Julie Sullivan
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
I’m on the webinar “Exploring Long COVID Treatments, Promising and Experimental
Featured speakers: Dr. Stuart Malcolm from RTHM, Dr. David Putrino from Mt. Sinai and Leo Galland Integrated Medicine
SO GOOD
Featured speakers: Dr. Stuart Malcolm from RTHM, Dr. David Putrino from Mt. Sinai and Leo Galland Integrated Medicine
SO GOOD
March 27, 2025 at 7:19 PM
I’m on the webinar “Exploring Long COVID Treatments, Promising and Experimental
Featured speakers: Dr. Stuart Malcolm from RTHM, Dr. David Putrino from Mt. Sinai and Leo Galland Integrated Medicine
SO GOOD
Featured speakers: Dr. Stuart Malcolm from RTHM, Dr. David Putrino from Mt. Sinai and Leo Galland Integrated Medicine
SO GOOD
Want to hear something exciting?
The antigen assay developed by David Walt’s lab at BWH that can detect residual spike protein is analyzing the bio samples from RECOVER VITAL. They’ve run 4266 samples as of last week and are currently running the remaining samples.
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The antigen assay developed by David Walt’s lab at BWH that can detect residual spike protein is analyzing the bio samples from RECOVER VITAL. They’ve run 4266 samples as of last week and are currently running the remaining samples.
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March 13, 2025 at 12:44 AM
Want to hear something exciting?
The antigen assay developed by David Walt’s lab at BWH that can detect residual spike protein is analyzing the bio samples from RECOVER VITAL. They’ve run 4266 samples as of last week and are currently running the remaining samples.
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The antigen assay developed by David Walt’s lab at BWH that can detect residual spike protein is analyzing the bio samples from RECOVER VITAL. They’ve run 4266 samples as of last week and are currently running the remaining samples.
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3/12 Day 3 of Long COVID Awareness Week. Featured speakers: Long COVID rehab from BIDMC- Kara McSheehy OTR occupational therapist, Becca Moore DPT physical therapist and John Scherry PT physical therapist
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March 13, 2025 at 12:30 AM
3/12 Day 3 of Long COVID Awareness Week. Featured speakers: Long COVID rehab from BIDMC- Kara McSheehy OTR occupational therapist, Becca Moore DPT physical therapist and John Scherry PT physical therapist
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Public Awareness: Tomorrow 3/12 we will have Channel 5 WCVB news attending our presentations for a feature and I will be talking to Dan Rea on WBZ at 9:00pm!
March 11, 2025 at 8:56 PM
Public Awareness: Tomorrow 3/12 we will have Channel 5 WCVB news attending our presentations for a feature and I will be talking to Dan Rea on WBZ at 9:00pm!
Tuesday 3/11 Featured speakers: Dr. Alexander Kim, anesthesiologist at BWH where conducts research and treats Long COVID symptoms with stellate ganglion nerve blocks
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March 11, 2025 at 8:53 PM
Tuesday 3/11 Featured speakers: Dr. Alexander Kim, anesthesiologist at BWH where conducts research and treats Long COVID symptoms with stellate ganglion nerve blocks
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Monday 3/10 Featured speakers: Dr. Edmarie Guzman-Velez is a neuropsychologist and researcher at MGH. She discussed her research that used blood biomarkers to examine brain functioning by measuring neural injury and inflammation in the brain
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March 11, 2025 at 8:52 PM
Monday 3/10 Featured speakers: Dr. Edmarie Guzman-Velez is a neuropsychologist and researcher at MGH. She discussed her research that used blood biomarkers to examine brain functioning by measuring neural injury and inflammation in the brain
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Long COVID Awareness Week is here! We are offering daily events and activities for the Long COVID community to learn about specific research and treatments. You can find the agendas and links here: drive.google.com/drive/folder...
Long Covid Awareness Week 2025 Information - Google Drive
drive.google.com
March 11, 2025 at 8:51 PM
Long COVID Awareness Week is here! We are offering daily events and activities for the Long COVID community to learn about specific research and treatments. You can find the agendas and links here: drive.google.com/drive/folder...
We are thrilled to share our calendar of events leading up to #LongCOVIDAwarenessDay. This is a collaboration between Brigham and Women's COVID Recovery Center and Beth Israel Deaconess Medical Center's Covid & Critical Illness Recovery Program.
Folder of events:
drive.google.com/drive/folder...
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Folder of events:
drive.google.com/drive/folder...
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March 4, 2025 at 12:13 AM
We are thrilled to share our calendar of events leading up to #LongCOVIDAwarenessDay. This is a collaboration between Brigham and Women's COVID Recovery Center and Beth Israel Deaconess Medical Center's Covid & Critical Illness Recovery Program.
Folder of events:
drive.google.com/drive/folder...
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Folder of events:
drive.google.com/drive/folder...
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Mass General Hospital in Boston MA has a cool new new translational study about to start recruiting. The study is to determine if endobronchial optical coherence tomography (OCT) can serve as a low-risk, minimally-invasive method for the assessment of pulmonary disease in patients with Long COVID
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January 23, 2025 at 3:41 PM
Mass General Hospital in Boston MA has a cool new new translational study about to start recruiting. The study is to determine if endobronchial optical coherence tomography (OCT) can serve as a low-risk, minimally-invasive method for the assessment of pulmonary disease in patients with Long COVID
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Also, One of the PIs from the BIDMC/Pfizer Abrocitinib trial is speaking to our group this week and answering questions.
Send me your questions! 💙
clinicaltrials.gov/study/NCT065...
Send me your questions! 💙
clinicaltrials.gov/study/NCT065...
ClinicalTrials.gov
clinicaltrials.gov
January 13, 2025 at 9:22 PM
Also, One of the PIs from the BIDMC/Pfizer Abrocitinib trial is speaking to our group this week and answering questions.
Send me your questions! 💙
clinicaltrials.gov/study/NCT065...
Send me your questions! 💙
clinicaltrials.gov/study/NCT065...
I have a meeting this week with the PI here in Anesthesiology about the research they are doing here at Brigham on Long COVID and stellate ganglion blocks.
I would love to include questions from you!
I would love to include questions from you!
January 13, 2025 at 9:20 PM
I have a meeting this week with the PI here in Anesthesiology about the research they are doing here at Brigham on Long COVID and stellate ganglion blocks.
I would love to include questions from you!
I would love to include questions from you!
RECOVER VITAL is close to completing treatment protocol for all enrolled participants.
They expect to post preliminary results within 2-3 months of completion!
They expect to post preliminary results within 2-3 months of completion!
December 30, 2024 at 4:53 PM
RECOVER VITAL is close to completing treatment protocol for all enrolled participants.
They expect to post preliminary results within 2-3 months of completion!
They expect to post preliminary results within 2-3 months of completion!
NEW CLINICAL TRIAL: Study to Investigate the Efficacy of Abrocitinib in Adult Participants with Severe Fatigue from Post COVID Condition/Long COVID (CLEAR-LC)
clinicaltrials.gov/study/NCT065...
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clinicaltrials.gov/study/NCT065...
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ClinicalTrials.gov
clinicaltrials.gov
December 30, 2024 at 4:52 PM
NEW CLINICAL TRIAL: Study to Investigate the Efficacy of Abrocitinib in Adult Participants with Severe Fatigue from Post COVID Condition/Long COVID (CLEAR-LC)
clinicaltrials.gov/study/NCT065...
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clinicaltrials.gov/study/NCT065...
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Crowd sourcing: Does anyone have recs for disability lawyers in New England who understand Long COVID?
Thank you! 💙
Thank you! 💙
November 20, 2024 at 4:00 PM
Crowd sourcing: Does anyone have recs for disability lawyers in New England who understand Long COVID?
Thank you! 💙
Thank you! 💙
I was watching a documentary about the bubonic plague of 1900 last night (what? this is how I relax. don’t @ me) and OMG it was just like today but with more racism and a lot more rats.
It shows how resistant we are to learning from our past mistakes
Anyway, hi H5N1! 👋🏻
It shows how resistant we are to learning from our past mistakes
Anyway, hi H5N1! 👋🏻
November 19, 2024 at 7:34 PM
I was watching a documentary about the bubonic plague of 1900 last night (what? this is how I relax. don’t @ me) and OMG it was just like today but with more racism and a lot more rats.
It shows how resistant we are to learning from our past mistakes
Anyway, hi H5N1! 👋🏻
It shows how resistant we are to learning from our past mistakes
Anyway, hi H5N1! 👋🏻
Reposted by Julie Sullivan
The Institute for Neuro-Immune Medicine has posted a video (42 minutes): "Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID."
In it Dr David Systrom talks about new research on neurovascular issues in #MECFS & #LongCOVID
www.youtube.com/watch?v=TD-e...
#PwME #PASC #PEM
In it Dr David Systrom talks about new research on neurovascular issues in #MECFS & #LongCOVID
www.youtube.com/watch?v=TD-e...
#PwME #PASC #PEM
Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID
YouTube video by Institute for Neuro-Immune Medicine
www.youtube.com
November 17, 2024 at 10:15 PM
The Institute for Neuro-Immune Medicine has posted a video (42 minutes): "Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID."
In it Dr David Systrom talks about new research on neurovascular issues in #MECFS & #LongCOVID
www.youtube.com/watch?v=TD-e...
#PwME #PASC #PEM
In it Dr David Systrom talks about new research on neurovascular issues in #MECFS & #LongCOVID
www.youtube.com/watch?v=TD-e...
#PwME #PASC #PEM
Reposted by Julie Sullivan
'Reverse LC - Federally funded by the NIH'
'People living with Long COVID are looking for answers'
'REVERSE-LC is a study to see if a drug called Baricitinib can help'
www.reversinglongcovid.org
'People living with Long COVID are looking for answers'
'REVERSE-LC is a study to see if a drug called Baricitinib can help'
www.reversinglongcovid.org
REVERSE-LC
People living with Long COVID are looking for answers. REVERSE-LC is a study to see if a drug called Baricitinib can help.
www.reversinglongcovid.org
November 17, 2024 at 5:43 PM
'Reverse LC - Federally funded by the NIH'
'People living with Long COVID are looking for answers'
'REVERSE-LC is a study to see if a drug called Baricitinib can help'
www.reversinglongcovid.org
'People living with Long COVID are looking for answers'
'REVERSE-LC is a study to see if a drug called Baricitinib can help'
www.reversinglongcovid.org
I cannot understate what an absolute disaster he is and how horrified I am by him on every single level
RFK Jr.: “Thank you [to the NIH] for public service. We’re going to give infectious disease a break for about eight years.”
Kennedy wants to take a “break” from studying infectious diseases like COVID-19 and measles.
www.nbcnews.com/politics/pol...
Kennedy wants to take a “break” from studying infectious diseases like COVID-19 and measles.
www.nbcnews.com/politics/pol...
RFK Jr. comes ‘home’ to his anti-vaccine group, commits to ‘a break’ for U.S. infectious disease research
He has suggested without evidence that researchers and pharmaceutical companies are driven by profit to neglect chronic conditions.
www.nbcnews.com
November 17, 2024 at 4:37 PM
I cannot understate what an absolute disaster he is and how horrified I am by him on every single level
This study by Peter Novak and David Systrom from Brigham and Women’s is really interesting and VALIDATING for people with autonomic dysfunction. Let’s dive in:
www.frontiersin.org/journals/neu...
www.frontiersin.org/journals/neu...
Frontiers | Orthostatic intolerance with tachycardia (postural tachycardia syndrome) and without (hypocapnic cerebral hypoperfusion) represent a spectrum of the same disorder
BackgroundSpectrum of chronic orthostatic intolerance without orthostatic hypotension includes postural tachycardia syndrome (POTS), with orthostatic tachyca...
www.frontiersin.org
November 17, 2024 at 4:18 PM
This study by Peter Novak and David Systrom from Brigham and Women’s is really interesting and VALIDATING for people with autonomic dysfunction. Let’s dive in:
www.frontiersin.org/journals/neu...
www.frontiersin.org/journals/neu...
On May 24th 2020, deaths from COVID19 in the U.S. reached 100,000. @thenewyorktimes.bsky.social posted the names & bio for every person who died. They weren’t a number, they were people with rich lives and family and friends who loved them.
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November 9, 2024 at 7:03 PM
On May 24th 2020, deaths from COVID19 in the U.S. reached 100,000. @thenewyorktimes.bsky.social posted the names & bio for every person who died. They weren’t a number, they were people with rich lives and family and friends who loved them.
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