Laura Lee
@lauraleepentecost.bsky.social
I’m hiker,runner,biker,dancer,trapped in a body that has ME/CFS,Fibromyalgia,Gastroparesis,Vasospasm and variant/Prinzmetal. Yeah it’s a lot!!!! But I still have my family and my pets….. Oh and my sense of humour. Find your Glitter. ♥️
I will definitely be watching on YouTube. Thank you.
April 9, 2025 at 10:02 PM
I will definitely be watching on YouTube. Thank you.
Reposted by Laura Lee
3. The Pacing & Management Guides (original, me; peds + @longcovidfam.bsky.social; clinical = me + @patientled.bsky.social)
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Pacing and Management Guides
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
www.meaction.net
March 30, 2025 at 9:01 PM
3. The Pacing & Management Guides (original, me; peds + @longcovidfam.bsky.social; clinical = me + @patientled.bsky.social)
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Activity management guides for folks with PEM, including those with #MECFS & #LongCOVID🧵
www.meaction.net/resource/pac...
Reposted by Laura Lee
“If we don’t finish the studies that we started with #LongCovid, we are going to be set back.. That's because conditions like #MECFS and long COVID are an outcome of pandemics and epidemics, @exceedhergrasp1.bsky.social said.” www.salon.com/2025/04/01/a...
Trump abandons long COVID and ME/CFS patients again
Budget cuts and the dismantling of federal agencies are making it harder for patients with long COVID and ME/CFS
www.salon.com
April 3, 2025 at 7:06 PM
“If we don’t finish the studies that we started with #LongCovid, we are going to be set back.. That's because conditions like #MECFS and long COVID are an outcome of pandemics and epidemics, @exceedhergrasp1.bsky.social said.” www.salon.com/2025/04/01/a...
This is very interesting. Ive been unwell since around 12.I had a heart attack when I was 51. No blockages. Then I was diagnosed with ME/CFS,Fibromyalgia,gastropresis,over a 6 year period. Then had another heart attack and was diagnosed with Vasospasm and Primzmetal. I believe they’re connected
April 4, 2025 at 5:47 PM
This is very interesting. Ive been unwell since around 12.I had a heart attack when I was 51. No blockages. Then I was diagnosed with ME/CFS,Fibromyalgia,gastropresis,over a 6 year period. Then had another heart attack and was diagnosed with Vasospasm and Primzmetal. I believe they’re connected