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lilyfoundation.bsky.social
The Lily Foundation
@lilyfoundation.bsky.social
Fighting mito, finding hope

Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

https://www.thelilyfoundation.org.uk/

#mitochondrialdisease
Raising awareness of #mito isn't easy – it’s a complex disease that can be hard to explain 🤔

To help put mito on the map during World Mitochondrial Disease Week, our Research Manager @abioblog.bsky.social is here to explain the disease in a really simple way

Watch, learn and share! 💚

#mitoaware
September 19, 2025 at 3:06 PM
Zebrafish are helping scientists tackle rare #mitochondrialdiseases like MDDS

In 2018/19, Lily funded research using zebrafish to test treatments

Find out what happened in our latest Research Zone post with Research Manager Maria and Dr Ben Munro

www.thelilyfoundation.org.uk/affected-by-...
July 31, 2025 at 10:13 AM
We’ve been hearing a lot about #mitochondrialdonation today – but what exactly is it?

It’s a groundbreaking fertility technique that helps women with faulty mitochondrial DNA have healthy babies

Want to understand more? Watch our explainer video 👇
www.thelilyfoundation.org.uk/affected-by-...
July 17, 2025 at 11:21 AM
Discover in our Research Zone why biomarkers are essential for tracking #mito progression and how the @lifearc.bsky.social Centre for Rare Mitochondrial Diseases is supporting research to develop non-invasive, organ-specific tools for better care.

www.thelilyfoundation.org.uk/affected-by-...
July 4, 2025 at 1:46 PM
If you work with anyone who's received a genetic diagnosis of mito – or has lost someone to the condition – we need them to fill out our national survey, closing on Tuesday

Here’s our CEO and founder, Liz, to explain why every voice matters

Please share:
mpscom.eu.qualtrics.com/jfe/form/SV_...
May 9, 2025 at 3:55 PM