The Lily Foundation
@lilyfoundation.bsky.social
Fighting mito, finding hope
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
https://www.thelilyfoundation.org.uk/
#mitochondrialdisease
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
https://www.thelilyfoundation.org.uk/
#mitochondrialdisease
The Lily Family Support Weekend is a unique opportunity for our families to get together and relax in a safe, caring environment where people just ‘get it’.
Your donations make support weekends as well as vital research possible 🩷
Your donations make support weekends as well as vital research possible 🩷
February 9, 2026 at 4:30 PM
The Lily Family Support Weekend is a unique opportunity for our families to get together and relax in a safe, caring environment where people just ‘get it’.
Your donations make support weekends as well as vital research possible 🩷
Your donations make support weekends as well as vital research possible 🩷
It’s #FeedingTubeAwarenessWeek🩷
Many people in our community use a feeding tube, and for those who don’t, it’s natural to have questions!
Please share to your stories and help us raise awareness during Feeding Tube Awareness Week!!
Many people in our community use a feeding tube, and for those who don’t, it’s natural to have questions!
Please share to your stories and help us raise awareness during Feeding Tube Awareness Week!!
February 2, 2026 at 3:30 PM
It’s #FeedingTubeAwarenessWeek🩷
Many people in our community use a feeding tube, and for those who don’t, it’s natural to have questions!
Please share to your stories and help us raise awareness during Feeding Tube Awareness Week!!
Many people in our community use a feeding tube, and for those who don’t, it’s natural to have questions!
Please share to your stories and help us raise awareness during Feeding Tube Awareness Week!!
Comedy Night Is TOMORROW, who's excited?!🤣
We have 5 fabulous comedians lined up, Marcus Brigstocke, Mark Steel, Tiff Stevenson and Bella Hull - all this for just £25, what a bargain!🤩🙌
There's still time to buy a ticket!⬇️
https://ow.ly/MsKi50Y4UOw
We have 5 fabulous comedians lined up, Marcus Brigstocke, Mark Steel, Tiff Stevenson and Bella Hull - all this for just £25, what a bargain!🤩🙌
There's still time to buy a ticket!⬇️
https://ow.ly/MsKi50Y4UOw
February 1, 2026 at 3:30 PM
Comedy Night Is TOMORROW, who's excited?!🤣
We have 5 fabulous comedians lined up, Marcus Brigstocke, Mark Steel, Tiff Stevenson and Bella Hull - all this for just £25, what a bargain!🤩🙌
There's still time to buy a ticket!⬇️
https://ow.ly/MsKi50Y4UOw
We have 5 fabulous comedians lined up, Marcus Brigstocke, Mark Steel, Tiff Stevenson and Bella Hull - all this for just £25, what a bargain!🤩🙌
There's still time to buy a ticket!⬇️
https://ow.ly/MsKi50Y4UOw
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
January 28, 2026 at 3:30 PM
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
Parallel Windsor is the UK’s most inclusive fundraising festival is coming — and for the first time, Lily has guaranteed places available!! 🩷
🔗 Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/parallel-windsor-2026/
🔗 Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/parallel-windsor-2026/
January 27, 2026 at 4:30 PM
Parallel Windsor is the UK’s most inclusive fundraising festival is coming — and for the first time, Lily has guaranteed places available!! 🩷
🔗 Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/parallel-windsor-2026/
🔗 Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/parallel-windsor-2026/
Pssst... Royal Parks Half Marathon ballot is now open! 🏃♀️🌳
🔗 Enter the ballot now and choose Lily as your charity 🩷
https://www.royalparkshalf.com/
🔗 Enter the ballot now and choose Lily as your charity 🩷
https://www.royalparkshalf.com/
January 26, 2026 at 4:00 PM
Pssst... Royal Parks Half Marathon ballot is now open! 🏃♀️🌳
🔗 Enter the ballot now and choose Lily as your charity 🩷
https://www.royalparkshalf.com/
🔗 Enter the ballot now and choose Lily as your charity 🩷
https://www.royalparkshalf.com/
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
Vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
Vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
January 25, 2026 at 4:00 PM
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
Vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
Vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
Grab your ticket today!!!💃❤️
We’re thrilled to announce that award-winning comic, author, actor and broadcaster Dominic Holland will be hosting the night — promising glamour, laughter and unforgettable moments!
🔗 Book now - https://ow.ly/snBQ50XZIA3
We’re thrilled to announce that award-winning comic, author, actor and broadcaster Dominic Holland will be hosting the night — promising glamour, laughter and unforgettable moments!
🔗 Book now - https://ow.ly/snBQ50XZIA3
January 24, 2026 at 3:40 PM
Grab your ticket today!!!💃❤️
We’re thrilled to announce that award-winning comic, author, actor and broadcaster Dominic Holland will be hosting the night — promising glamour, laughter and unforgettable moments!
🔗 Book now - https://ow.ly/snBQ50XZIA3
We’re thrilled to announce that award-winning comic, author, actor and broadcaster Dominic Holland will be hosting the night — promising glamour, laughter and unforgettable moments!
🔗 Book now - https://ow.ly/snBQ50XZIA3
🎤 5th Comedian Announced - Tiff Stevenson! 🎤
Don’t miss this feel-good night of comedy with purpose! 🎟️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-comedy-night-2026-save-the-date/
Don’t miss this feel-good night of comedy with purpose! 🎟️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-comedy-night-2026-save-the-date/
January 21, 2026 at 12:01 PM
🎤 5th Comedian Announced - Tiff Stevenson! 🎤
Don’t miss this feel-good night of comedy with purpose! 🎟️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-comedy-night-2026-save-the-date/
Don’t miss this feel-good night of comedy with purpose! 🎟️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-comedy-night-2026-save-the-date/
Take your running to the global stage and join Team Lily at the 48th Bank of America Chicago Marathon, one of the world’s legendary Major Marathons 🩷
Travel and accommodation are self-funded. Places are limited.
👉 Sign up now!
https://ow.ly/UyPF50XZAeP
Travel and accommodation are self-funded. Places are limited.
👉 Sign up now!
https://ow.ly/UyPF50XZAeP
January 20, 2026 at 3:30 PM
Take your running to the global stage and join Team Lily at the 48th Bank of America Chicago Marathon, one of the world’s legendary Major Marathons 🩷
Travel and accommodation are self-funded. Places are limited.
👉 Sign up now!
https://ow.ly/UyPF50XZAeP
Travel and accommodation are self-funded. Places are limited.
👉 Sign up now!
https://ow.ly/UyPF50XZAeP
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
January 13, 2026 at 3:01 PM
We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
For a chance for us to win we need you to vote for us ⬇️
https://smileycharityfilmawards.com/films/what-it-takes
⏳ Early bird tickets are almost gone!
Now’s your final chance to secure tickets at the lower price before they increase.
Don’t miss this unforgettable night — book now before prices rise ✨
https://www.thelilyfoundation.org.uk/charity/get-involved/events/the-lily-charity-ball-2026/
Now’s your final chance to secure tickets at the lower price before they increase.
Don’t miss this unforgettable night — book now before prices rise ✨
https://www.thelilyfoundation.org.uk/charity/get-involved/events/the-lily-charity-ball-2026/
December 29, 2025 at 2:01 PM
⏳ Early bird tickets are almost gone!
Now’s your final chance to secure tickets at the lower price before they increase.
Don’t miss this unforgettable night — book now before prices rise ✨
https://www.thelilyfoundation.org.uk/charity/get-involved/events/the-lily-charity-ball-2026/
Now’s your final chance to secure tickets at the lower price before they increase.
Don’t miss this unforgettable night — book now before prices rise ✨
https://www.thelilyfoundation.org.uk/charity/get-involved/events/the-lily-charity-ball-2026/
It takes courage to face mito, and Kia’s family have it in abundance.
Kia needs constant care, and her parents juggle being caregivers, nurses and loving mum and dad.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Kia needs constant care, and her parents juggle being caregivers, nurses and loving mum and dad.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
December 27, 2025 at 3:00 PM
It takes courage to face mito, and Kia’s family have it in abundance.
Kia needs constant care, and her parents juggle being caregivers, nurses and loving mum and dad.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Kia needs constant care, and her parents juggle being caregivers, nurses and loving mum and dad.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
It takes leadership to drive change.
Liz founded The Lily Foundation after losing her daughter to mito, and her vision has driven life-changing support for families and pioneering research.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Liz founded The Lily Foundation after losing her daughter to mito, and her vision has driven life-changing support for families and pioneering research.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
December 24, 2025 at 3:00 PM
It takes leadership to drive change.
Liz founded The Lily Foundation after losing her daughter to mito, and her vision has driven life-changing support for families and pioneering research.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Liz founded The Lily Foundation after losing her daughter to mito, and her vision has driven life-changing support for families and pioneering research.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
It takes optimism to live with mito...
Support The Lily Foundation – donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Support The Lily Foundation – donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
December 22, 2025 at 2:01 PM
It takes optimism to live with mito...
Support The Lily Foundation – donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Support The Lily Foundation – donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
It takes belief.
Harry’s journey to a diagnosis was long and full of wrong turns. Years of uncertainty, appointments and unanswered questions – until mito was identified.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Harry’s journey to a diagnosis was long and full of wrong turns. Years of uncertainty, appointments and unanswered questions – until mito was identified.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
December 21, 2025 at 3:00 PM
It takes belief.
Harry’s journey to a diagnosis was long and full of wrong turns. Years of uncertainty, appointments and unanswered questions – until mito was identified.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
Harry’s journey to a diagnosis was long and full of wrong turns. Years of uncertainty, appointments and unanswered questions – until mito was identified.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
The Christmas Quiz Is Tonight At 7PM!!🎅
Free to join – donate if you can❤️
Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
Donate today - https://www.justgiving.com/campaign/lilychristmas2025
Free to join – donate if you can❤️
Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
Donate today - https://www.justgiving.com/campaign/lilychristmas2025
December 21, 2025 at 10:00 AM
The Christmas Quiz Is Tonight At 7PM!!🎅
Free to join – donate if you can❤️
Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
Donate today - https://www.justgiving.com/campaign/lilychristmas2025
Free to join – donate if you can❤️
Find out more - https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
Donate today - https://www.justgiving.com/campaign/lilychristmas2025
🎤 ANNOUNCING BELLA HULL 🎤
We’re thrilled to welcome one of the UK’s most exciting rising comedy stars to the Lily Foundation Comedy Night 2026!
🎟️ Grab your tickets now and make someone’s festive season a whole lot brighter!
https://ow.ly/UpuU50XlLre
We’re thrilled to welcome one of the UK’s most exciting rising comedy stars to the Lily Foundation Comedy Night 2026!
🎟️ Grab your tickets now and make someone’s festive season a whole lot brighter!
https://ow.ly/UpuU50XlLre
December 20, 2025 at 2:25 PM
🎤 ANNOUNCING BELLA HULL 🎤
We’re thrilled to welcome one of the UK’s most exciting rising comedy stars to the Lily Foundation Comedy Night 2026!
🎟️ Grab your tickets now and make someone’s festive season a whole lot brighter!
https://ow.ly/UpuU50XlLre
We’re thrilled to welcome one of the UK’s most exciting rising comedy stars to the Lily Foundation Comedy Night 2026!
🎟️ Grab your tickets now and make someone’s festive season a whole lot brighter!
https://ow.ly/UpuU50XlLre
Donate today:
https://ow.ly/sSvC50XBmTJ
It takes discovery.
Across the UK and beyond, scientists are working tirelessly to understand mito.
This Christmas, your £20 helps fund pioneering research – bringing hope to patients today and the promise of a cure tomorrow.
https://ow.ly/sSvC50XBmTJ
It takes discovery.
Across the UK and beyond, scientists are working tirelessly to understand mito.
This Christmas, your £20 helps fund pioneering research – bringing hope to patients today and the promise of a cure tomorrow.
December 19, 2025 at 4:50 PM
Donate today:
https://ow.ly/sSvC50XBmTJ
It takes discovery.
Across the UK and beyond, scientists are working tirelessly to understand mito.
This Christmas, your £20 helps fund pioneering research – bringing hope to patients today and the promise of a cure tomorrow.
https://ow.ly/sSvC50XBmTJ
It takes discovery.
Across the UK and beyond, scientists are working tirelessly to understand mito.
This Christmas, your £20 helps fund pioneering research – bringing hope to patients today and the promise of a cure tomorrow.
We’ve entered the Smiley Awards - Vote for us for FREE today!🙂
Voting is FREE, and every vote helps amplify the voices of our community.
👉 Please vote for us today.
https://ow.ly/wbUR50XJFT2
Voting is FREE, and every vote helps amplify the voices of our community.
👉 Please vote for us today.
https://ow.ly/wbUR50XJFT2
December 18, 2025 at 4:45 PM
We’ve entered the Smiley Awards - Vote for us for FREE today!🙂
Voting is FREE, and every vote helps amplify the voices of our community.
👉 Please vote for us today.
https://ow.ly/wbUR50XJFT2
Voting is FREE, and every vote helps amplify the voices of our community.
👉 Please vote for us today.
https://ow.ly/wbUR50XJFT2
Donate today:
https://www.justgiving.com/campaign/lilychristmas2025
It takes determination.
At 10 years old, he lives with profound physical and intellectual disabilities caused by mito.
This Christmas, your £20 can help provide essential equipment so children like Freddie can keep walking tall.
https://www.justgiving.com/campaign/lilychristmas2025
It takes determination.
At 10 years old, he lives with profound physical and intellectual disabilities caused by mito.
This Christmas, your £20 can help provide essential equipment so children like Freddie can keep walking tall.
December 17, 2025 at 4:50 PM
Donate today:
https://www.justgiving.com/campaign/lilychristmas2025
It takes determination.
At 10 years old, he lives with profound physical and intellectual disabilities caused by mito.
This Christmas, your £20 can help provide essential equipment so children like Freddie can keep walking tall.
https://www.justgiving.com/campaign/lilychristmas2025
It takes determination.
At 10 years old, he lives with profound physical and intellectual disabilities caused by mito.
This Christmas, your £20 can help provide essential equipment so children like Freddie can keep walking tall.
It takes passion to fight mito, and Helen has it in every step.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
#WhatItTakes #TheLilyFoundation #MitochondrialDisease
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
#WhatItTakes #TheLilyFoundation #MitochondrialDisease
December 15, 2025 at 4:45 PM
It takes passion to fight mito, and Helen has it in every step.
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
#WhatItTakes #TheLilyFoundation #MitochondrialDisease
Donate today:
https://www.thelilyfoundation.org.uk/charity/get-involved/christmas-appeal-2025/
#WhatItTakes #TheLilyFoundation #MitochondrialDisease
HURRY — our raffle ends TODAY at noon!
📲 Text ‘LILYWIN’ to 70215 to enter!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
Don’t miss out — your perfect London escape at the Park Plaza Riverbank could be just one message away.🙌
📲 Text ‘LILYWIN’ to 70215 to enter!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
Don’t miss out — your perfect London escape at the Park Plaza Riverbank could be just one message away.🙌
December 15, 2025 at 8:00 AM
HURRY — our raffle ends TODAY at noon!
📲 Text ‘LILYWIN’ to 70215 to enter!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
Don’t miss out — your perfect London escape at the Park Plaza Riverbank could be just one message away.🙌
📲 Text ‘LILYWIN’ to 70215 to enter!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
Don’t miss out — your perfect London escape at the Park Plaza Riverbank could be just one message away.🙌
Win a luxury London getaway at the Park Plaza Riverbank Hotel!👀
📲 Text ‘LILYWIN’ to 70215 for your chance to win!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
https://ow.ly/eVXa50XsVgq
📲 Text ‘LILYWIN’ to 70215 for your chance to win!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
https://ow.ly/eVXa50XsVgq
December 14, 2025 at 4:15 PM
Win a luxury London getaway at the Park Plaza Riverbank Hotel!👀
📲 Text ‘LILYWIN’ to 70215 for your chance to win!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
https://ow.ly/eVXa50XsVgq
📲 Text ‘LILYWIN’ to 70215 for your chance to win!
Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give.
https://ow.ly/eVXa50XsVgq
🎁 Christmas Quiz countdown!
This time next week we’ll be getting into the festive spirit with Liz and Dave’s annual Christmas Quiz on 21st December at 7pm.
To find out more click here!⬇️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
This time next week we’ll be getting into the festive spirit with Liz and Dave’s annual Christmas Quiz on 21st December at 7pm.
To find out more click here!⬇️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
December 14, 2025 at 3:00 PM
🎁 Christmas Quiz countdown!
This time next week we’ll be getting into the festive spirit with Liz and Dave’s annual Christmas Quiz on 21st December at 7pm.
To find out more click here!⬇️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/
This time next week we’ll be getting into the festive spirit with Liz and Dave’s annual Christmas Quiz on 21st December at 7pm.
To find out more click here!⬇️
https://www.thelilyfoundation.org.uk/charity/get-involved/events/lily-christmas-quiz-2025/