Julie Sullivan
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curelongcovid.bsky.social
Julie Sullivan
@curelongcovid.bsky.social
Program Manager of The Covid Recovery Center at Brigham and Women’s Hospital in Boston MA. Opinions are my own. Here to advocate and educate (she/her) 💕
It is being recorded and will be available!
March 27, 2025 at 7:19 PM
It will take a month to analyze the results, they should have results by late April.
This is such important work to better understand viral persistence and pathways to clear residual spike protein.
2/2
March 13, 2025 at 12:44 AM
We also had the fabulous Hadas Golan SLP from Boston Medical Center. Hadas specializes in breathing and breathing dysfunction. In LC this presents as hyperventilation, diaphragm dysfunction and chaotic breathing pattern at rest and during exercise. Notes and her slides are available!
3/3
March 13, 2025 at 12:31 AM
They provide patient-centered rehabilitation to address fatigue and post exertional malaise. I cannot sing their praises enough, they GET it. Summary notes are in our google drive
drive.google.com/drive/folder...
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March 13, 2025 at 12:31 AM
XOXO
March 11, 2025 at 8:57 PM
Ellen Alden, mind/body coach helping others to regulate their nervous systems through meditation, vagal stimulation exercises, visualization and brain retraining. She also runs a free Long COVID community support group.
3/3
March 11, 2025 at 8:54 PM
Michael Doyle, the program manager for Long COVID research at BIDMC. He discussed clinical trials that are underway, including RECOVER SLEEP and ENERGIZE
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March 11, 2025 at 8:53 PM
Vasu Prudhivi is certified classical Hatha Yoga Instructor working at BIDMC's Sadhguru Center where they integrate research with mindful and holistic healing practices
3/3
March 11, 2025 at 8:52 PM
Dr. Ai-Ris Yonekura Collier is a physician-scientist at BIDMC. She discussed her clinical trial using JAK 1 inhibitor Abrocitinib to treat moderate-severe fatigue in Long COVID
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March 11, 2025 at 8:52 PM
You and others who are walking this path are my #1 priority always. :) I'm so grateful that we have the resources to do this!
March 4, 2025 at 2:02 AM
We used feedback from our patients to create programming that will offer options for everyone to participate as they are able.
It feels more urgent than ever to drive awareness of Long COVID and support for those of you living with it. We will never stop working on your behalf. 💙
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March 4, 2025 at 12:14 AM
On Saturday March 15, we are hosting both an outdoor meetup and a virtual gathering for people living with Long COVID.
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March 4, 2025 at 12:14 AM
Each weekday will feature a theme and mindfulness prompt, presentations from Long COVID providers and researchers, a community action/advocacy opportunity and links to live and on-demand webinars
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March 4, 2025 at 12:13 AM
I will get contact information this week for anyone interested. This study will yield so much great information, I'm excited for it!
January 23, 2025 at 3:44 PM
Study Visit #2 will consist of a bronchoscopy with endobronchial OCT imaging, bronchoalveolar lavage and endobronchial brushings.
- After 6 mos the subjects return for a rescreening visit and repeat bronchoscopy with OCT imaging, bronchoalveolar lavage and endobronchial brushings
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January 23, 2025 at 3:44 PM
What to expect:
- A pre-screening eligibility questionnaire screening via visit or phone call.
- After informed consent is obtained, subjects will have safety labs drawn, undergo pulmonary function testing, cardiopulmonary exercise testing, and high resolution CT. Additionally, will perform an EKG
January 23, 2025 at 3:42 PM
Inclusion criteria:
- Patient meets criteria for the diagnosis of PASC based on persistent symptoms of dyspnea, cough, and/or exercise intolerance and had a positive Sars-CoV-2 PCR test.
- FEV1/FVC ≥ 0.7
- DLCO > 30% predicted
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January 23, 2025 at 3:41 PM