@jennycrow.bsky.social
Clinical Specialist Occupational Therapist in Stroke, NIHR Clinical Doctoral Research Fellow, Imperial College London, #lifeafterstroke
Inspirational words from stroke advocates Melinda Roaldsen @esostroke.bsky.social and Joseph Rukelibuga from Stroke Action Rwanda. Collaboration is key to shaping and improving stroke services globally! @worldstrokeorg.bsky.social
October 24, 2025 at 12:55 PM
Inspirational words from stroke advocates Melinda Roaldsen @esostroke.bsky.social and Joseph Rukelibuga from Stroke Action Rwanda. Collaboration is key to shaping and improving stroke services globally! @worldstrokeorg.bsky.social
Beautiful early morning sunrise in Barcelona and great early morning session. ‘Stroke recovery: the elephants in the room’ #WSC2025 @esostroke.bsky.social @thestrokeassoc.bsky.social More sessions focusing on #lifeafterstroke needed please!
October 23, 2025 at 9:42 AM
Beautiful early morning sunrise in Barcelona and great early morning session. ‘Stroke recovery: the elephants in the room’ #WSC2025 @esostroke.bsky.social @thestrokeassoc.bsky.social More sessions focusing on #lifeafterstroke needed please!
A change of mind? A profoundly evocative poem where Paul captures the dismantling and rebuilding of identity and personal value after his stroke. @willchegwidden.bsky.social @louiseclark15.bsky.social @thestrokeassoc.bsky.social substack.com/@strokesurvi...
A change of mind?
The fragments fit together, not in the old, smooth glass,But a new mosaic structure, defined by time that passed.
substack.com
October 16, 2025 at 11:13 AM
A change of mind? A profoundly evocative poem where Paul captures the dismantling and rebuilding of identity and personal value after his stroke. @willchegwidden.bsky.social @louiseclark15.bsky.social @thestrokeassoc.bsky.social substack.com/@strokesurvi...
A really interesting observational study which suggests that more positive attitudes to ageing may build resilience and improve recovery after a fall. Importantly we need to shift our focus from the physical only to the psychological state and wellbeing of a person too.
Falls in later life can be devastating—but mindset matters.
Dr @tobyellmers.bsky.social from @imperialbrains.bsky.social explores how older adults’ beliefs about ageing significantly influence recovery after a fall.
#InternationalOlderPersonsDay
blogs.imperial.ac.uk/imperial-med...
Dr @tobyellmers.bsky.social from @imperialbrains.bsky.social explores how older adults’ beliefs about ageing significantly influence recovery after a fall.
#InternationalOlderPersonsDay
blogs.imperial.ac.uk/imperial-med...
What helps older adults bounce back after a fall? Their mindset might be key - Imperial Medicine Blog
Dr Toby Ellmers from the Department of Brain Sciences explores how older adults’ beliefs about ageing significantly influence recovery after a fall.
blogs.imperial.ac.uk
October 9, 2025 at 1:29 PM
A really interesting observational study which suggests that more positive attitudes to ageing may build resilience and improve recovery after a fall. Importantly we need to shift our focus from the physical only to the psychological state and wellbeing of a person too.
The Power of Peer Support open.substack.com/pub/mayakuza...
The Power of Peer Support
Lived Experience Matters.
open.substack.com
September 29, 2025 at 4:09 PM
The Power of Peer Support open.substack.com/pub/mayakuza...
Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...
(Re)defining Recovery
Recovering from a stroke is a journey that's physical, cognitive, mental and more...
open.substack.com
September 21, 2025 at 1:11 PM
Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...
Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!!
Becoming Your Own Advocate open.substack.com/pub/mayakuza...
Becoming Your Own Advocate open.substack.com/pub/mayakuza...
Becoming Your Own Advocate
Fighting for continuity of care.
open.substack.com
September 21, 2025 at 12:46 PM
Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!!
Becoming Your Own Advocate open.substack.com/pub/mayakuza...
Becoming Your Own Advocate open.substack.com/pub/mayakuza...
What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...
What stroke survivors want you to know, how it helps & the value of lived experience
What Stroke Survivors Want You to Know......
open.substack.com
September 21, 2025 at 11:50 AM
What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...
A stranger’s face, a stranger’s mind
open.substack.com/pub/theesk/p...
open.substack.com/pub/theesk/p...
A stranger’s face, a stranger’s mind
Thoughts of a stroke survivor
open.substack.com
September 21, 2025 at 11:21 AM
A stranger’s face, a stranger’s mind
open.substack.com/pub/theesk/p...
open.substack.com/pub/theesk/p...
Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social
July 30, 2025 at 10:07 AM
Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social
Grateful to be interviewed by Sara Tavares, Heart Failure Specialist Nurse, clinical academic colleague about my path into advocacy for people after stroke #lifeafterstroke @pareshmalhotra.bsky.social @gemmaclunie.bsky.social @ismalias.bsky.social
academic.oup.com/eurjcn/advan...
academic.oup.com/eurjcn/advan...
Advocacy Spotlight Series : Jennifer Crow
Sara Tavares, Jennifer Crow; Advocacy Spotlight Series : Jennifer Crow, European Journal of Cardiovascular Nursing, , zvaf093, https://doi.org/10.1093/eurj
academic.oup.com
June 23, 2025 at 5:47 PM
Grateful to be interviewed by Sara Tavares, Heart Failure Specialist Nurse, clinical academic colleague about my path into advocacy for people after stroke #lifeafterstroke @pareshmalhotra.bsky.social @gemmaclunie.bsky.social @ismalias.bsky.social
academic.oup.com/eurjcn/advan...
academic.oup.com/eurjcn/advan...
Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...
Talking about Strokes | Talking about Strokes
A gentle introduction.....
shows.acast.com
June 3, 2025 at 8:53 AM
Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...
Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.
I'm planning to write an editorial in @brain1878.bsky.social entitled "If patients only knew".
It's about obstacles that slow down or prevent people from participating in clinical studies and the pace of initiating #ClinicalTrials. If you have experience or comments please message me and repost.
It's about obstacles that slow down or prevent people from participating in clinical studies and the pace of initiating #ClinicalTrials. If you have experience or comments please message me and repost.
June 3, 2025 at 6:42 AM
Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.
Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social
May 29, 2025 at 1:01 PM
Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social
What an absolute pleasure it was to welcome the brilliant @f-geranmayeh.bsky.social for our seminar series at @psychologyuea.bsky.social. Fascinating and important work on using LLMs in stroke. Great speaker :)
May 17, 2025 at 11:27 AM
TIA - Neurological symptoms NOT fully resolved within 24 hours! An interesting prospective cohort study looking at fatigue up to 12 months after #TIA @ismalias.bsky.social @avrildrummond1.bsky.social @pareshmalhotra.bsky.social @imperialbrains.bsky.social
pubmed.ncbi.nlm.nih.gov/40367404/
pubmed.ncbi.nlm.nih.gov/40367404/
Long-Term Fatigue Following Transient Ischemic Attack: A Prospective Cohort Study - PubMed
The study is part of the Life After Stroke Cohort (ClinicalTrials.gov: NCT05234528). Registered February 1, 2022. First patient included February 2, 2022.
pubmed.ncbi.nlm.nih.gov
May 17, 2025 at 8:20 AM
TIA - Neurological symptoms NOT fully resolved within 24 hours! An interesting prospective cohort study looking at fatigue up to 12 months after #TIA @ismalias.bsky.social @avrildrummond1.bsky.social @pareshmalhotra.bsky.social @imperialbrains.bsky.social
pubmed.ncbi.nlm.nih.gov/40367404/
pubmed.ncbi.nlm.nih.gov/40367404/
Watched this last night and highly recommend it
Bbc.co.uk/programmes/m0029cpt
‘Hope plays a major role in recovery’ #lifeafterstroke
Bbc.co.uk/programmes/m0029cpt
‘Hope plays a major role in recovery’ #lifeafterstroke
BBC Two - My Brain: After the Rupture
The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.
Bbc.co.uk
April 27, 2025 at 10:01 AM
Watched this last night and highly recommend it
Bbc.co.uk/programmes/m0029cpt
‘Hope plays a major role in recovery’ #lifeafterstroke
Bbc.co.uk/programmes/m0029cpt
‘Hope plays a major role in recovery’ #lifeafterstroke
Reposted
I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!
❗ #OPSYRIS2025 Abstract Deadline: 30th April! ❗
Have you submitted yours yet? ⏳ Don’t miss out!
🔗 Submit here: docs.google.com/forms/d/e/1F...
📩 More info on our website opsyris.org & newsletter tinyurl.com/3wvaye37
Have you submitted yours yet? ⏳ Don’t miss out!
🔗 Submit here: docs.google.com/forms/d/e/1F...
📩 More info on our website opsyris.org & newsletter tinyurl.com/3wvaye37
April 5, 2025 at 8:29 AM
I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!
Do our well intentioned research processes exacerbate exclusion? @ismalias.bsky.social @willchegwidden.bsky.social
journals.sagepub.com/doi/10.1177/...
Food for thought about (?over)protection of research participants and effects on inclusion from @jennycrow.bsky.social @imperialbrains.bsky.social
Food for thought about (?over)protection of research participants and effects on inclusion from @jennycrow.bsky.social @imperialbrains.bsky.social
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
April 2, 2025 at 9:19 PM
Do our well intentioned research processes exacerbate exclusion? @ismalias.bsky.social @willchegwidden.bsky.social
Reposted
‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.
March 27, 2025 at 2:05 PM
‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.
Reposted
Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...
BBC Two - My Brain: After the Rupture
The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.
www.bbc.co.uk
March 28, 2025 at 1:57 PM
Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...
Reposted
#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live
March 10, 2025 at 9:33 AM
#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live
Reposted
#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.
March 10, 2025 at 10:42 AM
#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.
Reposted
#lifeafterstroke #elasf2025 Hatice Ozkan - participant " I am more than my stroke"
March 10, 2025 at 10:58 AM
#lifeafterstroke #elasf2025 Hatice Ozkan - participant " I am more than my stroke"
Reposted
Well worth a read .
Why academia is sleepwalking into self-destruction. My editorial @brain1878.bsky.social If you agree with the sentiments please repost. It's important for all our sakes to stop the madness
academic.oup.com/brain/articl...
academic.oup.com/brain/articl...
March 7, 2025 at 2:34 PM
Well worth a read .