Marcia Mersky
@marciamam.bsky.social
Long Covid/MECFS patient, quilter and gardener when able to be active.
ME/CFS people: is SMPDL3B the bio marker we have been waiting for? It’s also a potential therapeutic target! Early days…but hopeful. 🤞🤞🤞
July 15, 2025 at 4:51 PM
ME/CFS people: is SMPDL3B the bio marker we have been waiting for? It’s also a potential therapeutic target! Early days…but hopeful. 🤞🤞🤞
Reposted by Marcia Mersky
I'm attending MoveOn's event, “Phone Bank to STOP THE CUTS!” - sign up now to join me! www.mobilize.us/moveon/event...
Phone Bank to STOP THE CUTS! · MoveOn
Congress will soon vote on whether to advance a budget resolution that would take away TRILLIONS of dollars of support and assistance from everyday people, including the largest proposed cuts to Medic...
www.mobilize.us
June 18, 2025 at 1:52 AM
I'm attending MoveOn's event, “Phone Bank to STOP THE CUTS!” - sign up now to join me! www.mobilize.us/moveon/event...
Good one
April 20, 2025 at 3:02 AM
Good one
Just emailed Sara.brenner@fda.hhs.gov and Scott.steele@fda.hhs.gov and David.Maslow@fda.hhs.gov to ask for approval of the Novavax vaccine for those of us who can’t tolerate mRNA side effects and crashes.
#mecfs
#longcovid
#mecfs
#longcovid
April 15, 2025 at 5:42 PM
Just emailed Sara.brenner@fda.hhs.gov and Scott.steele@fda.hhs.gov and David.Maslow@fda.hhs.gov to ask for approval of the Novavax vaccine for those of us who can’t tolerate mRNA side effects and crashes.
#mecfs
#longcovid
#mecfs
#longcovid
A playful take on a serious topic…
#JohnVsJonVsME
#JohnVsJonVsME
In a crisis-filled world, breaking through the noise requires creativity, strategy — and, occasionally, a really good meme. This is why the #JohnVsJonVsME campaign began. bit.ly/4hTwUxa
April 1, 2025 at 11:06 PM
A playful take on a serious topic…
#JohnVsJonVsME
#JohnVsJonVsME
🚨 BREAKING: #LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, according to patient representatives in the initiative. bit.ly/3FO8LuQ
March 28, 2025 at 9:59 PM
Read below: they’re not just pulling funding for new research, but for studies that are near completion!
RFK said at his confirmation hearing that he was committed to investing in LC research. He is 100% unqualified for the job, and he’s a fucking liar too.
RFK said at his confirmation hearing that he was committed to investing in LC research. He is 100% unqualified for the job, and he’s a fucking liar too.
The White House is terminating funding for NIH RECOVER grants studying Long COVID that had been awarded in 2022 and 2023 - effectively stopping 45 studies that were already underway and almost complete.
#NoLongCOVIDCuts #LongCOVID #MECFS #pwME #MECFS #MyalgicE
#NoLongCOVIDCuts #LongCOVID #MECFS #pwME #MECFS #MyalgicE
March 27, 2025 at 9:42 PM
Read below: they’re not just pulling funding for new research, but for studies that are near completion!
RFK said at his confirmation hearing that he was committed to investing in LC research. He is 100% unqualified for the job, and he’s a fucking liar too.
RFK said at his confirmation hearing that he was committed to investing in LC research. He is 100% unqualified for the job, and he’s a fucking liar too.
It wasn’t enough to close the HHS office for Long Covid research, and defund NIH research on ME/CFS, they also removed connections to LC resources. It’s as if the millions of us with these debilitating conditions no longer exist.
If you can, link below to take action:
If you can, link below to take action:
#LongCOVID Is Being Erased in Real Time—Help Us Stop It!
Trump Administration Impacts to Long COVID Closure of the HHS Office for Long COVID Research and Practice, which was intended to coordinate Long COVID efforts across federal agencies, represents a de...
actionnetwork.org
March 26, 2025 at 6:20 PM
It wasn’t enough to close the HHS office for Long Covid research, and defund NIH research on ME/CFS, they also removed connections to LC resources. It’s as if the millions of us with these debilitating conditions no longer exist.
If you can, link below to take action:
If you can, link below to take action:
Devastating news for the Long Covid community.
In <24 hours, Covid funding is DOGEd across HHS, CDC, NIH as if it and Long Covid didn't exist and there is no worry for future pandemics
www.science.org/content/arti...
www.nbcnews.com/health/healt...
www.science.org/content/arti...
www.science.org/content/arti...
www.nbcnews.com/health/healt...
www.science.org/content/arti...
March 26, 2025 at 1:44 AM
Devastating news for the Long Covid community.
Pete for president
Secretary Pete, now a private citizen- weighs in on Signalgate.
March 25, 2025 at 7:24 PM
Pete for president
Living with LC is really tough and also very hard to explain to people who haven’t experienced it.
In the next essay in our Color of Long COVID series, supported by the Disability Visibility Project, Christina Igaraividez writes about making a new friend with #LongCOVID, and how their connection helped build up each other’s confidence and hope. bit.ly/4bW3mhf
March 24, 2025 at 5:17 PM
Living with LC is really tough and also very hard to explain to people who haven’t experienced it.
My all fabric portrait quilt of @aoc.bsky.social made in 2019.
AOC and Bernie are killing it right now. Where are the rest of the Dems while our country is being ripped to shreds??
AOC and Bernie are killing it right now. Where are the rest of the Dems while our country is being ripped to shreds??
March 24, 2025 at 2:03 AM
My all fabric portrait quilt of @aoc.bsky.social made in 2019.
AOC and Bernie are killing it right now. Where are the rest of the Dems while our country is being ripped to shreds??
AOC and Bernie are killing it right now. Where are the rest of the Dems while our country is being ripped to shreds??
Reposted by Marcia Mersky
Reposted by Marcia Mersky
@kkjetelina.bsky.social
#medsky
H5N1 Update February 28, 2025 from Your Local Epidemiologist
If this figure doesn’t make you nervous, you’re not paying attention.
#medsky
H5N1 Update February 28, 2025 from Your Local Epidemiologist
If this figure doesn’t make you nervous, you’re not paying attention.
February 28, 2025 at 2:17 PM
@kkjetelina.bsky.social
#medsky
H5N1 Update February 28, 2025 from Your Local Epidemiologist
If this figure doesn’t make you nervous, you’re not paying attention.
#medsky
H5N1 Update February 28, 2025 from Your Local Epidemiologist
If this figure doesn’t make you nervous, you’re not paying attention.
Shit show in the Oval Office. Every day I’m more embarrassed to be an American.
February 28, 2025 at 7:03 PM
Shit show in the Oval Office. Every day I’m more embarrassed to be an American.
Reposted by Marcia Mersky
If you are wanting to join in to #ProtectMedicaid, please see our toolkit organized by energy/exertion level. Especially helpful for those with myalgic encephalomyelitis (ME/CFS) but hopefully useful to our wider chronic illness/ disability community. docs.google.com/document/d/1...
#pwME #MECFS
#pwME #MECFS
#MEAction: Take action on Medicaid
#MEAction: Take action on Medicaid organized by energy expenditure: highest to lowest. Remember to Stop, Rest, Pace. These actions are aimed at Congress. Congressional staff keep track of the numb...
docs.google.com
February 25, 2025 at 7:14 PM
If you are wanting to join in to #ProtectMedicaid, please see our toolkit organized by energy/exertion level. Especially helpful for those with myalgic encephalomyelitis (ME/CFS) but hopefully useful to our wider chronic illness/ disability community. docs.google.com/document/d/1...
#pwME #MECFS
#pwME #MECFS
www.healthrising.org/blog/categor...
Long covid, ME/CFS and the Trump administration: where we stand now.
Devastating impacts of firings and defunding on people who are already suffering from these debilitating illnesses.
Long covid, ME/CFS and the Trump administration: where we stand now.
Devastating impacts of firings and defunding on people who are already suffering from these debilitating illnesses.
long COVID - Health Rising
www.healthrising.org
February 25, 2025 at 7:10 PM
www.healthrising.org/blog/categor...
Long covid, ME/CFS and the Trump administration: where we stand now.
Devastating impacts of firings and defunding on people who are already suffering from these debilitating illnesses.
Long covid, ME/CFS and the Trump administration: where we stand now.
Devastating impacts of firings and defunding on people who are already suffering from these debilitating illnesses.
Reposted by Marcia Mersky
February 25, 2025 at 3:26 PM
Reposted by Marcia Mersky
Q: Has COVID-19 increased ME/CFS cases?
A: Before 2020, 1-3 million people in the U.S. had ME/CFS. Now, research suggests that number may be as high as 15 million due to COVID-19. We need more awareness, research, and care! 💙 #MECFS #LongCOVID #IACCs #ChronicIllness #BHC @openmedf.bsky.social
A: Before 2020, 1-3 million people in the U.S. had ME/CFS. Now, research suggests that number may be as high as 15 million due to COVID-19. We need more awareness, research, and care! 💙 #MECFS #LongCOVID #IACCs #ChronicIllness #BHC @openmedf.bsky.social
February 18, 2025 at 5:41 PM
Q: Has COVID-19 increased ME/CFS cases?
A: Before 2020, 1-3 million people in the U.S. had ME/CFS. Now, research suggests that number may be as high as 15 million due to COVID-19. We need more awareness, research, and care! 💙 #MECFS #LongCOVID #IACCs #ChronicIllness #BHC @openmedf.bsky.social
A: Before 2020, 1-3 million people in the U.S. had ME/CFS. Now, research suggests that number may be as high as 15 million due to COVID-19. We need more awareness, research, and care! 💙 #MECFS #LongCOVID #IACCs #ChronicIllness #BHC @openmedf.bsky.social
Reposted by Marcia Mersky
✨Please share! Special newsletter on US govt changes this week on:
USAID
FBI
CIA
DEI
Treasury
Dept Education
Gaza, "Riviera of the Middle East"
FAA
NOAA
NIH grants
HHS payments
Layoffs
Censorship incl NSF Forbidden Words
& Medicine's response
drruth.substack.com/p/special-is...
#medsky #IDsky 🛟🧪😷
USAID
FBI
CIA
DEI
Treasury
Dept Education
Gaza, "Riviera of the Middle East"
FAA
NOAA
NIH grants
HHS payments
Layoffs
Censorship incl NSF Forbidden Words
& Medicine's response
drruth.substack.com/p/special-is...
#medsky #IDsky 🛟🧪😷
Special Issue: Government Updates & Health 2/8/25
Today, I am writing a special issue of my newsletter summarizing most of the actions from the Trump administration this week, including important changes at the NIH, the Treasury, USAID and other US g...
drruth.substack.com
February 9, 2025 at 6:39 AM
✨Please share! Special newsletter on US govt changes this week on:
USAID
FBI
CIA
DEI
Treasury
Dept Education
Gaza, "Riviera of the Middle East"
FAA
NOAA
NIH grants
HHS payments
Layoffs
Censorship incl NSF Forbidden Words
& Medicine's response
drruth.substack.com/p/special-is...
#medsky #IDsky 🛟🧪😷
USAID
FBI
CIA
DEI
Treasury
Dept Education
Gaza, "Riviera of the Middle East"
FAA
NOAA
NIH grants
HHS payments
Layoffs
Censorship incl NSF Forbidden Words
& Medicine's response
drruth.substack.com/p/special-is...
#medsky #IDsky 🛟🧪😷
I was wondering why Musk wasn’t against Trump ending EV incentives. Much of the money goes to manufacturers transitioning to EVs so this actually benefits Tesla. Figures.
January 24, 2025 at 9:24 PM
I was wondering why Musk wasn’t against Trump ending EV incentives. Much of the money goes to manufacturers transitioning to EVs so this actually benefits Tesla. Figures.