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swiftsandswallows.bsky.social
Swifts and Swallows
@swiftsandswallows.bsky.social
300 followers 670 following 37 posts
My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day
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swiftsandswallows.bsky.social
This came up in my fb memories today. Isla wrote about her pushy GET driven OT and @tymestrust published it. How I regret being referred to that OT.
tymestrust.org/tymespublicati…#MEAWARENESSMONTHTH#severeMEM#rememberingislala
A letter from an 8yr old girl about her OT not believing her and pushing her too hard
May 7, 2025 at 10:03 PM
swiftsandswallows.bsky.social
It's 8 months today since my daughter Isla died. She was 18 & had Severe ME, POTS & MCAS. She'd been ill since she was 6 yrs old.
We're still waiting for Pathology results, still waiting for answers.
Sharing a photo from early on in her ME journey.
#ME
#SevereME
An 8 year old girl sitting with 2 rabbits
January 14, 2025 at 5:50 PM
swiftsandswallows.bsky.social
When life seems overwhelming and your cat knows just what you need

#siblingloss
#cattherapy
#bereavement
A cat stretched out with its paws on a hand
December 25, 2024 at 11:57 AM
swiftsandswallows.bsky.social
Day 12 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to my daughter Isla who died in May. Isla loved all things prehistoric and would have loved this dinosaur.
#severeME
#dinosaurs
#childbereavement
A light up dinosaur sitting at the bottom of a Christmas tree
December 24, 2024 at 1:14 AM
swiftsandswallows.bsky.social
Day 11 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brachiosaurus made by Isla's younger sister.
#severeME
#dinosaurs
#siblingloss
A crocheted Brachiosaurus on a Christmas tree
December 23, 2024 at 12:39 AM
swiftsandswallows.bsky.social
Day 10 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a Baryonyx model.

#severeME
#dinosaurs
#siblingloss
A wooden Dinosaur model in a Christmas tree
December 22, 2024 at 2:32 AM
swiftsandswallows.bsky.social
Day 9 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Brontosaurus made by Isla's younger sister.
#severeME
#crochet
#siblingloss
A pink crocheted Brontosaurus on a Christmas tree
December 21, 2024 at 1:59 AM
swiftsandswallows.bsky.social
Day 8 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Triceratops made by Isla's younger sister.
#severeME
#crochet
#siblingloss
A pink crocheted dinosaur on a Christmas tree.
December 20, 2024 at 2:24 AM
swiftsandswallows.bsky.social
Day 7 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla who died earlier this year. Today's dinosaur is a cuddly Triceratops.
#severeME

#siblingloss
#dinosaurs
A cuddly Triceratops in a Christmas tree
December 19, 2024 at 2:13 AM
swiftsandswallows.bsky.social
Day 6 of our 12 Dinosaurs of Christmas from our 🦖 themed tree dedicated to Isla. Today's dinosaur is a bright sequinned Triceratops. Not sure Isla would approve of this one, she wasn't a fan of sequins but we needed more dinosaurs to fill the tree up!
#severeME
A bright blue sequinned Triceratops on a Christmas tree
December 18, 2024 at 3:19 AM
swiftsandswallows.bsky.social
Day 5 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree dedicated to Isla who died earlier this year. Today's dinosaur is a crocheted Plesiosaurus, made by Isla's younger sister.
#severeME
#mecfs
#siblingloss
#dinosaurs
#crochet
A green crocheted dinosaur on a Christmas tree
December 17, 2024 at 2:17 AM
swiftsandswallows.bsky.social
Day 4 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a felt Christmas TRex.
#SevereME
#Dinosaurs
#Siblingloss
#grief
A felt T Rex with a Santa hat hanging on a tree.
December 16, 2024 at 1:18 AM
swiftsandswallows.bsky.social
Day 3 of our 12 Dinosaurs of Christmas from our 🦖 themed Christmas tree. Today's dinosaur is a cuddly Tyrannosaurus
A cuddly green Tyrannosaurus on a Christmas tree
December 15, 2024 at 2:36 AM
swiftsandswallows.bsky.social
Day 2 of our 12 Dinosaurs of Christmas is an Archaeopteryx that has been crocheted by my daughter in memory of her sister Isla.
#severeme
#mecfs
#dinosaurs #siblingloss
A crocheted dinosaur on a Christmas tree.
December 14, 2024 at 1:32 AM
swiftsandswallows.bsky.social
My daughter wants to share 12 dinosaurs from our dinosaur 🦖 themed Christmas tree 🎄 in memory of her sister Isla who was fascinated by all things prehistoric.
Dinosaur 1 is a felt Triceratops.
#severeme #mecfs #dinosaurs #siblingloss
A felt Triceratops decorating a Christmas tree.
December 12, 2024 at 11:26 PM
swiftsandswallows.bsky.social
These are two of my aunts tapestries that my daughter who loves birds is going to have in her bedroom
Two tapestries showing birds and flowers
November 27, 2024 at 3:45 PM
swiftsandswallows.bsky.social
It's Children's Grief Awareness Week. The toddler here is now 14 & trying to deal with the loss of her sister Isla. Like Isla she has ME & POTS, a cruel twist of fate that these conditions make dealing with grief so much harder. Emotional energy causes so much PEM.
#CGAW24 #ME
A 2 year old girl sits next to her 7 year old sister on a picnic bench
November 22, 2024 at 3:24 PM
swiftsandswallows.bsky.social
When you're feeling ill but need a distraction - cat cuddles and crochet are the way to go.
#me/cfs
#myalgicencephalomyelitis
Two black and white cats cuddled up on the lap of a teenage girl crocheting a pink dinosaur
November 17, 2024 at 3:23 PM
swiftsandswallows.bsky.social
It's 6 months today since my daughter Isla died. She had Severe ME, POTS & MCAS.
Still waiting for a Pathology report, still waiting for answers.
Sharing a happy photo from 10 years ago.
#ME
#SevereME
#thegreatestmedicalscandal
Photo of a happy 8-year-old girl in a riding hat wearing a rosette
November 14, 2024 at 7:45 PM
swiftsandswallows.bsky.social
My first post here so what better to post than a cute cat photo
Cute tuxedo cat asleep
November 12, 2024 at 11:32 PM