ACTION KIDNEY CANCER
@actionkidneycancer.bsky.social
Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006
There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference.
To find out more:
actionkidneycancer.org/.../greeting...
#kidneycancer #bypatientsforpatients
To find out more:
actionkidneycancer.org/.../greeting...
#kidneycancer #bypatientsforpatients
December 17, 2025 at 10:25 AM
There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference.
To find out more:
actionkidneycancer.org/.../greeting...
#kidneycancer #bypatientsforpatients
To find out more:
actionkidneycancer.org/.../greeting...
#kidneycancer #bypatientsforpatients
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below:
actionkidneycancer.org/get-involved...
Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below:
actionkidneycancer.org/get-involved...
December 8, 2025 at 12:13 PM
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below:
actionkidneycancer.org/get-involved...
Our glass hearts are a great way to do this, it could not be easier, to find out how to do this, please follow the link below:
actionkidneycancer.org/get-involved...
Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing organised by the Pointon family.
For info:
actionkidneycancer.org/event/northe...
#kidneycancer #bypatientsforpatients #StrongerTogether
For info:
actionkidneycancer.org/event/northe...
#kidneycancer #bypatientsforpatients #StrongerTogether
December 5, 2025 at 10:47 AM
Please save the date for our annual Northern Soul and Motown Charity All Day event on Sunday 10 August in Crewe for a full day of great music and dancing organised by the Pointon family.
For info:
actionkidneycancer.org/event/northe...
#kidneycancer #bypatientsforpatients #StrongerTogether
For info:
actionkidneycancer.org/event/northe...
#kidneycancer #bypatientsforpatients #StrongerTogether
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below:
justgiving.com/campaign/gif...
#giftaheart #kidneycancer #bypatientsforpatients
Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below:
justgiving.com/campaign/gif...
#giftaheart #kidneycancer #bypatientsforpatients
November 14, 2025 at 12:08 PM
Is there someone special in your life you would like to show your appreciation to?
Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below:
justgiving.com/campaign/gif...
#giftaheart #kidneycancer #bypatientsforpatients
Our glass hearts are a great way to do this, it could not be easer, to find out more please follow the link below:
justgiving.com/campaign/gif...
#giftaheart #kidneycancer #bypatientsforpatients
Please support us by wearing one of our charity wristbands or green ribbon pins, these are a great way to raise awareness of #kidneycancer
To find out more and to make a purchase please follow the link below:
actionkidneycancer.org/get-involved...
#bypatientsforpatients #StrongerTogether
To find out more and to make a purchase please follow the link below:
actionkidneycancer.org/get-involved...
#bypatientsforpatients #StrongerTogether
November 11, 2025 at 11:53 AM
Please support us by wearing one of our charity wristbands or green ribbon pins, these are a great way to raise awareness of #kidneycancer
To find out more and to make a purchase please follow the link below:
actionkidneycancer.org/get-involved...
#bypatientsforpatients #StrongerTogether
To find out more and to make a purchase please follow the link below:
actionkidneycancer.org/get-involved...
#bypatientsforpatients #StrongerTogether
Please gift a heart to your friends and family this Christmas. These timeless glass hearts are symbols of kindness, friendship, support and thanks.
For information please follow the link below:
actionkidneycancer.org/get-involved...
#giftaheart #kidneycancer #StrongerTogether
For information please follow the link below:
actionkidneycancer.org/get-involved...
#giftaheart #kidneycancer #StrongerTogether
November 7, 2025 at 10:03 AM
Please gift a heart to your friends and family this Christmas. These timeless glass hearts are symbols of kindness, friendship, support and thanks.
For information please follow the link below:
actionkidneycancer.org/get-involved...
#giftaheart #kidneycancer #StrongerTogether
For information please follow the link below:
actionkidneycancer.org/get-involved...
#giftaheart #kidneycancer #StrongerTogether
We supported the renal oncology CNS and health care professionals from The Royal Surrey Cancer Centre to host a #kidneycancer patient day.
This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more.
#StrongerTogether
This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more.
#StrongerTogether
October 29, 2025 at 4:15 PM
We supported the renal oncology CNS and health care professionals from The Royal Surrey Cancer Centre to host a #kidneycancer patient day.
This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more.
#StrongerTogether
This is a great way for patients and carers to share their experiences, learn about, treatments, dietary advice, exercise and much more.
#StrongerTogether
On the 13th October we hosted a #kidneycancer patient day in Sheffield with the Uro-Oncology team at Weston Park Hospital.
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...
October 17, 2025 at 1:43 PM
On the 13th October we hosted a #kidneycancer patient day in Sheffield with the Uro-Oncology team at Weston Park Hospital.
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...
Thank you to the patients and speakers who joined us on the day, their contribution ensured the day was excellent.
Find out more
actionkidneycancer.org/.../patient-...
We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us.
We would also like to thank everyone who contributed to their fund raising.
#kidneycancer #bypatientsforpatients #StrongerTogether
We would also like to thank everyone who contributed to their fund raising.
#kidneycancer #bypatientsforpatients #StrongerTogether
October 17, 2025 at 11:31 AM
We would like to say a massive thank you to Joanna and Mikaela who completed on the 12th October the Bournemouth Supernova 5K run to raise funds for us.
We would also like to thank everyone who contributed to their fund raising.
#kidneycancer #bypatientsforpatients #StrongerTogether
We would also like to thank everyone who contributed to their fund raising.
#kidneycancer #bypatientsforpatients #StrongerTogether
Earlier this week we hosted a #kidneycancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust.
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...
October 10, 2025 at 1:57 PM
Earlier this week we hosted a #kidneycancer patient day in Truro with the help and support of the staff from Royal Cornwall Trust.
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...
We had speakers on a range of related topics and patients shared their experience of living with kidney cancer.
Read more:
actionkidneycancer.org/.../patient-...
#Stoptober, started today. People across the country are taking steps to stop smoking.
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober
October 1, 2025 at 12:14 PM
#Stoptober, started today. People across the country are taking steps to stop smoking.
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober
Stopping isn't easy - but there is free NHS support, advice and tools that can make your journey easier.
To find out more and get support:
nhs.uk/better-healt...
#Stoptober
Stoptober starts in one weeks time, to get the support you need to quit for good.
Find out more:
nhs.uk/better-healt...
Find out more:
nhs.uk/better-healt...
September 25, 2025 at 8:27 AM
Stoptober starts in one weeks time, to get the support you need to quit for good.
Find out more:
nhs.uk/better-healt...
Find out more:
nhs.uk/better-healt...
I is for.....
In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer
Watch the videos:
actionkidneycancer.org/help.../in-o...
#bypatientsforpatients #StrongerTogether
In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer
Watch the videos:
actionkidneycancer.org/help.../in-o...
#bypatientsforpatients #StrongerTogether
September 10, 2025 at 11:58 AM
I is for.....
In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer
Watch the videos:
actionkidneycancer.org/help.../in-o...
#bypatientsforpatients #StrongerTogether
In our own words, in this series of videos, kidney cancer patients and carers talk frankly about their experiences, emotions and how to live well with a diagnosis of #kidneycancer
Watch the videos:
actionkidneycancer.org/help.../in-o...
#bypatientsforpatients #StrongerTogether
Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient.
To read:
actionkidneycancer.org/new-immunoth...
To read:
actionkidneycancer.org/new-immunoth...
September 1, 2025 at 11:59 AM
Researchers from the University of California in Los Angeles have developed a new kind of immunotherapy that uses specially engineered immune cells that attack #kidneycancer tumours without the need to customise treatment for each individual patient.
To read:
actionkidneycancer.org/new-immunoth...
To read:
actionkidneycancer.org/new-immunoth...
Julia one of our team was delighted to meet and thank three generations of the the Pointon family, Dave, Steve and special helper Ernie, along with Clive Read & Jonnie Briggs from Crewe soul club and venue manager Phil Taylor who made the event a resounding success and raised a fantastic £2056.
August 29, 2025 at 9:15 AM
Julia one of our team was delighted to meet and thank three generations of the the Pointon family, Dave, Steve and special helper Ernie, along with Clive Read & Jonnie Briggs from Crewe soul club and venue manager Phil Taylor who made the event a resounding success and raised a fantastic £2056.
T is for ...
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...
#StrongerTogether #bypatientsforpatients
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...
#StrongerTogether #bypatientsforpatients
August 28, 2025 at 6:52 AM
T is for ...
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...
#StrongerTogether #bypatientsforpatients
Treatment, we have a section on our website where you will find information about available #kidneycancer treatments.
The section includes surgical options, medicines, clinical trials and much more.
actionkidneycancer.org/.../kidney-c...
#StrongerTogether #bypatientsforpatients
We are supporting the One Cancer Voice NHS Cancer Plan campaign which was presented in parliament.
#OneCancerVoice #kidneycancer #StrongerTogether
#OneCancerVoice #kidneycancer #StrongerTogether
August 28, 2025 at 6:38 AM
We are supporting the One Cancer Voice NHS Cancer Plan campaign which was presented in parliament.
#OneCancerVoice #kidneycancer #StrongerTogether
#OneCancerVoice #kidneycancer #StrongerTogether
C is for..
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...
August 20, 2025 at 12:44 PM
C is for..
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...
Clinical trials, if you would like to find out more about #kidneycancer trials, see where they are being held in the UK and read real patients experiences of being on one, we have a section on our website that provides this information.
actionkidneycancer.org/res.../about...
In this series of 21 short videos, experts in the treatment and care of #kidneycancer patients answer your questions
Why not grab a cuppa, watch a video and have some of your questions answered.
To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether
Why not grab a cuppa, watch a video and have some of your questions answered.
To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether
August 13, 2025 at 11:01 AM
In this series of 21 short videos, experts in the treatment and care of #kidneycancer patients answer your questions
Why not grab a cuppa, watch a video and have some of your questions answered.
To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether
Why not grab a cuppa, watch a video and have some of your questions answered.
To watch the videos:
actionkidneycancer.org/help-support...
#StrongerTogether
A massive THANK YOU to the Pointon Family, the DJ's and all the volunteers who supported the 6th Northern Soul and Motown Charity Event in Crew on the 10th August. They raised a fantastic £2,056.04 for us an everyone enjoyed a fantastic day of music and dance.
#kidneycancer
#kidneycancer
August 12, 2025 at 2:36 PM
A massive THANK YOU to the Pointon Family, the DJ's and all the volunteers who supported the 6th Northern Soul and Motown Charity Event in Crew on the 10th August. They raised a fantastic £2,056.04 for us an everyone enjoyed a fantastic day of music and dance.
#kidneycancer
#kidneycancer
A massive THANK YOU to Michelle & her sister Donna who recently completed a skydive in memory of their beloved sister Sarah to raise funds for us. Thanks to their friends and family who helped them raise an amazing £1895.
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether
July 31, 2025 at 12:15 PM
A massive THANK YOU to Michelle & her sister Donna who recently completed a skydive in memory of their beloved sister Sarah to raise funds for us. Thanks to their friends and family who helped them raise an amazing £1895.
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether
Read more: kcsn.enthuse.com/pf/michelle-...
#kidneycancer #StrongerTogether
There are still some tickets for this years 5th Anniversary Northern Soul Charity Event
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether
July 29, 2025 at 10:45 AM
There are still some tickets for this years 5th Anniversary Northern Soul Charity Event
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether
We are delighted that the Pointon family have organised another fabulous event, the sixth, to raise funds for us.
Please buy your tickets:
actionkidneycancer.org/.../norther-...
#kidneycancer #StrongerTogether
Would like to help us support patients and families affected by #kidneycancer If so, why not host a Mad Hatters Tea Party?
To get started please follow the link below, where you will find lots of great ideas or email Karen@actionkidneycancer.org
actionkidneycancer.org/get.../mad-h...
To get started please follow the link below, where you will find lots of great ideas or email Karen@actionkidneycancer.org
actionkidneycancer.org/get.../mad-h...
June 26, 2025 at 1:07 PM
Would like to help us support patients and families affected by #kidneycancer If so, why not host a Mad Hatters Tea Party?
To get started please follow the link below, where you will find lots of great ideas or email Karen@actionkidneycancer.org
actionkidneycancer.org/get.../mad-h...
To get started please follow the link below, where you will find lots of great ideas or email Karen@actionkidneycancer.org
actionkidneycancer.org/get.../mad-h...
Thank you FROGS ( Friends Of Renal Oncology Group) for taking part in this years @ikccorg.bsky.social #WKCD2025
They joined the global symposium and wore green to raise awareness of #kidneycancer who new there are so many shades!
More about patients groups:
actionkidneycancer.org/help-support...
They joined the global symposium and wore green to raise awareness of #kidneycancer who new there are so many shades!
More about patients groups:
actionkidneycancer.org/help-support...
June 25, 2025 at 1:09 PM
Thank you FROGS ( Friends Of Renal Oncology Group) for taking part in this years @ikccorg.bsky.social #WKCD2025
They joined the global symposium and wore green to raise awareness of #kidneycancer who new there are so many shades!
More about patients groups:
actionkidneycancer.org/help-support...
They joined the global symposium and wore green to raise awareness of #kidneycancer who new there are so many shades!
More about patients groups:
actionkidneycancer.org/help-support...
More than 500 people have already viewed yesterdays @ikccorg.bsky.social Global Patient & Carer Symposium! To watch the recording please follow the link:
actionkidneycancer.org/get-involved...
#WKCD2025 #kidneycancer
actionkidneycancer.org/get-involved...
#WKCD2025 #kidneycancer
June 20, 2025 at 7:26 AM
More than 500 people have already viewed yesterdays @ikccorg.bsky.social Global Patient & Carer Symposium! To watch the recording please follow the link:
actionkidneycancer.org/get-involved...
#WKCD2025 #kidneycancer
actionkidneycancer.org/get-involved...
#WKCD2025 #kidneycancer