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actionkidneycancer.bsky.social
ACTION KIDNEY CANCER
@actionkidneycancer.bsky.social
25 followers 14 following 90 posts
Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006
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actionkidneycancer.bsky.social
A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision.

Read more about the trial here:
actionkidneycancer.org/cambridge-ki...
Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC) - Action Kidney Cancer
A new approach to diagnosing kidney cancer, called the Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC), was trialled at Addenbrooke’s Hospital in Cambridge.
actionkidneycancer.org
December 17, 2025 at 12:01 PM
actionkidneycancer.bsky.social
There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference.
To find out more:
actionkidneycancer.org/.../greeting...
#kidneycancer #bypatientsforpatients
December 17, 2025 at 10:25 AM
actionkidneycancer.bsky.social
Smoking is one of the risk factors for the development of many cancers including #kidneycancer The NHS is launching a Quit smoking campaign this New Year, including an app with a free personal quit plan to help people make healthier choices.
Read more:
actionkidneycancer.org/quit-smoking...
Quit smoking this New Year for a healthier you! - Action Kidney Cancer
Smoking is one of the risk factors for the development of kidney cancer, and many other cancers. To help people make healthier choices and to save cash this New Year, the NHS is launching a Quit Smoki...
actionkidneycancer.org
December 12, 2025 at 7:52 AM
actionkidneycancer.bsky.social
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below:
actionkidneycancer.org/get-involved...
December 8, 2025 at 12:13 PM
actionkidneycancer.bsky.social
(ESMO) has published a patient guide on immune-related side effects and their management.
This will help families affected by kidney cancer better understand immunotherapy-related side effects and management.
To find out more:
actionkidneycancer.org/patient-guid...
Patient guide on immune-related side effects and their management - Action Kidney Cancer
https://actionkidneycancer.org/wp-content/uploads/speaker/post-75279.mp3?cb=1764751995.mp3 The European Society for Medical Oncology (ESMO) has published [...]
actionkidneycancer.org
December 5, 2025 at 11:12 AM
actionkidneycancer.bsky.social
Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing organised by the Pointon family.

For info:

actionkidneycancer.org/event/northe...

#kidneycancer #bypatientsforpatients #StrongerTogether
December 5, 2025 at 10:47 AM
actionkidneycancer.bsky.social
A small study has shown that patients with advanced #kidneycancer who ate a diet high in fibre lived longer when treated with certain cancer drugs called immunotherapies.
Read more:
actionkidneycancer.org/high-fibre-d...
High-Fibre diet may boost immunotherapy activity in advanced kidney cancer patients - Action Kidney Cancer
A recent small study has shown that patients with advanced kidney cancer who ate a diet high in fibre lived longer when treated with immunotherapies.
actionkidneycancer.org
November 18, 2025 at 2:12 PM
actionkidneycancer.bsky.social
Is there someone special in your life you would like to show your appreciation to?

Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below:
justgiving.com/campaign/gif...

#giftaheart #kidneycancer #bypatientsforpatients
November 14, 2025 at 12:08 PM
actionkidneycancer.bsky.social
Please support us by wearing one of our charity wristbands or green ribbon pins, these are a great way to raise awareness of #kidneycancer
To find out more and to make a purchase please follow the link below:
actionkidneycancer.org/get-involved...

#bypatientsforpatients #StrongerTogether
November 11, 2025 at 11:53 AM
actionkidneycancer.bsky.social
Please gift a heart to your friends and family this Christmas. These timeless glass hearts are symbols of kindness, friendship, support and thanks.
For information please follow the link below:
actionkidneycancer.org/get-involved...
#giftaheart #kidneycancer #StrongerTogether
November 7, 2025 at 10:03 AM
actionkidneycancer.bsky.social
We supported the renal oncology CNS and health care professionals from The Royal Surrey Cancer Centre to host a #kidneycancer patient day.
This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more.

#StrongerTogether
October 29, 2025 at 4:15 PM
actionkidneycancer.bsky.social
Some affiliates of the @ikccorg.bsky.social attended the recent European Society for Medical Oncology Congress which was in Berlin. They attended to keep dated with the care and treatment of patients with #kidneycancer
To read the kidney cancer highlights:
actionkidneycancer.org/kidney-cance...
Kidney Cancer Highlights from ESMO 2025 - Action Kidney Cancer
This year’s European Society for Medical Oncology (ESMO) Congress was held from 17-21 October 2025, in Berlin, Germany. The International Kidney Cancer Coalition (IKCC) went to the meeting to keep up ...
actionkidneycancer.org
October 29, 2025 at 3:55 PM
actionkidneycancer.bsky.social
On the 13th October we hosted a #kidneycancer patient day in Sheffield with the Uro-Oncology team at Weston Park Hospital.
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...
October 17, 2025 at 1:43 PM
actionkidneycancer.bsky.social
We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us.
We would also like to thank everyone who contributed to their fund raising.

#kidneycancer #bypatientsforpatients #StrongerTogether
October 17, 2025 at 11:31 AM
actionkidneycancer.bsky.social
Earlier this week we hosted a #kidneycancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust.
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...
October 10, 2025 at 1:57 PM
actionkidneycancer.bsky.social
#Stoptober, started today. People across the country are taking steps to stop smoking.
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober
October 1, 2025 at 12:14 PM
actionkidneycancer.bsky.social
As members of the Coalition for Reducing Bureaucracy in Clinical Trials, we have been working hard to reduce bureaucracy in clinical trials, both for clinical researchers & patients, focussing on: informed consent, safety reporting & regulatory guidelines.
actionkidneycancer.org/coalition-fo...
Coalition for Reducing Bureaucracy in Clinical Trials 2025 Recommendations - Action Kidney Cancer
The safety of a medicine and how well it works are tested in clinical trials. Due to legal requirements, clinical trials have become more and more complex and expensive, with lots of paperwork and ine...
actionkidneycancer.org
September 29, 2025 at 3:12 PM
actionkidneycancer.bsky.social
We've been working hard with the National Institute for Health and Care Excellence, to create guide lines which aim to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal of kidney tumours.
About the guideline:
actionkidneycancer.org/first-nice-g...
First NICE guideline on kidney cancer - Action Kidney Cancer
A new draft guideline, issued by the National Institute for Health and Care Excellence (NICE), aims to reduce variation in treatment between hospitals and prevent unnecessary surgery for the removal o...
actionkidneycancer.org
September 25, 2025 at 10:54 AM
actionkidneycancer.bsky.social
Stoptober starts in one weeks time, to get the support you need to quit for good.
Find out more:
nhs.uk/better-healt...
September 25, 2025 at 8:27 AM
actionkidneycancer.bsky.social
The 2025 NKCA reveals that only 1% of kidney cancer patients in England joined clinical trials from 2020 to 2022. We are raising awareness to help more #kidneycancer patients access innovative treatments through trial participation.
Read more here:
actionkidneycancer.org/audit-of-nhs...
Audit of NHS shows only 1% of kidney cancer patients are enrolled in clinical trials - Action Kidney Cancer
We are pleased to announce the publication of the second National Kidney Cancer Audit (NKCA) State of the Nation Patient and Public Report 2025 from the Royal College of Surgeons of England.
actionkidneycancer.org
September 11, 2025 at 12:42 PM
actionkidneycancer.bsky.social
I is for.....

In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer

Watch the videos:

actionkidneycancer.org/help.../in-o...

#bypatientsforpatients #StrongerTogether
September 10, 2025 at 11:58 AM
actionkidneycancer.bsky.social
A recent study compares real world data on the outcomes of advanced #kidneycancer patients treated with an immunotherapy combination as a first-line treatment followed by a second-line TKI.
To read more:
actionkidneycancer.org/impact-of-fi...
Impact of first-line combination treatment on outcomes of second-line TKI in advanced kidney cancer - Action Kidney Cancer
There is limited information on the outcomes of patients who are treated with an immunotherapy combination as a first-line treatment followed by a tyrosine kinase inhibitor (TKI) as a second-line trea...
actionkidneycancer.org
September 9, 2025 at 11:52 AM
actionkidneycancer.bsky.social
Benmelstobart a new immunotherapy, which blocks the action of the immunosuppressant, PD-L1, in combination with a TKI called anlotinib was compared with sunitinib as first-line treatment for advanced #kidneycancer
Read More:
actionkidneycancer.org/first-line-b...
First-line benmelstobart plus anlotinib versus sunitinib in advanced kidney cancer - Action Kidney Cancer
A new immunotherapy called benmelstobart, which blocks the action of the immunosuppressant, PD-L1, in combination with a tyrosine kinase inhibitor (TKI) called anlotinib was compared with sunitinib as...
actionkidneycancer.org
September 9, 2025 at 11:43 AM
actionkidneycancer.bsky.social
We are delighted that our trustee Samra Turajlic is New Director of the Cancer Research UK Manchester Institute.

#kidneycancer

oncodaily.com/career/samra...
Samra Turajlić Was Named New Director of the CRUK Manchester Institute - OncoDaily
Samra Turajlić Was Named New Director of the CRUK Manchester Institute / cancer, Cancer Research UK, OncoDaily, Oncology, Samra Turajlic
oncodaily.com
September 4, 2025 at 8:09 AM
actionkidneycancer.bsky.social
Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient.

To read:
actionkidneycancer.org/new-immunoth...
September 1, 2025 at 11:59 AM