LiaWar7
liawar7.bsky.social
LiaWar7
@liawar7.bsky.social
Views are my own. Clean Air. Mask Up. Dysautonomia/Long Covid/CFS/MCAS. Stay home/isolate when sick. It’s not really that hard!
Took my elderly father to the ER
ER Dr: Why are you wearing a mask? Are you sick? Do you have a fever?
Me: He wears it so he doesn’t get sick.
November 23, 2025 at 6:15 AM
MCAS never runs out of plot twists. This weeks energy boring white bread…I think 🙁
November 21, 2025 at 8:39 AM
Reposted by LiaWar7
Saw a video of one of those UK talk shows with one of those celebrity twin doctors. He said flu is killing large numbers "unlike covid or colds". Completely untrue! Here in Australia our official data shows COVID is killing 5X as many as from flu. How can there be such abject ignorance?? 😡
November 18, 2025 at 1:00 AM
Reposted by LiaWar7
i just read something about grief from C.S. Lewis and his book, “A Grief Observed”

basically, when someone you love dies, it isn’t just them that you miss, but the parts of yourself that person brought out of you that can never be brought out again.

i feel that with my dad.
November 16, 2025 at 11:51 AM
The rinse and repeat of the week. I’m sick of being sick, sick of hoping for that rare ‘not that sick’ day, sick of waking up exhausted. Sick of the roulette of what symptom is going to ‘shine’ today 😔😔😔
November 15, 2025 at 8:05 AM
The 🤫 part:
“Last week, a person died from covid-19 every 44 seconds, Tedros Adhanom Ghebreyesus, director general of the World Health Organization, told journalists at a press briefing on Wednesday. “Most of these deaths were avoidable,” he said.” www.technologyreview.com/2022/09/08/1...
Two inhaled covid vaccines have been approved—but we don’t know yet how good they are
New covid vaccines inhaled through the nose and mouth could help prevent people from becoming infected or passing on the virus—but questions remain.
www.technologyreview.com
November 13, 2025 at 10:13 AM
Ever feel like you're shouting into the void? My posts here get zero replies... crickets. And honestly, it mirrors real life—feeling invisible, unseen, like my struggles don't register with anyone. Chronic conditions have me stuck in this quiet bubble. Anyone else out there feeling the same?
November 6, 2025 at 8:57 AM
Pure escapism: Drs who have time to get to the bottom of your illness AND covid is over
November 6, 2025 at 1:03 AM
Reposted by LiaWar7
😂

No. You can’t solve the health fall out from uncontrolled circulation of a novel virus and a poorly managed pandemic by flogging people harder to get back to work.

#BBC

www.bbc.com/news/article...
Britain sliding 'into economic crisis' over £85bn sickness bill, ex-John Lewis boss warns
The number of people who are out of work for health reasons has grown by 800,000 since 2019.
www.bbc.com
November 5, 2025 at 8:40 PM
Reposted by LiaWar7
October 24, 2025 at 3:31 PM
Some days, the loneliness hits harder than the pain. Chronic conditions have stolen so much—not just my energy, but my freedom. I can't work like I used to, pouring my all into projects that light me up. I can't chase spontaneous adventures or even simple plans when the mood strikes.
October 23, 2025 at 9:36 AM
Them: How’s your health?
Me: Same
I simply cannot answer because the fact you go to work coughing, sniffly or not quite recovered means you don’t give a 🐀 about my health. You don’t care because it’s not affecting you…yet!
October 22, 2025 at 8:29 AM
Reposted by LiaWar7
Now published! My edited book ‘Long COVID and Society’ - my introduction is free to read for everyone. Download from the link below and check out the others chapters too (Chapter 14, about LC children and families, is also open access)

link.springer.com/book/10.1007...
Long COVID and Society
This is the first book to bring together academics and activists living with Long COVID to explore the social impacts of the new complex chronic condition.
link.springer.com
October 22, 2025 at 8:06 AM
MCAS runs my life now. Covid's gift. Months of achey painful sleepless nights with a side of histamine migraine hell. But hey, we’re post pandemic… aren’t we?😷😬
#MCAS #LongCOVID
October 20, 2025 at 11:51 AM
Long Covid, dysautonomia, MCAS, CFS is not a linear recovery. Apparently I’m not trying hard enough, I should try to do more and see what happens… like I need a setback after 2yrs of clawing my way to this point 🙄😞🙄
October 19, 2025 at 11:03 PM
Reposted by LiaWar7
Latest 🧵by @rorpreston.bsky.social on Twitter:
The COVID pandemic has undoubtedly been one of the largest, if not the largest, drivers of new ME/CFS cases in recorded history 🦠

Full 🧵
threadreaderapp.com/thread/19795...
October 19, 2025 at 2:50 AM
HR: "The plan is to increase your hours."
Me: "Oh, fabulous, that’s my plan too! Just let me check with my LC, dysautonomia, MCAS, and CFS to see if they got the memo about sticking to your timeline. Spoiler: they don’t do schedules."
October 17, 2025 at 6:14 AM
Reposted by LiaWar7
🎯by @kananaskinyeti.bsky.social on Twitter:

"It’s easier emotionally to believe that the people wearing masks are the ones who changed than it is to accept that the world is fundamentally different now. Pretending things are normal is giving in to the fantasy..."

OP: x.com/kananaskinye...
October 14, 2025 at 12:34 PM
LC is a battered brolly, its fragile MCAS lining, unraveling under relentless triggers. CFS is the shaky handle, barely clutched by depleted hands. Dysautonomia is the fierce, unpredictable gale, whipping the umbrella inside out, leaving me defenseless against the storm. But it’s mild, so they say…
October 15, 2025 at 10:35 AM
23mths of long covid, dysautonomia, CFS, MCAS & when I ask my GP for a plan in the event of reinfection they tell me ‘covid is mild’… the kind of mild that puts you in resus 3 times I guess
October 13, 2025 at 11:25 PM
👏👏👏Yep 🎤
September 24, 2025 at 12:22 PM
Within an hour I sent two sick students home. Both revealed they have parents home with covid. It’s going well. Glad I’m masked.
June 13, 2025 at 4:29 AM
Reposted by LiaWar7
June 6, 2025 at 11:01 PM