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@forseps.bsky.social
⚠️ #MultipleSclerosis has #NoCure

#SmoulderingMS
#SEP #ScléroseEnPlaques /

#HERVs / Human endogenous retrovirus HERV-W in #MS

NoDM #QuitX 01/20/2025 ✅
Pinned
« pHERV-W envelope protein fuels microglial cell-dependent damage of myelinated axons in #MultipleSclerosis »

www.pnas.org/doi/abs/10.1...
pHERV-W envelope protein fuels microglial cell-dependent damage of myelinated axons in multiple sclerosis | PNAS
Axonal degeneration is central to clinical disability and disease progression in multiple sclerosis (MS). Myeloid cells such as brain-resident micr...
www.pnas.org
Reposted by forSEPs
A new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors.

www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
www.nationalmssociety.org
July 25, 2025 at 5:27 PM
Reposted by forSEPs
You had MS even before you had symptoms. This study found increased absenteeism from work 6 years prior to diagnosis. jnnp.bmj.com/content/earl...
Prodromal phase of multiple sclerosis: evidence from sickness absence patterns before disease onset – a matched cohort study
Background We aimed to investigate the prodromal phase of multiple sclerosis (MS) by investigating annual sickness absence rates before MS onset. Methods A retrospective cohort study was conducted us...
jnnp.bmj.com
June 29, 2025 at 4:12 PM
Reposted by forSEPs
#BrainHealth#TimeMatters: Multiple Sclerosis, NMOSD, MOGAD, and Related Conditions. 2024 report

Changing the management and outcome of MS and related disorders, one policy at a time. Please download, read, copy, distribute, and act now.
buff.ly/LNAFNp0
June 27, 2025 at 11:33 AM
✅️
How to block JD Vance on Bluesky
June 19, 2025 at 12:29 PM
Reposted by forSEPs
Multiple Sclerosis In India: A Neurological Battle Beyond The Surface

Last Updated:June 15, 2025, 11:54 IST The progression of multiple sclerosis can be unpredictable, as some individuals show mild symptoms while others show varying degrees of disability. The symptoms include fatigue, vision…
Multiple Sclerosis In India: A Neurological Battle Beyond The Surface
Last Updated:June 15, 2025, 11:54 IST The progression of multiple sclerosis can be unpredictable, as some individuals show mild symptoms while others show varying degrees of disability. The symptoms include fatigue, vision problems, and muscle weakness. Multiple sclerosis is a neurological disorder that occurs when the immune system mistakenly attacks the protective sheath surrounding the nerves in the brain and spinal cord. This causes inflammation and scarring, interfering with the messages sent between the brain and the rest of the body. The progression of the disease can be very unpredictable, as some individuals have mild symptoms, while others may have worsening disability.
10bmnews.com
June 15, 2025 at 6:43 AM
Reposted by forSEPs
Country Star Cancels Show Due to Side Effects From Multiple Sclerosis Treatment

https://www.inbella.com/1100241/country-star-cancels-show-due-to-side-effects-from-multiple-sclerosis-treatment/

In 1993, Clay Walker struck gold with his debut single “What’s It to You,” sending it to the top of …
Country Star Cancels Show Due to Side Effects From Multiple Sclerosis Treatment - INBELLA
In 1993, Clay Walker struck gold with his debut single “What’s It to You,” sending it to the top of the country music charts. The ’90s country music mainstay
www.inbella.com
June 15, 2025 at 11:44 AM
Reposted by forSEPs
Despite appearing outwardly healthy, children with #MS showed DNA patterns indicating they were biologically older than their peers #EpigeneticAging #MultipleSclerosis

buff.ly/lXRELoP
UC San Diego Researchers Find Evidence of Accelerated Aging in Children with Multiple Sclerosis
The study focused on children and teenagers not yet impacted by the processes of normal aging and age-related illnesses like hypertension and diabetes. Despite appearing outwardly healthy, children…
buff.ly
June 9, 2025 at 4:05 PM
Bad news, #MultipleSclerosis has no cure & the prevalence worldwide is rising according to several publications.

FYI @italoromeno.bsky.social let's hope that they can sell their technology soon, we need a DMT to neutralize the pHERV-w env, & tackle the neurodegeneration in #MS.

Otherwise 😰
Bonjour 👋

Je NAGE DANS LE BONHEUR 😭

Je viens d'apprendre que le médicament 💊 en développement qui aurait pu agir sur l'aggravation du #handicap, #SEP, me sauver de l'inéluctable, risque de passer dans la 🗑 🚮 des débâcles financières, faute de 💰💰💰

www.businesswire.com/news/home/20...
GeNeuro SA Announces Definitive Debt-Restructuring Moratorium
Regulatory News: GeNeuro (Euronext Paris: CH0308403085 - GNRO), a biopharmaceutical company developing new treatments for neurodegenerative and autoimmune di...
www.businesswire.com
June 4, 2025 at 12:29 PM
😤 bad news

"...Lead author Dr Natalia Boven, a postdoctoral fellow from the University’s COMPASS Research Centre, says the study found the MS prevalence rate had climbed to 96.6 per 100,000 people as of June 2022, an increase from 72.4 per 100,000 in 2006.

👇

auckland.scoop.co.nz/2025/06/mult...
Auckland.Scoop » Multiple Sclerosis Prevalence On The Sharp Increase: Study
auckland.scoop.co.nz
June 4, 2025 at 12:15 PM
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Oui la #SEP c'est de la m. Et ça peut tuer jeune, ça me fout en colère qu'on ne pousse pas la et recherche, quel gâchis 😡😡

👇

www.dailymail.co.uk/sport/footba...
Former footballer dies aged 45 after 11-year battle with MS
Tom Youngs passed away on Sunday evening at a hospice in Bury St Edmunds. He played for Cambridge United, Northampton Town, Leyton Orient, and Bury.
www.dailymail.co.uk
June 2, 2025 at 12:16 PM
Reposted by forSEPs
NOBEL SYMPOSIUM™ Multiple Sclerosis: Past, Present and Future Treatments

What do you think of the programme? Have your say => buff.ly/s2JRZbq
NOBEL SYMPOSIUM™ Multiple Sclerosis: Past, Present and Future Treatments
2nd-5th of June 2025 | Jacob Berzelius lecture hall | Stockholm, Sweden
gavingiovannoni.substack.com
June 2, 2025 at 8:00 AM
Reposted by forSEPs
Accelerated approval of neurology drugs is under scrutiny such as controversial FDA approvals of aducanumab (Aduhelm) and eteplirsen (Exondys 51). Do you favor accelerated approval or a strict requirement of class Ia evidence? journals.lww.com/neurotodayon...
FDA Accelerated Approvals Are Under Scrutiny: Neurology... : Neurology Today
An abstract is unavailable.
journals.lww.com
May 30, 2025 at 12:21 AM
Reposted by forSEPs
Accessoirement les « lourdauds » du clip, je ne les compte plus…

Hier soir, me suis fait aboyer par deux petits chiens, que ma 🩼 dérangeait, selon leur propriétaire.

Rien dit mais pensé très fort:

🤬🤬 🤬🤬
May 30, 2025 at 11:56 AM
Reposted by forSEPs
Regardez ce clip de la campagne de sensibilisation 2025 fait pae la Société Suisse de la Sclérose En Plaques

Je ne peux toujours pas voir ça sans avoir envie de hurler ma révolte face aux handicaps inévitables et à l'aggravation constante de cette maladie de m.

youtu.be/o-auua3V76o?...
Journée Mondiale de la SEP 2025 – rendre visible l’invisible
YouTube video by Société suisse de la sclérose en plaques
youtu.be
May 30, 2025 at 11:39 AM
Reposted by forSEPs
🧠Today is World MS Day 💙
Re-sharing one of my first infographics to raise awareness of multiple sclerosis and its many invisible symptoms.

#WorldMSDay #MultipleSclerosis #MSAwareness
May 30, 2025 at 9:33 AM
Reposted by forSEPs
"Aujourd'hui, c'est la Journée mondiale de la sclérose en plaques Je partage à nouveau l'une de mes premières infographies (pour sensibiliser le public à la sclérose en plaques et à ses nombreux symptômes invisibles) :"

#SEP
#ScléroseEnPlaques
#Journée Mondiale SEP 2025
#Handicap
#Incurable

👇👇
🧠Today is World MS Day 💙
Re-sharing one of my first infographics to raise awareness of multiple sclerosis and its many invisible symptoms.

#WorldMSDay #MultipleSclerosis #MSAwareness
May 30, 2025 at 11:39 AM
"How many children and adolescents are living with MS across the world?"

👇
www.msif.org/news/2025/02...
How many children and adolescents are living with MS across the world? - MS International Federation
www.msif.org
May 27, 2025 at 12:12 PM
"World MS Day: How Breakthroughs in Diagnostics Are Shaping MS Treatment"

www.metropolisindia.com/blog/prevent...
World MS Day: Theme, Importance & Success Stories
Discover how early MS diagnosis is transforming lives. This World MS Day, learn about the breakthroughs giving hope to millions living with multiple sclerosis.
www.metropolisindia.com
May 27, 2025 at 12:08 PM
Reposted by forSEPs
Are doctors missing early signs of pediatric multiple sclerosis. In this study, children subsequently diagnosed with MS had years of increased medical care utilization. pubmed.ncbi.nlm.nih.gov/40407117/
Health care use preceding pediatric multiple sclerosis: A population-based study from Ontario, Canada - PubMed
Youth with pediatric-onset MS exhibit increased health care use from birth. Early life may be a risk period for MS. A prodromal phase may emerge 6 years before the onset of typical MS symptoms.
pubmed.ncbi.nlm.nih.gov
May 26, 2025 at 3:05 AM