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imperialperc.bsky.social
Imperial Patient Experience Research Centre (PERC)
@imperialperc.bsky.social
110 followers 35 following 16 posts
We are a team of mixed methods researchers doing research on research and public involvement practitioners supporting the Imperial Biomedical Research Centre funded by the National Institute of Health and Care Research (NIHR).

linktr.ee/imperial_perc
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Reposted by Imperial Patient Experience Research Centre (PERC)
profhelenward.bsky.social
New article exploring how Long COVID affects people at work, highlighting the need for adaptable work accommodations to support employment and well‐being.
onlinelibrary.wiley.com/doi/epdf/10....
@longcovidsupport.bsky.social @nikki-s.bsky.social @imperialperc.bsky.social @imperialbrc.bsky.social
“I Put a Lot of Emphasis on Work Because I Want to Keep My Job”: A Population‐Based Interview Study of Long Covid and Employment Changes in England
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onlinelibrary.wiley.com
October 31, 2025 at 2:05 PM
imperialperc.bsky.social
Our Senior Research Fellow in Anthropology, Dr Kirsten Bell reflects on how labelling research disciplines influences how we think about them.

Read more at @bristolbrc.bsky.social blog👇
Should qualitative health researchers call themselves ‘qualitative health researchers’? - Bristol Biomedical Research Centre
Dr Kirsten Bell is a Senior Research Fellow in Anthropology at Imperial College’s Patient Experience Research Centre. She’s also a member of the BRC Qualitative Social and Behavioural Research Network...
www.bristolbrc.nihr.ac.uk
September 30, 2025 at 8:04 AM
imperialperc.bsky.social
💛 PERC at W12 Together Festival 💛

We keep it real and relevant — bringing research that speaks to our audience and the people it will impact most.
#W12Together #PeopleFirst #HealthResearch #CommunityEngagement
September 18, 2025 at 5:11 PM
imperialperc.bsky.social
Are you an experienced #PublicInvolvement professional & passionate about engaging with underrepresented communities? Join us to support @imperialbrc.bsky.social
health research.

👇Find out more and apply by 13 October 2025.
lnkd.in/d88Ttg_p

@imperialmed.bsky.social @imperialcollegeldn.bsky.social
September 17, 2025 at 8:24 AM
imperialperc.bsky.social
The @imperialbrc.bsky.social proudly recognises the exceptional public involvement in research across @imperialcollegeldn.bsky.social. Our Public Involvement in Research Competition 2025 is now officially open.

Apply by 12 October 2025 👉 tin.al/jG1dq

@imperialmed.bsky.social @nihr.bsky.social
September 12, 2025 at 9:08 AM
imperialperc.bsky.social
🌈 Our PI Officer had an amazing time volunteering at the @wlqp.bsky.social street party!

💌 Big thanks to our colleagues at @westlondonnhs.bsky.social for helping hand out flyers, and to the brilliant folks from @goodgym.bsky.social and @dkms-uk.bsky.social we met along the way. #WLQP #LGBTQ
September 4, 2025 at 9:36 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
imperialmed.bsky.social
Millions signed up to @imperialcollegeldn.bsky.social's REACT study during the #COVID19 pandemic.

Now, that same cohort could help accelerate #dementia research – through a new partnership with HDR UK, @ukdri.ac.uk & Inuvi.

Faster trials = faster treatments 🧠 www.imperial.ac.uk/news/267013/...
REACT study to help boost UK dementia research | Imperial News | Imperial College London
Imperial’s REACT study will collaborate with a leading national dementia programme to help boost recruitment for clinical trials.
www.imperial.ac.uk
August 6, 2025 at 8:31 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
profhelenward.bsky.social
A quick update from me on the REACT study which continues to follow the health impacts of the pandemic. @longcovidsupport.bsky.social @imperialperc.bsky.social @imperialsph.bsky.social
July 11, 2025 at 12:59 PM
Reposted by Imperial Patient Experience Research Centre (PERC)
vivekaguzman.bsky.social
🤒How do older people make-sense of persistent COVID symptoms?

🤔 How does this influence their behaviors & outcomes?

📝 I'm presenting findings from the REACT study at the #BSG2025 conference, let's have a chat! 🗨️

@imperialsph.bsky.social @imperialperc.bsky.social @britishgerontology.bsky.social
June 26, 2025 at 10:27 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
imperialbrc.bsky.social
Event 🚨

Title: NIHR Research Inclusion Training Event
Date: 25 June
Time: 12:00-16:00
Venue: Hybrid

To register or know more- imperial.eu.qualtrics.com/jfe/form/SV_...

@imperialmed.bsky.social @imperialnhli.bsky.social @imperialsci.bsky.social @imperialcollegeldn.bsky.social
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imperial.eu.qualtrics.com
June 9, 2025 at 8:28 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
sarindiary.bsky.social
🚨New blog: Break the Barriers!🚨

For my PhD, my lived experience partners & I are co-producing research to address #racism in maternity care for Black families in NW London, and we want to share our journey!

🔗 First post + subscribe: bit.ly/3Hw2If4

#BlackMaternalHealth #coproduction #healthequity
Introducing Break the Barriers
Co-producing better maternity care with and for Black, African, Caribbean, and mixed-Black families—grounded in lived experience, advocacy, and research.
open.substack.com
June 7, 2025 at 11:00 AM
imperialperc.bsky.social
It was a pleasure hosting @menkaloomba.bsky.social as an @imperialcollegeldn.bsky.social Global Development Fund Fellow. This blog reflects her #communityengagement across #NorthWestLondon & feedback on her #PhD in #periodontalhealth & #Type2diabetes blogs.imperial.ac.uk/perc/2025/06...
Community session in a hall
June 3, 2025 at 9:14 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
jennycrow.bsky.social
Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social
May 29, 2025 at 1:01 PM
imperialperc.bsky.social
We are delighted to share that our Director, @profhelenward.bsky.social, has been elected a Fellow of the Academy of Medical Sciences @acmedsci.bsky.social.

Huge congratulations, @profhelenward.bsky.social 🎉
May 23, 2025 at 10:07 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
gemmaclunie.bsky.social
New paper alert! A Core Outcome Set for intervention studies in Airway Stenosis.

Thanks @imperialbrc.bsky.social for infrastructure support & @nihr.bsky.social for funding

@imperialmed.bsky.social @drjustinroe.bsky.social @amyfreeman.bsky.social @imperialperc.bsky.social

doi.org/10.1002/lary...
Development of a Core Outcome Set for Intervention Studies in Adults With Laryngotracheal Stenosis
We used a rigorous two round Delphi process informed by multiple stakeholder groups to gain consensus on seven core outcomes for inclusion in future research relating to adults with laryngotracheal s...
doi.org
May 13, 2025 at 6:26 PM
Reposted by Imperial Patient Experience Research Centre (PERC)
vas-papa.bsky.social
📢New paper now available: rdcu.be/elqhD

We outline how we trained & supported people living with HIV to conduct & analyse online interviews during the COVID-19 pandemic.

Huge thanks to our amazing community partner
@positivelyuk.bsky.social, staff @imperialperc.bsky.social & co-researchers ✨
Co-production in HIV research: a case study from the COVID-19 pandemic
rdcu.be
May 12, 2025 at 8:27 AM
imperialperc.bsky.social
🎉 Discover Kimberley Foley’s @kafoley.bsky.social inspiring blog on the Public Involvement work Kim led at the Ealing Community Involvement in Research event 👏
This blog was co-authored with a community member. Visit the link below:

tinyurl.com/2avat9rb and let us know your thoughts!
Researchers and community members working together to shape research on respiratory infections in young children - Patient Experience Research Centre
This entry is part 1 of 1 in the series Ealing Community Involvement in Research Event 2024Ealing Community Involvement in Research Event 2024Researchers and community members working together to shap...
tinyurl.com
April 29, 2025 at 4:20 PM
Reposted by Imperial Patient Experience Research Centre (PERC)
imperial-csprg.bsky.social
Post doc Dr Rhea Harewood sharing #BowelCancerAwareness at a community outreach event with the Harrow THCOGIC church.

The group discussed how #BowelCancer is caused, how we can screen to find it earlier and how to improve public involvement in bowel cancer research

#EDI #CancerResearch
April 24, 2025 at 10:25 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
profhelenward.bsky.social
Pre-print from REACT . 60 interviews with diverse group
- all reported persistent symptoms after COVID
- many "invisible" as not using clinical care or support groups
- some didn't identify with category Long Covid
1/2
@longcovidsupport.bsky.social @imperialperc.bsky.social

doi.org/10.1101/2025...
Challenges of visibility and inclusion in Long COVID: a population-based interview study
Introduction People with Long Covid report a wide range of symptoms and inconsistent responses when seeking clinical diagnosis and support. Much of the qualitative research on Long Covid has been base...
doi.org
April 15, 2025 at 1:33 PM
imperialperc.bsky.social
On this #WorldHealthDay the @who.int focuses on the health of mothers and babies. Our 2024 Public Involvement in Research Competition Winner, @sarindiary.bsky.social, followed a co-production approach to address ethnic inequities in maternity care for Black women in West London.

👉 shorturl.at/bvVBO
Helen Ward, Carole and Sarindi Aryasinghe holding the 2024 BRC Public Involvement in Research trophy after their presentation at the NIHR Imperial BRC Annual Event.
April 7, 2025 at 9:33 AM
Reposted by Imperial Patient Experience Research Centre (PERC)
imperialbrc.bsky.social
BRC Public Involvement in Research Competition winner 24 receives the trophy 🏆 at the Annual Event. @sarindiary.bsky.social’s exceptional work addresses inequality in maternal mortality among Black women.

@profhelenward.bsky.social @imperialmed.bsky.social

imperialbrc.nihr.ac.uk/2024/12/10/w...
March 26, 2025 at 8:15 PM
Reposted by Imperial Patient Experience Research Centre (PERC)
gemmaclunie.bsky.social
Blown away by @sarindiary.bsky.social & Carole presenting prize winning co-production work on priority setting for Black & Global majority women in maternity services at the @imperialbrc.bsky.social celebration. @imperialperc.bsky.social @profhelenward.bsky.social @sophie-day.bsky.social
Two women presenting at a conference
March 25, 2025 at 7:31 PM
imperialperc.bsky.social
🎥 Discover how we are collaborating with the Latin American community in London to promote health awareness and public involvement!
A huge thank you to LA United UK and The Invention Rooms for making this possible. 🌟
#HealthAwareness #PublicInvolvement #LatinAmericanCommunity #ImperialCollegeLondon
March 17, 2025 at 6:13 PM
imperialperc.bsky.social
Don’t miss our final blog of 2024! 💫 Featuring @emmaaaaa8.bsky.social Emma Alexander's amazing Public Involvement work in the Paediatric Intensive Care Unit research. Please find it here: blogs.imperial.ac.uk/perc/2024/12...

Let us know your thoughts in the comments!
Having an Impact with PPIE in Paediatric Intensive Care Research
By Emma Alexander As a doctor who works in children’s intensive care, I have always been interested in research, especially in research that matters to parents and young children
blogs.imperial.ac.uk
December 20, 2024 at 4:20 PM
imperialperc.bsky.social
Congratulations to @sarindiary.bsky.social on winning the @imperialbrc.bsky.social 2024 #publicinvolvement competition! Read more about her coproduced #maternitycare in #NorthWestLondon here. tinyurl.com/2fyt492b @imperialcollegeldn.bsky.social #academicsky #medsky #matexp #coproduction
Winner announced for the BRC Public Involvement in Research Competition 2024 – NIHR Imperial Biomedical Research Centre
<p>The winner of the NIHR Imperial BRC Public Involvement in Research Competition 2024 was announced early this month.</p>
tinyurl.com
December 10, 2024 at 11:31 AM