Don Kelly
@dkindc.bsky.social
PD Dx 2016 (selective in following people due to time constraints)
"..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
"..the symptom of gastroparesis in a Parkinson patient is delayed onset of a dose of levodopa." https://www.neurologylive.com/view/effects-of-gi-dysmotility-with-parkinson-medicati
Pinned
Don Kelly
@dkindc.bsky.social
· Nov 22
Art done about 10 years ago by my daughter who is now studying neuroscience / psychology and about to graduate.
Trump is an "illegal?" www.appropriations.senate.gov/news/minorit...
FACT SHEET: Trump’s Illegal and Unconstitutional Scheme to Withhold Funding Headed to Communities Across America | United States Senate Committee on Appropriations
United States Senate Committee on Appropriations
www.appropriations.senate.gov
June 7, 2025 at 10:34 PM
Trump is an "illegal?" www.appropriations.senate.gov/news/minorit...
Reposted by Don Kelly
Reposted by Don Kelly
We're joining Amica Center for Immigrant Rights & 7 other nonprofits to challenge the Trump admin's recent stop-work order that cut off funding for legal information programs at immigration courts and ICE detention centers. Press release & complaint here: immigrantjustice.org/press-releas...
January 31, 2025 at 11:09 PM
We're joining Amica Center for Immigrant Rights & 7 other nonprofits to challenge the Trump admin's recent stop-work order that cut off funding for legal information programs at immigration courts and ICE detention centers. Press release & complaint here: immigrantjustice.org/press-releas...
Is there a joke about the five lobes and 2 fissures of the lungs? Re: "Taking the five loaves and the two fish and looking up to heaven, he gave thanks..."
I remember a friend shaking his head when someone told them they had triple pneumonia - He thought "you have only two lungs..."
I remember a friend shaking his head when someone told them they had triple pneumonia - He thought "you have only two lungs..."
February 2, 2025 at 9:03 PM
Is there a joke about the five lobes and 2 fissures of the lungs? Re: "Taking the five loaves and the two fish and looking up to heaven, he gave thanks..."
I remember a friend shaking his head when someone told them they had triple pneumonia - He thought "you have only two lungs..."
I remember a friend shaking his head when someone told them they had triple pneumonia - He thought "you have only two lungs..."
Reposted by Don Kelly
"OptumRx, the group’s pharmacy benefit manager, along with its two main peers, Express Scripts and CVS Caremark Rx, have pocketed an extra $7.3 billion over cost thanks to price gouging, according to the findings of a report by the Federal Trade Commission."
Lina Khan really is That Girl.
Lina Khan really is That Girl.
UnitedHealth, employer of slain exec Brian Thompson, found to have overcharged cancer patients for drugs by over 1,000%
The report is the latest indictment of America’s broken healthcare system.
fortune.com
January 15, 2025 at 9:38 PM
"OptumRx, the group’s pharmacy benefit manager, along with its two main peers, Express Scripts and CVS Caremark Rx, have pocketed an extra $7.3 billion over cost thanks to price gouging, according to the findings of a report by the Federal Trade Commission."
Lina Khan really is That Girl.
Lina Khan really is That Girl.
Reposted by Don Kelly
Interesting: Using national health providers data in Israel, a retrospective case–control study finds tetanus–diphtheria vaccination significantly⬇️occurrence of #Parkinsons; Adjusted OR of 0.17 (95% CI [0.04, 0.70]) for PD Dx within 5 years post-vax
www.mdpi.com/2227-9059/12...
www.mdpi.com/2227-9059/12...
January 9, 2025 at 11:23 AM
Interesting: Using national health providers data in Israel, a retrospective case–control study finds tetanus–diphtheria vaccination significantly⬇️occurrence of #Parkinsons; Adjusted OR of 0.17 (95% CI [0.04, 0.70]) for PD Dx within 5 years post-vax
www.mdpi.com/2227-9059/12...
www.mdpi.com/2227-9059/12...
Reposted by Don Kelly
Do we need to stimulate different circuits to improve different dystonia symptoms with STN DBS? Work by Konstantin Butenko, @andreashorn.org @braincircuits.bsky.social out today in @PNAS says yes:
Engaging dystonia networks with subthalamic stimulation | PNAS www.pnas.org/doi/10.1073/...
Engaging dystonia networks with subthalamic stimulation | PNAS www.pnas.org/doi/10.1073/...
PNAS
Proceedings of the National Academy of Sciences (PNAS), a peer reviewed journal of the National Academy of Sciences (NAS) - an authoritative source of high-impact, original research that broadly spans...
www.pnas.org
January 8, 2025 at 6:49 PM
Do we need to stimulate different circuits to improve different dystonia symptoms with STN DBS? Work by Konstantin Butenko, @andreashorn.org @braincircuits.bsky.social out today in @PNAS says yes:
Engaging dystonia networks with subthalamic stimulation | PNAS www.pnas.org/doi/10.1073/...
Engaging dystonia networks with subthalamic stimulation | PNAS www.pnas.org/doi/10.1073/...
I thought my life was passing before my eyes.
Then I realized I was editing family photos from "Christmases past"
Then I realized I was editing family photos from "Christmases past"
December 15, 2024 at 3:17 AM
I thought my life was passing before my eyes.
Then I realized I was editing family photos from "Christmases past"
Then I realized I was editing family photos from "Christmases past"
Reposted by Don Kelly
New study finds Myelin basic protein, but not TREM2, is elevated in the cerebrospinal fluid of multiple system atrophy & all atypical Parkinsonian conditions when compared to idiopathic #Parkinsons
link.springer.com/article/10.1...
link.springer.com/article/10.1...
December 14, 2024 at 12:02 AM
New study finds Myelin basic protein, but not TREM2, is elevated in the cerebrospinal fluid of multiple system atrophy & all atypical Parkinsonian conditions when compared to idiopathic #Parkinsons
link.springer.com/article/10.1...
link.springer.com/article/10.1...
Brain surgery may be safer than not for some folks - people who can't sleep otherwise. If DBS helps you sleep.
December 10, 2024 at 12:53 PM
Brain surgery may be safer than not for some folks - people who can't sleep otherwise. If DBS helps you sleep.
@BillMaher is a sheep, or maybe a bad shepherd
No one should have to "prove" that they need to be protected from infectious diseases. No one should have to "prove" why they need reproductive healthcare, or have their gender assessed before using a restroom. Lots of policing of bodies going on.
Soon after we heard of a woman in NC with stage four cancer who was harassed in a store because she wouldn’t remove her mask.
Another patron yelled at her that she was a “sheep” and demanded she take it off. When she explained she had cancer - he coughed on her.
This is where mask bans lead /9
Another patron yelled at her that she was a “sheep” and demanded she take it off. When she explained she had cancer - he coughed on her.
This is where mask bans lead /9
December 10, 2024 at 12:39 PM
@BillMaher is a sheep, or maybe a bad shepherd
Reposted by Don Kelly
People have a clock when it comes to being around the chronically. They’re supportive at first - but if you don’t get better quickly - they grow resentful & abandon you.
They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
December 10, 2024 at 3:29 AM
People have a clock when it comes to being around the chronically. They’re supportive at first - but if you don’t get better quickly - they grow resentful & abandon you.
They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
They never consider that it might be hard for US that we will never get better. They never consider our feelings at all.
"Society conditions us to see rest as a failure. We value productivity at all costs. We give out attendance awards, we shame people who call in sick..." www.disabledginger.com/p/its-time-t...
It's Time to Throw Away the 'Coulda, Woulda, Shouldas' and Practice Radical Rest
When you're chronically ill you can't push your body the way non disabled people do. You have to learn to rest. There's few words more damaging to us than the 'coulda, woulda, shouldas'
www.disabledginger.com
December 9, 2024 at 5:59 PM
"Society conditions us to see rest as a failure. We value productivity at all costs. We give out attendance awards, we shame people who call in sick..." www.disabledginger.com/p/its-time-t...
Reposted by Don Kelly
If you’re newly disabled - you may find one of the toughest battles you’ll have is with yourself.
Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do.
But they are critically important for survival.
Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do.
But they are critically important for survival.
December 9, 2024 at 2:19 AM
If you’re newly disabled - you may find one of the toughest battles you’ll have is with yourself.
Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do.
But they are critically important for survival.
Unlearning internalized ableism, convincing yourself it’s “ok” to rest, ask for help & rely on others… these are not easy things to do.
But they are critically important for survival.
Reposted by Don Kelly
"This analysis demonstrates that the rate of progression based on MDS‐UPDRS Part I is approximately 60% lower in carriers as compared to non‐carriers of LRRK2 gene mutations." www.researchgate.net/publication/...
LRRK-2 carriers progress 60% slower?
LRRK-2 carriers progress 60% slower?
(PDF) A Disease Progression Model to Quantify the Nonmotor Symptoms of Parkinson’s Disease in Participants With Leucine‐Rich Repeat Kinase 2 Mutation
PDF | Leucine‐rich repeat kinase 2 (LRRK2) inhibitors are currently in clinical development as interventions to slow progression of Parkinson’s disease... | Find, read and cite all the research you ne...
www.researchgate.net
December 6, 2024 at 4:51 AM
"This analysis demonstrates that the rate of progression based on MDS‐UPDRS Part I is approximately 60% lower in carriers as compared to non‐carriers of LRRK2 gene mutations." www.researchgate.net/publication/...
LRRK-2 carriers progress 60% slower?
LRRK-2 carriers progress 60% slower?
Exercise for Parkinson's can be bad at times. A joint that needs repair first. I just want to note, exercise isn't always good for PWP. Sends me into awful dystonic 3 hour "tempests." PT has been no help in this, and the siren call of PTs & MDs to exercise has more than once caused a lot of pain.
November 30, 2024 at 1:23 PM
Exercise for Parkinson's can be bad at times. A joint that needs repair first. I just want to note, exercise isn't always good for PWP. Sends me into awful dystonic 3 hour "tempests." PT has been no help in this, and the siren call of PTs & MDs to exercise has more than once caused a lot of pain.
Titles for the new book I pretend I will write someday: What part of "extrapyramidal movements" don't you understand?
November 24, 2024 at 5:03 PM
Titles for the new book I pretend I will write someday: What part of "extrapyramidal movements" don't you understand?
Art done about 10 years ago by my daughter who is now studying neuroscience / psychology and about to graduate.
November 22, 2024 at 5:46 AM
Art done about 10 years ago by my daughter who is now studying neuroscience / psychology and about to graduate.
Reposted by Don Kelly
Why is patient involvement important when improving healthcare? I recently read a scientific article that made me see it in a new light
www.riggare.se/2024/08/08/t...
www.riggare.se/2024/08/08/t...
This is why patient involvement is important for improving healthcare or “It seems inconvenient, but if you really want to, you can try”
(This blog post is also available in Swedish =>> here) Most people living with Parkinson’s disease take a lot of pills, multiple times a day. After having Parkinson’s for a while,…
www.riggare.se
August 8, 2024 at 5:10 PM
Why is patient involvement important when improving healthcare? I recently read a scientific article that made me see it in a new light
www.riggare.se/2024/08/08/t...
www.riggare.se/2024/08/08/t...
Reposted by Don Kelly
Here's a #parkinsons starter pack with a #yopd focus - please drop suggestions in comments and I''ll add to the pack!
go.bsky.app/R25na6o
go.bsky.app/R25na6o
November 14, 2024 at 6:47 PM
Here's a #parkinsons starter pack with a #yopd focus - please drop suggestions in comments and I''ll add to the pack!
go.bsky.app/R25na6o
go.bsky.app/R25na6o
Reposted by Don Kelly
I learned some stuff about Bluesky I did not know by reading this.
Maybe worth passing it on to others so we can all start getting the full benefit of the 🦋.
Maybe worth passing it on to others so we can all start getting the full benefit of the 🦋.
Here’s some cool stuff you can do with Bluesky
It’s not just an Alf pics repository.
www.theverge.com
November 17, 2024 at 8:55 AM
I learned some stuff about Bluesky I did not know by reading this.
Maybe worth passing it on to others so we can all start getting the full benefit of the 🦋.
Maybe worth passing it on to others so we can all start getting the full benefit of the 🦋.
wow - really?
People say 20-40% of folks have levodopa unresponsive tremor? This paper by De Bie and colleagues says ‘not so fast.’ They estimate 4%.
November 18, 2024 at 4:56 PM
wow - really?