Si Craner
@cranervirus.bsky.social
Full time carer of child with severe Long Covid ME/CFS. Former school leader and financial analyst for national campaigning non profit
Reposted by Si Craner
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 8:35 PM
A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well.
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents.
youtu.be/wZFEUnjWgOA?...
Reposted by Si Craner
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Reposted by Si Craner
Voices of children with Long Covid..
"I can't climb the stairs"
"I've been sleeping in my kitchen"
"I haven't seen anyone my own age in person for 5 years"
"after school, I watch teenagers my own age pass by my window, talking and walking. I envy them"
youtu.be/Jwk8TS5S0TA?...
"I can't climb the stairs"
"I've been sleeping in my kitchen"
"I haven't seen anyone my own age in person for 5 years"
"after school, I watch teenagers my own age pass by my window, talking and walking. I envy them"
youtu.be/Jwk8TS5S0TA?...
Lives Interrupted: The Voices of Young People with Long Covid
YouTube video by Combination Dance
youtu.be
October 20, 2025 at 4:40 PM
Voices of children with Long Covid..
"I can't climb the stairs"
"I've been sleeping in my kitchen"
"I haven't seen anyone my own age in person for 5 years"
"after school, I watch teenagers my own age pass by my window, talking and walking. I envy them"
youtu.be/Jwk8TS5S0TA?...
"I can't climb the stairs"
"I've been sleeping in my kitchen"
"I haven't seen anyone my own age in person for 5 years"
"after school, I watch teenagers my own age pass by my window, talking and walking. I envy them"
youtu.be/Jwk8TS5S0TA?...
Reposted by Si Craner
A govt response after almost 15,000 signed our petition/letter. Albeit a predictable one. Well done to all those that signed & spread the message. Hopefully today's Long Covid & M.E. Joint APPG meeting will pick this up & fight for services & treatments @joplatt.bsky.social @binitakane.bsky.social
May 7, 2025 at 7:29 AM
A govt response after almost 15,000 signed our petition/letter. Albeit a predictable one. Well done to all those that signed & spread the message. Hopefully today's Long Covid & M.E. Joint APPG meeting will pick this up & fight for services & treatments @joplatt.bsky.social @binitakane.bsky.social
Reposted by Si Craner
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
March 26, 2025 at 9:29 AM
As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
#LCandME #FundOurFuture #FundThePlan
www.longcovidkids.org/post/open-le...
5 years this weekend since lockdown. My son is amongst the 100,000 kids that is still locked down by Long Covid. Bedbound in a darkened room by M.E.
Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care
Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care
March 22, 2025 at 3:31 PM
5 years this weekend since lockdown. My son is amongst the 100,000 kids that is still locked down by Long Covid. Bedbound in a darkened room by M.E.
Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care
Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care
Reposted by Si Craner
📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking:
“These people could work but they need medical help, they don’t need a life coach”
Report link⬇️
#ClosingClinics
@longcovidkids.bsky.social
“These people could work but they need medical help, they don’t need a life coach”
Report link⬇️
#ClosingClinics
@longcovidkids.bsky.social
March 19, 2025 at 9:09 AM
📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking:
“These people could work but they need medical help, they don’t need a life coach”
Report link⬇️
#ClosingClinics
@longcovidkids.bsky.social
“These people could work but they need medical help, they don’t need a life coach”
Report link⬇️
#ClosingClinics
@longcovidkids.bsky.social
"Thank you for making us kids seen"
you.38degrees.org.uk/p/LCME
you.38degrees.org.uk/p/LCME
March 19, 2025 at 8:50 AM
"Thank you for making us kids seen"
you.38degrees.org.uk/p/LCME
you.38degrees.org.uk/p/LCME
Reposted by Si Craner
This is incredible - let's keep it going?
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
March 18, 2025 at 3:38 PM
This is incredible - let's keep it going?
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
Keep sharing with your networks, we can do this!
you.38degrees.org.uk/petitions/in...
@ashleydaltonmp.bsky.social Wes Streeting please hear us!
#LCandME #FundOurFuture #FundThePlan
Reposted by Si Craner
Dear Department of Education, in response to your blog on school attendance, which reports
Since COVID-19, absence rates have surged:
2018/19: 4.7%
2021/22: 7.6%
2022/23: 7.4%
I've made a slide to help
The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection
Since COVID-19, absence rates have surged:
2018/19: 4.7%
2021/22: 7.6%
2022/23: 7.4%
I've made a slide to help
The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection
March 18, 2025 at 8:34 AM
Dear Department of Education, in response to your blog on school attendance, which reports
Since COVID-19, absence rates have surged:
2018/19: 4.7%
2021/22: 7.6%
2022/23: 7.4%
I've made a slide to help
The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection
Since COVID-19, absence rates have surged:
2018/19: 4.7%
2021/22: 7.6%
2022/23: 7.4%
I've made a slide to help
The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection
Reposted by Si Craner
Kindly sign and share with your networks to help us.
Thank you.
you.38degrees.org.uk/petitions/in...
#LCandME #FundOurFuture #FundThePlan
Thank you.
you.38degrees.org.uk/petitions/in...
#LCandME #FundOurFuture #FundThePlan
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life. Disabled, discha...
you.38degrees.org.uk
March 18, 2025 at 8:35 AM
Kindly sign and share with your networks to help us.
Thank you.
you.38degrees.org.uk/petitions/in...
#LCandME #FundOurFuture #FundThePlan
Thank you.
you.38degrees.org.uk/petitions/in...
#LCandME #FundOurFuture #FundThePlan
The BBC covered this as LOCAL news again 🙄 When will the press & government join the dots and acknowledge the cause of the rise in physical disability? Thousands now signing the petition calling for funding for biomedical treatment research and care for Long Covid & M.E.
you.38degrees.org.uk/p/LCME
you.38degrees.org.uk/p/LCME
March 18, 2025 at 9:45 AM
The BBC covered this as LOCAL news again 🙄 When will the press & government join the dots and acknowledge the cause of the rise in physical disability? Thousands now signing the petition calling for funding for biomedical treatment research and care for Long Covid & M.E.
you.38degrees.org.uk/p/LCME
you.38degrees.org.uk/p/LCME
You won't get us working if you don't get us well (we desperately want both). The government needs to fund treatment research and stop closing clinics. Sign and share the petition: you.38degrees.org.uk/petitions/in...
March 17, 2025 at 2:28 PM
You won't get us working if you don't get us well (we desperately want both). The government needs to fund treatment research and stop closing clinics. Sign and share the petition: you.38degrees.org.uk/petitions/in...
Reposted by Si Craner
“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.”
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
www.theguardian.com
March 17, 2025 at 10:25 AM
“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.”
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
@georgemonbiot.bsky.social
Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet
bsky.app/profile/long...
Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet
bsky.app/profile/long...
🚀 Launched on #LongCovidAwarenessDay for the community.
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
💥1000 signatures on day one.
Can you help us get more today?
you.38degrees.org.uk/petitions/in...
#LCandME
#FundOurFuture
#FundThePlan
March 16, 2025 at 10:08 AM
@georgemonbiot.bsky.social
Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet
bsky.app/profile/long...
Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet
bsky.app/profile/long...
Reposted by Si Craner
Please sign and share to help our future generation, so many need help and support.
#longcovidkids ⬇️
#longcovidkids ⬇️
Thank you @BinitaKane.bsky.social and @emmabatha.bsky.social. The government needs to acknowledge and address this.
you.38degrees.org.uk/petitions/in...
you.38degrees.org.uk/petitions/in...
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life. Disabled, discha...
you.38degrees.org.uk
March 15, 2025 at 8:12 PM
Please sign and share to help our future generation, so many need help and support.
#longcovidkids ⬇️
#longcovidkids ⬇️
5 years of Covid has left millions chronically PHYSICALLY ill, disabled and in perpetual "lockdown". The government needs to acknowledge and address this crisis with research into treatment and improved care. Closing clinics and cutting benefits is shortsighted and cruel you.38degrees.org.uk/p/LCME
Invest in Long Covid & M.E. Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
• Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life. Disabled, discha...
you.38degrees.org.uk
March 15, 2025 at 9:24 AM
5 years of Covid has left millions chronically PHYSICALLY ill, disabled and in perpetual "lockdown". The government needs to acknowledge and address this crisis with research into treatment and improved care. Closing clinics and cutting benefits is shortsighted and cruel you.38degrees.org.uk/p/LCME
Reposted by Si Craner
2 years is a long time in the life of a child. While the study reassures us that most participants in this study recovered within this period, the 30% of children and young people still affected highlights that #LongCovid remains a significant childhood illness.
www.independent.co.uk/news/health/...
www.independent.co.uk/news/health/...
December 4, 2024 at 10:12 AM
2 years is a long time in the life of a child. While the study reassures us that most participants in this study recovered within this period, the 30% of children and young people still affected highlights that #LongCovid remains a significant childhood illness.
www.independent.co.uk/news/health/...
www.independent.co.uk/news/health/...
Journalist @emmabatha.bsky.social is writing an article about the financial impact of long covid on individuals and families.
As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid.
@longcovidkids.bsky.social
As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid.
@longcovidkids.bsky.social
November 27, 2024 at 3:18 PM
Journalist @emmabatha.bsky.social is writing an article about the financial impact of long covid on individuals and families.
As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid.
@longcovidkids.bsky.social
As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid.
@longcovidkids.bsky.social