Kristen Honey
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khoney.bsky.social
Kristen Honey
@khoney.bsky.social
Maineiac 04050 in DC. Stanford E-IPER PhD. HHS OASH Chief Data Scientist. InnovationX. LymeX. CancerX. Systems Biology. Open Data. Open Science. Open Gov. Open Innovation. Lyme. Long COVID. ME/CFS. IACCI infection-associated chronic conditions & illnesses🤍
Reposted by Kristen Honey
OpenSecrets is the latest in a series of open-government groups to decline or die off over the last decade—a trend that bodes ill for the health of our politics. ICYMI Daniel Schuman counts the bodies, and looks at revival methods: www.thebulwark.com/p/open-gover...
Open-Government Nonprofits Are Dying Off Just When They’re Needed Most
Why it’s happening and what can be done about it.
www.thebulwark.com
January 4, 2025 at 1:00 AM
Reposted by Kristen Honey
A little good news. Three weeks later.
The Los Angeles Wildfires Are Fully Contained www.nytimes.com/2025/02/01/u...
Palisades and Eaton Fires Are Fully Contained
The Palisades and Eaton fires, two of the deadliest and most destructive wildfires in California history, reached 100 percent containment more than three weeks after they began.
www.nytimes.com
February 1, 2025 at 12:01 PM
Reposted by Kristen Honey
First post: our review on Lyme arthritis lays out how we think autoimmunity is triggered by Borrelia burgdorferi infection.

www.nature.com/articles/s41...
Lyme arthritis: linking infection, inflammation and autoimmunity - Nature Reviews Rheumatology
Lyme arthritis, a manifestation of Lyme disease, can sometimes persist in a chronic post-infectious disease. In this Review, the authors argue that post-infectious Lyme arthritis could act as a model ...
www.nature.com
September 14, 2023 at 11:02 PM
Reposted by Kristen Honey
Hey @julierehmeyer.bsky.social we’re hosting a town hall Tuesday for trapped patient communities on Twitter and FB.

If there are more invite codes lmk if you can join us. Thank you so much for the work you have done 🙏

I’d love to talk.
October 14, 2023 at 11:52 PM
Reposted by Kristen Honey
My 'what I did with my summer' 2023...joined other #advocates to advance awareness of the importance of digital rights for online #patient communities through @lightcollective.bsky.social Register for the October 17th Virtual Town Hall 330-5pm PST today to learn more us02web.zoom.us/webinar/regi...
October 9, 2023 at 7:43 PM
Reposted by Kristen Honey
Amazing ❤️
Woohoo! We've distributed 3000 BlueSky codes to the chronic illness/disability community! Right now, I'm not accepting donations because our supply is plentiful, but I expect to reopen in a few days. Please spread the word to friends in this community who'd like to join us. forms.gle/newm1kPSWbb3...
October 14, 2023 at 11:44 PM
Reposted by Kristen Honey
finally our manuscript describing the weird and wonderful binding mode of a bacterial histone is online. www.nature.com/articles/s41...
October 9, 2023 at 6:17 PM
Reposted by Kristen Honey
You nailed it: Power in numbers. Power in purpose.
Thanks for the shoutout, Julie, and thank *YOU* for uniting folks here for chronic illness, disability, and invisible illness. Power in numbers. Power in purpose. Much work remains, onward! #AllOne
October 9, 2023 at 4:55 PM
Reposted by Kristen Honey
This review article provides an overview on diagnosis, evaluation, and management strategies for ME/CFS. Physicians can earn CME credits by reading the article and completing an online test and evaluation afterwards.

www.mayoclinicproceedings.org/article/S002...

#MEcfs #CFS #MyalgicE #PwME
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
www.mayoclinicproceedings.org
October 9, 2023 at 4:03 PM
Reposted by Kristen Honey
We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)
October 7, 2023 at 4:07 PM
Reposted by Kristen Honey
Concise clinical reviews are also a way to offer CME credit. Medical providers can take the free CME by reading the paper carefully and then answering the case-based questions that follow. #MedEd (3/) www.mayoclinicproceedings.org/article/S002...
www.mayoclinicproceedings.org
October 7, 2023 at 4:05 PM
This is excellent 🙌and will help many❣️
October 9, 2023 at 4:19 PM
Reposted by Kristen Honey
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with
Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
www.mayoclinicproceedings.org
October 7, 2023 at 4:03 PM
Reposted by Kristen Honey
Wow!
It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.

It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.

It’s in the ✨top 0.2%✨ most shared research products of all time.

It’s been live less than a week.

tinyurl.com/ywd3kmjs
October 9, 2023 at 2:25 AM
Reposted by Kristen Honey
It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications.

It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings.

It’s in the ✨top 0.2%✨ most shared research products of all time.

It’s been live less than a week.

tinyurl.com/ywd3kmjs
October 9, 2023 at 2:00 AM
One for all and all for one #AllOne
I’m looking forward to connecting with the long covid and chronic illness communities here!
October 9, 2023 at 4:00 PM
Reposted by Kristen Honey
I’m looking forward to connecting with the long covid and chronic illness communities here!
October 9, 2023 at 12:06 AM
Reposted by Kristen Honey
Over the last few weeks we have had many newbies from the Chronic Illness community join us through Julie's invite code distribution site. This is now opened up for the disability community.

♿️ If you know someone in the #disability community who needs an invite code or if you have spare codes:
October 9, 2023 at 12:52 PM