Andrea
@downing.bsky.social
Co-founder of The Light Collective
www.lightcollective.org
Security Researcher
Health Infosec
Views are my own.
www.lightcollective.org
Security Researcher
Health Infosec
Views are my own.
Pinned
Andrea
@downing.bsky.social
· Mar 9
One thing today ☝️
As we rebuild our networks on Bluesky follow the points of light out there: patients leading change.
Let me know who to add.
#medsky #disability #belikelight
#hitsm #oncsky #chronicillness
go.bsky.app/GLsZaVm
As we rebuild our networks on Bluesky follow the points of light out there: patients leading change.
Let me know who to add.
#medsky #disability #belikelight
#hitsm #oncsky #chronicillness
go.bsky.app/GLsZaVm
Please please let me see the aurora tonight. 🙏
I have wanted to see it my whole life.
I have wanted to see it my whole life.
November 13, 2025 at 2:30 AM
Please please let me see the aurora tonight. 🙏
I have wanted to see it my whole life.
I have wanted to see it my whole life.
Hey excuse me it’s #InternationalDogDay.
August 27, 2025 at 12:28 AM
Hey excuse me it’s #InternationalDogDay.
Reposted by Andrea
Microsoft AI CEO Warns That 'Dangerous' and 'Seemingly Conscious' AI Models could cause people to become disconnected from reality.
www.entrepreneur.com/business-new...
www.entrepreneur.com/business-new...
Microsoft AI CEO: Dangerous, Seemingly Conscious AI Is Close | Entrepreneur
Microsoft AI CEO Mustafa Suleyman, 41, warned in a personal essay published earlier this week that AI could one day appear to be conscious, posing a danger to society.
www.entrepreneur.com
August 22, 2025 at 11:13 PM
Microsoft AI CEO Warns That 'Dangerous' and 'Seemingly Conscious' AI Models could cause people to become disconnected from reality.
www.entrepreneur.com/business-new...
www.entrepreneur.com/business-new...
Reposted by Andrea
I was at the airport a month ago & saw a self-driving wheelchair.
Maybe when all the jobs that people used to do are done by AI, we’ll give everyone UBI & free healthcare.
I wonder if I’ll see it before I’m old enough to be in one of these.
We could do it now.
We could do so much more for people now
Maybe when all the jobs that people used to do are done by AI, we’ll give everyone UBI & free healthcare.
I wonder if I’ll see it before I’m old enough to be in one of these.
We could do it now.
We could do so much more for people now
June 2, 2025 at 4:06 AM
I was at the airport a month ago & saw a self-driving wheelchair.
Maybe when all the jobs that people used to do are done by AI, we’ll give everyone UBI & free healthcare.
I wonder if I’ll see it before I’m old enough to be in one of these.
We could do it now.
We could do so much more for people now
Maybe when all the jobs that people used to do are done by AI, we’ll give everyone UBI & free healthcare.
I wonder if I’ll see it before I’m old enough to be in one of these.
We could do it now.
We could do so much more for people now
Reposted by Andrea
Presenting at #ASCO25 today!
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
May 31, 2025 at 9:25 PM
Presenting at #ASCO25 today!
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
Reposted by Andrea
Patients > Profits
THIS abstract at #ASCO25 gives me so much hope!!
Way to go @thewonkologist.bsky.social @ascocancer.bsky.social 👊🏽
THIS abstract at #ASCO25 gives me so much hope!!
Way to go @thewonkologist.bsky.social @ascocancer.bsky.social 👊🏽
Presenting at #ASCO25 today!
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
I was expecting to find evidence that oncologists prefer more-lucrative treatments, and was surprised by our results! Clinical benefit matters, drug profit did not.
Cc @dusetzinas.bsky.social
June 1, 2025 at 1:49 PM
Patients > Profits
THIS abstract at #ASCO25 gives me so much hope!!
Way to go @thewonkologist.bsky.social @ascocancer.bsky.social 👊🏽
THIS abstract at #ASCO25 gives me so much hope!!
Way to go @thewonkologist.bsky.social @ascocancer.bsky.social 👊🏽
Reposted by Andrea
"Never look down on anybody unless you're helping them up"
~Jesse Jackson
~Jesse Jackson
May 23, 2025 at 8:28 PM
"Never look down on anybody unless you're helping them up"
~Jesse Jackson
~Jesse Jackson
Reposted by Andrea
✅ Tell the truth.
Rebuilding trust starts—and ends—with honesty.
When trust is broken, patients need transparency more than anything else: an honest acknowledgment of what went wrong, why it happened, and what will be done to prevent it from happening again.
#HealthXPh #medsky
Rebuilding trust starts—and ends—with honesty.
When trust is broken, patients need transparency more than anything else: an honest acknowledgment of what went wrong, why it happened, and what will be done to prevent it from happening again.
#HealthXPh #medsky
Let's go to T3. #healthxph
I think this is the most difficult question.
I think this is the most difficult question.
May 17, 2025 at 2:03 PM
✅ Tell the truth.
Rebuilding trust starts—and ends—with honesty.
When trust is broken, patients need transparency more than anything else: an honest acknowledgment of what went wrong, why it happened, and what will be done to prevent it from happening again.
#HealthXPh #medsky
Rebuilding trust starts—and ends—with honesty.
When trust is broken, patients need transparency more than anything else: an honest acknowledgment of what went wrong, why it happened, and what will be done to prevent it from happening again.
#HealthXPh #medsky
Reposted by Andrea
Reed Jobs, founder & investor, Yosemite
#STATBreakthrough
#STATBreakthrough
May 15, 2025 at 12:16 AM
Reed Jobs, founder & investor, Yosemite
#STATBreakthrough
#STATBreakthrough
Reposted by Andrea
BREAKING NEWS!!
UnitedHealth Group abruptly replaces CEO Andrew Witty, deepening a terrible year
www.npr.org/2025/05/13/n...
#medsky
UnitedHealth Group abruptly replaces CEO Andrew Witty, deepening a terrible year
www.npr.org/2025/05/13/n...
#medsky
UnitedHealth Group abruptly replaces CEO Andrew Witty, deepening a terrible year
The health care conglomerate is facing mounting financial problems – and ongoing consumer anger over high costs and denied claims.
www.npr.org
May 13, 2025 at 5:52 PM
BREAKING NEWS!!
UnitedHealth Group abruptly replaces CEO Andrew Witty, deepening a terrible year
www.npr.org/2025/05/13/n...
#medsky
UnitedHealth Group abruptly replaces CEO Andrew Witty, deepening a terrible year
www.npr.org/2025/05/13/n...
#medsky
Reposted by Andrea
The next phase is here: NIH is partnering with Medicaid and Medicare on data to understand "the root causes" of autism.
May 7, 2025 at 2:12 PM
Reposted by Andrea
It keeps getting worse. I
BREAKING: NSF has frozen all grant funding, as of yesterday. It's unclear when they will resume funding awards, or why the pause has been put in place. www.nature.com/articles/d41...
Exclusive: NSF stops awarding new grants and funding existing ones
US science funder also plans to screen grant applications for compliance with ‘agency priorities’.
www.nature.com
May 3, 2025 at 3:14 AM
It keeps getting worse. I
Reposted by Andrea
I just verified @yaelwrites.com using Bluesky's new verification system. Try verifying someone yourself using @cred.blue's verifier tool: cred.blue/verifier
cred.blue
Generate a Bluesky score. Understand your AT Proto data footprint. Vibe check strangers and new accounts.
cred.blue
May 1, 2025 at 6:21 PM
I just verified @yaelwrites.com using Bluesky's new verification system. Try verifying someone yourself using @cred.blue's verifier tool: cred.blue/verifier
Reposted by Andrea
Reposted by Andrea
AI can be both ethical and innovative but we must consider those who we are trying to help. Check out the AI Rights Initiative and our thoughts as patients regarding the use of #AI. @lightcollective.bsky.social @downing.bsky.social lightcollective.org/patient-ai-r...
Light Collective - Patient AI Rights Initiative
It is time for patients to lead change to advance the rights, interests, and voices of patients in health AI. Several prominent national initiatives have emerged focused on developing guidelines f…
lightcollective.org
April 28, 2025 at 7:08 AM
AI can be both ethical and innovative but we must consider those who we are trying to help. Check out the AI Rights Initiative and our thoughts as patients regarding the use of #AI. @lightcollective.bsky.social @downing.bsky.social lightcollective.org/patient-ai-r...
Reposted by Andrea
This will end well.
(It won’t.)
(It won’t.)
"The Agriculture Department will not require poultry companies to limit salmonella bacteria in their products, halting a Biden Administration effort to prevent food poisoning from contaminated meat."
www.seattletimes.com/business/usd...
www.seattletimes.com/business/usd...
USDA withdraws a plan to limit salmonella levels in raw poultry
The Agriculture Department says it is withdrawing a plan to limit salmonella bacteria in poultry products.
www.seattletimes.com
April 25, 2025 at 3:13 AM
This will end well.
(It won’t.)
(It won’t.)
Reposted by Andrea
And when they do see it, it will be too late.
America isn’t special, we can fall to authoritarian and fascist regimes if we let it.
This isn’t a left or right issue. It’s a pro democracy and pro freedom issue.
America isn’t special, we can fall to authoritarian and fascist regimes if we let it.
This isn’t a left or right issue. It’s a pro democracy and pro freedom issue.
April 16, 2025 at 2:19 AM
And when they do see it, it will be too late.
America isn’t special, we can fall to authoritarian and fascist regimes if we let it.
This isn’t a left or right issue. It’s a pro democracy and pro freedom issue.
America isn’t special, we can fall to authoritarian and fascist regimes if we let it.
This isn’t a left or right issue. It’s a pro democracy and pro freedom issue.
Reposted by Andrea
They can’t imagine a world where the rule of law doesn’t protect them, where their data will be used against them even when “they have nothing to hide”. They haven’t lived in an authoritarian state that decides what happens to you based on characteristics of seeming innocuous data alone.
April 16, 2025 at 2:19 AM
They can’t imagine a world where the rule of law doesn’t protect them, where their data will be used against them even when “they have nothing to hide”. They haven’t lived in an authoritarian state that decides what happens to you based on characteristics of seeming innocuous data alone.
Reposted by Andrea
I couldn't help it.
I had to lay Facebook's stock price (blue) over top of Facebook's internal data of how much consumer sentiment (jagged line) had fallen off a cliff for Facebook which FTC had in its opening exhibits today.
2014 - 2021.
Monopoly power on display, Professors.
I had to lay Facebook's stock price (blue) over top of Facebook's internal data of how much consumer sentiment (jagged line) had fallen off a cliff for Facebook which FTC had in its opening exhibits today.
2014 - 2021.
Monopoly power on display, Professors.
April 15, 2025 at 3:36 AM
I couldn't help it.
I had to lay Facebook's stock price (blue) over top of Facebook's internal data of how much consumer sentiment (jagged line) had fallen off a cliff for Facebook which FTC had in its opening exhibits today.
2014 - 2021.
Monopoly power on display, Professors.
I had to lay Facebook's stock price (blue) over top of Facebook's internal data of how much consumer sentiment (jagged line) had fallen off a cliff for Facebook which FTC had in its opening exhibits today.
2014 - 2021.
Monopoly power on display, Professors.
Reposted by Andrea
… #WeAreNotWaiting movement is rooted in patients wrestling access to their diabetes data from closed systems.
Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
December 30, 2024 at 6:47 AM
… #WeAreNotWaiting movement is rooted in patients wrestling access to their diabetes data from closed systems.
Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
Reposted by Andrea
Prompting matters, not just the model
👉🏼 Open access research paper on prompts+models with evaluation from a healthcare provider *and* patient perspective here: bit.ly/3G0M9XP
(Co-authored with @thelizarmy.bsky.social!)
👉🏼 Open access research paper on prompts+models with evaluation from a healthcare provider *and* patient perspective here: bit.ly/3G0M9XP
(Co-authored with @thelizarmy.bsky.social!)
A proof-of-concept study for patient use of open notes with large language models
AbstractObjectives. The use of large language models (LLMs) is growing for both clinicians and patients. While researchers and clinicians have explored LLM
bit.ly
April 9, 2025 at 11:55 PM
Prompting matters, not just the model
👉🏼 Open access research paper on prompts+models with evaluation from a healthcare provider *and* patient perspective here: bit.ly/3G0M9XP
(Co-authored with @thelizarmy.bsky.social!)
👉🏼 Open access research paper on prompts+models with evaluation from a healthcare provider *and* patient perspective here: bit.ly/3G0M9XP
(Co-authored with @thelizarmy.bsky.social!)
iOS and Android development experience for newbies via @danamlewis.bsky.social
#wearenotwaiting #belikelight
diyps.org
#wearenotwaiting #belikelight
diyps.org
DIYPS.org
#WeAreNotWaiting to make the world a better place
diyps.org
April 12, 2025 at 12:46 AM
iOS and Android development experience for newbies via @danamlewis.bsky.social
#wearenotwaiting #belikelight
diyps.org
#wearenotwaiting #belikelight
diyps.org