COVID-19 Long-Haulers Discussion Group
@covidlonghaulers.bsky.social
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com
#MedSky
facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
#MedSky
facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
Pinned
Looking forward to it, @panagis.bsky.social!
Thank you, @panagis.bsky.social, for speaking with us! As always, we're appreciate you.
Pulmonary town hall, long COVID.
youtu.be/1OnfLSXZsEE?...
Pulmonary town hall, long COVID.
youtu.be/1OnfLSXZsEE?...
Pulmonary Town Hall: Panagis Galiatsatos, MD MHS, Johns Hopkins; Amanda Finley, COVID-19 LongHaulers
YouTube video by COVID Long Haulers
youtu.be
September 22, 2025 at 12:55 PM
Thank you, @panagis.bsky.social, for speaking with us! As always, we're appreciate you.
Pulmonary town hall, long COVID.
youtu.be/1OnfLSXZsEE?...
Pulmonary town hall, long COVID.
youtu.be/1OnfLSXZsEE?...
Reposted by COVID-19 Long-Haulers Discussion Group
New Long Covid policy paper from Norway outlines knowledge gaps and lessons learnt for developing preparedness for future pandemics.
Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues.
www.nordforsk.org/2025/knowled...
Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues.
www.nordforsk.org/2025/knowled...
February 3, 2025 at 4:35 PM
New Long Covid policy paper from Norway outlines knowledge gaps and lessons learnt for developing preparedness for future pandemics.
Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues.
www.nordforsk.org/2025/knowled...
Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues.
www.nordforsk.org/2025/knowled...
Reposted by COVID-19 Long-Haulers Discussion Group
Looking forward to it, @panagis.bsky.social!
August 28, 2025 at 3:20 AM
Looking forward to it, @panagis.bsky.social!
There's a level of COVID denial that led to 400 million people and over 7 million dead. I won't say I told you so when it happens to you -- I'm not cruel like that.
Good luck.
Good luck.
there's a level of covid paranoia that effectively wraps round into anti-vaxxer
It's always a little jarring about how much pushback I get to the extremely well-established fact that COVID deaths have fallen since 2022.
It's true that clinics stopped routine testing and case/hospitalization data sucks but death reporting is the same as it's always been. Vaccines work!
It's true that clinics stopped routine testing and case/hospitalization data sucks but death reporting is the same as it's always been. Vaccines work!
September 7, 2025 at 2:25 AM
There's a level of COVID denial that led to 400 million people and over 7 million dead. I won't say I told you so when it happens to you -- I'm not cruel like that.
Good luck.
Good luck.
Reposted by COVID-19 Long-Haulers Discussion Group
Conflating COVID activists with anti-vaxxers is ableist garbage. Long COVID has upended ~25 million American lives. Anti-vaxxers fuel outbreaks that cause preventable child deaths.
Hope this helps
Hope this helps
there's a level of covid paranoia that effectively wraps round into anti-vaxxer
It's always a little jarring about how much pushback I get to the extremely well-established fact that COVID deaths have fallen since 2022.
It's true that clinics stopped routine testing and case/hospitalization data sucks but death reporting is the same as it's always been. Vaccines work!
It's true that clinics stopped routine testing and case/hospitalization data sucks but death reporting is the same as it's always been. Vaccines work!
September 6, 2025 at 4:45 AM
Conflating COVID activists with anti-vaxxers is ableist garbage. Long COVID has upended ~25 million American lives. Anti-vaxxers fuel outbreaks that cause preventable child deaths.
Hope this helps
Hope this helps
Reposted by COVID-19 Long-Haulers Discussion Group
Long Covid plagues 400 million worldwide.
COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP.
archive.md/eZezE
COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP.
archive.md/eZezE
September 6, 2025 at 2:42 AM
Long Covid plagues 400 million worldwide.
COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP.
archive.md/eZezE
COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP.
archive.md/eZezE
Town Hall: Inside a Long COVID Clinic, with Julie Sullivan, program manager at the Brigham and Womens COVID Recovery Center, Boston.
youtu.be/1iskw3zBLpA?...
youtu.be/1iskw3zBLpA?...
Inside a Long COVID Clinic: Town Hall with Julie Sullivan, Brigham and Womens COVID Recovery Center
YouTube video by COVID Long Haulers
youtu.be
September 4, 2025 at 10:43 PM
Town Hall: Inside a Long COVID Clinic, with Julie Sullivan, program manager at the Brigham and Womens COVID Recovery Center, Boston.
youtu.be/1iskw3zBLpA?...
youtu.be/1iskw3zBLpA?...
Looking forward to it, @panagis.bsky.social!
August 28, 2025 at 3:20 AM
Looking forward to it, @panagis.bsky.social!
Reposted by COVID-19 Long-Haulers Discussion Group
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…
August 8, 2025 at 11:54 AM
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…
Reposted by COVID-19 Long-Haulers Discussion Group
🚨🚨 Help Needed! 🚨🚨
Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!
Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!
My friend Christine and her family are living in a tent -- a broken tent -- and no one should live in a tent unless they really really want to. Christine has a heart condition that COVID did not help. She just lost her father recently on top of losing their home.
www.amazon.com/hz/wishlist/...
1/3
www.amazon.com/hz/wishlist/...
1/3
Check out my list on Amazon
www.amazon.com
August 14, 2025 at 5:24 PM
🚨🚨 Help Needed! 🚨🚨
Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!
Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!
Reposted by COVID-19 Long-Haulers Discussion Group
BREAKING: Homelessness Minister Rushanara Ali has resigned after she was found to have evicted tenants and hiked rent to £4000 per month
More to follow
More to follow
August 7, 2025 at 7:25 PM
BREAKING: Homelessness Minister Rushanara Ali has resigned after she was found to have evicted tenants and hiked rent to £4000 per month
More to follow
More to follow
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…
August 8, 2025 at 11:54 AM
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…
Reposted by COVID-19 Long-Haulers Discussion Group
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaulers
August 8, 2025 at 11:52 AM
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaulers
"...you don’t need to provide the VA with any additional documentation to prove service connection. If you meet these criteria and are still experiencing long-term symptoms, you may be eligible to file a VA disability claim."
@fpwellman.bsky.social
themilitarywallet.com/covid-19-va-...
@fpwellman.bsky.social
themilitarywallet.com/covid-19-va-...
Covid-19 VA Disability Claims: What You Should Know
Veterans and military members with long covid or post-Covid conditions may qualify for VA disability benefits. Here's what you need to know.
themilitarywallet.com
August 4, 2025 at 2:15 AM
"...you don’t need to provide the VA with any additional documentation to prove service connection. If you meet these criteria and are still experiencing long-term symptoms, you may be eligible to file a VA disability claim."
@fpwellman.bsky.social
themilitarywallet.com/covid-19-va-...
@fpwellman.bsky.social
themilitarywallet.com/covid-19-va-...
Reposted by COVID-19 Long-Haulers Discussion Group
Reposted by COVID-19 Long-Haulers Discussion Group
Our long COVID advocacy group, Guerilla Advocacy, is hosting our next virtual rally tomorrow, Saturday July 19 at 6 pm CDT.
All are welcome!
Zoom link:
is.gd/4xkiMS
All are welcome!
Zoom link:
is.gd/4xkiMS
July 19, 2025 at 5:44 AM
Reposted by COVID-19 Long-Haulers Discussion Group
@morgfair.bsky.social Grayson and Hayden are on their way to grab their belongings that were left behind in Topeka. They're going to be okay. I told them I'm proud of them, and everything this Carrie Fisher meme says.
July 8, 2025 at 6:17 AM
@morgfair.bsky.social Grayson and Hayden are on their way to grab their belongings that were left behind in Topeka. They're going to be okay. I told them I'm proud of them, and everything this Carrie Fisher meme says.
Reposted by COVID-19 Long-Haulers Discussion Group
We would love to have you join us on Saturday! Space is limited, so register while you can.
Virtual Rally Saturday, 1 pm!
I've started hosting virtual rallies because I often can't make the live rallies. I have long COVID: I don't drive anymore, and going to live events is much harder now. I'm already wiped out from my job at the IRS.
1/5
www.mobilize.us/covidlonghau...
I've started hosting virtual rallies because I often can't make the live rallies. I have long COVID: I don't drive anymore, and going to live events is much harder now. I'm already wiped out from my job at the IRS.
1/5
www.mobilize.us/covidlonghau...
Guerilla Advocacy Round 3 · COVID Long-Haulers Against Fascism
GUERILLA ADVOCACY: Let's take back our country!
For 100 days, the world has watched Trump, Musk, and DOGE tear apart every fiber of the fabric that constitutes the United States. From mass firings in...
www.mobilize.us
May 2, 2025 at 4:47 AM
We would love to have you join us on Saturday! Space is limited, so register while you can.
Reposted by COVID-19 Long-Haulers Discussion Group
Today's Guerilla Advocacy rally with @clhagainstfascism.bsky.social @effies.bsky.social @gregggonsalves.bsky.social @chantzy.bsky.social @beingcharis.bsky.social and poetry by @kristinwrites.bsky.social
I hope everyone is able to take at least one nugget from this today.
youtu.be/JpYKvimTzXU?...
I hope everyone is able to take at least one nugget from this today.
youtu.be/JpYKvimTzXU?...
Guerilla Advocacy Rally 2
YouTube video by COVID Long Haulers
youtu.be
May 3, 2025 at 8:36 PM
Today's Guerilla Advocacy rally with @clhagainstfascism.bsky.social @effies.bsky.social @gregggonsalves.bsky.social @chantzy.bsky.social @beingcharis.bsky.social and poetry by @kristinwrites.bsky.social
I hope everyone is able to take at least one nugget from this today.
youtu.be/JpYKvimTzXU?...
I hope everyone is able to take at least one nugget from this today.
youtu.be/JpYKvimTzXU?...
Reposted by COVID-19 Long-Haulers Discussion Group
@covidlonghaulers.bsky.social FYI NY Lawmakers need to hear from real people, not billboards. Call now and say #NoNYMaskBan in the state budget!
⚡Join a phone zap this week: bit.ly/budget-mask-...
☎️ Call Anytime Toolkit:
⚡Join a phone zap this week: bit.ly/budget-mask-...
☎️ Call Anytime Toolkit:
Stop The Budget Mask Ban — Jews for Mask Rights
Join us in opposing anti-mask measures in New York state. Governor Hochul is trying to sneak a mask ban into the state budget. Call now and tell your friends to do the same!
bit.ly
April 13, 2025 at 10:57 PM
@covidlonghaulers.bsky.social FYI NY Lawmakers need to hear from real people, not billboards. Call now and say #NoNYMaskBan in the state budget!
⚡Join a phone zap this week: bit.ly/budget-mask-...
☎️ Call Anytime Toolkit:
⚡Join a phone zap this week: bit.ly/budget-mask-...
☎️ Call Anytime Toolkit:
Reposted by COVID-19 Long-Haulers Discussion Group
Thank you so much for being there, @metrauxjulia.bsky.social!
Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.
Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.
Not all “Hands Off” events were in-person. I attended two virtual events centering chronically ill and disabled people for @motherjones.com, who are terrified about attacks to Medicaid, Section 504, research funding, education and more. www.motherjones.com/politics/202...
For some disabled protestors, “Hands Off” went virtual
"We know we have to teach everyone how to include us."
www.motherjones.com
April 6, 2025 at 5:34 AM
Thank you so much for being there, @metrauxjulia.bsky.social!
Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.
Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.
Reposted by COVID-19 Long-Haulers Discussion Group
Register below!
I'm hosting a virtual rally on Saturday at 2 pm EDT with Hands Off! COVID Long-Haulers Against Fascism, my new group (link in the comments) will be sharing experiences of how we have been impacted, how further impacts will have serious, even life-threatening consequences,
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Hands Off! COVID Long-Haulers Fights Back · Hands Off
**Donald Trump and Elon Musk think this country belongs to them.** We are fighting back!
They're taking everything they can get their hands on—our health care, our data, our jobs, our services—and da...
www.mobilize.us
April 3, 2025 at 11:57 PM
Register below!
Please help Brittany, a homeless COVID long-hauler in Florida and mom to a toddler.
Thanks!
Thanks!
Hey, y'all. I need help for one of the families I evacuated during Milton. Brittany Littleton is in a Port Charlotte motel but will have to sleep in her car starting tomorrow. She and her husband have a 2-year-old daughter, and she has long COVID.
1/3
spot.fund/nj7nsf9sc
1/3
spot.fund/nj7nsf9sc
Click here to support Amanda Finley's story *AHomeForBrittany
*spotfund is the easiest place to create beautiful and free online fundraisers. It takes just minutes to start raising money today.
spot.fund
January 21, 2025 at 2:55 PM
Please help Brittany, a homeless COVID long-hauler in Florida and mom to a toddler.
Thanks!
Thanks!
Filing for Disability, #3, with Beryl Terrell, EDPNA, BLH Disability.
#Disability #SSDI #longCOVID #ChronicIllness
youtu.be/e4e2P1N3K1o?...
#Disability #SSDI #longCOVID #ChronicIllness
youtu.be/e4e2P1N3K1o?...
Filing for Disability: Town Hall with Beryl Terrell, EDPNA; COVID-19 Long-Haulers Discussion Group
YouTube video by COVID Long Haulers
youtu.be
January 18, 2025 at 7:23 PM
Filing for Disability, #3, with Beryl Terrell, EDPNA, BLH Disability.
#Disability #SSDI #longCOVID #ChronicIllness
youtu.be/e4e2P1N3K1o?...
#Disability #SSDI #longCOVID #ChronicIllness
youtu.be/e4e2P1N3K1o?...