Fibromyalgia - What I Know Is Real
@soisfibroreal.bsky.social
Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Fighter Canadian #Resister #ElbowsUp #ClimateActivist
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ABOUT - The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Is fibromyalgia real? My firsthand account illustrates just how real (and manageable) fibromyalgia is to those of us who struggle daily to live with it.
www.soisfibromyalgiareal.com
No meds. Not much pain. Hardly tired anymore. Have energy. Happy. #Fibromyalgia 22 years. Steadily improving. Join me! #FibroWarrior #WhatIKnowIsReal
“Try to be positive...is both RIDICULOUS advice and GREAT advice, all at once." #Fibromyalgia #WhatIKnowIsReal
Being Positive With Fibromyalgia...Ya, Right! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
'Try to be positive' is both RIDICULOUS and GREAT advice, at least that’s what I’ve come to think after living with fibromyalgia for fifteen years now.
www.soisfibromyalgiareal.com
November 16, 2025 at 6:57 AM
“Try to be positive...is both RIDICULOUS advice and GREAT advice, all at once." #Fibromyalgia #WhatIKnowIsReal
"Like an athlete running a marathon, their body worn out and hurting, their energy expending (not unlike #fibromyalgia…every day!), it's their mental game that keeps them going…mind over matter…to the finish." #WhatIKnowIsReal
It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
So you have fibromyalgia and maybe you’ve been told, “It's mind over matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...
www.soisfibromyalgiareal.com
November 16, 2025 at 6:56 AM
"Like an athlete running a marathon, their body worn out and hurting, their energy expending (not unlike #fibromyalgia…every day!), it's their mental game that keeps them going…mind over matter…to the finish." #WhatIKnowIsReal
#Fibromyalgia and #Diet …“If there’s a chance in hell it can help AND it’s a thing that’s healthy (even advised!) to do anyway...I’m doing it!” #WhatIKnowIsReal
Fibromyalgia and Diet...Taking Every Inch I Can Get! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia and diet...after my trial and error living with fibromyalgia for over fifteen years now, a healthy diet is a no-brainer for me!
www.soisfibromyalgiareal.com
November 16, 2025 at 6:54 AM
#Fibromyalgia and #Diet …“If there’s a chance in hell it can help AND it’s a thing that’s healthy (even advised!) to do anyway...I’m doing it!” #WhatIKnowIsReal
#Fibromyalgia & #Covid "And maybe our fibromyalgia doesn’t make us weaker as we face this, as we initially fear when something like this comes along…maybe it makes us stronger. Yes. Stronger." #WhatIKnowIsReal
Fibromyalgia and Coronavirus…We Were Already Warriors! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia and the coronavirus pandemic…I can't help but keep seeing some similarities. And maybe our fibromyalgia doesn’t make us weaker as we face this, as we initially fear when something like th...
www.soisfibromyalgiareal.com
November 10, 2025 at 3:35 PM
#Fibromyalgia & #Covid "And maybe our fibromyalgia doesn’t make us weaker as we face this, as we initially fear when something like this comes along…maybe it makes us stronger. Yes. Stronger." #WhatIKnowIsReal
"So I’ve been getting my life back these last five years…my full life…particularly my energy…my time…my feeling of well being. Ever so slowly, but surely, it’s all coming back.
And the major thing I changed?
#Sleep.
I FIXED MY SLEEP." #WhatIKnowIsReal
And the major thing I changed?
#Sleep.
I FIXED MY SLEEP." #WhatIKnowIsReal
“THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III | The - So Is Fibromyalgia Real? What I Know Is Real - Blog “THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III
So this is another book sharing post, something I’m doing from time to time sprinkled in amongst my regular posts that are commentaries on my insights about fibromyalgia. I’m only going to write one w...
www.soisfibromyalgiareal.com
November 10, 2025 at 3:33 PM
"So I’ve been getting my life back these last five years…my full life…particularly my energy…my time…my feeling of well being. Ever so slowly, but surely, it’s all coming back.
And the major thing I changed?
#Sleep.
I FIXED MY SLEEP." #WhatIKnowIsReal
And the major thing I changed?
#Sleep.
I FIXED MY SLEEP." #WhatIKnowIsReal
"It’s ALL mind over matter(!!) to me…it’s ALL using my willpower to overcome my physical problems…my INCREDIBLY STRONG willpower over my EXCRUCIATINGLY DIFFICULT fibromyalgia physical problems." #WhatIKnowIsReal
It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
So you have fibromyalgia and maybe you’ve been told, “It's mind over matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...
www.soisfibromyalgiareal.com
November 10, 2025 at 7:04 AM
"It’s ALL mind over matter(!!) to me…it’s ALL using my willpower to overcome my physical problems…my INCREDIBLY STRONG willpower over my EXCRUCIATINGLY DIFFICULT fibromyalgia physical problems." #WhatIKnowIsReal
"But I think there’s something to be said for having an optimistic ignorance of our SUPPOSED #fibromyalgia fate…in other words…#hope." #WhatIKnowIsReal
Ten Things I’m Glad I DIDN’T Know About Fibromyalgia When I Was First Diagnosed…Fibromyalgia and Hope | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I've had fibromyalgia for over fifteen years now and I have to say I’m kind of glad I DIDN’T know many things about fibromyalgia when I was first diagnosed. I've charted my own path. And I’m not only ...
www.soisfibromyalgiareal.com
November 10, 2025 at 7:02 AM
"But I think there’s something to be said for having an optimistic ignorance of our SUPPOSED #fibromyalgia fate…in other words…#hope." #WhatIKnowIsReal
#FibroFog ..."And if you’re a “regular” person (who doesn’t have #fibromyalgia)…STOP RIGHT NOW!…and don’t laugh and dismissively tell me, “Oh, I get that too, that happens lately, it’s old age.” #WhatIKnowIsReal
Fibro Fog...Frustrating, Frightening…But, Yeah, Just Another Fibromyalgia Symptom | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
As uneasy as I’ve felt about my frustrating and worrisome fibro fog these past sixteen years, I’m starting to feel LESS UNEASY and MORE POSITIVE about this unsettling fibromyalgia symptom NOW more tha...
www.soisfibromyalgiareal.com
November 10, 2025 at 6:19 AM
#FibroFog ..."And if you’re a “regular” person (who doesn’t have #fibromyalgia)…STOP RIGHT NOW!…and don’t laugh and dismissively tell me, “Oh, I get that too, that happens lately, it’s old age.” #WhatIKnowIsReal
"there’s a stigma attached to fibromyalgia; it seems the question Is fibromyalgia real? hangs over me (& everyone else suffering from it) in the eyes of many others & honestly, it just gets too ridiculous for me to even dignify it with a response anymore!"
I Have Fibromyalgia…And I’m More Competent Than Ever! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems there’s a stigma attached to fibromyalgia; it seems the question 'Is fibromyalgia real?' hangs over me (and everyone else suffering from it) questioning my competence, and honestly, it just g...
www.soisfibromyalgiareal.com
November 8, 2025 at 7:22 AM
"there’s a stigma attached to fibromyalgia; it seems the question Is fibromyalgia real? hangs over me (& everyone else suffering from it) in the eyes of many others & honestly, it just gets too ridiculous for me to even dignify it with a response anymore!"
"So I guess then, pain and symptoms in my body, for me, is a signal to (in fact, I guess) work on my brain. (IMPORTANT NOTE: This is NOT the same as saying “It’s all in my head.”!!!)" #WhatIKnowIsReal
It Seems Like My Automatic Mode Switch Broke...My Brain and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After years with fibromyalgia I realized it SEEMED like my brain was not 'automatically resetting' each day and that I needed to work hard to 'reset' it myself.
www.soisfibromyalgiareal.com
November 8, 2025 at 7:20 AM
"So I guess then, pain and symptoms in my body, for me, is a signal to (in fact, I guess) work on my brain. (IMPORTANT NOTE: This is NOT the same as saying “It’s all in my head.”!!!)" #WhatIKnowIsReal
"Without medications to help me feel better I have learned how to make myself feel better on my own.” #Fibromyalgia #ManagingWithoutMeds #WhatIKnowIsReal
MY STORY - The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Is fibromyalgia real? My story of living with fibromyalgia started in 2002 and as I’ve struggled daily I’ve found it’s not only very real, it’s manageable.
www.soisfibromyalgiareal.com
November 8, 2025 at 7:18 AM
"Without medications to help me feel better I have learned how to make myself feel better on my own.” #Fibromyalgia #ManagingWithoutMeds #WhatIKnowIsReal
#FibroFog and eating #brain-boosting foods..."So, the worst that happens, is…I get healthier? And the best? I get smarter? Personally, I can’t argue with that logic!" #WhatIKnowIsReal
Go Figure…Helping Our Health Helps Our (Fibromyalgia) Brains Too!…Fibro Fog II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Go figure…it seems that helping our overall health…helps our brains too! It turns out, as I've worked on my overall health and gradually, ever so gradually, improved my fibromyalgia overall, my fibro ...
www.soisfibromyalgiareal.com
November 7, 2025 at 4:24 PM
#FibroFog and eating #brain-boosting foods..."So, the worst that happens, is…I get healthier? And the best? I get smarter? Personally, I can’t argue with that logic!" #WhatIKnowIsReal
#Restorative "I’m certainly not a #sleep expert but I think I can just tell when I wake up, if I was able to get that…there’s a feeling of being rested, having a sense of well-being & grounded…that is just not there if I have a night of disjointed sleep"
To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.
www.soisfibromyalgiareal.com
November 7, 2025 at 4:23 PM
#Restorative "I’m certainly not a #sleep expert but I think I can just tell when I wake up, if I was able to get that…there’s a feeling of being rested, having a sense of well-being & grounded…that is just not there if I have a night of disjointed sleep"
"Many with #fibromyalgia tell me they can’t #exercise and I’ll be the first to acknowledge that exercising with fibromyalgia is fraught with so many difficulties it took me two posts of over five thousand words combined to discuss it." #WhatIKnowIsReal
”Different Things Work for Different People”…or DO They!? I Wonder… Fibromyalgia Big Picture | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I hear this over and over again with respect to fibromyalgia treatments and every once in awhile I'm told...”different things work for different people”... but I keep wondering...do they? Do they REAL...
www.soisfibromyalgiareal.com
November 7, 2025 at 4:22 PM
"Many with #fibromyalgia tell me they can’t #exercise and I’ll be the first to acknowledge that exercising with fibromyalgia is fraught with so many difficulties it took me two posts of over five thousand words combined to discuss it." #WhatIKnowIsReal
"For all of us with #fibromyalgia, it seems to me that it’s all about doing or thinking whatever it takes to get up and get doing the things we have to do in life and hopefully, before our energy runs out each day…getting to some things we like to do."
I Live In Deliberate Denial and It Helps!...Mind-Set and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I am surviving, thriving and even steadily, gradually and unmistakably improving; I live in 'deliberate denial' and it helps my mind-set and fibromyalgia!
www.soisfibromyalgiareal.com
November 6, 2025 at 3:28 AM
"For all of us with #fibromyalgia, it seems to me that it’s all about doing or thinking whatever it takes to get up and get doing the things we have to do in life and hopefully, before our energy runs out each day…getting to some things we like to do."
“If I must have this #fibromyalgia thing, I’m going to get something out of it…I’m going to make it work FOR me!" #WhatIKnowIsReal
These Are Side Effects I Can Live With!...Making Fibromyalgia Work FOR Me | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
There is hands down absolutely no doubt that my fibromyalgia has been working AGAINST me, but I'm making it work FOR me as well, and I have the side effects to prove it!
www.soisfibromyalgiareal.com
November 6, 2025 at 3:23 AM
“If I must have this #fibromyalgia thing, I’m going to get something out of it…I’m going to make it work FOR me!" #WhatIKnowIsReal
"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
www.soisfibromyalgiareal.com
November 6, 2025 at 3:19 AM
"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."
Reposted by Fibromyalgia - What I Know Is Real
“It suddenly becomes..crystal clear to me that there’s nothing more impt than my #health, and I won’t let anything jeopardize it. And as soon as that #realization becomes “crystal” to me again, the absolute top #priority that my health.": buff.ly/4qlNWUd
by @soisfibroreal.bsky.social
#fibromyalgia
by @soisfibroreal.bsky.social
#fibromyalgia
I Have Fibromyalgia…I Work on Stress…The Fibromyalgia and Stress Connection | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Apparently all illnesses are affected by stress but from having fibromyalgia for over fifteen years, I can say the fibromyalgia and stress connection is clear, fibromyalgia seems to be SUPER affected…
buff.ly
September 25, 2025 at 5:30 PM
“It suddenly becomes..crystal clear to me that there’s nothing more impt than my #health, and I won’t let anything jeopardize it. And as soon as that #realization becomes “crystal” to me again, the absolute top #priority that my health.": buff.ly/4qlNWUd
by @soisfibroreal.bsky.social
#fibromyalgia
by @soisfibroreal.bsky.social
#fibromyalgia
"I can only imagine how much more difficult it must be to be dealing with multiple debilitating chronic illnesses at once...what I would say to them is my blog could present an especially useful opportunity to them in a way maybe they hadn’t considered."
Staying Afloat With Fibromyalgia…Come Aboard! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Struggling to stay afloat with fibromyalgia, feeling alone and pretty hopeless? Come aboard! Join me, there's no need for you to be down there alone.
www.soisfibromyalgiareal.com
August 3, 2025 at 5:47 AM
"I can only imagine how much more difficult it must be to be dealing with multiple debilitating chronic illnesses at once...what I would say to them is my blog could present an especially useful opportunity to them in a way maybe they hadn’t considered."
"...when I started out on this path, like everyone with #fibromyalgia I would imagine, I was just trying to be able to function in my every day busy life, to keep my head above water when I felt like I was drowning in the vicious circles of fibromyalgia."
These Are Side Effects I Can Live With!...Making Fibromyalgia Work FOR Me | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
There is hands down absolutely no doubt that my fibromyalgia has been working AGAINST me, but I'm making it work FOR me as well, and I have the side effects to prove it!
www.soisfibromyalgiareal.com
August 3, 2025 at 5:47 AM
"...when I started out on this path, like everyone with #fibromyalgia I would imagine, I was just trying to be able to function in my every day busy life, to keep my head above water when I felt like I was drowning in the vicious circles of fibromyalgia."
"Seems to be an optimal amount of sleep…such that going under OR OVER(!) the amount is not necessarily desirable.” #Fibromyalgia #WhatIKnowIsReal
To Sleep or Not to Sleep?...So Tired of That Question!...Fibromyalgia and Sleep | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
What do I say about fibromyalgia and sleep that everyone doesn't already know? I'm not sure, but I AM managing to get GOOD SLEEP so I'll give it a try.
www.soisfibromyalgiareal.com
August 3, 2025 at 5:41 AM
"Seems to be an optimal amount of sleep…such that going under OR OVER(!) the amount is not necessarily desirable.” #Fibromyalgia #WhatIKnowIsReal
"What I know is real is I think there would be a whole lot less people trapped in the vicious circles that can take us further & further down the rabbit hole of more & more messed up sleep & the resulting health issues, if they only truly understood sleep"
“THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III | The - So Is Fibromyalgia Real? What I Know Is Real - Blog “THE SLEEP SOLUTION”…Fibromyalgia and Sleep – Book Share III
So this is another book sharing post, something I’m doing from time to time sprinkled in amongst my regular posts that are commentaries on my insights about fibromyalgia. I’m only going to write one w...
www.soisfibromyalgiareal.com
August 2, 2025 at 5:16 PM
"What I know is real is I think there would be a whole lot less people trapped in the vicious circles that can take us further & further down the rabbit hole of more & more messed up sleep & the resulting health issues, if they only truly understood sleep"
"...when you have #fibromyalgia, it’s a monthly, weekly, sometimes daily kind of thing, getting knocked down! Not a life stage.
I mean, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs."
I mean, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs."
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
www.soisfibromyalgiareal.com
August 2, 2025 at 5:15 PM
"...when you have #fibromyalgia, it’s a monthly, weekly, sometimes daily kind of thing, getting knocked down! Not a life stage.
I mean, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs."
I mean, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs."
#Fibromyalgia ..."But something I’ve learned to consider and to be careful of, is that my temporary fix is not setting my overall fight back…that I am not winning a battle at the expense of losing the war…at the expense of the journey." #WhatIKnowIsReal
Is Fibromyalgia (Truly) Different for Everyone? | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Is fibromyalgia TRULY different for everyone? Or is everyone DOING DIFFERENT THINGS and thus MAKING THEIR FIBROMYALGIA JOURNEYS DIFFERENT?
www.soisfibromyalgiareal.com
August 2, 2025 at 5:12 PM
#Fibromyalgia ..."But something I’ve learned to consider and to be careful of, is that my temporary fix is not setting my overall fight back…that I am not winning a battle at the expense of losing the war…at the expense of the journey." #WhatIKnowIsReal
"When aches start to set in and my body gets stiff…I move more. The achier and stiffer I get, the more I move. Yes, experience (of living with #fibromyalgia for over seventeen years now) has taught me to be very conscious of moving in my everyday life."
In Your Face, Fibromyalgia...I "Do the Opposite"! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems to me that fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it! Yes, if you're oppositional, defiant...then maybe this is the ...
www.soisfibromyalgiareal.com
August 2, 2025 at 5:29 AM
"When aches start to set in and my body gets stiff…I move more. The achier and stiffer I get, the more I move. Yes, experience (of living with #fibromyalgia for over seventeen years now) has taught me to be very conscious of moving in my everyday life."