Laura Lee
@lauraleepentecost.bsky.social
I’m hiker,runner,biker,dancer,trapped in a body that has ME/CFS,Fibromyalgia,Gastroparesis,Vasospasm and variant/Prinzmetal. Yeah it’s a lot!!!! But I still have my family and my pets….. Oh and my sense of humour. Find your Glitter. ♥️
Reposted by Laura Lee
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
November 5, 2025 at 5:58 PM
We are excited and ready for day 2 of @icancmeresearch.bsky.social!
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
#MEAction’s Scientific Director, Jaime Seltzer @exceedhergrasp1.bsky.social, is speaking soon!
#ICanCME2025 #pwME #MECFS
Reposted by Laura Lee
Reposted by Laura Lee
Reposted by Laura Lee
Reposted by Laura Lee
Reposted by Laura Lee
Reposted by Laura Lee
People with ME or Long Covid, please spread the word about this awesome double-match fundraiser offer for @meactnet.bsky.social & @openmedf.bsky.social !
#pwME
#MECFS
#LongCovid
#MEAwareness
#MillionsMissing
#DisabilitySOS
#pwME
#MECFS
#LongCovid
#MEAwareness
#MillionsMissing
#DisabilitySOS
I've launched fundraisers, but I will also match donations to other ME-supporting 501(c)3's if you send me your donation receipts. I will *double-match* donations with my own donation + employer match.
#MEAction: meaction.funraise.org/fundraiser/e...
OMF: openmedicinefoundation.crowdchange.co/50084
#MEAction: meaction.funraise.org/fundraiser/e...
OMF: openmedicinefoundation.crowdchange.co/50084
General Campaign
meaction.funraise.org
May 14, 2025 at 7:15 AM
People with ME or Long Covid, please spread the word about this awesome double-match fundraiser offer for @meactnet.bsky.social & @openmedf.bsky.social !
#pwME
#MECFS
#LongCovid
#MEAwareness
#MillionsMissing
#DisabilitySOS
#pwME
#MECFS
#LongCovid
#MEAwareness
#MillionsMissing
#DisabilitySOS
Reposted by Laura Lee
May is #MECFS Awareness Month! 💙
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... #donate #PwME
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... #donate #PwME
May 4, 2025 at 1:50 PM
May is #MECFS Awareness Month! 💙
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... #donate #PwME
✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe!
www.zeffy.com/en-US/fundra... #donate #PwME
Reposted by Laura Lee
Reposted by Laura Lee
Senior Trump official says Elon Musk calls himself the ‘Skibidi President’, claims he’s the ‘Alpha Sigma’ per Rolling Stones
April 10, 2025 at 2:26 PM
Senior Trump official says Elon Musk calls himself the ‘Skibidi President’, claims he’s the ‘Alpha Sigma’ per Rolling Stones
Reposted by Laura Lee
Really apparent something massive is going to give in this country and I do not think anyone is ready for it.
April 5, 2025 at 4:14 PM
Really apparent something massive is going to give in this country and I do not think anyone is ready for it.
Reposted by Laura Lee
3. The Pacing & Management Guides (original, me; peds + @longcovidfam.bsky.social; clinical = me + @patientled.bsky.social)
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Pacing and Management Guides
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
www.meaction.net
March 30, 2025 at 9:01 PM
3. The Pacing & Management Guides (original, me; peds + @longcovidfam.bsky.social; clinical = me + @patientled.bsky.social)
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Reposted by Laura Lee
PLRC members @yogafogie.bsky.social & Beth Pollack spoke to Salon about the #LongCovid cuts:
"The LC office was starting to have a real impact, getting researchers, patients & policymakers talking.. [&] was right at center of [RECOVER-TLC] coming into being” www.salon.com/2025/04/01/a...
"The LC office was starting to have a real impact, getting researchers, patients & policymakers talking.. [&] was right at center of [RECOVER-TLC] coming into being” www.salon.com/2025/04/01/a...
Trump abandons long COVID and ME/CFS patients again
Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS
www.salon.com
April 3, 2025 at 6:58 PM
PLRC members @yogafogie.bsky.social & Beth Pollack spoke to Salon about the #LongCovid cuts:
"The LC office was starting to have a real impact, getting researchers, patients & policymakers talking.. [&] was right at center of [RECOVER-TLC] coming into being” www.salon.com/2025/04/01/a...
"The LC office was starting to have a real impact, getting researchers, patients & policymakers talking.. [&] was right at center of [RECOVER-TLC] coming into being” www.salon.com/2025/04/01/a...
Reposted by Laura Lee
“If we don’t finish the studies that we started with #LongCovid, we are going to be set back.. That's because conditions like #MECFS and long COVID are an outcome of pandemics and epidemics, @exceedhergrasp1.bsky.social said.” www.salon.com/2025/04/01/a...
Trump abandons long COVID and ME/CFS patients again
Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS
www.salon.com
April 3, 2025 at 7:06 PM
“If we don’t finish the studies that we started with #LongCovid, we are going to be set back.. That's because conditions like #MECFS and long COVID are an outcome of pandemics and epidemics, @exceedhergrasp1.bsky.social said.” www.salon.com/2025/04/01/a...
Reposted by Laura Lee
This is kidnapping. Period.
"Please save the Afghan girls." 😭😭😭😭😭😭😭😭😭
"Please save the Afghan girls." 😭😭😭😭😭😭😭😭😭
'Help us': Hundreds deported from US held in Panama hotel
Indians, Afghans and Sri Lankans are among the undocumented migrants unable to leave the hotel after being deported.
www.bbc.com
February 20, 2025 at 2:00 AM
This is kidnapping. Period.
"Please save the Afghan girls." 😭😭😭😭😭😭😭😭😭
"Please save the Afghan girls." 😭😭😭😭😭😭😭😭😭
Reposted by Laura Lee
A worthwhile thread. Read it.
Umberto Eco put together a now-famous list of 14 attributes of fascistic states. I'm going to discuss each of them in hopes this helps ppl understand that fascism is not just a buzzword. We're going to go through these by theme, so strap in. 🧵
February 19, 2025 at 11:31 PM
A worthwhile thread. Read it.
Reposted by Laura Lee
"There was a protest at a gas conference, and the next day, the South Australian Parliament changed the law. The next day they criminalised protest.
"If protest was ineffective, why would they do that?"
- Executive Director @richarddenniss.bsky.social at our #ClimateIntegrity Summit 2025
#auspol
"If protest was ineffective, why would they do that?"
- Executive Director @richarddenniss.bsky.social at our #ClimateIntegrity Summit 2025
#auspol
February 18, 2025 at 4:47 AM
"There was a protest at a gas conference, and the next day, the South Australian Parliament changed the law. The next day they criminalised protest.
"If protest was ineffective, why would they do that?"
- Executive Director @richarddenniss.bsky.social at our #ClimateIntegrity Summit 2025
#auspol
"If protest was ineffective, why would they do that?"
- Executive Director @richarddenniss.bsky.social at our #ClimateIntegrity Summit 2025
#auspol
Reposted by Laura Lee
Reposted by Laura Lee
UW researchers are looking for people with disabilities and/or chronic illnesses to join a participatory research project focused on using digital technologies to navigate care in the US. Learn more and/or enroll: infograph.venngage.com/pl/GkdlQ9mh6HY
#pwME #research #disability #ChronicIllness
#pwME #research #disability #ChronicIllness
February 20, 2025 at 2:23 AM
UW researchers are looking for people with disabilities and/or chronic illnesses to join a participatory research project focused on using digital technologies to navigate care in the US. Learn more and/or enroll: infograph.venngage.com/pl/GkdlQ9mh6HY
#pwME #research #disability #ChronicIllness
#pwME #research #disability #ChronicIllness
Reposted by Laura Lee
Courage. Conviction. With Trump and Vance sitting right there in her service.
https://buff.ly/40oIsly
https://buff.ly/40oIsly
January 22, 2025 at 1:34 AM
Courage. Conviction. With Trump and Vance sitting right there in her service.
https://buff.ly/40oIsly
https://buff.ly/40oIsly
Reposted by Laura Lee
In fairness the resulting fire and explosion might have set off the sprinklers.
January 20, 2025 at 6:52 PM
In fairness the resulting fire and explosion might have set off the sprinklers.
Reposted by Laura Lee
And really, why should she?
January 17, 2025 at 7:12 PM
And really, why should she?