HIV Outcomes - Beyond Viral Suppression
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hivoutcomes.bsky.social
HIV Outcomes - Beyond Viral Suppression
@hivoutcomes.bsky.social
We are a pan-European multi-stakeholder initiative focusing on the health-related quality of life of people living with HIV

🔗 hivoutcomes.eu
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🔜𝗪𝗼𝗿𝗹𝗱 𝗔𝗜𝗗𝗦 𝗗𝗮𝘆 𝗰𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗣𝗮𝗿𝗹𝗶𝗮𝗺𝗲𝗻𝘁

The EU is at a crossroads. It is a time for 𝗮 𝗻𝗲𝘄 𝗛𝗜𝗩 𝗿𝗲𝘀𝗽𝗼𝗻𝘀𝗲, promoting 𝗲𝗾𝘂𝗶𝘁𝘆 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗴𝗲𝗻𝗱𝗲𝗿𝘀 and across the 𝗹𝗶𝗳𝗲𝘀𝗽𝗮𝗻.

📅 Wednesday 10 December 2025
🕙 10:00 –12:00 CET
📍 European Parliament InfoHub, Brussels
🔗 Register here: shorturl.at/J1o0Z
Europe can learn from Romania's prioritisation of long-term care for people living with HIV

In its response, few people have been as pioneering as 𝗣𝗿𝗼𝗳. 𝗔𝗱𝗿𝗶𝗮𝗻 𝗦𝘁𝗿𝗲𝗶𝗻𝘂-𝗖𝗲𝗿𝗰𝗲𝗹, President of the Romanian Senate Healthcare Committee 🇷🇴

📍10 Dec, 10:00-12:00, Brussels
🔗 Register here: shorturl.at/J1o0Z
November 13, 2025 at 12:06 PM
From family planning to menopause, living with HIV as a woman comes with significant yet overlooked challenges. Come hear from Nicoletta Policek, a leading voice for women living with HIV.

🗓️ 10 Dec. 2025
📍 European Parliament InfoHub, Brussels
🔗 Register here: shorturl.at/J1o0Z
November 13, 2025 at 12:05 PM
An academic leader in HIV, comorbidities, NCDs and healthy ageing, our esteemed co-chair Prof. Caroline Sabin (@ucl.ac.uk) will speak to the need for integrated, evidence-based care models at our World AIDS Day event.

📍10 Dec, 10:00-12:00, Brussels
🔗 Register here: shorturl.at/J1o0Z
October 30, 2025 at 2:56 PM
Bringing a blend of scientific knowledge, community advocacy and policy action, Amanita Calderon-Cifuentes from @tgeuorg.bsky.social will be joining us as moderator for our upcoming World AIDS Day event👋

🗓️ 10 December 2025
📍 European Parliament InfoHub, Brussels
🔗 Register here: shorturl.at/J1o0Z
October 23, 2025 at 3:31 PM
HIV Outcomes’ in-country initiatives in 🇮🇹, 🇷🇴, and 🇬🇧 continue to champion recognition of the third sector as an essential part of the HIV response.

Want to learn more & share your experiences? Join us for the HIV Outcomes Flash Talks!
📍Community Corner, #EACS2025
🗓 17 Oct, 12:05–12:30
October 16, 2025 at 2:45 PM
🧠 Today, for #WorldMentalHealthDay, we sound the alarm that the mental health of people living with HIV is heavily affected by stigma, often leading to discrimination, abuse, avoidance of healthcare services, and poorer HRQoL.

Action is needed; read more in our Good Practices: tinyurl.com/yj9nt383
Compendium of Good Practices
This is the Compendium of Good Practices landing page. Please do not remove it.
hivoutcomes.eu
October 10, 2025 at 3:12 PM
🔜𝗪𝗼𝗿𝗹𝗱 𝗔𝗜𝗗𝗦 𝗗𝗮𝘆 𝗰𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗣𝗮𝗿𝗹𝗶𝗮𝗺𝗲𝗻𝘁

The EU is at a crossroads. It is a time for 𝗮 𝗻𝗲𝘄 𝗛𝗜𝗩 𝗿𝗲𝘀𝗽𝗼𝗻𝘀𝗲, promoting 𝗲𝗾𝘂𝗶𝘁𝘆 𝗯𝗲𝘁𝘄𝗲𝗲𝗻 𝗴𝗲𝗻𝗱𝗲𝗿𝘀 and across the 𝗹𝗶𝗳𝗲𝘀𝗽𝗮𝗻.

📅 Wednesday 10 December 2025
🕙 10:00 –12:00 CET
📍 European Parliament InfoHub, Brussels
🔗 Register here: shorturl.at/J1o0Z
October 2, 2025 at 2:37 PM
The #UNAIDS #UNGA side-event on people-centred primary care reminded us that vertical care models are not enough: integration is necessary for dignified, accessible, sustainable care. For people living and ageing with HIV, the inclusion of NCDs & MH in their care is crucial.
September 29, 2025 at 4:27 PM
Proposals to phase out #UNAIDS by 2026 are threatening decades of progress. With 40 million people living with HIV globally and funding certainty eroding, UNAIDS leadership is vital. There is no time for complacency – the EU must step up to ensure a strong HIV/AIDS response and meet the 2030 goal.
September 25, 2025 at 9:56 AM
People living with HIV are 2x more likely to develop CVDs and have a 50% higher risk of heart attack. 🫀

The upcoming #EUCardiovascularPlan must recognise and address HIV as a risk factor – read more in our response to the call for evidence: shorturl.at/ERHFV.

@ec.europa.eu
September 18, 2025 at 12:31 PM
Our response to the @ec.europa.eu’s consultation on the European Pillar of Social Rights Action Plan calls for action in 6 key areas important for people living with HIV: 🩺 healthcare, 🕰️ long-term care, 🏥 access to services, 🧑‍🧒 social protection, ♀gender equality, and 💼 work conditions.
September 15, 2025 at 1:36 PM
☀️ Summer is over – what have we got in store?

We're prepping for #EACS2025, to host a HRQoL meeting, and to mark #WorldAIDSDay with a @europarl.europa.eu discussion on gender-informed realities of living w/ HIV across the lifespan.

And don't forget to submit your good practices! shorturl.at/rHyNo
September 12, 2025 at 9:24 AM
Reposted by HIV Outcomes - Beyond Viral Suppression
For some people living with HIV, stigma can negatively impact:

🏥💊seeking treatment & attending health appointments
💕relationships
🧠mental health & seeking support for it

This doesn't need to happen. Learn more about what we do to tackle this:

nat.org.uk/what-we-d...
September 1, 2025 at 7:00 AM
BBC News featured HIV Outcomes UK report, ‘HIV Services at the Crossroads.’

Cutting funding for voluntary services impedes our efforts to end the HIV epidemic by 2030. We cannot allow this trend to continue.

Full BBC article and clip 👉 shorturl.at/1ysSM
Full report 👉 shorturl.at/P85EK

@nat.org.uk
August 14, 2025 at 2:30 PM
📣 Call for Good Practices in HIV Care!

Since 2018, our virtual Compendium has showcased practices that make a difference in the lives of people with HIV.

Got a standout initiative? Share it & inspire others!

📝 Submit it by 17 September: forms.gle/rbboxnNSQaBd...

More info: shorturl.at/7OdKD
July 31, 2025 at 12:37 PM
1 year since our Call for an EU Action Plan on HIV/AIDS.

Since, the global HIV response has been weakened when it needs to be reinforced. People living with HIV cannot be left behind!

🔎 Read more about our priorities and recommendations for EU policymakers: shorturl.at/Xt7Dm

#HRQoL #EndHIVStigma
HIV Outcomes Call to Action | Recommit to ending the AIDS epidemic by 2030: the need for a new EU Action Plan on HIV/AIDS
If Europe is to achieve the UNAIDS 2030 target for ending the HIV/AIDS epidemic, the new European institutions must play their part by renewing the EU’s committment to the fight against HIV/AIDS. H...
shorturl.at
July 23, 2025 at 9:24 AM
Call for Good Practices in HIV Care!

We're expanding our Good Practices Compendium and want input! shorturl.at/7OdKD

We're looking for innovative ways to improve the HRQoL of people living with HIV.

💡 Help us highlight what works and inspire change across Europe.
📝 Submit here: shorturl.at/rHyNo
Good Practice submission
Thank you for your interest in contributing to the HIV Outcomes Compendium of Good Practices, where we collate examples of initiatives, best practices, research projects and more which contribute to t...
forms.gle
July 18, 2025 at 11:58 AM
A very touching webinar with EATG spotlighted several initiatives to ensure healthy ageing with HIV.

Better communication between patients and clinicians, such as through #PROMs, would help clinicians understand the priorities of people living with HIV, especially the impact of stigma.
July 8, 2025 at 3:39 PM
Reminder to register to Monday’s webinar! Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

EATG has put together a really excellent panel, so make sure to tune in at 16:00 CEST.

🔗 Register here: shorturl.at/U0d5P
Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

🗓️ 7 July (4pm CEST)
🔗 shorturl.at/U0d5P

People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey
July 4, 2025 at 3:09 PM
Great roundtable with EACS at the European Parliament.

Europe needs a more unified HIV response, with quality of life, ageing with dignity, mental health and freedom from stigma at its heart.

@eacsociety.bsky.social @krzysztofsmiszek.bsky.social @rbiedron.bsky.social @socialistsanddemocrats.eu
July 3, 2025 at 9:38 AM
Excited to participate in an EATG webinar: Empowering ageing and older people living with HIV: enduring gaps and emerging opportunities.

🗓️ 7 July (4pm CEST)
🔗 shorturl.at/U0d5P

People are living longer with HIV. We can empower them to become decision-makers in their own HIV care and ageing journey
June 27, 2025 at 1:25 PM
We've submitted evidence to @ec.europa.eu's LGBTIQ equality strategy 🏳️‍🌈 shorturl.at/c242S

LGBTIQ+ communities are key pillars in the HIV response. We need the Strategy to:
🚫 Address stigma + discrimination
🩺 Promote #HRQoL
🧑‍🧒 Support long-term care
📉 Collect more data
🤝 Involve + sustain communities
June 25, 2025 at 4:33 PM
Thanks so much for hosting us @nat.org.uk!

You and our other in-country initiatives have done some outstanding work in advocating for the health-related quality of life of people living with HIV.

Keep up the good work 👏
This week, we hosted the @hivoutcomes.bsky.social strategic meeting to strengthen collaboration across national and European #HIV initiatives.

With NAT providing the secretariat for HIV Outcomes UK, we shared insights and helped develop advocacy strategies with partners from the continent.
June 20, 2025 at 7:27 AM
Exciting day in London, as we hosted our colleagues across Europe, 🇮🇹IT 🇷🇴RO 🇳🇱NL & 🇬🇧UK. We discussed:

👉 the global HIV situation, where funding cuts threaten progress and millions of lives
👉 ongoing voluntary sector research
👉 our upcoming 10th anniversary
👉 Welcomed a new initiative – stay tuned!
June 17, 2025 at 3:06 PM
Reposted by HIV Outcomes - Beyond Viral Suppression
Great presentation from James from @nat.org.uk about the findings of the @hivoutcomes.bsky.social research on the financial crisis facing the #HIV voluntary sector, who provide an essential complement to clinical care, particularly in providing #PeerSupport. #NHIVNA2025
June 12, 2025 at 3:26 PM