COVID-19 Long-Haulers Discussion Group
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covidlonghaulers.bsky.social
COVID-19 Long-Haulers Discussion Group
@covidlonghaulers.bsky.social
1.7K followers 840 following 160 posts
Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com
#MedSky

facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
Posts Replies Media Videos
covidlonghaulers.bsky.social
White background with blue text and anatomic heart with flowers. Text reads COVID-19 long haulers. Inside a long COVID clinic. Town Hall. With Julie Sullivan program manager COVID recovery center Brigham and Womens. Thursday September 4 at 2:30 pm EDT. Facebook dot com slash COVID 19 long haulers. Replay at YouTube dot com slash at COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com
August 28, 2025 at 10:43 PM
covidlonghaulers.bsky.social
Looking forward to it, @panagis.bsky.social!
White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com
August 28, 2025 at 3:20 AM
covidlonghaulers.bsky.social
Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…
Green background with green Lily pads and pink lotus flower blooming.
August 8, 2025 at 11:54 AM
covidlonghaulers.bsky.social
Coming up this Saturday at 3 pm EST! Never been to one of our town halls before? You can watch the live stream at Facebook.com/covid19longhaulers and catch it later at YouTube.com/@covidlonghaulers

We'll take your questions about filing for #disability with advocate Beryl Terrell, EDPNA.
Vivid salmon colored flower with green stem close up. Text: covid-19 Long-Haulers. Town Hall. Filing for Disability. Beryl Terrell EDPNA. 3 pm EST. November 2 2024. Submit all questions to covid long haulers at gmail dot com. Facebook dot com slash COVID 19 long haulers. YouTube dot com slash at COVID long haulers
October 30, 2024 at 11:19 AM
covidlonghaulers.bsky.social
What questions do you have about #neurology in #longcovid? Join us for a town hall with @daniellebeckman.bsky.social on Mon, Nov 11. Please submit your questions in advance to covidlonghaulers@gmail.com.

Excited for this!

Live: Facebook.com/covid19longhaulers
Later: YouTube.com/@covidlonghaulers
Pink lotus flower in bloom in a pond. Event info. Time TBA.
October 24, 2024 at 1:51 PM
covidlonghaulers.bsky.social
What questions do you have about filing for #disability? Join us in a conversation with Beryl Terrell, EDPNA, on Saturday, November 2, at 3 pm EDT. Please submit your questions to covidlonghaulers@gmail.com.

Live: Facebook.com/covid19longhaulers
Later: YouTube.com/@covidlonghaulers

#longcovid
Bright salmon colored flower with event info.
October 23, 2024 at 11:27 PM
covidlonghaulers.bsky.social
Join us on Tues Dec 10 at 5:30 am EST (US) for a town hall discussion on immunology and long COVID with Danny Altmann and Stephen Griffin.

Please submit all questions in advance to covidlonghaulers@gmail.com.

Live: facebook.com/covid19longhaulers
Later: YouTube.com/@covidlonghaulers
Image of pine trees in snow. Text: COVID 19 long haulers. YouTube dot com slash at COVID long haulers. Facebook dot com slash COVID 19 long haulers. Town Hall. Immunology. Stephen Griffin, University of Leeds, Danny Altmann, imperial college London. 5:30 am EST. December 10 2024. Submit all questions to covid long haulers at gmail dot com
October 17, 2024 at 10:11 PM
covidlonghaulers.bsky.social
What questions do you have about filing for disability? Join us in a conversation with Beryl Terrell, EDPNA, on Saturday, November 2, at 3 pm EDT. Please submit your questions to covidlonghaulers@gmail.com.

Live: Facebook.com/covid19longhaulers
Later: YouTube.com/@covidlonghaulers
Bright salmon colored flower with event info.
October 17, 2024 at 5:48 PM
covidlonghaulers.bsky.social
Join us Dec 14 at 5:00 pm EST for our town hall on combatting disinformation with Natalia Solenkova, Taylor Nichols, and Nick Sawyer.

We'll discuss what disinformation and misinformation are, how to spot it, what to do.

Submit questions: covidlonghaulers@gmail.com.

YouTube.com/@covidlonghaulers
Image of white chairs with sunflower decorations and event info
November 25, 2023 at 4:55 PM
covidlonghaulers.bsky.social
Image: white family at the dinner table eating a traditional thanksgiving meal. Text: Please don't kill your mom with your covid. Please don't disable your sister with long COVID. And tuberculosis! Hacked Jandy
November 20, 2023 at 7:15 PM
covidlonghaulers.bsky.social
Yellow background with medium brown skinned person with mustache and goatee and no hair, hand on chin. Text: I have an unhealthy relationship with the floor thanks to long COVID
November 19, 2023 at 4:29 PM
covidlonghaulers.bsky.social
Texts are currently down, but the phone line is still fine. If you have #longCOVID and need to talk to someone who gets it, the Brooke Line is answered 24/7 by other long-haulers.
Brooke Line. Support for long-haulers by long-haulers. 1 844 276 6530. Call or text 24 7. www dot Brooke Line dot one. www dot patreon dot com slash Brooke Line
November 9, 2023 at 2:43 PM
covidlonghaulers.bsky.social
October 26, 2023 at 11:58 PM
covidlonghaulers.bsky.social
I've had a good run.
Life alert bracelet that says just throw me in the trash
October 25, 2023 at 4:40 PM
covidlonghaulers.bsky.social
October 25, 2023 at 7:59 AM
covidlonghaulers.bsky.social
Hey, #COVID long-haulers. If you are in the US or Canada and need to talk to someone who gets it, you can call or text the Brooke Line 24/7 and be connected with another long-hauler. If you are in crisis, please call 988.

1.844.BROOKE.0
1.844.276.6530

#MentalHealthMatters

www.BrookeLine.one
Dark blue background with red poppies. Text: Brooke Line. 1 844 276 6530. Call or text 24 7. Support for long-haulers by long-haulers. www dot Brooke Line dot one. www dot patreon dot com slash Brooke Line
October 24, 2023 at 7:17 PM
covidlonghaulers.bsky.social
Join us Fri, Oct 27, 6:00 pm EST for a discussion on
Pandemics Past, Present, Future with Vipul Shah, Arijit Chakravarty, Joaquín Beltrán, John Alderete. Please submit all questions to covidlonghaulers@gmail.com.

Live: facebook.com/covidstronghaulers
Later: youtube.com/@covidlonghaulers
Image of pink lotus flower on dark green background. Text with event info
October 24, 2023 at 4:41 AM
covidlonghaulers.bsky.social
Whether you know it or not, at this point, literally everyone knows someone with long COVID. You may not know, but you do. When you help us, you are helping them as well. Perhaps they don't yet know what they're dealing with, or maybe they don't feel comfortable disclosing. But they are there.
8/10
Dark blue background with yellow flowers. Brooke Line. Support for long-haulers by long-haulers. 1 844 276 6530. Call or text 24 7. www dot Brooke Line dot one. www dot patreon dot com slash Brooke Line
October 23, 2023 at 1:05 AM
covidlonghaulers.bsky.social
they were there in less than ten minutes. I texted her cell phone as well, and her husband responded. Not knowing what their relationship was like at the time, I gave minimal answers. They had a good summer together as a family. And on August 27, there was no note, no post. We lost her.

3/10
Screen shot of text messages from Brooke Hurley to OP: Sunday June 5 2022: hey Brooke. You told me to call if I needed anything. I need you to stay with us. We all do. It's Amanda. Keep fighting with us. Response: hi Amanda. I wanted to reach out and thank you for calling for help for me Sunday night.
October 23, 2023 at 12:50 AM
covidlonghaulers.bsky.social
Suicide in our community is not about wanting to die but about being so sick with no assistance, no treatment. The lives we knew are over.

On June 4, 2022, one of my long-haulers submitted a post. She had attempted to take her life. I quickly called 911, and...

2/10
Dark blue background with yellow flowers. Brooke Line. Support for long-haulers by long-haulers. 1 844 276 6530. Call or text 24 7. www dot Brooke Line dot one. www dot patreon dot com slash Brooke Line
October 23, 2023 at 12:44 AM
covidlonghaulers.bsky.social
TRIGGER WARNING: suicide

Two years ago on the heels of several suicides in the long COVID community, I started a support line that can be called or texted 24/7, and the caller is connected to another long-hauler, someone who understands what they're going through.

1/10
Dark blue background with yellow flowers. Brooke Line. Support for long-haulers by long-haulers. 1 844 276 6530. Call or text 24 7. www dot Brooke Line dot one. www dot Patreon dot com slash Brooke Line
October 23, 2023 at 12:39 AM
covidlonghaulers.bsky.social
To enroll in this study, you must reside in Missouri or Illinois. You do not need to be in St. Louis or Chicago to participate, but staff are available at both locations.

For more information, please call Angie or Aris at 314-747-8906.

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October 22, 2023 at 7:25 PM
covidlonghaulers.bsky.social
COVID long-haulers can call or text 24/7 to be connected with another long-hauler -- an understanding ear. Currently available in the US and Canada, but with funding, it will be opened up internationally. Please visit our Patreon!

Patreon.com/BrookeLine
October 21, 2023 at 8:11 PM