International Kidney Cancer Coalition
@ikccorg.bsky.social
International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
https://ikcc.org/
https://ikcc.org/
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
November 20, 2025 at 6:22 PM
Claudia Ungarelli, IKCC’s Vice-Chair, is attending the European Cancer Summit 2025 this week in Brussels. This year’s theme, "Cancer in a Changing Global Landscape: Challenges and Commitments,” underscores the importance of strong collaboration and aligned action. (1/2)
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
November 20, 2025 at 2:31 PM
At the World Cancer Leader's Summit in Melbourne, IKCC is honoured to endorse the World Cancer Declaration 2025–2035. (1/3)
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
November 19, 2025 at 4:20 PM
This week at the World Cancer Leaders’ Summit in Melbourne, IKCC is represented by Olivier Exertier, Anne Wilson, and Carmen Vallejo Auste, with Vandana Gupta from the V Care Foundation also in attendance. (1/2)
The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)
November 18, 2025 at 3:52 PM
The start of November marked several leadership changes in the IKCC Board of Directors. (1/10)
Congratulations to Dr Michael Jewett, our Past Chair, on receiving the Nicholas J. Vogelzang Humanitarian Award at #IKCSNA25! This award was named after the late co-founder of the Kidney Cancer Association, and we were honoured to be at the event where he received this prestigious recognition. (1/2)
November 17, 2025 at 7:55 PM
Congratulations to Dr Michael Jewett, our Past Chair, on receiving the Nicholas J. Vogelzang Humanitarian Award at #IKCSNA25! This award was named after the late co-founder of the Kidney Cancer Association, and we were honoured to be at the event where he received this prestigious recognition. (1/2)
It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey.
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
November 15, 2025 at 8:53 PM
It's great to be at #IKCSNA25 in Denver. We've met with many leaders, including Gretchen Vaughan, President & CEO of the Kidney Cancer Association, and presented a poster on the IKCC Global Patient Survey.
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
(Photos: Dr Eric Jonasch, Dr Michael Jewett and Gretchen Vaughan)
#KidneyCancer
We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)
November 13, 2025 at 4:18 PM
We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)
We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit
November 13, 2025 at 3:59 PM
We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit
Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025
November 11, 2025 at 6:08 PM
Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025
We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.
November 11, 2025 at 5:42 PM
We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.
It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer
November 11, 2025 at 2:27 PM
It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer
People with kidney cancer are concerned about kidney function. (1/4)
November 5, 2025 at 12:15 PM
People with kidney cancer are concerned about kidney function. (1/4)
LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)
November 3, 2025 at 3:11 PM
LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)
IKCC is pleased to share the Summary of Kidney Cancer Highlights from #ESMO25 created by members of the IKCC Medical Advisory Board. Learn more in this LinkedIn article: www.linkedin.com/pulse/reflec... #KidneyCancer
October 29, 2025 at 5:30 PM
IKCC is pleased to share the Summary of Kidney Cancer Highlights from #ESMO25 created by members of the IKCC Medical Advisory Board. Learn more in this LinkedIn article: www.linkedin.com/pulse/reflec... #KidneyCancer
IKCC presented a poster discussing results from the 2025 Global Patient Survey at #JADPROLive. This poster focused on shared decision-making and patient understanding of their #KidneyCancer and treatment options, as well as the patient adherence with oral targeted therapies as prescribed. (1/2)
October 29, 2025 at 4:42 PM
IKCC presented a poster discussing results from the 2025 Global Patient Survey at #JADPROLive. This poster focused on shared decision-making and patient understanding of their #KidneyCancer and treatment options, as well as the patient adherence with oral targeted therapies as prescribed. (1/2)
IKCC was happy to represent the voice of #KidneyCancer patients at the Patient Advocate Council organised by the Advanced Practitioner Society for Hematology and Oncology (APSHO). APSHO is actively engaging patient advocates to bring the patient voice to its members. (1/2)
October 24, 2025 at 3:51 PM
IKCC was happy to represent the voice of #KidneyCancer patients at the Patient Advocate Council organised by the Advanced Practitioner Society for Hematology and Oncology (APSHO). APSHO is actively engaging patient advocates to bring the patient voice to its members. (1/2)
Following an event last week at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. IKCC kindly invites you to complete the survey by the end of October 2025. (1/2)
October 24, 2025 at 3:39 PM
Following an event last week at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. IKCC kindly invites you to complete the survey by the end of October 2025. (1/2)
We were honoured to present a poster at #ESMO25 on the IKCC Global Patient Survey. You can read the Highlights Report on our website: ikcc.org/wp-content/u...
Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).
#KidneyCancer
Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).
#KidneyCancer
October 22, 2025 at 2:42 PM
We were honoured to present a poster at #ESMO25 on the IKCC Global Patient Survey. You can read the Highlights Report on our website: ikcc.org/wp-content/u...
Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).
#KidneyCancer
Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).
#KidneyCancer
Under the guidance of Axel Bex (Vice-Chair of IKCC MAB), key opinion leaders in #KidneyCancer convened at #ESMO25 in Berlin to discuss the next steps for the International Neoadjuvant Kidney Cancer Consortium.
October 21, 2025 at 3:36 PM
Under the guidance of Axel Bex (Vice-Chair of IKCC MAB), key opinion leaders in #KidneyCancer convened at #ESMO25 in Berlin to discuss the next steps for the International Neoadjuvant Kidney Cancer Consortium.
The Medical Advisory Board (MAB) of IKCC convened at #ESMO25 in Berlin to discuss priorities for 2026. The MAB Chair, Dr Stênio de Cássio Zequi (Brazil), and Vice-Chair, Prof Axel Bex (UK/NL), expressed their gratitude to four colleagues who have completed their terms: (1/2)
October 21, 2025 at 11:27 AM
The Medical Advisory Board (MAB) of IKCC convened at #ESMO25 in Berlin to discuss priorities for 2026. The MAB Chair, Dr Stênio de Cássio Zequi (Brazil), and Vice-Chair, Prof Axel Bex (UK/NL), expressed their gratitude to four colleagues who have completed their terms: (1/2)
To launch #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen organised a collaborative event on shared decision-making with other global cancer coalitions. (1/2)
October 17, 2025 at 2:33 PM
To launch #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen organised a collaborative event on shared decision-making with other global cancer coalitions. (1/2)
Olivier Exertier, IKCC’s Executive Director, presented yesterday in Barcelona, on behalf of the DISCERN project, his contribution to the Cluster "Understanding Risk Factors & Determinants" of cancer with the participation of five European consortia. (1/2)
October 16, 2025 at 5:00 PM
Olivier Exertier, IKCC’s Executive Director, presented yesterday in Barcelona, on behalf of the DISCERN project, his contribution to the Cluster "Understanding Risk Factors & Determinants" of cancer with the participation of five European consortia. (1/2)
We are excited to announce a new Memorandum of Understanding with the Max Foundation. Learn more in this LinkedIn article: www.linkedin.com/pulse/max-fo... #KidneyCancer @themaxfoundation.org
October 14, 2025 at 3:46 PM
We are excited to announce a new Memorandum of Understanding with the Max Foundation. Learn more in this LinkedIn article: www.linkedin.com/pulse/max-fo... #KidneyCancer @themaxfoundation.org
When asked if they were as involved as they wanted to be in decisions about their treatment, a majority (55%) said ‘Yes, definitely’ in the most recent Global Patient Survey. This is an increase from the last survey in 2022, when only 48% said the same. (1/2)
October 13, 2025 at 10:57 AM
When asked if they were as involved as they wanted to be in decisions about their treatment, a majority (55%) said ‘Yes, definitely’ in the most recent Global Patient Survey. This is an increase from the last survey in 2022, when only 48% said the same. (1/2)
Board member Margie Hickey led the IKCC quarterly Connect and Share webinar, with participants joining from four continents. The topic discussed was how to work with the pharmaceutical industry. (1/2)
October 3, 2025 at 1:22 PM
Board member Margie Hickey led the IKCC quarterly Connect and Share webinar, with participants joining from four continents. The topic discussed was how to work with the pharmaceutical industry. (1/2)