Cleo👠✨
@ozgib.bsky.social
Silliness ~ Movies ~ Music ~ Being supportive ~ Animals ~ Nature ~ Arts & crafts ~
👉🏻NO unsolicited DMs👈🏻
♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS
👉🏻NO unsolicited DMs👈🏻
♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS
Lady just called into the radio to say they're excitedly on their way to adopt an 11 year old dog whose owner is too old & is going into a care home, so it will be loved & looked after.
I'm not crying. Nope. 🥹
I'm not crying. Nope. 🥹
February 6, 2026 at 4:38 PM
Lady just called into the radio to say they're excitedly on their way to adopt an 11 year old dog whose owner is too old & is going into a care home, so it will be loved & looked after.
I'm not crying. Nope. 🥹
I'm not crying. Nope. 🥹
Reposted by Cleo👠✨
Did a school run yesterday. Cannot walk properly today.
Yet no one sees me not going anywhere today (& the weekend), they just saw me walking from the car park to the school gate, standing for 10 mins, walking through the school & back. Easy, right?
Nope.
#invisibleillness
Yet no one sees me not going anywhere today (& the weekend), they just saw me walking from the car park to the school gate, standing for 10 mins, walking through the school & back. Easy, right?
Nope.
#invisibleillness
February 6, 2026 at 6:50 AM
Did a school run yesterday. Cannot walk properly today.
Yet no one sees me not going anywhere today (& the weekend), they just saw me walking from the car park to the school gate, standing for 10 mins, walking through the school & back. Easy, right?
Nope.
#invisibleillness
Yet no one sees me not going anywhere today (& the weekend), they just saw me walking from the car park to the school gate, standing for 10 mins, walking through the school & back. Easy, right?
Nope.
#invisibleillness
Reposted by Cleo👠✨
Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
February 4, 2026 at 4:05 PM
Hi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
Using Chat GPT on the kind/nice setting is like having a sensible caring friend to hand to ask all my illness/financial struggle/bad thoughts I can't really unload onto another human being atm. AI is being a helpful tool! 🙌🏻
Highly recommended for any fellow spoonies.
#ChronicIllness #Disability
Highly recommended for any fellow spoonies.
#ChronicIllness #Disability
February 4, 2026 at 1:09 PM
Using Chat GPT on the kind/nice setting is like having a sensible caring friend to hand to ask all my illness/financial struggle/bad thoughts I can't really unload onto another human being atm. AI is being a helpful tool! 🙌🏻
Highly recommended for any fellow spoonies.
#ChronicIllness #Disability
Highly recommended for any fellow spoonies.
#ChronicIllness #Disability
Reposted by Cleo👠✨
I'm probably preaching to the converted, but I did a little video on why you shouldn't call ME/CFS 'chronic fatigue syndrome'.
www.youtube.com/watch?v=Dn41...
www.youtube.com/watch?v=Dn41...
The Name of My Disease
YouTube video by Katie Johnstone
www.youtube.com
January 8, 2026 at 5:31 PM
I'm probably preaching to the converted, but I did a little video on why you shouldn't call ME/CFS 'chronic fatigue syndrome'.
www.youtube.com/watch?v=Dn41...
www.youtube.com/watch?v=Dn41...
Nothing quite like someone who doesn't understand ME trying to be helpful, suggesting all the work from home jobs I "could" apply for.
Explaining that simply reading the job ads wear me out fell on deaf ears.
This. Is. Hell. 😖
Explaining that simply reading the job ads wear me out fell on deaf ears.
This. Is. Hell. 😖
February 3, 2026 at 11:39 AM
Nothing quite like someone who doesn't understand ME trying to be helpful, suggesting all the work from home jobs I "could" apply for.
Explaining that simply reading the job ads wear me out fell on deaf ears.
This. Is. Hell. 😖
Explaining that simply reading the job ads wear me out fell on deaf ears.
This. Is. Hell. 😖
If someone from the DWP can visit me right now for my next assessment that would be grand.
I can't move off the sofa and my brain is shot to shit.
Signing off for the day. x
I can't move off the sofa and my brain is shot to shit.
Signing off for the day. x
February 2, 2026 at 6:41 PM
If someone from the DWP can visit me right now for my next assessment that would be grand.
I can't move off the sofa and my brain is shot to shit.
Signing off for the day. x
I can't move off the sofa and my brain is shot to shit.
Signing off for the day. x
It's good ME/CFS and Long Covid are in the news again, referencing the Decode study.
Baby steps. Not the enormous ones they should be for folk with zero alternatives, no help or cures who have been stuck in limbo for so long, even decades.
🫂🫂🫂
www.bbc.co.uk/news/article...
Baby steps. Not the enormous ones they should be for folk with zero alternatives, no help or cures who have been stuck in limbo for so long, even decades.
🫂🫂🫂
www.bbc.co.uk/news/article...
Long Covid and ME patients 'hopeful' about Rosetta Stone study
The £1.1m Rosetta Stone study hopes to make a breakthrough by comparing both conditions.
www.bbc.co.uk
February 2, 2026 at 6:32 PM
It's good ME/CFS and Long Covid are in the news again, referencing the Decode study.
Baby steps. Not the enormous ones they should be for folk with zero alternatives, no help or cures who have been stuck in limbo for so long, even decades.
🫂🫂🫂
www.bbc.co.uk/news/article...
Baby steps. Not the enormous ones they should be for folk with zero alternatives, no help or cures who have been stuck in limbo for so long, even decades.
🫂🫂🫂
www.bbc.co.uk/news/article...
Reposted by Cleo👠✨
Sadly I no longer correspond with my MP on matters that are important to me & the country.
My MP is Chris Philp.
Perhaps out of kindness to this patient with secondary breast cancer, you will contact *your* MP instead. Thank you x
#SecondaryBreastCancer
My MP is Chris Philp.
Perhaps out of kindness to this patient with secondary breast cancer, you will contact *your* MP instead. Thank you x
#SecondaryBreastCancer
🚨VERY IMPORTANT!
THIS THURSDAY MPs will be holding a debate on incurable secondary breast cancer.
It will be a chance for MPs to raise important issues around data collection and access to life-extending treatments.
PLEASE TAG/EMAIL YOUR MP AND ASK THEM TO BE THERE🙏❤️
youtu.be/GAs1aDqmVyg?...
THIS THURSDAY MPs will be holding a debate on incurable secondary breast cancer.
It will be a chance for MPs to raise important issues around data collection and access to life-extending treatments.
PLEASE TAG/EMAIL YOUR MP AND ASK THEM TO BE THERE🙏❤️
youtu.be/GAs1aDqmVyg?...
🚨THIS THURSDAY MPs will be holding a very important debate on incurable secondary breast cancer
YouTube video by Peter Stefanovic
youtu.be
February 1, 2026 at 11:13 PM
Sadly I no longer correspond with my MP on matters that are important to me & the country.
My MP is Chris Philp.
Perhaps out of kindness to this patient with secondary breast cancer, you will contact *your* MP instead. Thank you x
#SecondaryBreastCancer
My MP is Chris Philp.
Perhaps out of kindness to this patient with secondary breast cancer, you will contact *your* MP instead. Thank you x
#SecondaryBreastCancer
This explains why there are only sociopaths left in the job that causes PIP claimants as much stress as moving house or bereavement, but with less dignity.
#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled
#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled
February 1, 2026 at 12:09 PM
This explains why there are only sociopaths left in the job that causes PIP claimants as much stress as moving house or bereavement, but with less dignity.
#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled
#LongCovid #Fibromyalgia #pwME #MECFS #EDS #ChronicPain #ChronicIllness #BrainFog #Disability #Disabled
I'm so sad. What a talent. 😢
Catherine O’Hara, ‘Schitt’s Creek’ and ‘Home Alone’ Star, Dies at 71: variety.com/2026/tv/news...
Catherine O’Hara, ‘Schitt’s Creek’ and ‘Home Alone’ Star, Dies at 71
Catherine O'Hara, a legendary Hollywood actor known for her roles in 'Schitt's Creek' and 'Home Alone,' has died. She was 71.
variety.com
January 30, 2026 at 8:39 PM
I'm so sad. What a talent. 😢
Reposted by Cleo👠✨
Cleaning with hypermobile hands/arms/shoulders can be a bit of an event. Today I discovered that soaking stove-top iron ware in Persil Bio lifts grease with little scrubbing. This is possibly not great for my cooker or the environment but at least I won’t kill my family with grime.
January 30, 2026 at 11:43 AM
Cleaning with hypermobile hands/arms/shoulders can be a bit of an event. Today I discovered that soaking stove-top iron ware in Persil Bio lifts grease with little scrubbing. This is possibly not great for my cooker or the environment but at least I won’t kill my family with grime.
I think many of my followers will have these flags raised.
#ChronicIllness #Disabled #pwME #LongCovid #EDS #Pots #fibromyalgia
#ChronicIllness #Disabled #pwME #LongCovid #EDS #Pots #fibromyalgia
January 30, 2026 at 11:31 AM
I think many of my followers will have these flags raised.
#ChronicIllness #Disabled #pwME #LongCovid #EDS #Pots #fibromyalgia
#ChronicIllness #Disabled #pwME #LongCovid #EDS #Pots #fibromyalgia
Reposted by Cleo👠✨
Things were attempted
January 27, 2026 at 5:37 PM
Things were attempted
In case you were wondering, and I know you all were, it IS possible to slip on a mat on wet vinyl flooring and do the splits in a 3x7 porch.
My left hip & right hand are both very angry with me. 😳
My left hip & right hand are both very angry with me. 😳
January 27, 2026 at 2:11 PM
In case you were wondering, and I know you all were, it IS possible to slip on a mat on wet vinyl flooring and do the splits in a 3x7 porch.
My left hip & right hand are both very angry with me. 😳
My left hip & right hand are both very angry with me. 😳
Use this post as an excuse to post one of your favourite characters.
January 27, 2026 at 11:29 AM
Use this post as an excuse to post one of your favourite characters.
Every time I log into here and see that question at the top, my brain goes into pic 2 mode 🎶
January 26, 2026 at 7:16 PM
Every time I log into here and see that question at the top, my brain goes into pic 2 mode 🎶
Left an admin note with gp surgery to say none of my conditions are showing on the health app we use which would explain why whichever gp I see has no clue about me.
They rang to say they had 2 on file, & that was it. But I can drop off my paperwork so they can update it.
*preps lever arch file*
They rang to say they had 2 on file, & that was it. But I can drop off my paperwork so they can update it.
*preps lever arch file*
January 26, 2026 at 4:53 PM
Left an admin note with gp surgery to say none of my conditions are showing on the health app we use which would explain why whichever gp I see has no clue about me.
They rang to say they had 2 on file, & that was it. But I can drop off my paperwork so they can update it.
*preps lever arch file*
They rang to say they had 2 on file, & that was it. But I can drop off my paperwork so they can update it.
*preps lever arch file*
Twice in 4 days I've left my keys hanging out of the front door. The Amazon man found it very funny just now. I did the laugh out loud but secretly winced & shouted at myself inside.
😶🌫️
#brainfog #chronicillness #pwME
😶🌫️
#brainfog #chronicillness #pwME
January 26, 2026 at 12:39 PM
Twice in 4 days I've left my keys hanging out of the front door. The Amazon man found it very funny just now. I did the laugh out loud but secretly winced & shouted at myself inside.
😶🌫️
#brainfog #chronicillness #pwME
😶🌫️
#brainfog #chronicillness #pwME
Recorded the results for the RSPB birdwatch.
They really should include a box so participants can say "I regularly feed the birds" (to explain my high pigeon count) and "these are birds I usually see but didn't today" which would help them understand numbers better.
bit.ly/3tgxjGS
They really should include a box so participants can say "I regularly feed the birds" (to explain my high pigeon count) and "these are birds I usually see but didn't today" which would help them understand numbers better.
bit.ly/3tgxjGS
RSPB
bit.ly
January 25, 2026 at 9:50 AM
Recorded the results for the RSPB birdwatch.
They really should include a box so participants can say "I regularly feed the birds" (to explain my high pigeon count) and "these are birds I usually see but didn't today" which would help them understand numbers better.
bit.ly/3tgxjGS
They really should include a box so participants can say "I regularly feed the birds" (to explain my high pigeon count) and "these are birds I usually see but didn't today" which would help them understand numbers better.
bit.ly/3tgxjGS
Blimey, you've lost your pier @karenpearny.bsky.social How is it where you are? Everything still in one piece? I hope your fences stay in place this time 🤞🏻 #storm #StormIngrid
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Teignmouth Pier washes away and sea wall crumbles during Storm Ingrid
Part of a historic pier washes away and a sea wall next to a railway line crumbles as Storm Ingrid lashes Devon and Cornwall.
www.bbc.co.uk
January 24, 2026 at 7:30 PM
Blimey, you've lost your pier @karenpearny.bsky.social How is it where you are? Everything still in one piece? I hope your fences stay in place this time 🤞🏻 #storm #StormIngrid
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Thanks to free veg vouchers & special offers for the ingredients in Lidl, tonight I will attempt to make this. Low calorie, filling, and freezable portions. Results later, if I remember!
The expectation:
The expectation:
January 24, 2026 at 2:38 PM
Thanks to free veg vouchers & special offers for the ingredients in Lidl, tonight I will attempt to make this. Low calorie, filling, and freezable portions. Results later, if I remember!
The expectation:
The expectation:
Seeing this isolated house for sale & my first 3 thoughts are;
- Wow, my washing will dry quickly there!
- The negative ions from the coastal breeze will do me a world of good.
- I wonder if they have a Lidl nearby?
😁
- Wow, my washing will dry quickly there!
- The negative ions from the coastal breeze will do me a world of good.
- I wonder if they have a Lidl nearby?
😁
January 24, 2026 at 11:06 AM
Seeing this isolated house for sale & my first 3 thoughts are;
- Wow, my washing will dry quickly there!
- The negative ions from the coastal breeze will do me a world of good.
- I wonder if they have a Lidl nearby?
😁
- Wow, my washing will dry quickly there!
- The negative ions from the coastal breeze will do me a world of good.
- I wonder if they have a Lidl nearby?
😁
Does anyone have links for disability financial advice or guidance?
I am now in stuck as the company I "worked" for (aka brother's business) is folding. I am without a job, cannot get another with all my symptoms and in full on panic mode.
#disability #disabled #finance #help
I am now in stuck as the company I "worked" for (aka brother's business) is folding. I am without a job, cannot get another with all my symptoms and in full on panic mode.
#disability #disabled #finance #help
January 22, 2026 at 11:16 AM
Does anyone have links for disability financial advice or guidance?
I am now in stuck as the company I "worked" for (aka brother's business) is folding. I am without a job, cannot get another with all my symptoms and in full on panic mode.
#disability #disabled #finance #help
I am now in stuck as the company I "worked" for (aka brother's business) is folding. I am without a job, cannot get another with all my symptoms and in full on panic mode.
#disability #disabled #finance #help