Next Tuesday I will be sharing my story with a group of GP registrars as part of their training. It feels like the culmination of all my advocacy work so far. To be in a room with the people who can REALLY make a difference to the lives of pt with FND. Instilling compassion and reducing stigma #fnd

Apparently even the Egyptians had knowledge of functional illness!! Does anybody have more info about this??

One thing that keeps popping up in all these damning reports about NHS (ockenden etc) is a lack of compassion. Could we conclude that this is someone connected to a rise in far right views??! The effect of reform, trumpism, musk?!

#nhs #trump #musk #compassionfatigue

I like the idea of reframing shame, taking hold of it and making something useful. All the healthcare professionals who tried to shame the FND out of me - I guess they were trying to do the same in their own way. If we can make her embarrassed maybe she’ll stop? So maybe intentions were good?

We have made it clear that the NHS temporary escalation spaces (TES) guide is "normalisation of what is an unacceptable and dangerous situation".

RCEM Position Statement: tinyurl.com/rcemTES

RCEM News: tinyurl.com/rcemNews1612

Do you want your therapist to share details about themselves? I’ve just had a profound realisation that I love the fact I know nothing about my current therapist. I feel this is the best therapeutic relationship for me right now. Any thoughts?

A dentist, a GP, a therapist, Avocados, Bertolli olive oil and pine nuts #daydreaming

Following a successful lecture in September, I have been asked to come back and speak about FND, my experience, lack of treatment pathways + how I recovered. Consequently every nurse graduating from @bangoruniversity.bsky.social from now on will have a basic understanding/ compassion for #FND 🙏

I've put together a starter pack for the FND science community.

Please repost to share the link and do let me know of folks I've missed so I can add them to the group.

Thanks everyone 🙏

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Hello! I’m Shae and I’m a digital artist who only uses the oil paint brush. I have a print shop and might get into charms and other stuff. I’m a visually impaired FND advocate and my main career is as a paralegal.

I’m currently unpacking my medical trauma with a new therapist. Biggest theme - I blamed myself for the mistreatment I suffered. I was self-stigmatising. I believed I was faking, an attention seeker, not trying hard enough to stop my non-epileptic seizures. Why do we do this? Blame ourselves?

During my dx of FND I was shamed, dismissed and told “this is something that happens to women sometimes, now you know it isn’t real it will likely stop”. The medical trauma this induced forced me into the shadows, vowing I’d never bother a dr about my seizures again.

"Iatrogenic harm in FND" – new review article @brain1878 very much the work of Caoimhe McLoughlin – a short thread. academic.oup.com/brain/advanc... 1/

I've put together a starter pack for the FND science community.

Please repost to share the link and do let me know of any folks I've missed so I can add them to the group.

Great thread to read if you want a quick overview of FND. Perfectly summarised.