International Kidney Cancer Coalition
@ikccorg.bsky.social
International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
https://ikcc.org/
https://ikcc.org/
Reposted by International Kidney Cancer Coalition
PCE has launched a new physical activity and pancreatic cancer video series created for people living with pancreatic cancer. 🏌♀️ 🚴♂️
📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity?
Learn more: https://shorturl.at/6Pm7L
📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity?
Learn more: https://shorturl.at/6Pm7L
January 7, 2026 at 12:03 PM
PCE has launched a new physical activity and pancreatic cancer video series created for people living with pancreatic cancer. 🏌♀️ 🚴♂️
📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity?
Learn more: https://shorturl.at/6Pm7L
📽️ Video 1 kicks off the series by answering a simple but important question: What is physical activity?
Learn more: https://shorturl.at/6Pm7L
However, according to the 4th Global Patient Survey, 62% of people were not asked by a healthcare professional to participate in a clinical trial.
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (2/2)
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (2/2)
January 6, 2026 at 12:45 PM
However, according to the 4th Global Patient Survey, 62% of people were not asked by a healthcare professional to participate in a clinical trial.
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (2/2)
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (2/2)
Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)
January 6, 2026 at 12:45 PM
Clinical trials look at new ways to prevent, detect, or treat disease to advance kidney cancer care. Participating in a clinical trial can be a way to access a new or otherwise unavailable treatment. (1/2)
Reposted by International Kidney Cancer Coalition
A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision.
Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC) - Action Kidney Cancer
A new approach to diagnosing kidney cancer, called the Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC), was trialled at Addenbrooke’s Hospital in Cambridge.
actionkidneycancer.org
December 17, 2025 at 12:01 PM
A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision.
Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.
December 18, 2025 at 12:21 PM
Happy Holidays from all of us at IKCC! Please note that we will be closed from 22 December until 5 January.
2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer
December 15, 2025 at 4:04 PM
2025 was a busy year for IKCC, with World Kidney Cancer Day, the Global Kidney Cancer Summit in Madrid, the Global Patient Survey Highlights Report and much more. Read Olivier Exertier’s reflections in this LinkedIn article: www.linkedin.com/pulse/end-ye... #KidneyCancer
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (3/3)
December 10, 2025 at 12:34 PM
Read the 2025 GPS Highlights Report at: ikcc.org/wp-content/u... #KidneyCancer (3/3)
The survey also found patients younger than 46 years reported more barriers to treatment than patients over 46. The most common barrier for younger patients is cost of treatment. (2/3)
December 10, 2025 at 12:34 PM
The survey also found patients younger than 46 years reported more barriers to treatment than patients over 46. The most common barrier for younger patients is cost of treatment. (2/3)
When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)
December 10, 2025 at 12:34 PM
When asked about barriers to treatment, 55% of Global Patient Survey respondents said they experienced a barrier that affected their treatment. The most common barriers cited were cost of treatment (23%) and waiting times for treatment (22%). (1/3)
The new member of IKCC’s Medical Advisory Board, Shankar Siva, shared an important update on radiation oncology: SBRT for primary renal cell carcinoma. #KidneyCancer @myesmo.bsky.social (3/3)
December 7, 2025 at 12:36 PM
The new member of IKCC’s Medical Advisory Board, Shankar Siva, shared an important update on radiation oncology: SBRT for primary renal cell carcinoma. #KidneyCancer @myesmo.bsky.social (3/3)
IKCC had the pleasure to listen to the high-level presentation of its Board Chair, Dr Eric Jonasch, on HIF-2 alpha inhibitors, as part of the MSD symposium on the management of clear cell renal cell carcinoma. (2/3)
December 7, 2025 at 12:36 PM
IKCC had the pleasure to listen to the high-level presentation of its Board Chair, Dr Eric Jonasch, on HIF-2 alpha inhibitors, as part of the MSD symposium on the management of clear cell renal cell carcinoma. (2/3)
The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)
December 7, 2025 at 12:36 PM
The IKCC team is fully mobilised for #ESMOAsia25 in Singapore. Dr Munisamy Murallitharan shared the results from the IKCC global patient survey on “knowledge gaps and disparities in kidney cancer across Asia”, during a session chaired by Ravindran Kanesvaran. (1/3)
Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.
December 4, 2025 at 4:13 PM
Today in Singapore, IKCC was honoured to join the APAC Oncology Summit on Genitourinary Cancer, focusing on “Bridging the Molecular Testing Gap to Drive Better Outcomes”. Congratulations to Prof Ravindran Kanesvaran, member of the IKCC Medical Advisory Board, for organising such a high-level event.
We are looking forward to #ESMOAsia25 this week in Singapore. Eric Jonasch, Anne Wilson and Olivier Exertier will represent IKCC at this event with oncology experts from across the Asia-Pacific region.
👉 Excited for #ESMOAsia25 this December in Singapore?
Learn from world-class experts on cancer therapeutics, biomarkers & multidisciplinary care. Be part of shaping oncology’s future in the Asia-Pacific region! 5 – 7 December, Singapore.
⏰ Register now! #esmomeetings
🔗 buff.ly/2teazJd
Learn from world-class experts on cancer therapeutics, biomarkers & multidisciplinary care. Be part of shaping oncology’s future in the Asia-Pacific region! 5 – 7 December, Singapore.
⏰ Register now! #esmomeetings
🔗 buff.ly/2teazJd
December 3, 2025 at 4:10 PM
We are looking forward to #ESMOAsia25 this week in Singapore. Eric Jonasch, Anne Wilson and Olivier Exertier will represent IKCC at this event with oncology experts from across the Asia-Pacific region.
Singapore is really advancing “Integrative Oncology,” combining Western Medicine and Evidence-Based Traditional Chinese Medicine to treat patients holistically. (2/2)
December 2, 2025 at 2:50 PM
Singapore is really advancing “Integrative Oncology,” combining Western Medicine and Evidence-Based Traditional Chinese Medicine to treat patients holistically. (2/2)
On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)
December 2, 2025 at 2:50 PM
On Tuesday, IKCC visited the National Cancer Centre Singapore with Prof Ravindran Kanesvaran and Kwang Cheak Tan, CEO of the Singapore Cancer Society. (1/2)
On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.
November 26, 2025 at 2:25 PM
On Tuesday, IKCC met in Melbourne with Telix to discuss priorities and collaborations related to #KidneyCancer in 2026. Thank you to Simone Leyden for welcoming us at their headquarters.
We welcome the opportunity to work with leaders across Europe to ensure that patient needs, evidence and lived experience remain central to policy and practice.
#EuropeanCancerSummit2025 #PatientAdvocacy #KidneyCancer @europeancancer.bsky.social (2/2)
#EuropeanCancerSummit2025 #PatientAdvocacy #KidneyCancer @europeancancer.bsky.social (2/2)
November 20, 2025 at 6:22 PM
We welcome the opportunity to work with leaders across Europe to ensure that patient needs, evidence and lived experience remain central to policy and practice.
#EuropeanCancerSummit2025 #PatientAdvocacy #KidneyCancer @europeancancer.bsky.social (2/2)
#EuropeanCancerSummit2025 #PatientAdvocacy #KidneyCancer @europeancancer.bsky.social (2/2)
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
November 20, 2025 at 6:22 PM
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
This World Cancer Declaration provides a framework for coordinated action across countries to integrate cancer control into health and development agendas. www.uicc.org/resources/wo... (3/3)
November 20, 2025 at 2:31 PM
This World Cancer Declaration provides a framework for coordinated action across countries to integrate cancer control into health and development agendas. www.uicc.org/resources/wo... (3/3)
Together with 130 UICC members and partners, IKCC outlines a global commitment to reduce cancer mortality and improve equitable access to cancer prevention, diagnosis, treatment, and care. (2/3)
November 20, 2025 at 2:31 PM
Together with 130 UICC members and partners, IKCC outlines a global commitment to reduce cancer mortality and improve equitable access to cancer prevention, diagnosis, treatment, and care. (2/3)
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
November 20, 2025 at 2:31 PM
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
November 19, 2025 at 4:20 PM
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)