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jamesglen.bsky.social
James Glen
@jamesglen.bsky.social
1.4K followers 130 following 140 posts
Having a bit of a break O_o
● Founding member @LongCovidSupport
● Long Covid & MECFS advocate #FBLC
● Arts Centre Director
● Watford FC fan
● #FBPE 🇪🇺
Posts Replies Media Videos
jamesglen.bsky.social
Where's the best place to get a Aranet4 from in the UK? The official web shop has them available for €169.00
#LongCovid
November 17, 2025 at 3:03 PM
Reposted by James Glen
longcovidsupport.bsky.social
📣 1/4. Today we are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.

Find out more below! ⬇️

#OIA #OverlappingIllnesses #JoinedUpAction
Logo consisting of the shapes of three people in different shades of blue, pink and purple overlapping at the base. To the right of this are the words Overlapping Illness Alliance.
November 4, 2025 at 2:51 PM
jamesglen.bsky.social
Oh, Nick #celebritytraitors
November 6, 2025 at 10:04 PM
Reposted by James Glen
longcovidsupport.bsky.social
✨ New: Long Covid Body Mapping Toolkit ✨

We’re so pleased to share this new resource, co-created with people living with #LongCovid, Long Covid Support and
@ox.ac.uk

It’s designed to help people express and share their experiences.

🧵👇
A collage-style body map artwork showing a human figure filled with words, drawings, and magazine cutouts expressing experiences of Long Covid. The head is topped with the word “Tired” in bold red letters. Other words and phrases include “Help,” “No energy,” “Keep out,” “Travel,” and “You might as well forget all that!” The figure is decorated with colorful lines, crosses, and swirls. At the bottom of the image, text reads: Body Mapping Toolkit Launch, with logos from SoGE (School of Geography and the Environment), Long Covid Support, and the University of Oxford.
August 27, 2025 at 11:01 AM
jamesglen.bsky.social
Jeeeees
Wordle 1,527 6/6

⬛🟨🟨⬛🟨
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August 24, 2025 at 4:04 PM
Reposted by James Glen
longcovidsupport.bsky.social
📣 1/2. Now Recruiting in UK - #LongCovid Treatment Trial!

PHOSP-I is trialling Tocilizumab to treat ongoing inflammation.

🔴 Recruitment includes people who were not hospitalised with acute Covid

🔴 Several sites open - see map

Find out more on our website - link below ⬇️
Square image with white background and blue frame. In top left corner is the PHOSP I logo. On the left is a map of Engrand, Scotland and Wales with several areas highlighted in red. Header says Long Covid Treatment Trial Now Recruiting. There is a list of sites. University Hospitals of Leicester NHS Trust. Guy's & St. Thomas' NHS Foundation Trust. Kings College Hospital NHS Foundation Trust. University College London Hospitals NHS Foundation Trust. Oxford University Hospitals NHS Foundation Trust. Sheffield Teaching Hospitals NHS Foundation Trust. Cambridge University Trust, Addenbrookes. University Hospitals of Birmingham NHS Foundation Trust. NHS Greater Glasgow and Clyde. Manchester University Hospitals NHS Foundation Trust. Northern Care Alliance NHS Foundation Trust. North Bristol NHS Foundation Trust. University Hospitals of Coventry and Warwickshire NHS Trust. Cardiff and Vale University Health Board. At bottom is the study's website address www.phosp.org/phosp-i/ and QR code.
July 11, 2025 at 3:17 PM
jamesglen.bsky.social
Wordle 1,486 3/6

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July 14, 2025 at 4:27 PM
jamesglen.bsky.social
Wordle 1,467 6/6

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June 25, 2025 at 6:13 AM
Reposted by James Glen
longcovidsupport.bsky.social
🎨 1/2. When You Can’t Find the Words – Join us for the launch of a new body mapping toolkit for people with #LongCovid!

📅 Friday 27th June 2025
🕚 11am UK time
📍 Online

A creative way to express what words can’t.

For more information & to register, see link below. ⬇️
Colourful background with a large white box in the centre. At the top of the box are three logos for School of Geography and the Environment, University of Oxford and Long Covid Support. Text below the logos says When you can't find the words: Long Covid Body Mapping Toolkit Webinar Launch. Friday 27th June 11am BST Online.
June 16, 2025 at 12:21 PM
Reposted by James Glen
longcovidsupport.bsky.social
Today, on #WorldMEDay, we’re standing with 27 other organisations in solidarity with the UK’s ME community.

PwME: We stand with you in the face of indescribable loneliness, pain and suffering to deliver a simple message to the UK government.

Now is the time for action.

#LongCovid
At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals. A text-based document titled "Joint Statement for World ME Day 12.05.2025". The statement is a collaborative call to action endorsed by multiple ME/CFS and Long Covid organisations. It emphasizes the urgent need for meaningful investment in research, clinical care, public awareness, and support for people living with ME and associated post-viral conditions, including Long Covid. The document references the scale of the impact with an estimated 1.3 million people living with ME in the UK. The statement is signed by numerous advocacy groups across the UK including Long Covid Support.
May 12, 2025 at 7:18 PM
Reposted by James Glen
longcovidsupport.bsky.social
📣 1/5. The UK Government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with #LongCovid and #MECFS.

We've launched a survey to gather your insight. ⬇️
Blue background with white text that reads Survey Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS. Four logos at the bottom of Long Covid Support, Action for ME, ME Local Network, #ThereforME.
April 16, 2025 at 11:52 AM
Reposted by James Glen
longcovidsupport.bsky.social
🚨12 month follow-up of COVID non-hospitalised showed:

⚠️46%⬆️ in outpatient respiratory infections

⚠️41%⬆️ in hospital admission for infectious illnesses incl. sepsis & respiratory infections

⚠️17%⬆️ in outpatient diagnosis of bacterial, fungal & viral infectious illnesses

#LongCovid
#CovidIsNotOver
cidrap.bsky.social CIDRAP @cidrap.bsky.social · Apr 2
COVID-19 may put patients at risk for other infections for at least 1 year

Non-hospitalized COVID patients had higher rates in 32% of the 65 laboratory-based outcomes compared to those who tested negative for SARS-CoV-2.

www.cidrap.umn.edu/c...
April 3, 2025 at 7:15 AM
jamesglen.bsky.social
I've never had Norovirus before in my life, to my knowledge.

I'm in my second bout of it this year. What's going on?
ukhsa.bsky.social UK Health Security Agency @ukhsa.bsky.social · Mar 20
#Norovirus cases are still high for this time of year. As we enter spring, we usually dial back to monthly reporting – but due to current levels, a special edition report will be published this time next week. 📉
🔗 Read & share our blog on how to deal with the virus: ukhsa.blog.gov.uk/2022/11/17/n...
Norovirus: What to do if you catch it and helping to stop the spread
This post was last checked and updated in February 2025. Norovirus, commonly known as the winter vomiting bug (although it can strike at any time of year), is a stomach bug that causes sickness and di...
ukhsa.blog.gov.uk
March 25, 2025 at 9:14 AM
Reposted by James Glen
nisreenalwan.bsky.social
Our research shows that almost 1 in 10 of people in England are not sure whether they have #LongCovid
www.dailyecho.co.uk/news/2500763...
Nearly one in ten people in England think they might have long Covid
Nearly one in ten people in England think they might have long Covid but are unsure.
www.dailyecho.co.uk
March 18, 2025 at 6:04 AM
Reposted by James Glen
longcovidsupport.bsky.social
📣 Our Founding Trustee @margaretohara.bsky.social:

"You've got to almost admire the government, their ability to ignore #LongCovid… There isn't a carpet big enough to sweep this under, but they're trying”

#ClosingClinics

uk.news.yahoo.com/labour-long-...
'Labour is ignoring long COVID suffers like me. I feel like I'm in an abusive relationship'
Margaret O'Hara, who has long COVID, feels deeply frustrated with the government's emerging policies on getting those with long-term sickness back into work.
uk.news.yahoo.com
March 17, 2025 at 2:17 PM
jamesglen.bsky.social
Thanks @longcovidsupport.bsky.social @longcovidkids.bsky.social for getting my #LongCovidAwarenessDay 5 year pin to me in good time.

It's 5 years this week since the world's least fun roller coaster started for me, #LongCovid, and there doesn't seem to be an end in sight.
March 16, 2025 at 5:41 AM
Reposted by James Glen
jamesglen.bsky.social
Thanks for mentioning Long Covid today @mrjamesob.bsky.social, it's another subject that shall not be mentioned in Westminster at the moment but the problem is ever-growing.
March 12, 2025 at 2:05 PM
Reposted by James Glen
longcovidsupport.bsky.social
💔 1/3. We are devastated to learn of Ondine's passing. A shining light has gone out in the #LongCovid Community. An absolute force for good and powerful speaker, she selflessly campaigned for recognition, research & rehabilitation for those affected./

#LongCovidCommunity
Grey background with a white block panel with text reading: We are devastated to learn of Ondine's passing. A shining light has gone out in the Long Covid Community. An absolute force for good and powerful speaker, she selflessly campaigned for recognition, research and rehabilitation for those affected. Ondine was pivotol in raising the alarm with policy makers at the start of the pandemic. It has been a privilege to work alongside her ever since. Her legacy will live on through the community and our combined efforts to ensure that Long Covid is not forgotten. Our thoughts are with her family, friends and her Long Covid SOS family. Ondine Sherwood Long Covid SOS Co-Founder & CEO. Black and white pencil illustration of Ondine Sherwood at the Covid-19 inquiry giving her witness statement. Illustration by Rosie Pidgeon Youth Artist. With logos for Long Covid Physio, Long Covid Kids and Long Covid Support across the bottom.
March 12, 2025 at 1:10 PM
Reposted by James Glen
longcovidsupport.bsky.social
On Covid-19 #DayofReflection we remember all those we have lost, we think of the millions suffering now with #LongCovid, and we remind the world that Covid Is Not Over.
Black background with silver frame. Right half of image contains a large grey coloured heart with silver edging. Beneath the heart is a silver reflection. In the top left corner is the Long Covid Support logo and website address www.longcovid.org. Text in large white letters says COVID 19 DAY OF REFLECTION. Below it says hashtag COVID IS NOT OVER. Across the bottom in small lettering it says Long Covid Support is a registered charity in England and Wales 1198938.
March 9, 2025 at 9:07 AM
Reposted by James Glen
longcovidsupport.bsky.social
There's not long to go until #LongCovidAwarenessDay on 15th March. Chair of the APPG on #LongCovid, @joplatt.bsky.social shows her support for us all. Thank you, Jo! 🙏
Photo of Jo Platt MP stood outside with a house in the background. Jo is wearing a black top and pink jacket. On the right lapel of the jacket is our 5 year commemorative Long Covid Awareness pin. On the left lapel is a Long Covid Awareness ribbon pin, below which is a badge of our Long Covid Support logo.
March 5, 2025 at 7:39 PM
Reposted by James Glen
longcovidsupport.bsky.social
📣 Don’t forget to sign up to our strategy launch event taking place on 15th March 2025!
You can attend in person or online. Link below ⬇️

#LongCovid
#LongCovidAwarenessDay
longcovidsupport.bsky.social Long Covid Support @longcovidsupport.bsky.social · Feb 21
📣 We’re coming together on #LongCovidAwareness Day to reflect on progress and shape what’s next.

We’d love you to join us - in person or online!

When: 15th March 2025, 2pm GMT
Where: Lyric Theatre, Hammersmith, W6 0QL

Sign up now! Link below ⬇️

#LongCovid
Cream coloured background with a large green arch across the centre. Black text in top left says Long Covid Support Community Strategy Launch. Large black text on green arch says Sign up now. In the bottom left corner is a black Long Covid Support logo. In the bottom right is black text saying 15 March 2025 Hammersmith Lyric Theatre.
March 6, 2025 at 10:28 AM
jamesglen.bsky.social
@bobbyllew.bsky.social Hi Bob, concerned fan here. Just seen this on your Facebook page, is this a paid-for advert? It's timing seems very off, are you guys endorsing M*sk?
February 26, 2025 at 8:52 AM
Reposted by James Glen
longcovidsupport.bsky.social
📣 1/3. The #LongCovid community has been crucial in defining the condition & advocating for better outcomes. On #LongCovidAwareness Day, we invite you to join us for our Community Strategy Launch!

🌟15 March 2025, 2pm GMT -
Lyric Theatre, Hammersmith, London W6 0QL, & online🌟

Registration link ⬇️
Image with green background and a large white ring in the centre. Text in white in top left corner reads 15 March 2025 Hammersmith Lyric Theatre. Black text in the ring reads Long Covid Support Community Strategy Launch. In the bottom left corner is the Long Covid Support logo in black. In the bottom right corner is text in white that reads Coming Together. Reflecting on Our Progress. Shaping What's Next.
February 13, 2025 at 10:15 AM
Reposted by James Glen
longcovidsupport.bsky.social
📣 Some of the work we do is in #LongCovid research. Several of our charity members have been involved in an array of research and have co-authored many significant papers. Take a look at some of them on our website - Link below! ⬇️

#ResearchLongCovid
Dark background. Long Covid Support logo in top left. Graphics include blue quote marks, red star, newspaper with the word research, hand holding red jigsaw piece. Headed Co-Authored Research. 7 white boxes contain research titles. "Long Covid: a global health issue - a prospective, cohort study set in four continents", "Pathophysiological Mechanisms in Long COVID A Mixed Method Systematic Review", "Impact of Long COVID on productivity and informal caregiving", "Prevalence of orthostatic intolerance in long covid clinic patients and healthy volunteers: A multicenter study", "When you can't find the words: Using body mapping to communicate patients' experiences of Long Covid", "A Core Outcome Measurement Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID) in Adults: An International Delphi Consensus Study" and "Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?". Text at the bottom says Find more on our website www.longcovid.org
January 30, 2025 at 9:10 AM
jamesglen.bsky.social
Back in '21 on Twitter I started #FBLC: Follow Back Long Covid, attempting to create a community there to help amplify our voices.

As on there, stick #FBLC in your bio here on Bluesky, follow others who also use #FBLC & support those living with #LongCovid. Only together can we make difference
January 25, 2025 at 10:21 AM