The MS Wire
@themswire.bsky.social
I’m a retired Associated Press broadcast journalist who writes about multiple sclerosis and has lived with MS for 45+ years. My #MS blog is www.themswire.com. My book is “The Multiple Sclerosis Toolbox.”
Artificial intelligence has been moving into healthcare. Can it used to make MRIs shorter and more descriptive?
edtobias.substack.com/p/shorter-be...
#multiplesclerosis #disability #AI #healthcare
edtobias.substack.com/p/shorter-be...
#multiplesclerosis #disability #AI #healthcare
Shorter, better MRIs possible with an AI assist?
Anyone living with multiple sclerosis (MS), or who is in the diagnostic process, has been through a magnetic resonance imaging (MRI) scan; probably several.
edtobias.substack.com
November 6, 2025 at 3:40 PM
Artificial intelligence has been moving into healthcare. Can it used to make MRIs shorter and more descriptive?
edtobias.substack.com/p/shorter-be...
#multiplesclerosis #disability #AI #healthcare
edtobias.substack.com/p/shorter-be...
#multiplesclerosis #disability #AI #healthcare
Forty-five MS years and still counting!
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
Still hangin' in after all these years
I was supposed to be dead by now, or so statistics said.
open.substack.com
September 26, 2025 at 6:31 PM
Forty-five MS years and still counting!
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
Is there an age at which there’s no point in using an #ms disease modifying treatment? Here’s my opinion. open.substack.com/pub/edtobias...
#multiplesclerosis
#multiplesclerosis
When is it time to say "when" for an MS treatment?
Using disease modifying therapies to treat older people, like me, who have multiple sclerosis isn’t a simple choice.
open.substack.com
August 16, 2025 at 2:53 AM
Is there an age at which there’s no point in using an #ms disease modifying treatment? Here’s my opinion. open.substack.com/pub/edtobias...
#multiplesclerosis
#multiplesclerosis
A new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors.
www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis
www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
www.nationalmssociety.org
July 25, 2025 at 5:27 PM
A new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors.
www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis
www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis
A clinical trial of an oral med to counter #multiplesclerosis spasticity is recruiting. 48 centers spanning half a dozen countries. edtobias.substack.com/publish/post...
July 18, 2025 at 10:03 PM
A clinical trial of an oral med to counter #multiplesclerosis spasticity is recruiting. 48 centers spanning half a dozen countries. edtobias.substack.com/publish/post...
BrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some of my #multiplesclerosis symptoms. #disability #cognition
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
Using BrainHQ to try to improve my MS brain
BrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some MS symptoms.
open.substack.com
July 16, 2025 at 5:14 PM
BrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some of my #multiplesclerosis symptoms. #disability #cognition
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
The FDA is starting to replace lab animals with AI. Is it the right thing to do? #multiplesclerosis #disability #research open.substack.com/pub/edtobias...
Can lab animals be replaced by AI?
The headline on the news release that dropped into my in-box recently read: “FDA Announces Plan to Phase Out Animal Testing Requirement for Monoclonal Antibodies and Other Drugs.”
open.substack.com
May 30, 2025 at 5:24 PM
The FDA is starting to replace lab animals with AI. Is it the right thing to do? #multiplesclerosis #disability #research open.substack.com/pub/edtobias...
This MS research left me wondering "why?"
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
This MS research left me wondering "why?"
Have you ever looked at a multiple sclerosis (MS) research paper and thought “why in the world did they waste time and money on that?” I read one of those reports the other day, about MS fatigue and l...
open.substack.com
May 12, 2025 at 6:51 PM
This MS research left me wondering "why?"
open.substack.com/pub/edtobias...
open.substack.com/pub/edtobias...
Ham radio friends - I'm excited to report the second addition of my guide to Morse code operating, "DITS and DAHS," is now available on Amazon as both a paperback and an e-book. Lots of good info about learning the code and improving your CW operating. www.amazon.com/DITS-DAHS-AB... #hamradio #morse
May 2, 2025 at 1:23 AM
Ham radio friends - I'm excited to report the second addition of my guide to Morse code operating, "DITS and DAHS," is now available on Amazon as both a paperback and an e-book. Lots of good info about learning the code and improving your CW operating. www.amazon.com/DITS-DAHS-AB... #hamradio #morse
Want solid info about COVID-19? You can’t get it from the covid dot gov website anymore. www.nytimes.com/2025/04/18/s...
On New Website, Trump Declares Lab Leak as ‘True Origins’ of Covid
The White House has thrown its weight behind the lab leak theory, an idea that has divided intelligence agencies.
www.nytimes.com
April 21, 2025 at 1:43 PM
Want solid info about COVID-19? You can’t get it from the covid dot gov website anymore. www.nytimes.com/2025/04/18/s...
I have no doubt that #multiplesclerosis research will be among the research that will take a hit from this. If you are in the U.S. it’s time to call your members of Congress and tell them to put an end to this craziness. www.washingtonpost.com/health/2025/...
NIH cuts billions of dollars in biomedical funding, effective immediately
The move halts a large slice of money for most universities and research institutions virtually overnight, imperiling vital research in everything from cancer to heart disease.
www.washingtonpost.com
February 8, 2025 at 5:07 PM
I have no doubt that #multiplesclerosis research will be among the research that will take a hit from this. If you are in the U.S. it’s time to call your members of Congress and tell them to put an end to this craziness. www.washingtonpost.com/health/2025/...
FDA issues warning about rare, but serious allergic reaction to Copaxone, Glatopa (glatiramer acetate) #MS treatments #multiplesclerosis www.fda.gov/safety/medic....
Copaxone, Glatopa (glatiramer acetate): Drug Safety Communication
Treat immediately if symptoms worsen or do not go away shortly after an injection
www.fda.gov
January 23, 2025 at 7:04 PM
FDA issues warning about rare, but serious allergic reaction to Copaxone, Glatopa (glatiramer acetate) #MS treatments #multiplesclerosis www.fda.gov/safety/medic....
I’m really sorry about fatigue spoiling things. I’ve been living with it for over 40 years with #ms. It impacted activities with our son and now our grandkids. Are you using any meds, such as modafinil? Have you considered a lightweight scooter for excursions ? #multiplesclerosis #disability
January 21, 2025 at 1:17 AM
I’m really sorry about fatigue spoiling things. I’ve been living with it for over 40 years with #ms. It impacted activities with our son and now our grandkids. Are you using any meds, such as modafinil? Have you considered a lightweight scooter for excursions ? #multiplesclerosis #disability
I didn't get past the initial screening for this survey - maybe I'm not anxious or nervous enough - but you might be interested. #multiplesclerosis #ms
www.nationalmssociety.org/how-you-can-...?
www.nationalmssociety.org/how-you-can-...?
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
www.nationalmssociety.org
January 20, 2025 at 11:17 PM
I didn't get past the initial screening for this survey - maybe I'm not anxious or nervous enough - but you might be interested. #multiplesclerosis #ms
www.nationalmssociety.org/how-you-can-...?
www.nationalmssociety.org/how-you-can-...?
There are some very good tips, here. Even though I just use a scooter, there have certainly been times when the chatter and activity has been “over my head.” And don’t get me started on the people glued to their mobile devices while walking on a sidewalk. #multiplesclerosis
January 17, 2025 at 6:17 PM
There are some very good tips, here. Even though I just use a scooter, there have certainly been times when the chatter and activity has been “over my head.” And don’t get me started on the people glued to their mobile devices while walking on a sidewalk. #multiplesclerosis
Tolebrutinib on a fast track towards final FDA approval to treat #SPMS. #MS themswire.com/tolebrutinib...
Tolebrutinib nears the MS approval finish line - The MS Wire
Tolebrutinib is a disease-modifying therapy on the brink of being approved to fight multiple sclerosis. Fingers crossed that it is.
themswire.com
January 16, 2025 at 6:57 PM
Tolebrutinib on a fast track towards final FDA approval to treat #SPMS. #MS themswire.com/tolebrutinib...
MS study of potential SPMS treatment seeking participants in US. www.nationalmssociety.org/how-you-can-...?
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
www.nationalmssociety.org
January 16, 2025 at 6:52 PM
MS study of potential SPMS treatment seeking participants in US. www.nationalmssociety.org/how-you-can-...?
Anyone with #ms who rides a scooter tried a do-it-yourself check-out lately?
themswire.com/real-people-...
themswire.com/real-people-...
Real people at the check-out make things easier for me - The MS Wire
Don't you hate self check-out? Shopping while riding my scooter, I certainly do. Do people who design these things ever think about access?
themswire.com
December 17, 2024 at 8:49 PM
Anyone with #ms who rides a scooter tried a do-it-yourself check-out lately?
themswire.com/real-people-...
themswire.com/real-people-...
Tolebrutinib, an experimental BTK inhibitor, gets FDA’s Breakthrough designation to treat non-relapsing Secondary Progressive #MS
www.sanofi.com/en/media-roo...
www.sanofi.com/en/media-roo...
Press Release: Tolebrutinib designated Breakthrough Therapy by the FDA for non-relapsing secondary progressive multiple sclerosis
Tolebrutinib designated Breakthrough Therapy by the FDA for non-relapsing secondary progressive multiple sclerosis Designation is based on positive results from the HERCULES study in adults with...
www.sanofi.com
December 15, 2024 at 1:11 PM
Tolebrutinib, an experimental BTK inhibitor, gets FDA’s Breakthrough designation to treat non-relapsing Secondary Progressive #MS
www.sanofi.com/en/media-roo...
www.sanofi.com/en/media-roo...
A vaccine to protect against norovirus? A Phase 3 clinical trial is seeking volunteers and, for a change, the researchers including older folks.
connect.trialscope.com/studies/1f82...?
connect.trialscope.com/studies/1f82...?
Citeline Connect
connect.trialscope.com
December 13, 2024 at 1:05 AM
A vaccine to protect against norovirus? A Phase 3 clinical trial is seeking volunteers and, for a change, the researchers including older folks.
connect.trialscope.com/studies/1f82...?
connect.trialscope.com/studies/1f82...?
This is why EXPERTS are needed to lead the FDA, CDC, NIH, and HHS. www.nytimes.com/2024/11/26/o...
Opinion | I Ran Operation Warp Speed. I’m Concerned About Bird Flu.
Avian influenza might mutate to enable human-to-human transmission.
www.nytimes.com
December 3, 2024 at 12:14 PM
This is why EXPERTS are needed to lead the FDA, CDC, NIH, and HHS. www.nytimes.com/2024/11/26/o...
Reposted by The MS Wire
An important new study on the earliest indicators of #MS. More evidence of disease activity before initial symptoms. Emphasizes the need to start looking for tools to detect MS at it's earliest points.
www.neurology.org/doi/10.1212/...
www.neurology.org/doi/10.1212/...
Temporal Dynamics of Plasma Neurofilament Light in Blood Donors With Preclinical Multiple Sclerosis | Neurology Neuroimmunology & Neuroinflammation
Background and ObjectivesMultiple sclerosis (MS) is a CNS disease, characterized by demyelination, inflammation,
and neurodegeneration. Recent advances in technology allow measurement of the axonal
da...
www.neurology.org
December 2, 2024 at 3:58 PM
An important new study on the earliest indicators of #MS. More evidence of disease activity before initial symptoms. Emphasizes the need to start looking for tools to detect MS at it's earliest points.
www.neurology.org/doi/10.1212/...
www.neurology.org/doi/10.1212/...
Sign up for a webinar discussing three #MS clinical trials that were presented at last September’s ECTRIMS conference. www.msif.org/webcast-clin...
Global webcast: what we are learning from clinical trials - MS International Federation
Global webcast: what we are learning from clinical trials
www.msif.org
November 21, 2024 at 4:42 PM
Sign up for a webinar discussing three #MS clinical trials that were presented at last September’s ECTRIMS conference. www.msif.org/webcast-clin...
Two new products to help folks with #MS and other #disabilities get around.
themswire.com/a-new-scoote...
themswire.com/a-new-scoote...
A new scooter and chair help MS mobility - The MS Wire
Two new mobility products may help people with multiple sclerosis get more places without having to walk. Here's a quick look at them.
themswire.com
November 18, 2024 at 8:29 PM
Two new products to help folks with #MS and other #disabilities get around.
themswire.com/a-new-scoote...
themswire.com/a-new-scoote...