Marianne | Chronic Illness Coach + Educator
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mariannequilez.bsky.social
Marianne | Chronic Illness Coach + Educator
@mariannequilez.bsky.social
220 followers 450 following 73 posts
📲 CFO turned EDS | MTHFR | MCAD | POTS + more Patient & Advocate.
🦓 Helping spoonies self-advocate + get taken seriously.
⬇️ Free tools & guides
https://linktr.ee/mq01
Posts Replies Media Videos
mariannequilez.bsky.social
🇺🇸 It’s Independence Day, but many of us are under attack. Millions like me will lose healthcare this year. We won’t forget. Vote them out 11/3/2026. #DisabilityRights #Resist #eds #hypermobility #pots #mcas #spoonie #chronicillness #disability #longcovid #speakuptoolkit #mariannequilez #votethemout
July 4, 2025 at 7:49 PM
mariannequilez.bsky.social
EDS is complicated, not rare.
We’re not going anywhere.
No matter what they take from us.
Take our care, we'll fight harder.

#EDS #EhlersDanlos #DisabilityRights #ChronicIllness #WeAreNotRare #DisabledAndProud #pots #mcas #heds #spoonie #hypermobility #mariannequilez #edscommunity #mthfr
July 3, 2025 at 8:08 PM
mariannequilez.bsky.social
✨ You’re allowed to take up space in your care.
To ask questions. To advocate for yourself.
Your care should include your voice. 💛

#ChronicIllness #SpeakUpToolkit #Spoonie #InvisibleIllness #Hypermobile #EDS #POTS #MCAS #ChronicPain #MedicalGaslighting #MTHFR #MarianneQuilez #zebrastrong
July 2, 2025 at 10:50 PM
mariannequilez.bsky.social
🌱 Small steps do count, and you get to set the pace. Healing, advocating, and living with chronic illness isn’t a race. Your pace is the RIGHT pace. ✨ Tools to help you speak up when you’re ready are in my bio. #ChronicIllness #SelfAdvocacy #Spoonie #hypermobility #eds #mcas #pots #speakuptoolkit
July 2, 2025 at 3:33 AM
mariannequilez.bsky.social
Used to leave appointments in tears. Now I prepare—and it changes everything.

Grab the Free Speak Up Toolkit (link in bio) so you can prepare, speak, and be heard.💛

#Spoonie #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #InvisibleIllness #Hypermobile #mcas #potssyndrome #ehlersdanlossyndrome
July 1, 2025 at 7:07 PM
mariannequilez.bsky.social
Your voice matters in every appointment. 🩺✨
Need help speaking up? Grab my Free Speak Up Toolkit (link in bio) and advocate with confidence.

#ChronicIllness #SpeakUpToolkit #PatientAdvocacy #Spoonie #EDS #POTS #MCAS #mthfr #disability #hypermobile #folate #folicacid #medicalgaslighting #zebra
June 30, 2025 at 9:10 PM
mariannequilez.bsky.social
Your symptoms are real. Your needs are too. 💜
Grab my free Speak Up Toolkit to help you advocate for POTS, MCAS, MTHFR & more: stan.store/MarianneQuilez

#POTS #Dysautonomia #MCASdisease #MTHFR #Hypermobile #covidsymptoms #folicacid #folate #MTHFRgenemutation #eds #spoonie #spoonies #zebrastrong
June 29, 2025 at 10:18 PM
mariannequilez.bsky.social
✨ You deserve clarity in your care. ✨
My free Speak Up Toolkit helps you get heard with calm, clear scripts. 🩺🤍 Download + advocate for the care you deserve. #ChronicIllness #PatientAdvocacy #SpeakUpToolkit #SpoonieSupport #eds #heds #mthfr #spoonie #chronicillness #disability #mcas #chronicpain
June 29, 2025 at 2:46 AM
mariannequilez.bsky.social
It’s ok to need help putting symptoms into words. My Free Speak Up Toolkit can help. Grab it at link in bio.
#SpeakUpToolkit #ChronicIllness #SpoonieSupport #InvisibleIllness #EDS #MTHFR #MCAS #POTS #ChronicPain #SpoonieLife #MedicalGaslighting #SymptomTracking #ChronicIllnessCommunity
June 28, 2025 at 7:30 PM
mariannequilez.bsky.social
✨ You’re doing your best, and that truly is enough.
Your symptoms are real. Your voice matters. Your story deserves to be heard. 🌿

#ChronicIllness #EDS #heds #MTHFR #SelfAdvocacy #MedicalGaslighting #ChronicPain #POTS #MCAS #InvisibleIllness #SpeakUpToolkit #SymptomTracker #EDSCommunity #spoonie
June 28, 2025 at 5:02 AM
mariannequilez.bsky.social
#trumpisguilty #sharethis #lockhimup #stoptrump #nevertrump #ICEoutofLA #chingalamigra #ourstreets #ImpeachTheCabinet #ArticleIISection4 #Resist #ConstitutionalCrisis #sosfromamerica #DemandJustice #NoKings #FlipTheHouse #FlipTheSenate #ThisIsHowWeWin #resistencia #resist
June 13, 2025 at 5:05 AM
mariannequilez.bsky.social
Padilla was pulled, thrown & handcuffed by FBI. A senator in his own state, forcibly arrested! (He's since been released.) The Trump regime is cray cray.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #fuckice #ice #meltice #protest #resistance #resistencia
June 13, 2025 at 1:01 AM
mariannequilez.bsky.social
Senator Alex Padilla (D-CA) was assaulted and forcibly removed from DHS Secretary Kristi Noem’s press conference in Los Angeles while conducting NORMAL oversight.
#fascism #authoritarianism #unconstitutional #notyrants #nokings #nokingsday #defendla #ice #meltice #protest #resistance #resistencia
June 13, 2025 at 12:57 AM
mariannequilez.bsky.social
real strength is silent, weakness is loud #peacefulprotest #media #news #protest #californianative #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #nokingsday
June 12, 2025 at 2:32 AM
mariannequilez.bsky.social
time to stand the f*ck up! #50501 #50501Movement #NoKings #FiftyFiftyOne #PeoplesMovement #June14 #LosAngeles #Chicago #LAProtests #resistencia #californianative #protest #fascism #usa #trump #police #ice #explore #trending #reddit #share #ig #reels
June 11, 2025 at 5:01 AM
mariannequilez.bsky.social
#nokings #resistencia #enddetentionabuse #humanrights #immigrantrights #endice #indivisible #losangeles #iceraids #50501 #californianative
June 10, 2025 at 8:12 PM
mariannequilez.bsky.social
ICE = KKK
#nokings #8647 #fudjt #orangeclown #resistencia #resist
June 9, 2025 at 8:23 PM
mariannequilez.bsky.social
ABOLISH ICE ABOLISH ICE ABOLISH ICE ABOLISH ICE ABOLISH ICE ABOLISH ICE ABOLISH ICE ABOLISH ICE #8647 #resistance #californianative #norcal #socal #peacefulprotest #8647 #icekidnappings #resist #resistencia #peacefulprotest #protest
June 8, 2025 at 8:25 PM
mariannequilez.bsky.social
ICE/Feds are looking for trouble, don’t fall for the trap. Stay vigilant. Record the truth, (apparently that’ll get you detained for exposing their lies). Stick together and remember, EL PUEBLO UNIDO JAMÁS SERA VENCIDO. The people united will never be defeated. #RESIST #wearenottheimmigrants
June 8, 2025 at 8:22 PM
mariannequilez.bsky.social
I’m building clear, simple tools & coaching calls for people with EDS, MTHFR & chronic illness: guides, checklists & scripts to help you speak up. The Speak Up Toolkit is just the start. #ChronicIllness #MedicalAdvocacy #eds #mthfr #heds #hypermobility #spoonie #chronicillnesswarrior
June 7, 2025 at 12:55 AM
mariannequilez.bsky.social
Hi, I'm Marianne 😊 After years of dismissive care, I’m building tools to help patients speak up, feel prepared, and be heard. We deserve better.

#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
June 5, 2025 at 10:02 PM
mariannequilez.bsky.social
June 5, 2025 at 2:05 AM
mariannequilez.bsky.social
June 5, 2025 at 2:05 AM
mariannequilez.bsky.social
Feel dismissed by your doctor?
That’s medical gaslighting—and it’s real.
Get the free Speak Up Toolkit: real scripts, boundary-setting tools, and more.
Stand your ground in every appointment.
🎯 Link in bio. #ChronicIllness #PatientAdvocacy #MarianneQuilez #SpeakUpToolkit #eds #mthfr #zebrasupport
June 5, 2025 at 2:04 AM