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swiftsandswallows.bsky.social
Swifts and Swallows
@swiftsandswallows.bsky.social
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
As it's the end of #MEAwarenessMonth
we've added up the donations of my daughters fundraiser for ME Research UK. So far she has raised £1097.80 in memory of her sister

wonderful.org/fundraisers/...
Remembering Isla | Wonderful.org
I am fundraising for ME Research UK, crocheting keyrings and coasters in memory of my sister Isla who died last year aged 18. Isla had Severe ME and had
wonderful.org
May 31, 2025 at 8:28 PM
Reposted by Swifts and Swallows
Sometimes it is difficult
To know which way to turn,
But listen in those moments,
There’s often lots to learn ~
Life will give you challenges,
Oceans you must cross
But the best time to find yourself
Is when you’re feeling lost.

Links to buy are in our bio, or visit:
www.foxunderthemoonart.com
🦊🌙
March 5, 2025 at 9:25 PM
Reposted by Swifts and Swallows
On #MECFSAwarenessDay I'm calling for government to #FundThePlan.

A plan for #MECFS with no funding is no plan.

It's time for government action.

#MillionsMissing @ashleydaltonmp.bsky.social
May 12, 2025 at 4:26 PM
Reposted by Swifts and Swallows
After due consideration, having weighed up the relevant evidence, assessed the balance of arguments and gamed the likely implications, I have reached the conclusion that Keir Starmer can fuck off from a great height.
May 12, 2025 at 4:39 PM
Reposted by Swifts and Swallows
🌠On #MEAwarenessDay we fight for visibility, research, and justice.

🛌Millions are missing. We deserve to be seen, believed, and treated.

🧪We need urgent biomedical research to make progress.

#MillionsMissing
May 12, 2025 at 5:31 PM
This came up in my fb memories today. Isla wrote about her pushy GET driven OT and @tymestrust published it. How I regret being referred to that OT.
tymestrust.org/tymespublicati…#MEAWARENESSMONTHTH#severeMEM#rememberingislala
May 7, 2025 at 10:03 PM
It's 8 months today since my daughter Isla died. She was 18 & had Severe ME, POTS & MCAS. She'd been ill since she was 6 yrs old.
We're still waiting for Pathology results, still waiting for answers.
Sharing a photo from early on in her ME journey.
#ME
#SevereME
January 14, 2025 at 5:50 PM
13 yrs ago today Isla (6) and her sister (1) had tonsillitis. Isla was never well after this and was diagnosed with ME 14 months later. Years of deterioration culminated in her death last year.
#ME/CFS
#severeME
January 7, 2025 at 11:30 PM
When life seems overwhelming and your cat knows just what you need

#siblingloss
#cattherapy
#bereavement
December 25, 2024 at 11:57 AM
Day 12 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to my daughter Isla who died in May. Isla loved all things prehistoric and would have loved this dinosaur.
#severeME
#dinosaurs
#childbereavement
December 24, 2024 at 1:14 AM
Day 11 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brachiosaurus made by Isla's younger sister.
#severeME
#dinosaurs
#siblingloss
December 23, 2024 at 12:39 AM
Day 10 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a Baryonyx model.

#severeME
#dinosaurs
#siblingloss
December 22, 2024 at 2:32 AM
Day 9 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brontosaurus made by Isla's younger sister.
#severeME
#crochet
#siblingloss
December 21, 2024 at 1:59 AM
Day 8 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Triceratops made by Isla's younger sister.
#severeME
#crochet
#siblingloss
December 20, 2024 at 2:24 AM
Day 7 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a cuddly Triceratops.
#severeME

#siblingloss
#dinosaurs
December 19, 2024 at 2:13 AM
Day 6 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla. Today's dinosaur is a bright sequinned Triceratops. Not sure Isla would approve of this one, she wasn't a fan of sequins but we needed more dinosaurs to fill the tree up!
#severeME
December 18, 2024 at 3:19 AM
Day 5 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Plesiosaurus, made by Isla's younger sister.
#severeME
#mecfs
#siblingloss
#dinosaurs
#crochet
December 17, 2024 at 2:17 AM
Day 4 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a felt Christmas TRex.
#SevereME
#Dinosaurs
#Siblingloss
#grief
December 16, 2024 at 1:18 AM
Day 3 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a cuddly Tyrannosaurus
December 15, 2024 at 2:36 AM
It's now 7 months since Isla died and we're still waiting for Pathology results. No idea how much longer we'll have to wait.
#severeME
#mecfs
#grief
It's 6 months today since my daughter Isla died. She had Severe ME, POTS & MCAS.
Still waiting for a Pathology report, still waiting for answers.
Sharing a happy photo from 10 years ago.
#ME
#SevereME
#thegreatestmedicalscandal
December 15, 2024 at 12:09 AM
Day 2 of our 12 Dinosaurs of Christmas is an Archaeopteryx that has been crocheted by my daughter in memory of her sister Isla.
#severeme
#mecfs
#dinosaurs #siblingloss
December 14, 2024 at 1:32 AM
My daughter wants to share 12 dinosaurs from our dinosaur 🦖 themed Christmas tree 🎄 in memory of her sister Isla who was fascinated by all things prehistoric.
Dinosaur 1 is a felt Triceratops.
#severeme #mecfs #dinosaurs #siblingloss
December 12, 2024 at 11:26 PM
It's Children's Grief Awareness Week. The toddler here is now 14 & trying to deal with the loss of her sister Isla. Like Isla she has ME & POTS, a cruel twist of fate that these conditions make dealing with grief so much harder. Emotional energy causes so much PEM.
#CGAW24 #ME
November 22, 2024 at 3:24 PM
This is a lovely Etsy shop with beautiful pieces in it. Really recommend. I've purchased something for my daughter and she's going to love it.
@craftymissb.bsky.social Thank you so much
craftymissbcrafts.etsy.com
November 22, 2024 at 3:01 PM
Reposted by Swifts and Swallows
@counsellingsam.bsky.social wrote a brilliant article on the canary - accurately reflecting how harmful all the labour rhetoric around benefits is. It just feels like tory rhetoric but this time with a red logo instead of a blue one. At which point are we just going to call this what it is: eugenics
Long Covid has left me feeling worthless and invisible - and Labour is making it worse

Social abandonment and the toxicity of Labour Party rhetoric has been making people with long Covid feel worthless and invisible, says Sam Williams
www.thecanary.co/opinion/2024...
Long Covid has left me feeling worthless and invisible - and Labour is making it worse
Social abandonment and the toxicity of the Labour Party rhetoric has been making people with long Covid feel worthless and invisible
www.thecanary.co
November 19, 2024 at 1:00 PM