Pinned
Mari Carmen
@macala0902.bsky.social
· Sep 25
Dibujo a carboncillo inspirado en una obra de Roberto Ferri ❤️❤️
Reposted by Mari Carmen
Medical Gaslighting
www.meresearch.org.uk/medical-gasl...
Screenshot from November AMMES newsletter
#MedicalGaslighting #chronicillness
www.meresearch.org.uk/medical-gasl...
Screenshot from November AMMES newsletter
#MedicalGaslighting #chronicillness
November 13, 2025 at 1:42 AM
Medical Gaslighting
www.meresearch.org.uk/medical-gasl...
Screenshot from November AMMES newsletter
#MedicalGaslighting #chronicillness
www.meresearch.org.uk/medical-gasl...
Screenshot from November AMMES newsletter
#MedicalGaslighting #chronicillness
Reposted by Mari Carmen
Wait, wait, a major english medical union/asso talking about Long Covid publicly without minimising it?
Stop the press!
Would 2026 might be the year they wake up? How about asking their members to stop the abuse? And learning/rectifying about #ME?
Dreaming is free.
#GreatestMEdicalScandal
Stop the press!
Would 2026 might be the year they wake up? How about asking their members to stop the abuse? And learning/rectifying about #ME?
Dreaming is free.
#GreatestMEdicalScandal
England’s top medical unions warn it’s unacceptable that Long COVID still isn’t classed as an occupational disease.
Three years after official advice, frontline health workers are still waiting for recognition and financial support.
www.bma.org.uk/bma-media-ce...
Three years after official advice, frontline health workers are still waiting for recognition and financial support.
www.bma.org.uk/bma-media-ce...
‘Unconscionable’ that the Government has not recognised Long COVID as an occupational disease, warns BMA and RCN - BMA media centre - BMA
Press release from the BMA.
www.bma.org.uk
November 13, 2025 at 7:17 AM
Wait, wait, a major english medical union/asso talking about Long Covid publicly without minimising it?
Stop the press!
Would 2026 might be the year they wake up? How about asking their members to stop the abuse? And learning/rectifying about #ME?
Dreaming is free.
#GreatestMEdicalScandal
Stop the press!
Would 2026 might be the year they wake up? How about asking their members to stop the abuse? And learning/rectifying about #ME?
Dreaming is free.
#GreatestMEdicalScandal
Reposted by Mari Carmen
Reposted by Mari Carmen
Reposted by Mari Carmen
Forgot to add that the above scenario is a “good” night of sleep for me.
Bad nights are 2-4 hours 🫠
I fall into the “tired but wired” subgroup of #MECFS
Bad nights are 2-4 hours 🫠
I fall into the “tired but wired” subgroup of #MECFS
November 9, 2025 at 6:14 PM
Forgot to add that the above scenario is a “good” night of sleep for me.
Bad nights are 2-4 hours 🫠
I fall into the “tired but wired” subgroup of #MECFS
Bad nights are 2-4 hours 🫠
I fall into the “tired but wired” subgroup of #MECFS
Reposted by Mari Carmen
Reason to avoid #MECFS*
I spend 16 hours actively trying to sleep with many meds and supplements to maybe cobble together 6 hours of sleep.
Oh and that sleep is all in 1-2 hour chunks 🙃
I spend 16 hours actively trying to sleep with many meds and supplements to maybe cobble together 6 hours of sleep.
Oh and that sleep is all in 1-2 hour chunks 🙃
November 9, 2025 at 6:07 PM
Reason to avoid #MECFS*
I spend 16 hours actively trying to sleep with many meds and supplements to maybe cobble together 6 hours of sleep.
Oh and that sleep is all in 1-2 hour chunks 🙃
I spend 16 hours actively trying to sleep with many meds and supplements to maybe cobble together 6 hours of sleep.
Oh and that sleep is all in 1-2 hour chunks 🙃
Reposted by Mari Carmen
David Tuller @davetuller1.bsky.social Interview with Brian Hughes @bmhughes.bsky.social , professor of psychology at University of Galway in Ireland
youtu.be/0K75eNkaL4Q
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs
youtu.be/0K75eNkaL4Q
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs
November 9, 2025 at 10:43 PM
David Tuller @davetuller1.bsky.social Interview with Brian Hughes @bmhughes.bsky.social , professor of psychology at University of Galway in Ireland
youtu.be/0K75eNkaL4Q
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs
youtu.be/0K75eNkaL4Q
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs
Reposted by Mari Carmen
Estamos muy emocionados. @daviduclescritor.bsky.social ya está en el estudio y vamos a hablar de su libro 'La península de las casas vacías'. Lleva ya 25 ediciones. Además, es un músico magnífico. Aquí está con @juliaoteroradio.bsky.social y @nuriatorreblanca.bsky.social. #JELO 🎙️
November 9, 2025 at 9:17 AM
Estamos muy emocionados. @daviduclescritor.bsky.social ya está en el estudio y vamos a hablar de su libro 'La península de las casas vacías'. Lleva ya 25 ediciones. Además, es un músico magnífico. Aquí está con @juliaoteroradio.bsky.social y @nuriatorreblanca.bsky.social. #JELO 🎙️
"Algunos profesionales sanitarios siguen refiriéndose al #MECFS y al #COVIDpersistente como trastornos psicológicos o «funcionales», a pesar de la considerable investigación que demuestra lo contrario."
Some healthcare providers are still referring to #mecfs and #longcovid as psychological or "functional" despite considerable research to the contrary. Here, I review the latest findings and expert thinking, with potential for treatment: www.medscape.com/viewarticle/...
Research Into ME/CFS Pathology Points to Possible Treatments
With greater understanding of the complex pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome, researchers aim to target treatments.
www.medscape.com
November 9, 2025 at 8:50 AM
"Algunos profesionales sanitarios siguen refiriéndose al #MECFS y al #COVIDpersistente como trastornos psicológicos o «funcionales», a pesar de la considerable investigación que demuestra lo contrario."
Reposted by Mari Carmen
Están a dos telediarios de descubrir que la "libertad de expresión" que esgrimen falazmente para insultar y acosar resulta que no es verdadera libertad de expresión.
Y si hubiesen prestado atención en clase sabrían que, para cuando se den cuenta, ya será demasiado tarde.
Otra vez.
Y si hubiesen prestado atención en clase sabrían que, para cuando se den cuenta, ya será demasiado tarde.
Otra vez.
November 8, 2025 at 2:25 PM
Están a dos telediarios de descubrir que la "libertad de expresión" que esgrimen falazmente para insultar y acosar resulta que no es verdadera libertad de expresión.
Y si hubiesen prestado atención en clase sabrían que, para cuando se den cuenta, ya será demasiado tarde.
Otra vez.
Y si hubiesen prestado atención en clase sabrían que, para cuando se den cuenta, ya será demasiado tarde.
Otra vez.
Reposted by Mari Carmen
Lo gracioso es ver a gente que lleva años dando bola a estos discursos llenos de mentiras y odio, decir ahora que gente cuyas ideas han aupado y jaleado "van demasiado lejos".
No me digas, Paco. Qué puta sorpresa nos llevamos todos.
No me digas, Paco. Qué puta sorpresa nos llevamos todos.
November 8, 2025 at 2:22 PM
Lo gracioso es ver a gente que lleva años dando bola a estos discursos llenos de mentiras y odio, decir ahora que gente cuyas ideas han aupado y jaleado "van demasiado lejos".
No me digas, Paco. Qué puta sorpresa nos llevamos todos.
No me digas, Paco. Qué puta sorpresa nos llevamos todos.
Reposted by Mari Carmen
Qué tierna es la gente que descubre AHORA que las posiciones políticas de ciertos partidos están fuera de la democracia.
¡Y se llevan las manos a la cabeza!
En serio. Esta gente no atendió en clase de historia.
¡Y se llevan las manos a la cabeza!
En serio. Esta gente no atendió en clase de historia.
November 8, 2025 at 2:17 PM
Qué tierna es la gente que descubre AHORA que las posiciones políticas de ciertos partidos están fuera de la democracia.
¡Y se llevan las manos a la cabeza!
En serio. Esta gente no atendió en clase de historia.
¡Y se llevan las manos a la cabeza!
En serio. Esta gente no atendió en clase de historia.
Reposted by Mari Carmen
A las 🕚 11h, llegará en fin de fiesta con el #TerritorioComanche. Pondremos el broche al domingo con @nuriatorreblanca.bsky.social, @miquiotero.bsky.social y Joana Bonet. #JELO 🎙️
📻 www.ondacero.es/directo
📻 www.ondacero.es/directo
November 9, 2025 at 6:55 AM
A las 🕚 11h, llegará en fin de fiesta con el #TerritorioComanche. Pondremos el broche al domingo con @nuriatorreblanca.bsky.social, @miquiotero.bsky.social y Joana Bonet. #JELO 🎙️
📻 www.ondacero.es/directo
📻 www.ondacero.es/directo
Reposted by Mari Carmen
¡Estamos ya con 🗣️ #LaHoraRandom! @elbarroquista.bsky.social nos habla del nuevo Gran Museo Egipcio. @ecogallego.bsky.social nos cuenta cosas del Lice blanco. Y @mecanohumano.bsky.social nos presenta a Neo, un nuevo humanoide. #JELO 🎙️
📻 www.ondacero.es/directo
📻 www.ondacero.es/directo
November 9, 2025 at 8:14 AM
¡Estamos ya con 🗣️ #LaHoraRandom! @elbarroquista.bsky.social nos habla del nuevo Gran Museo Egipcio. @ecogallego.bsky.social nos cuenta cosas del Lice blanco. Y @mecanohumano.bsky.social nos presenta a Neo, un nuevo humanoide. #JELO 🎙️
📻 www.ondacero.es/directo
📻 www.ondacero.es/directo
Reposted by Mari Carmen
www.lavanguardia.com/politica/202... No me lo creo. Sólo hay que tener memoria para saber quecuando gobernaba el PP, durante años, las pensiones subieron un 0,25%. Y hay que tener memoria para recordar que en enero de este año PP y Junts tumban el decreto de la subida de las pensiones.
Feijóo impulsará una ley para revalorizar las pensiones sin que dependan de los presupuestos
Alberto Núñez Feijóo se ha desplazado este viernes a Ciudad Real, para participar en la clausura del Congreso por el XXX Aniversario de la Unión Europea de Mayores y
www.lavanguardia.com
November 7, 2025 at 11:56 AM
www.lavanguardia.com/politica/202... No me lo creo. Sólo hay que tener memoria para saber quecuando gobernaba el PP, durante años, las pensiones subieron un 0,25%. Y hay que tener memoria para recordar que en enero de este año PP y Junts tumban el decreto de la subida de las pensiones.
Reposted by Mari Carmen
www.abc.es/espana/busti... Debería. De otra forma deben explicar porque la Ley ELA si, y la reforma de la Ley de dependencia y discapacidad no. Dejando a miles de personas en situación de dependencia con menos recursos. #dependencia
Bustinduy apela reforma del sistema de dependencia recabe "el mismo consenso" que la ley ELA
El ministro de Derechos Sociales, Consumo y Agenda 2030, Pablo Bustinduy, ha confiado en que el...
www.abc.es
November 7, 2025 at 6:38 PM
www.abc.es/espana/busti... Debería. De otra forma deben explicar porque la Ley ELA si, y la reforma de la Ley de dependencia y discapacidad no. Dejando a miles de personas en situación de dependencia con menos recursos. #dependencia
Reposted by Mari Carmen
Reposted by Mari Carmen
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
November 6, 2025 at 10:15 AM
This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended.
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work
Reposted by Mari Carmen
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
November 7, 2025 at 4:50 PM
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
Reposted by Mari Carmen
2/
Press release:
www.ualberta.ca/en/folio/202...
Paper:
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
www.cell.com/cell-reports...
#LongCovid #cfs
Press release:
www.ualberta.ca/en/folio/202...
Paper:
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
www.cell.com/cell-reports...
#LongCovid #cfs
November 7, 2025 at 6:31 PM
2/
Press release:
www.ualberta.ca/en/folio/202...
Paper:
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
www.cell.com/cell-reports...
#LongCovid #cfs
Press release:
www.ualberta.ca/en/folio/202...
Paper:
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
www.cell.com/cell-reports...
#LongCovid #cfs
Reposted by Mari Carmen
Some psychobabble that we haven't recently seen in the ME/CFS field, in a Canadian medical journal:
bcmj.org/sites/defaul...
Again claims therapies can lead to recovery, like from CBT/GET proponents, without solid evidence they even lead to objective improvement!
#MEcfs #CFS #PwME
bcmj.org/sites/defaul...
Again claims therapies can lead to recovery, like from CBT/GET proponents, without solid evidence they even lead to objective improvement!
#MEcfs #CFS #PwME
November 7, 2025 at 9:31 PM
Some psychobabble that we haven't recently seen in the ME/CFS field, in a Canadian medical journal:
bcmj.org/sites/defaul...
Again claims therapies can lead to recovery, like from CBT/GET proponents, without solid evidence they even lead to objective improvement!
#MEcfs #CFS #PwME
bcmj.org/sites/defaul...
Again claims therapies can lead to recovery, like from CBT/GET proponents, without solid evidence they even lead to objective improvement!
#MEcfs #CFS #PwME