 2026 with renewed awareness.
A reminder: blood donation remains vital for people living with sickle cell.
For updates, follow our GBSL page. ❤️🩸
#SickleCellSociety #GBSL
Happy New Year from the Sickle Cell Society ✨
Thank you to everyone who supports and stands with our community. We look forward to continuing this work together in the year ahead.
#SickleCellSociety #HappyNewYear #SickleCellCommunity
Thank you to everyone who supports and stands with our community. We look forward to continuing this work together in the year ahead.
#SickleCellSociety #HappyNewYear #SickleCellCommunity
December 31, 2025 at 12:31 PM
Happy New Year from the Sickle Cell Society ✨
Thank you to everyone who supports and stands with our community. We look forward to continuing this work together in the year ahead.
#SickleCellSociety #HappyNewYear #SickleCellCommunity
Thank you to everyone who supports and stands with our community. We look forward to continuing this work together in the year ahead.
#SickleCellSociety #HappyNewYear #SickleCellCommunity
Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.
Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org
#SickleCellSociety #SupportServices #CommunitySupport
Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org
#SickleCellSociety #SupportServices #CommunitySupport
December 24, 2025 at 11:55 AM
Our Helpline hours will be limited over the Christmas and New Year period. Please check the image for full details on opening times.
Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org
#SickleCellSociety #SupportServices #CommunitySupport
Thank you for your patience during this time. For urgent support, contact us at info@sicklecellsociety.org
#SickleCellSociety #SupportServices #CommunitySupport
Happy Holidays from our CEO and the whole SCS team! ❤️
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
December 23, 2025 at 1:02 PM
Happy Holidays from our CEO and the whole SCS team! ❤️
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Thank you to all staff, volunteers & supporters for your hard work in 2025. We’re excited for everything coming in 2026… 👀
#SickleCellSociety #HappyHolidays
Living with sickle cell?
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
December 19, 2025 at 5:07 PM
Living with sickle cell?
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
Help us understand how social & environmental factors affect your health by taking our short survey.
📝 Quick to complete
🎁 Chance to win a £50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
❄️ Winter Resource: Day Seven – Helpline Support
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
December 13, 2025 at 9:30 AM
❄️ Winter Resource: Day Seven – Helpline Support
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
If you need help this winter — information, support, or someone to talk to — we’re here for you.
More resources: buff.ly/q5Y0H0m
#WinterResources #SickleCellSociety
❄️ Winter Resource Day 6: COVID-19 vaccine eligibility has changed. People with sickle cell are not eligible unless they have a weakened immune system. They are still eligible for the free flu vaccine. More info: buff.ly/q5Y0H0m & NHS guidance: buff.ly/pto8euf
December 12, 2025 at 9:30 AM
❄️ Winter Resource Day 6: COVID-19 vaccine eligibility has changed. People with sickle cell are not eligible unless they have a weakened immune system. They are still eligible for the free flu vaccine. More info: buff.ly/q5Y0H0m & NHS guidance: buff.ly/pto8euf
❄️Winter Resource Day 5:
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
December 11, 2025 at 9:30 AM
❄️Winter Resource Day 5:
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
The Priority Services Register offers extra support during power, gas or water outages — important for anyone living with sickle cell.
More info: www.sicklecellsociety.org/keepwarm/
#WinterResources #PSR #SickleCellSociety
❄️ Winter Resource: Day Four –
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
December 10, 2025 at 9:30 AM
❄️ Winter Resource: Day Four –
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
The Warm Home Discount gives £150 off electricity bills for those receiving certain means-tested benefits. The discount is applied directly to your bill. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #WarmHomeDiscount
Our CEO, John James, is in Virginia attending the American Society of Haematology conference, where he has presented as a guest speaker and joined colleagues in the ASH 5K walk/run. A great opportunity for global learning and collaboration.
#ASH2026 #SickleCellSociety
#ASH2026 #SickleCellSociety
December 9, 2025 at 1:38 PM
Our CEO, John James, is in Virginia attending the American Society of Haematology conference, where he has presented as a guest speaker and joined colleagues in the ASH 5K walk/run. A great opportunity for global learning and collaboration.
#ASH2026 #SickleCellSociety
#ASH2026 #SickleCellSociety
❄️ Winter Resource Day 3:
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
December 9, 2025 at 9:30 AM
❄️ Winter Resource Day 3:
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
The Cold Weather Payment offers £25 towards heating costs if temperatures stay at zero degrees or below for 7 days and you receive certain benefits.
#WinterResources #ColdWeatherPayment #SickleCellSociety www.sicklecellsociety.org/keepwarm/
❄️ Winter Resource Day 2: The Winter Fuel Payment provides £100–£300 to help with heating costs, but is only available to people born before 25 Sept 1959. Sharing to help keep our community informed. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #CostOfLivingSupport
December 8, 2025 at 10:22 AM
❄️ Winter Resource Day 2: The Winter Fuel Payment provides £100–£300 to help with heating costs, but is only available to people born before 25 Sept 1959. Sharing to help keep our community informed. buff.ly/q5Y0H0m #SickleCellSociety #WinterResources #CostOfLivingSupport
❄️ Winter Resource: Day One – Flu Vaccination. We’re sharing info to help individuals with Sickle Cell make informed decisions about the flu vaccine this winter. For more details, visit our Winter page buff.ly/q5Y0H0m or see NHS guidance: buff.ly/pyWMEfW#Wint...
December 7, 2025 at 9:30 AM
❄️ Winter Resource: Day One – Flu Vaccination. We’re sharing info to help individuals with Sickle Cell make informed decisions about the flu vaccine this winter. For more details, visit our Winter page buff.ly/q5Y0H0m or see NHS guidance: buff.ly/pyWMEfW#Wint...
❄️ Winter Support Series ❄️This week we’re sharing 7 winter resources to help individuals and families living with sickle cell stay informed about the support available during the colder months. Anything you’d like us to cover? comment and let us know. 💛#WinterResources
December 6, 2025 at 9:30 AM
❄️ Winter Support Series ❄️This week we’re sharing 7 winter resources to help individuals and families living with sickle cell stay informed about the support available during the colder months. Anything you’d like us to cover? comment and let us know. 💛#WinterResources
Thanks to NTCG Brixton for hosting us on November 23rd to share the Sickle Cell Society's work and raise SCD awareness. Grateful to Bishop Mullings, Doreen Dias, Rev Sheila Bernard, and NHSBT for running the blood drive. ❤️🩸 #SickleCellSociety #NHSBT #NTCG #BloodDonation
December 2, 2025 at 9:00 AM
Thanks to NTCG Brixton for hosting us on November 23rd to share the Sickle Cell Society's work and raise SCD awareness. Grateful to Bishop Mullings, Doreen Dias, Rev Sheila Bernard, and NHSBT for running the blood drive. ❤️🩸 #SickleCellSociety #NHSBT #NTCG #BloodDonation
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine
November 26, 2025 at 9:00 AM
✨ New resource: We’ve launched a series of nutritional advice videos to support recovery, wellbeing and staying well with sickle cell. Created with the North East & Yorkshire Haemoglobinopathy Network & Claudine Matthews.🔗 www.sicklecellsociety.org/resource/foo... #SickleCellSociety #FoodForMedicine