Jonathan LoTempio
@realjlo.bsky.social
Fellow in the bioethics of human data at Penn. Bioinformatics, ethics, policy, and science. Interested in making pangenomes and how human data flows.
🧵1/4: 'Such a trove of data may be put to good use... The firm “did an incredible thing in that they got people to pay to participate in research”, says Jonathan LoTempio, of @upenn.bsky.social . 100s of studies have drawn on 23andMe.'
www.economist.com/business/202...
www.economist.com/business/202...
How safe is your DNA in a bankruptcy?
23andMe’s demise raises thorny legal questions
www.economist.com
March 28, 2025 at 12:12 PM
🧵1/4: 'Such a trove of data may be put to good use... The firm “did an incredible thing in that they got people to pay to participate in research”, says Jonathan LoTempio, of @upenn.bsky.social . 100s of studies have drawn on 23andMe.'
www.economist.com/business/202...
www.economist.com/business/202...
Reposted by Jonathan LoTempio
Funding for science should not be a partisan issue. wapo.st/41UWFHA
Opinion | Funding for R&D isn’t a gift to academia
Investing in scientific research and development is vital to U.S. security.
wapo.st
March 24, 2025 at 11:52 PM
Funding for science should not be a partisan issue. wapo.st/41UWFHA
Reposted by Jonathan LoTempio
Califf nails it: “It’s despicable to treat fellow human beings this way and a sign of immaturity of the people doing it"
F.D.A. Reinstates Fired Medical Device, Food and Legal Staffers www.nytimes.com/2025/02/24/s...
F.D.A. Reinstates Fired Medical Device, Food and Legal Staffers www.nytimes.com/2025/02/24/s...
F.D.A. Reinstates Fired Medical Device, Food and Legal Staffers
The agency changed course just days after firing employees who oversee the safety of food and life-sustaining medical devices. Dozens of workers said they and others were back at work Monday.
www.nytimes.com
February 25, 2025 at 12:27 AM
Califf nails it: “It’s despicable to treat fellow human beings this way and a sign of immaturity of the people doing it"
F.D.A. Reinstates Fired Medical Device, Food and Legal Staffers www.nytimes.com/2025/02/24/s...
F.D.A. Reinstates Fired Medical Device, Food and Legal Staffers www.nytimes.com/2025/02/24/s...
Reposted by Jonathan LoTempio
OPM is planning to fire all employees on probation (less than one year of employment). Agencies have until noon on Wednesday to submit a list of probationary employees to the OPM and indicate whether they wish to retain them—though it has been stated that this will not make a difference.
February 4, 2025 at 11:45 PM
OPM is planning to fire all employees on probation (less than one year of employment). Agencies have until noon on Wednesday to submit a list of probationary employees to the OPM and indicate whether they wish to retain them—though it has been stated that this will not make a difference.
What do you mean when you say that you've #shared your #data broadly? @jonathanmoreno.bsky.social and I published a new data sharing framework in @naturegenet.bsky.social along with #bioethics challenges for #genomics in the #ai era. www.nature.com/articles/s41... @pennmedresearch.bsky.social
Overcoming challenges associated with broad sharing of human genomic data - Nature Genetics
This Perspective discusses the definitions of ‘broad’ that have been used in the context of sharing of human genomic data and proposes a clarified and reformed terminology for describing genomic data ...
www.nature.com
January 22, 2025 at 3:51 PM
What do you mean when you say that you've #shared your #data broadly? @jonathanmoreno.bsky.social and I published a new data sharing framework in @naturegenet.bsky.social along with #bioethics challenges for #genomics in the #ai era. www.nature.com/articles/s41... @pennmedresearch.bsky.social
Reposted by Jonathan LoTempio
🚨 Excited to announce the Marker paper for the GREGoR Consortium! arxiv.org/abs/2412.14338
Accelerating #RareDisease diagnostics with cutting-edge #Genomics and global data sharing of omics and deep phenotyping from ~7500 individuals on NHGRI AnVIL and much more to come! 🧬
Accelerating #RareDisease diagnostics with cutting-edge #Genomics and global data sharing of omics and deep phenotyping from ~7500 individuals on NHGRI AnVIL and much more to come! 🧬
GREGoR: Accelerating Genomics for Rare Diseases
Rare diseases are collectively common, affecting approximately one in twenty individuals worldwide. In recent years, rapid progress has been made in rare disease diagnostics due to advances in DNA seq...
arxiv.org
December 20, 2024 at 1:49 AM
🚨 Excited to announce the Marker paper for the GREGoR Consortium! arxiv.org/abs/2412.14338
Accelerating #RareDisease diagnostics with cutting-edge #Genomics and global data sharing of omics and deep phenotyping from ~7500 individuals on NHGRI AnVIL and much more to come! 🧬
Accelerating #RareDisease diagnostics with cutting-edge #Genomics and global data sharing of omics and deep phenotyping from ~7500 individuals on NHGRI AnVIL and much more to come! 🧬