Marianne | Chronic Illness Coach + Educator
@mariannequilez.bsky.social
📲 CFO turned EDS | MTHFR | MCAD | POTS + more Patient & Advocate.
🦓 Helping spoonies self-advocate + get taken seriously.
⬇️ Free tools & guides
https://linktr.ee/mq01
🦓 Helping spoonies self-advocate + get taken seriously.
⬇️ Free tools & guides
https://linktr.ee/mq01
🇺🇸 It’s Independence Day, but many of us are under attack. Millions like me will lose healthcare this year. We won’t forget. Vote them out 11/3/2026. #DisabilityRights #Resist #eds #hypermobility #pots #mcas #spoonie #chronicillness #disability #longcovid #speakuptoolkit #mariannequilez #votethemout
July 4, 2025 at 7:49 PM
🇺🇸 It’s Independence Day, but many of us are under attack. Millions like me will lose healthcare this year. We won’t forget. Vote them out 11/3/2026. #DisabilityRights #Resist #eds #hypermobility #pots #mcas #spoonie #chronicillness #disability #longcovid #speakuptoolkit #mariannequilez #votethemout
EDS is complicated, not rare.
We’re not going anywhere.
No matter what they take from us.
Take our care, we'll fight harder.
#EDS #EhlersDanlos #DisabilityRights #ChronicIllness #WeAreNotRare #DisabledAndProud #pots #mcas #heds #spoonie #hypermobility #mariannequilez #edscommunity #mthfr
We’re not going anywhere.
No matter what they take from us.
Take our care, we'll fight harder.
#EDS #EhlersDanlos #DisabilityRights #ChronicIllness #WeAreNotRare #DisabledAndProud #pots #mcas #heds #spoonie #hypermobility #mariannequilez #edscommunity #mthfr
July 3, 2025 at 8:08 PM
EDS is complicated, not rare.
We’re not going anywhere.
No matter what they take from us.
Take our care, we'll fight harder.
#EDS #EhlersDanlos #DisabilityRights #ChronicIllness #WeAreNotRare #DisabledAndProud #pots #mcas #heds #spoonie #hypermobility #mariannequilez #edscommunity #mthfr
We’re not going anywhere.
No matter what they take from us.
Take our care, we'll fight harder.
#EDS #EhlersDanlos #DisabilityRights #ChronicIllness #WeAreNotRare #DisabledAndProud #pots #mcas #heds #spoonie #hypermobility #mariannequilez #edscommunity #mthfr
✨ You’re allowed to take up space in your care.
To ask questions. To advocate for yourself.
Your care should include your voice. 💛
#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
To ask questions. To advocate for yourself.
Your care should include your voice. 💛
#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
July 2, 2025 at 10:50 PM
✨ You’re allowed to take up space in your care.
To ask questions. To advocate for yourself.
Your care should include your voice. 💛
#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
To ask questions. To advocate for yourself.
Your care should include your voice. 💛
#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
🌱 Small steps do count, and you get to set the pace. Healing, advocating, and living with chronic illness isn’t a race. Your pace is the RIGHT pace. ✨ Tools to help you speak up when you’re ready are in my bio. #ChronicIllness #SelfAdvocacy #Spoonie #hypermobility #eds #mcas #pots #speakuptoolkit
July 2, 2025 at 3:33 AM
🌱 Small steps do count, and you get to set the pace. Healing, advocating, and living with chronic illness isn’t a race. Your pace is the RIGHT pace. ✨ Tools to help you speak up when you’re ready are in my bio. #ChronicIllness #SelfAdvocacy #Spoonie #hypermobility #eds #mcas #pots #speakuptoolkit
Used to leave appointments in tears. Now I prepare—and it changes everything.
Grab the Free Speak Up Toolkit (link in bio) so you can prepare, speak, and be heard.💛
#Spoonie #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #InvisibleIllness #Hypermobile #mcas #potssyndrome #ehlersdanlossyndrome
Grab the Free Speak Up Toolkit (link in bio) so you can prepare, speak, and be heard.💛
#Spoonie #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #InvisibleIllness #Hypermobile #mcas #potssyndrome #ehlersdanlossyndrome
July 1, 2025 at 7:07 PM
Used to leave appointments in tears. Now I prepare—and it changes everything.
Grab the Free Speak Up Toolkit (link in bio) so you can prepare, speak, and be heard.💛
#Spoonie #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #InvisibleIllness #Hypermobile #mcas #potssyndrome #ehlersdanlossyndrome
Grab the Free Speak Up Toolkit (link in bio) so you can prepare, speak, and be heard.💛
#Spoonie #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #InvisibleIllness #Hypermobile #mcas #potssyndrome #ehlersdanlossyndrome
Your voice matters in every appointment. 🩺✨
Need help speaking up? Grab my Free Speak Up Toolkit (link in bio) and advocate with confidence.
#ChronicIllness #SpeakUpToolkit #PatientAdvocacy #Spoonie #EDS #POTS #MCAS #mthfr #disability #hypermobile #folate #folicacid #medicalgaslighting #zebra
Need help speaking up? Grab my Free Speak Up Toolkit (link in bio) and advocate with confidence.
#ChronicIllness #SpeakUpToolkit #PatientAdvocacy #Spoonie #EDS #POTS #MCAS #mthfr #disability #hypermobile #folate #folicacid #medicalgaslighting #zebra
June 30, 2025 at 9:10 PM
Your voice matters in every appointment. 🩺✨
Need help speaking up? Grab my Free Speak Up Toolkit (link in bio) and advocate with confidence.
#ChronicIllness #SpeakUpToolkit #PatientAdvocacy #Spoonie #EDS #POTS #MCAS #mthfr #disability #hypermobile #folate #folicacid #medicalgaslighting #zebra
Need help speaking up? Grab my Free Speak Up Toolkit (link in bio) and advocate with confidence.
#ChronicIllness #SpeakUpToolkit #PatientAdvocacy #Spoonie #EDS #POTS #MCAS #mthfr #disability #hypermobile #folate #folicacid #medicalgaslighting #zebra
Your symptoms are real. Your needs are too. 💜
Grab my free Speak Up Toolkit to help you advocate for POTS, MCAS, MTHFR & more: stan.store/MarianneQuilez
#POTS #Dysautonomia #MCASdisease #MTHFR #Hypermobile #covidsymptoms #folicacid #folate #MTHFRgenemutation #eds #spoonie #spoonies #zebrastrong
Grab my free Speak Up Toolkit to help you advocate for POTS, MCAS, MTHFR & more: stan.store/MarianneQuilez
#POTS #Dysautonomia #MCASdisease #MTHFR #Hypermobile #covidsymptoms #folicacid #folate #MTHFRgenemutation #eds #spoonie #spoonies #zebrastrong
June 29, 2025 at 10:18 PM
Your symptoms are real. Your needs are too. 💜
Grab my free Speak Up Toolkit to help you advocate for POTS, MCAS, MTHFR & more: stan.store/MarianneQuilez
#POTS #Dysautonomia #MCASdisease #MTHFR #Hypermobile #covidsymptoms #folicacid #folate #MTHFRgenemutation #eds #spoonie #spoonies #zebrastrong
Grab my free Speak Up Toolkit to help you advocate for POTS, MCAS, MTHFR & more: stan.store/MarianneQuilez
#POTS #Dysautonomia #MCASdisease #MTHFR #Hypermobile #covidsymptoms #folicacid #folate #MTHFRgenemutation #eds #spoonie #spoonies #zebrastrong
✨ You deserve clarity in your care. ✨
My free Speak Up Toolkit helps you get heard with calm, clear scripts. 🩺🤍 Download + advocate for the care you deserve. #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #SpoonieSupport #eds #heds #mthfr #spoonie #chronicillness #disability #mcas #chronicpain
My free Speak Up Toolkit helps you get heard with calm, clear scripts. 🩺🤍 Download + advocate for the care you deserve. #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #SpoonieSupport #eds #heds #mthfr #spoonie #chronicillness #disability #mcas #chronicpain
June 29, 2025 at 2:46 AM
✨ You deserve clarity in your care. ✨
My free Speak Up Toolkit helps you get heard with calm, clear scripts. 🩺🤍 Download + advocate for the care you deserve. #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #SpoonieSupport #eds #heds #mthfr #spoonie #chronicillness #disability #mcas #chronicpain
My free Speak Up Toolkit helps you get heard with calm, clear scripts. 🩺🤍 Download + advocate for the care you deserve. #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #SpoonieSupport #eds #heds #mthfr #spoonie #chronicillness #disability #mcas #chronicpain
It’s ok to need help putting symptoms into words. My Free Speak Up Toolkit can help. Grab it at link in bio.
#SpeakUpToolkit #ChronicIllness #SpoonieSupport #InvisibleIllness #EDS #MTHFR #MCAS #POTS #ChronicPain #SpoonieLife #MedicalGaslighting #SymptomTracking #ChronicIllnessCommunity
#SpeakUpToolkit #ChronicIllness #SpoonieSupport #InvisibleIllness #EDS #MTHFR #MCAS #POTS #ChronicPain #SpoonieLife #MedicalGaslighting #SymptomTracking #ChronicIllnessCommunity
June 28, 2025 at 7:30 PM
It’s ok to need help putting symptoms into words. My Free Speak Up Toolkit can help. Grab it at link in bio.
#SpeakUpToolkit #ChronicIllness #SpoonieSupport #InvisibleIllness #EDS #MTHFR #MCAS #POTS #ChronicPain #SpoonieLife #MedicalGaslighting #SymptomTracking #ChronicIllnessCommunity
#SpeakUpToolkit #ChronicIllness #SpoonieSupport #InvisibleIllness #EDS #MTHFR #MCAS #POTS #ChronicPain #SpoonieLife #MedicalGaslighting #SymptomTracking #ChronicIllnessCommunity
✨ You’re doing your best, and that truly is enough.
Your symptoms are real. Your voice matters. Your story deserves to be heard. 🌿
#ChronicIllness #EDS #heds #MTHFR #SelfAdvocacy #MedicalGaslighting #ChronicPain #POTS #MCAS #InvisibleIllness #SpeakUpToolkit #SymptomTracker #EDSCommunity #spoonie
Your symptoms are real. Your voice matters. Your story deserves to be heard. 🌿
#ChronicIllness #EDS #heds #MTHFR #SelfAdvocacy #MedicalGaslighting #ChronicPain #POTS #MCAS #InvisibleIllness #SpeakUpToolkit #SymptomTracker #EDSCommunity #spoonie
June 28, 2025 at 5:02 AM
✨ You’re doing your best, and that truly is enough.
Your symptoms are real. Your voice matters. Your story deserves to be heard. 🌿
#ChronicIllness #EDS #heds #MTHFR #SelfAdvocacy #MedicalGaslighting #ChronicPain #POTS #MCAS #InvisibleIllness #SpeakUpToolkit #SymptomTracker #EDSCommunity #spoonie
Your symptoms are real. Your voice matters. Your story deserves to be heard. 🌿
#ChronicIllness #EDS #heds #MTHFR #SelfAdvocacy #MedicalGaslighting #ChronicPain #POTS #MCAS #InvisibleIllness #SpeakUpToolkit #SymptomTracker #EDSCommunity #spoonie
Reposted by Marianne | Chronic Illness Coach + Educator
The Social Security trust fund could be depleted by 2033, according to a new report from its trustees.
There's a simple way to fix this: scrap the cap on the Social Security payroll tax. https://youtu.be/GfZuB7XSFys?si=p8Zw3o6MIfQi9xoo
There's a simple way to fix this: scrap the cap on the Social Security payroll tax. https://youtu.be/GfZuB7XSFys?si=p8Zw3o6MIfQi9xoo
How the Super Rich Are Killing Social Security | Robert Reich
Social Security taxes are rigged for the rich — and the program is in danger because of it. A CEO earning $20M/yr pays S
youtu.be
June 20, 2025 at 6:45 PM
The Social Security trust fund could be depleted by 2033, according to a new report from its trustees.
There's a simple way to fix this: scrap the cap on the Social Security payroll tax. https://youtu.be/GfZuB7XSFys?si=p8Zw3o6MIfQi9xoo
There's a simple way to fix this: scrap the cap on the Social Security payroll tax. https://youtu.be/GfZuB7XSFys?si=p8Zw3o6MIfQi9xoo
Reposted by Marianne | Chronic Illness Coach + Educator
Keep the Receipts People...👍👍
June 19, 2025 at 10:41 AM
Keep the Receipts People...👍👍
Reposted by Marianne | Chronic Illness Coach + Educator
Reposted by Marianne | Chronic Illness Coach + Educator
This is even true where a person's disability does not impact ability to go to an office in an obvious way. Meal/food prep is a big burden for me because I essentially cannot eat anything I did not make myself at home. WFH/hybrid takes some of that load off and makes my diet better.
Not only can working from home make you happier, for many disabled people it allows them to remain in the workforce
It gives them autonomy & independence. Flexibility to attend doctors appointments and care for their health
It’s a crucial accommodation, and removing it will harm disabled lives
It gives them autonomy & independence. Flexibility to attend doctors appointments and care for their health
It’s a crucial accommodation, and removing it will harm disabled lives
Scientists have studied remote work for 4 years and have reached a clear conclusion: working from home makes us happier - Caring Minds United
Scientists have spent four years diving deep into the world of remote work and stumbled upon a powerful truth: working from home genuinely makes us
www.cmu.fr
June 15, 2025 at 11:23 PM
This is even true where a person's disability does not impact ability to go to an office in an obvious way. Meal/food prep is a big burden for me because I essentially cannot eat anything I did not make myself at home. WFH/hybrid takes some of that load off and makes my diet better.
Reposted by Marianne | Chronic Illness Coach + Educator
What we learned yesterday.
The Times They Are a-Changin'
The Times They Are a-Changin'
June 15, 2025 at 4:42 PM
What we learned yesterday.
The Times They Are a-Changin'
The Times They Are a-Changin'
Reposted by Marianne | Chronic Illness Coach + Educator
Americans do not kneel to kings.
June 13, 2025 at 2:24 PM
Americans do not kneel to kings.
Reposted by Marianne | Chronic Illness Coach + Educator
Padilla was pulled, thrown & handcuffed by FBI. A senator in his own state, forcibly arrested! (He's since been released.) The Trump regime is cray cray.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #fuckice #ice #meltice #protest #resistance #resistencia
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #fuckice #ice #meltice #protest #resistance #resistencia
June 13, 2025 at 1:01 AM
Padilla was pulled, thrown & handcuffed by FBI. A senator in his own state, forcibly arrested! (He's since been released.) The Trump regime is cray cray.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #fuckice #ice #meltice #protest #resistance #resistencia
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #fuckice #ice #meltice #protest #resistance #resistencia
Senator Alex Padilla (D-CA) was assaulted and forcibly removed from DHS Secretary Kristi Noem’s press conference in Los Angeles while conducting NORMAL oversight.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #ice #meltice #protest #resistance #resistencia
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #ice #meltice #protest #resistance #resistencia
June 13, 2025 at 12:57 AM
Senator Alex Padilla (D-CA) was assaulted and forcibly removed from DHS Secretary Kristi Noem’s press conference in Los Angeles while conducting NORMAL oversight.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #ice #meltice #protest #resistance #resistencia
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #ice #meltice #protest #resistance #resistencia
real strength is silent, weakness is loud #peacefulprotest #media #news #protest #californianative #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #nokingsday
June 12, 2025 at 2:32 AM
real strength is silent, weakness is loud #peacefulprotest #media #news #protest #californianative #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #nokingsday
Reposted by Marianne | Chronic Illness Coach + Educator
Reposted by Marianne | Chronic Illness Coach + Educator
May the anti-ICE movement continue to spread nationwide!
This is the Los Angeles spirit your news broadcast isn’t showing…
This is the Los Angeles spirit your news broadcast isn’t showing…
June 11, 2025 at 5:27 PM
May the anti-ICE movement continue to spread nationwide!
This is the Los Angeles spirit your news broadcast isn’t showing…
This is the Los Angeles spirit your news broadcast isn’t showing…
Reposted by Marianne | Chronic Illness Coach + Educator
Don't just say it's unconstitutional, remind people that the constitution is full of very good ideas designed to prevent authoritarianism, and most people who want to ignore it want that specifically because they are authoritarian.
June 11, 2025 at 3:46 PM
Don't just say it's unconstitutional, remind people that the constitution is full of very good ideas designed to prevent authoritarianism, and most people who want to ignore it want that specifically because they are authoritarian.
time to stand the f*ck up! #50501 #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #californianative #protest #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #reels
June 11, 2025 at 5:01 AM
time to stand the f*ck up! #50501 #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #californianative #protest #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #reels